Jennie Jacques @JennieJacques1
avid reader 📚 lover of science 🧪 🧬 actress 🎭 & writer ✍️ #disabilityswareness 🌻 #mecfs 💙 @bake4mecfs bake4mecfs.com Joined October 2013-
Tweets3K
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Followers19K
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Following412
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Likes4K
I’ll def be taking part in this! Thank you @RorPreston for creating 💙 Screen shot of example messages for #MECFS #pwme & their carers too! 👇 crunchme.notion.site/ME-Awareness-D…
I’ll def be taking part in this! Thank you @RorPreston for creating 💙 Screen shot of example messages for #MECFS #pwme & their carers too! 👇 crunchme.notion.site/ME-Awareness-D… https://t.co/gAkERyE75H
Brilliant to see people getting things ready for #MEAwarenessDay & the #DearMinister postcard campaign Lots of time still to go (12th May), so no rush - when fits with your spoons 😌 crunchme.notion.site/ME-Awareness-D…
Brilliant to see people getting things ready for #MEAwarenessDay & the #DearMinister postcard campaign Lots of time still to go (12th May), so no rush - when fits with your spoons 😌 crunchme.notion.site/ME-Awareness-D…
Thanks to my sis for getting in on the #DearMinister act for #MEAwarenessDay 💌
Thanks to my sis for getting in on the #DearMinister act for #MEAwarenessDay 💌
Transcript for above video: Okay, so update. After we threatened the hospital with a barrister, suddenly they assess her and Carla has capacity and they back off from doing the lumbar puncture for now. There's going to be a meeting tomorrow with 12 different consultants and…
"We win this time" - UPDATE on #SaveCarlasLife it's amazing what happens when you have a prominent barrister on speed dial... #ExposeMENow
Looking forward to leading this important debate on M.E. today. Such an important issue which impacts so many families across the country. Much more needs to be done.
Looking forward to leading this important debate on M.E. today. Such an important issue which impacts so many families across the country. Much more needs to be done.
Transcript of above video: Hi everyone, okay so we have an update about Carla. They did not end up doing the MRI, CT and EEG yesterday as promised. They were supposed to be doing it today, but the family were told early this morning that that was now not going ahead. Suddenly…
URGENT UPDATE #SaveCarlasLife Psychiatrists are some of the most narcissistic, toxic people going. It's all suddenly kicked off today #ExposeMENow WATCH:
I’m already brainstorming the next theme! @bake4mecfs * Thank you 🙏 for everyone who has helped! * Look forward to choosing star baker tomo @RealAlyssaS @HistoryVikings @BakingExplorer 💫 #MECFS
I’m already brainstorming the next theme! @bake4mecfs * Thank you 🙏 for everyone who has helped! * Look forward to choosing star baker tomo @RealAlyssaS @HistoryVikings @BakingExplorer 💫 #MECFS
We’ll be closing this round of #baking today - so judges @JennieJacques1 @RealAlyssaS @HistoryVikings & @BakingExplorer can choose star 🌟 baker! Tag 🏷️ us before midnight to be included else see ya next round! * bake4mecfs.com
Derry Now: 'Talented County Derry Triathlon family’s sporting fundraiser following son's devastating ME diagnosis' 'Irish triathlete James Walton saw his promising sports career come to an abrupt end after being diagnosed with Myalgic Encephalomyelitis..' derrynow.com/news/home/1489…
🚨 Reminder 🚨 Tomorrow, May 1, Sir @sajidjavid MP will be leading a Westminster Hall debate in the Houses of Parliament, 16.30-17.30 You can watch the debate live on Parliament TV: ow.ly/wxan50RsgYs
Poor Merryn later died (2017), one of the countless unnecessary #MEcfs deaths. Our patient population continues to be abused, tortured, and killed. #BringMillieHome #SaveCarlasLife Thank you to @JennieJacques1 for her work in bringing the plight of #SevereME to the fore. 🙏
Poor Merryn later died (2017), one of the countless unnecessary #MEcfs deaths. Our patient population continues to be abused, tortured, and killed. #BringMillieHome #SaveCarlasLife Thank you to @JennieJacques1 for her work in bringing the plight of #SevereME to the fore. 🙏
4470 signatures! Thanks all for signing, sharing, and supporting this campaign. Onwards and upwards. organise.network/actions/petiti… #pwME #MEcfs #SevereME
After I got sick w #MEcfs in 2014 I never sold my #triathlon bike, it represented hope that I'd get healthy again. But this past weekend I sold it. It feels like another #loss but I promised myself if I ever get healthy again I'll reward myself w a brand new tri bike.
Bhupesh K Prusty @BhupeshPrusty
15K Followers 68 Following A passionate molecular virologist who believe in patient oriented scientific research. Using viruses to understand human existence. Science is for society.
Christoph Ströck @cstroeckw
7K Followers 455 Following Soon, people will look back in disbelief at what has happened to patients with #MECFS and #PAIS | @weandmecfs co-founder
Adam @ABrokenBattery
6K Followers 1K Following Severe ME patient currently on a 10% battery, the gas goes out more than I do. I also compile ME/CFS Awareness videos.
davidtuller @davidtuller1
10K Followers 2K Following Senior Fellow in Public Health and Journalism, Center for Global Public Health, UC Berkeley. My academic position is largely funded by donations from patients.
ME/CFS News @MECFSNews
15K Followers 713 Following News, interesting information and commentary on ME/CFS. My bluesky account is @mecfsnews.bsky.social Looking for paid ME/CFS related work.
Dan Wyke 🦠➡️�.. @Dan_Wyke
13K Followers 6K Following M.E. patient, advocate, person-centred counsellor (see link), recovering poet
Anil van der Zee © @AnilvanderZee
9K Followers 825 Following Former professional ballet dancer | Bed/sofa-bound M.E. patient | Using Twitter to raise awareness for #MyalgicE | #art2cureME #pwme #millionsmissing
Lizzy H @hopefullizzy
6K Followers 3K Following 29y/o creative, with complex health issues🤞🏼ME/CFS biomedical research. Passion for the wild, for kindness, and helping all people have a voice. Co-author✨
Carole Bruce @CaroleBruce17
6K Followers 5K Following Severe #ME for 32+ years. Ex- psychotherapist. Daughter, severe ME 38 years. Eldest son, MS. Apart from that ❤️Art, people,nature, books, some music.
Katy B @KatyBruce108
5K Followers 5K Following Myalgic Encephalomyelitis - M.E + POTS 38 years Donor to the @mecfsbiobank & @DecodeMEstudy Please watch https://t.co/rPfzhZQ6po #pwME
Billy Hanlon @bhanlon15
12K Followers 11K Following Director of Advocacy & Outreach, Minnesota ME/CFS Alliance | Long COVID Ally
Dr Asad Khan FRCP FRA.. @doctorasadkhan
28K Followers 3K Following Lung Dr on pause since Nov 20 #LongCovid #POTS #MCAS #HSD #pwME #Aotearoa Views my own; Retweets≠endorsements #freepalestine #TeamClots ZIONISTS WILL BE BLOCKED
Open Medicine Foundat.. @OpenMedF
14K Followers 1K Following OMF is fundraising to support open, collaborative research to find effective treatments and diagnostic markers for ME/CFS, Long COVID, and related diseases.
Naomi Harvey PhD #Wea.. @Naomi_D_Harvey
15K Followers 4K Following Zoologist. She/her. 22yrs with ME/CFS. Pro-vax but vaccine injured. Life on pause (views my own - unemployed) ♿️ https://t.co/YeMrEWwEg5
Agy Lena 🏳️�.. @agy_lena
9K Followers 290 Following Ex athlete, biker, climber, 1st class biomedicine grad. Entire life lost 2017 post viral ME/CFS. C💉injured 2021 thus turned from pro to anti vax
S Blitshteyn MD, FAAN.. @dysclinic
20K Followers 1K Following Neurologist, Director of #Dysautonomia Clinic, Clinical Associate Professor @Jacobs_Med_UB. Trained @MayoClinic #LongCovid #POTS #EDS, tweets🚫med advice
ME Association @MEAssociation
20K Followers 2K Following We raise funds for medical research into ME/CFS and provide support, information & campaign for people in the UK. RTs do not necessarily mean endorsement.
Eliza Charley | Actre.. @ElizaCharley
6K Followers 2K Following 🎥 ✨Australian Actress in Italy. Care about #mecfs #longcovid #climate #dv #auspol 🎭co-founder Mi Casa Theatre 📚Words in SoulTread & RoutledgePress She/her
Dr. Daniel Loy @loy_daniel_de
6K Followers 1K Following Ehemann, Jurist. #MECFS. Team #SIGNforMECFS. Team #GOfundMECFS. One of the #MillionsMissing.
Paula Knight @Paula_JKnight
6K Followers 4K Following Graphic memoir THE FACTS OF LIFE (2017) Kidlit books x3 author. Disabled. Bedbound 5.5yr v severe #pwME Submerging writer. Total Bedass. Print Disabled she/her
Katie Anderson-Morris.. @KatieA_M
3K Followers 2K Following Historical novelist, book lover & freelance writer/editor with ME/CFS. Madeleine Milburn Agency mentee ‘22.
I despair. @2plus2iswhat
87 Followers 230 Following
NoMedal4ME @NoMedal4ME
3 Followers 43 Following Just like all the healthy people who 'don't have time to be sick', neither do I; unfortunately, though, I don't have the health to be well. ME/CFS for 28 years.
Andréa Andersson @som_andrea_
75 Followers 531 Following Kommunikatören som pga neurologisk sjukdom fick kliva in genom fönstret och försvinna. Hoppas på forskningen och mina (förhoppningsvis) vilande energidepåer.
camilo naranjo @canoboy1286
59 Followers 840 Following
Mary Quigley @maryeilmicdom
2K Followers 2K Following 'Pleasant lady lawyer' | Forced into retirement by complex chronic illness | Sport, history, language and humour. #Celtic 🍀
sarah @saoirse126
36 Followers 94 Following
les flammes obscures @obscureflames
209 Followers 713 Following
Speedtrial @Sp33dtrial5
36 Followers 61 Following
MOFASSEL NAWAZ @NawazMofassel
37 Followers 305 Following
Dan Edwards 🇺🇸�.. @dobro_dan
744 Followers 703 Following Heavily invested in #Uranium and #Bitcoin. Science background, but I tweet about stocks and trading a lot. https://t.co/GrXd7aJbIq
🐾🐾🐾loubylu @clearlu366
1K Followers 5K Following Tweeting approx 6 weeks.RegisteredTwitter2014 ,💕🐾https://t.co/LcaQeN84cn…💕Kindness
ME/CFS Skeptic @mecfsskeptic
2K Followers 395 Following Exploring the history of psychosomatic medicine
Maria Pierre @EsperanzaInter2
454 Followers 3K Following Person with MEcfs. Interfaith minister. Spiritual director. Proud Puerto Rican
Jocelyn Murray @jocelyn_mktg
742 Followers 1K Following Helping businesses boost their brand, generate leads and heighten their visibility with targeted marketing. Constant Contact Solution Provider.
Rev. Maria Pierre @losdocepasos
1K Followers 5K Following ME (Chronic Fatigue Syndrome) Warrior, Interfaith Minister-Retired, A Course in Miracles Teacher, Encourager, Advocate. TCM lover
Obi Offorjindu @Obi_Offorjindu
215 Followers 3K Following Finally getting this Twitter thing. Enjoy THFC, UFC.
NZ @NZ_fund_MECFS
246 Followers 554 Following Anerkennung. Versorgung. Forschung. Jetzt! #OpferDerStaatsgewalt #LongCovid #MECFS #PostVac #NotRecovered #MillionsMissing #BC007 https://t.co/VVu3MaZ2y9
Luce @LucevsME
1 Followers 20 Following Housebound with ME/CFS, along with many other things. ND. she/her 🏳️🌈♿️
Alice Fricker💘 @FrickerAlice
764 Followers 292 Following 19, Bedridden for 8yrs with #VerySevereME #hEDS #SFPN #MCAS #PoTS Chronic Insomnia & Chronic Bladder condition. Mother helps run account.
Dave 💙 @SHAREWyatt
1K Followers 2K Following Community action, Civic Mission, Co-creation. Views my own. @CAERHeritage @SHAREwithSchool @EtPPathway.
Martin Paul @MartinPaulB
130 Followers 1K Following English/German hybrid. Affinity towards the piano, chess, F. Kafka, art, poker, elephants. (Secret public diary)
Linda Griffin Author @LindaGriffinA
4K Followers 5K Following I enjoy the three R's--reading, writing, and research--and have nine books available @WildRosePress. No DMs please.
Bee 🐝🌼✨ @elbecp
1K Followers 4K Following Public Health student 🇦🇺 🇫🇮 Plant person. AuDHD. Chronically curious. Alphabet soup connoisseur. ♐⬆️ | ♃ in ♉ @elbecp.bsky.social
1Clearhead @1Clearhead
2K Followers 4K Following What's going on in your head? Nobody needs to suffer. Take #TimetoTalk, use #Mindfulness or find something here that works for you. ..Founder 👉@HenshallM.
Marit Skotheim @MaritSkotheim
2K Followers 3K Following Society, politics, human rights, science, research. MSc ChemEng. Myalgic encephalopathy (ME) since 2010. Mainly Norwegian and English tweets. Whistleblower.
Debbie @mistydeb_1
360 Followers 319 Following Love reading and creating when I can. Life with ME is challenging.
Claire Hirst @claire_hir24347
21 Followers 111 Following Raising awareness and charting my journey with ME/CFS
John michael @michael655john
664 Followers 4K Following no matter what condition you are in,always be happy with because life is too shot to be sad.
The Brain Charity @TheBrainCharity
16K Followers 4K Following We help people with ALL neurological conditions to live longer, healthier, happier lives. 🧠 Practical advice 🧠 Emotional support 🧠 Championing neurodiversity
RomanTorpedo @TorpedoRom77510
3 Followers 123 Following
Mary Broadbent @Mary2bOptim
31 Followers 63 Following Person with M.E. and advocate. Ex Positive Dog Trainer before becoming more seriously ill in June 2022.
Gidske @IngunnGidskeSth
350 Followers 435 Following Sosiolog, lesar, skrivar, draumar. Ein av #millionsmissing sidan 2014 #meawareness #MECFS ho/henne she/her
G R A C E 🌸 @withgrace___
89 Followers 292 Following 🥀 severe ME/CFS mama to baby son ❤️ heart full, body broken 🌻 INFJ
Sherlick @Sherlick01
6 Followers 362 Following
Marc Padilla @marcspadilla
15 Followers 141 Following
Cat Fraser @catsocialintel
3K Followers 5K Following Energy Impaired, Global Health +Business. Ecosystem Builder @laboflivedexp. @TheWHN Untreated #pwME #pwLC #POTs #LongCovid #green #futures #ai #analyst #writer
Heather Short @HeatherSho60818
0 Followers 4 Following
JanieGirl @JanieGirl01
125 Followers 736 Following
Nic McPaul @NicMcpaul
198 Followers 449 Following Life on pause since 2012. PWME PASC MCAS POTS HEDS CSU. Raising Awareness & advocating when health allows 🏴
Sharon Robinson @Robinson2Sharon
7 Followers 30 Following
Arthur @unreal_arthur
9 Followers 165 Following
Fernando @Fernand29766341
25 Followers 364 Following I'm a contractor🚜 from Ukraine 🇺🇦 living in United States 🇺🇸 nature lover 🦍🪜🦒
John Dutton @JohnDutton67754
36 Followers 363 Following
Jeffrey Sutton @Nemesis021588
25 Followers 39 Following
Bhupesh K Prusty @BhupeshPrusty
15K Followers 68 Following A passionate molecular virologist who believe in patient oriented scientific research. Using viruses to understand human existence. Science is for society.
Janet Dafoe @JanetDafoe
15K Followers 220 Following Caregiver for very severe ME/CFS son, advocate and fundraiser for End ME/CFS PROJECT at OMF and CFSRC at Stanford. The rest of my life is on hold...
Adam @ABrokenBattery
6K Followers 1K Following Severe ME patient currently on a 10% battery, the gas goes out more than I do. I also compile ME/CFS Awareness videos.
davidtuller @davidtuller1
10K Followers 2K Following Senior Fellow in Public Health and Journalism, Center for Global Public Health, UC Berkeley. My academic position is largely funded by donations from patients.
ME/CFS News @MECFSNews
15K Followers 713 Following News, interesting information and commentary on ME/CFS. My bluesky account is @mecfsnews.bsky.social Looking for paid ME/CFS related work.
Anil van der Zee © @AnilvanderZee
9K Followers 825 Following Former professional ballet dancer | Bed/sofa-bound M.E. patient | Using Twitter to raise awareness for #MyalgicE | #art2cureME #pwme #millionsmissing
Prof. Akiko Iwasaki @VirusesImmunity
220K Followers 2K Following We study antiviral immunity and viral disease pathogenesis. #COVID19 #longCOVID #vaccines @HHMINEWS @YaleIBIO @YaleMed @YaleCII President of @ImmunologyAAI
Resia Pretorius @resiapretorius
27K Followers 218 Following Distinguished Prof: Physiological Sciences, Stellenbosch Univ, South Africa; Honorary prof: Univ of Liverpool Research: coagulation, inflammation
Billy Hanlon @bhanlon15
12K Followers 11K Following Director of Advocacy & Outreach, Minnesota ME/CFS Alliance | Long COVID Ally
Dr Asad Khan FRCP FRA.. @doctorasadkhan
28K Followers 3K Following Lung Dr on pause since Nov 20 #LongCovid #POTS #MCAS #HSD #pwME #Aotearoa Views my own; Retweets≠endorsements #freepalestine #TeamClots ZIONISTS WILL BE BLOCKED
Whitney Dafoe @DafoeWhitney
10K Followers 38 Following Severe ME/CFS patient and advocate. Photographer, filmmaker, artist, creative. Sick since 2004, bedridden since 2013. Never. Giving. Up. ✊
Open Medicine Foundat.. @OpenMedF
14K Followers 1K Following OMF is fundraising to support open, collaborative research to find effective treatments and diagnostic markers for ME/CFS, Long COVID, and related diseases.
Putrino Lab @PutrinoLab
34K Followers 382 Following We make people (and technology) better at Mount Sinai. Opinions are my own.
Michael VanElzakker @MBVanElzakker
10K Followers 290 Following Neuroscience researcher @MGHMartinos / @HarvardMed and @PolyBioRF, researching #MEcfs, #LongCOVID, & #PTSD. (all opinions are my own)
Agy Lena 🏳️�.. @agy_lena
9K Followers 290 Following Ex athlete, biker, climber, 1st class biomedicine grad. Entire life lost 2017 post viral ME/CFS. C💉injured 2021 thus turned from pro to anti vax
Binita Kane @BinitaKane
31K Followers 4K Following #LongCovid interested Lung Doctor | [email protected] | YouTube channel @LCCWYCD | Co-founder #southasianheritagemonth @SAHM_UK |
S Blitshteyn MD, FAAN.. @dysclinic
20K Followers 1K Following Neurologist, Director of #Dysautonomia Clinic, Clinical Associate Professor @Jacobs_Med_UB. Trained @MayoClinic #LongCovid #POTS #EDS, tweets🚫med advice
Natalia @NataliaHodgins
7K Followers 1K Following Disabled writer with words in @Refinery29AU, @ABCNews, @PublicHerald | Activist | Feminist | MECFS | Follow on IG - same handle
Dysautonomia Intl. @Dysautonomia
26K Followers 344 Following Dysautonomia International is a 501(c)(3) non-profit that raises funds for research and promotes awareness of disorders of the autonomic nervous system.
Patient-Led Research .. @patientled
27K Followers 615 Following Patient-led research and advocacy for #LongCovid and infection-associated chronic conditions!
The Brain Charity @TheBrainCharity
16K Followers 4K Following We help people with ALL neurological conditions to live longer, healthier, happier lives. 🧠 Practical advice 🧠 Emotional support 🧠 Championing neurodiversity
WE&ME Foundation @weandmecfs
3K Followers 50 Following WE&ME Foundation funds and supports collaborative research projects to combat #MECFS and related disorders.
Seema Malhotra MP💙 @SeemaMalhotra1
28K Followers 4K Following Labour & Co-op MP for Feltham & Heston. Shadow Minister for Skills. Co-Founder & President of the Fabian Women’s Network.
Hannah Sharland @h_sharland
518 Followers 2K Following Staff writer for the Canary. Covering climate and ecological crisis. Climate activist. Here to learn about climate justice. She/her. #ME #CFS
Wilhelmina Jenkins @minadjenkins
2K Followers 1K Following
Nicola Jeffery @NicolaCJeffery
5K Followers 5K Following 'Behind that loud-mouthed journalist @MrTopple is an even louder-mouthed woman!' Mum, Activist, #ChronicIllness warrior! #BLM! Standing up to #Classism!
ITV Granada TV @ITVGranadaTV
634 Followers 0 Following ITV's Granada TV - contemporary dramas, cool comedy, cutting-edge reality, celebrity talk & entertainment shows. Subscribe in HK on now TV channel 517.
MorecambeBayNHSTrust @UHMBT
15K Followers 7K Following This account is monitored by the UHMBT Communications team Mon-Fri 9am-5pm. Got a patient related query? Contact Patient Relations on 01539 716621. #TeamUHMBT
@TheChronicCollaborat.. @TheChronicColab
4K Followers 2K Following A resistance movement for chronically ill & disabled people. Joining the dots between conditions. Resisting psychologisation. Fighting for justice & equality.
Researcher.Life @ResearcherLife_
3K Followers 523 Following A brand by @Cactusglobal Researcher Life is a subscription-based platform offering tools and services to help researchers thrive at every step of their journey.
Alice Woolf @me_awareness
3K Followers 792 Following Ill w/ severe Myalgic Encephalomyelitis. Neuroimmune disease. Bedridden/housebound. Interested in raising awareness of what M.E. is (& isn't). London, UK
CICs @CICRegulator
3K Followers 2K Following Office of the Regulator of Community Interest Companies (CICs) regulates & supports the growth of CICs in the UK. We respond to tweets Monday to Friday 9am-4pm
The Science Haven @TheScienceHaven
17K Followers 104 Following We are a 501c3 nonprofit unlocking the universe of science by making complex science accessible, engaging, and meaningful for all. Welcome to The Science Haven!
Jessica | Biomedicine.. @jessicaalanas
25K Followers 496 Following I help you identify, fix and overcome Mold Illness. Lover of peptides and bioregulators. Board certified. Take the first step ↓ #BTC
UniteToFight2024 @U2Fight_World
3K Followers 121 Following 100% crowdfunded LC & ME/CFS conference project. community-driven. independent. global.
Martin Picard @MitoPsychoBio
10K Followers 754 Following Mitochondrial Psychobiology. Our team studies energy, mind-body communication, mitochondrial diseases, aging, and the science of health.
Jenny Wilson @JennyWi04810918
172 Followers 243 Following
Daniel | ScienceSocks.. @ScienceSocks
3K Followers 2K Following Orbit in style with science socks, space jewelry, and beyond. Stellar gifts for scientists, engineers, and astronomy lovers.
Emma Donohoe @EmmaDonohoe3
437 Followers 213 Following MPhil Graduate University of Cambridge | Anthropologist | Presenter | BBC M.E. and ME, BBC Disabilitease Owning The Stage
Dr Elisa Perego @elisaperego78
34K Followers 2K Following #LongCovid | Covid || researcher || inequality, health, disability in present | past || patient-led research || medicine history || MA PhD | ≠ MD || views own
Etta Loveday @EttaLovedayME
356 Followers 173 Following She/Her, Rising awareness for people living with severe/very severe ME! #ME #SevereME
NIH @NIH
1.7M Followers 323 Following Official account of the National Institutes of Health. NIH...Turning Discovery Into Health®. Privacy Policy: https://t.co/wOGwZ3huRk Engagement ≠ endorsement
Jeannette Burmeister @JKBurmeister
2K Followers 728 Following Attorney (California, formerly licensed in Berlin, Germany), successfully sued NIH + HHS for ME-related FOIA violation (incl. all of $140k attorneys' fees)
Stephen Morgan MP @StephenMorganMP
20K Followers 500 Following Member of Parliament for Portsmouth South ⚓️ Shadow Minister for Rail | #Pompey born and bred @UKLabour | ✉️ [email protected]
John McDonnell MP @johnmcdonnellMP
338K Followers 8K Following Labour MP for Hayes and Harlington and former Shadow Chancellor. Join the Labour Party here: https://t.co/vbWxb5FqMM
Tess Falor, Ph.D. | @.. @tessfalor
9K Followers 5K Following 🚀Space physicist➡️#MECFS researcher🧪 Founder - Renegade Research @renegaderes - RemissionBiome @remissionbiome ✨Serendipity Meets Preparation✨
Erik Johnson @erikmoldwarrior
1K Followers 525 Following Original prototype for Chronic Fatigue Syndrome The syndrome NO ONE ever looked into. Not a single CFS doctor asked how it started.
Lord Sugar @Lord_Sugar
5.1M Followers 3K Following Chairman of Amshold Group, owner of @Amscreen and Amsprop. https://t.co/EBac0bLBMz
Dr Hefin David MS/AS @hef4caerphilly
6K Followers 2K Following Member of the Senedd for Caerphilly | Aelod o’r Senedd dros Caerffili | [email protected] | @WelshLabour |
NickyProctor @NickyProctor
1K Followers 4K Following Writing up my #PhD in coach learning & development @LeedsBeckett and campaigning for better healthcare #MEcfs #POTS
Matthew Dalby @MatthewJDalby
7K Followers 5K Following
King's College London @KingsCollegeLon
152K Followers 2K Following News from King's College London | King’s is a multi-faculty research-led institution & one of the top 10 UK universities in the world | Contact: [email protected]
Claire Jones @Claire145
849 Followers 620 Following BCUHB Consultant Physiotherapist. Long Covid Physio Disability & Safe Rehab Committee Member. DProf Student at Uni of Chester. Views are my own.
Physios For ME @PhysiosForME
7K Followers 604 Following A group of physiotherapists with a special interest in Myalgic Encephalomyelitis (ME) with the aim to improve physiotherapy management for people with ME
King's Health Partner.. @kingshealth
10K Followers 2K Following We're an AHSC partnership of @GSTTnhs, @KingsCollegeNHS, @MaudsleyNHS and @KingsCollegeLon - translating cutting-edge research into excellent patient care
Paul Blomfield MP @PaulBlomfieldMP
24K Followers 3K Following Labour MP for Sheffield Central. Please email [email protected] with casework and other enquiries.
Luke Pollard MP @LukePollard
50K Followers 11K Following Labour & Co-op Member of Parliament for Plymouth Sutton & Devonport, Shadow Armed Forces Minister and a big fan of cake. He/him #lukeMP
Baroness Nicky Morgan @NickyMorgan01
67K Followers 1K Following Member @ukhouseoflords Non-Executive Director.
Caroline Dinenage @cj_dinenage
25K Followers 1K Following Gosport MP, Chair - Culture, Media & Sport Committee. RT ≠ endorsement. Email [email protected] with casework/enquiries
Alison Thewliss 🧡 @alisonthewliss
35K Followers 10K Following SNP MP for Glasgow Central Promoted by Alison Thewliss, 1/2 30 Bell Street Glasgow G1 1LG [email protected]
Layla Moran 🔶🕊�.. @LaylaMoran
97K Followers 5K Following Lib Dem MP for Oxford West & Abingdon | Spokesperson for FCDO & DSIT | she/her | Promoted by the Lib Dems, C5 Grange Court, Barton Lane, Abingdon, OX14 3NB
Alex Sobel MP 🟣 @alexsobel
28K Followers 5K Following Lab & Coop MP for Leeds North West | Jewish | [email protected] | Co-Chair Ukraine APPG | DCMS Select Cttee | @[email protected]
Helen Whately @Helen_Whately
27K Followers 586 Following Member of Parliament for Faversham and Mid Kent. Minister of State for Health and Social Care.
John Lamont MP 🇬�.. @John2Win
14K Followers 2K Following @ScotTories Borders MP. Fighting against IndyRef2. @GOVUK Minister at the Scotland Office. Promoted by J Lamont, Lower Langbrae, Main St, St Boswells, TD6 0AP
Carol Monaghan MP �.. @CMonaghanSNP
21K Followers 3K Following MP for Glasgow North West. For constituent enquiries please email [email protected]
💙Rachael Maskell M.. @RachaelMaskell
37K Followers 463 Following Rachael Maskell Labour & Co-operative MP for York Central. Campaigning for a fairer society. Email to raise anything: [email protected]
Trisha Goddard @TrishaGoddard
12K Followers 111 Following Join me on weekdays for the Trisha Goddard Show. Straight talk, warm heart. For free tickets call (855) 5150001 http://t.co/0Kd3WZsc #TrishaShow@JennieJacques1 Thank you so much for sharing Jennie, extremely appreciated 💙
A reminder that all the info you need to take part is right here 👇 crunchme.notion.site/ME-Awareness-D…
Brilliant to see people getting things ready for #MEAwarenessDay & the #DearMinister postcard campaign Lots of time still to go (12th May), so no rush - when fits with your spoons 😌 crunchme.notion.site/ME-Awareness-D…
🪩Postcards done for #MEAwarenessDay For the details of how to take part see @RorPreston tweet below 👇
Thanks to my sis for getting in on the #DearMinister act for #MEAwarenessDay 💌
Transcript for above video: Okay, so update. After we threatened the hospital with a barrister, suddenly they assess her and Carla has capacity and they back off from doing the lumbar puncture for now. There's going to be a meeting tomorrow with 12 different consultants and…
"We win this time" - UPDATE on #SaveCarlasLife it's amazing what happens when you have a prominent barrister on speed dial... #ExposeMENow
Looking forward to leading this important debate on M.E. today. Such an important issue which impacts so many families across the country. Much more needs to be done.
🚨 Reminder 🚨 Tomorrow, May 1, Sir @sajidjavid MP will be leading a Westminster Hall debate in the Houses of Parliament, 16.30-17.30 You can watch the debate live on Parliament TV: ow.ly/wxan50RsgYs
Transcript of above video: Hi everyone, okay so we have an update about Carla. They did not end up doing the MRI, CT and EEG yesterday as promised. They were supposed to be doing it today, but the family were told early this morning that that was now not going ahead. Suddenly…
URGENT UPDATE #SaveCarlasLife Psychiatrists are some of the most narcissistic, toxic people going. It's all suddenly kicked off today #ExposeMENow WATCH:
We’ll be closing this round of #baking today - so judges @JennieJacques1 @RealAlyssaS @HistoryVikings & @BakingExplorer can choose star 🌟 baker! Tag 🏷️ us before midnight to be included else see ya next round! * bake4mecfs.com
Derry Now: 'Talented County Derry Triathlon family’s sporting fundraiser following son's devastating ME diagnosis' 'Irish triathlete James Walton saw his promising sports career come to an abrupt end after being diagnosed with Myalgic Encephalomyelitis..' derrynow.com/news/home/1489…
YOU DID IT: 1,500 signatures in just a few days on our open letter to @sajidjavid asking him to please mention #BringMillieHome #SaveCarlasLife & Karen Gordon, & the state of the NHs for #SevereME patients, at his Westminster Hall debate tomorrow. Email on its way. Well done…
Signed @JennieJacques1
@long_covid @LongCovidSOS @LongCovidKids Sign ✍️ this letter ✉️ thank you! - organise.network/actions/petiti…
🚨 Reminder 🚨 Tomorrow, May 1, Sir @sajidjavid MP will be leading a Westminster Hall debate in the Houses of Parliament, 16.30-17.30 You can watch the debate live on Parliament TV: ow.ly/wxan50RsgYs
Poor Merryn later died (2017), one of the countless unnecessary #MEcfs deaths. Our patient population continues to be abused, tortured, and killed. #BringMillieHome #SaveCarlasLife Thank you to @JennieJacques1 for her work in bringing the plight of #SevereME to the fore. 🙏
“SHUT UP YOU STUPID WOMAN” @NHSuk @NHSEngland #SevereME * How many more lives do we need to lose before this stops? #pwME * Full interview coming soon; #merryncrofts #saveMillie #savecarla @TheChronicColab @MEFoggyDog @StripyLightCIC * more here 👇 m.youtube.com/watch?v=0nXKQq…
“The state was unable, and to some degree, unwilling to treat her.” As his daughter with severe ME was dying "a painful and difficult death", Times journalist Sean O'Neill says he had to “fight” for her palliative care "because doctors didn't believe in ME”. @TimesONeill
ANNOUNCEMENT #BringMillieHome We want to give credit to @MEActNetUK & @meactionscot. We said on Friday that we had secured the question Cat Smith had asked in parliament over #MEcfs. It turns out that ME Actions were also working in the background, at the same time as us, on…
1426 people have signed this 💚💚💚 would be nice to get to 1,500 before midday tomorrow #SaveCarlasLife #BringMillieHome
WESTMINSTER HALL DEBATE ON #MEcfs As promised please find below an open letter everyone can sign asking @sajidjavid to raise #BringMillieHome #SaveCarlasLife & more during 1 May's debate We will send it on 30 April. So get involved and get signing. LINK with a CW - suicide:…
4470 signatures! Thanks all for signing, sharing, and supporting this campaign. Onwards and upwards. organise.network/actions/petiti… #pwME #MEcfs #SevereME
After I got sick w #MEcfs in 2014 I never sold my #triathlon bike, it represented hope that I'd get healthy again. But this past weekend I sold it. It feels like another #loss but I promised myself if I ever get healthy again I'll reward myself w a brand new tri bike.
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