@ABrokenBattery Incredible work Adam. You can clearly see how valuable your videos are to many! Impressive how you do all that as a #severeME patient yourself from your bed.

“I keep thinking, You must be kidding me, right? I mean, how can anyone survive like this? It is unimaginable to me that this is my new normal.” #SevereME Beautifully written, stark & deeply relatable piece by Amy Debellis @lapis_lazuli11. #MEAwareness2024 pitheadchapel.com/oblivion/

@B12Henk @KroNcrv 2 jarige geen arts keek B12, vader heeft Addison Biermer! Medicatie via neuroloog mogelijk #Epilepsie dosering volw. man van 3e tot 10. 20 #MigraineAccompagnee medicatie hielp niet 2016 #Fibromyalgia #SevereME 2019 #B12 inj💉 zelf via arts 🤟🏻@Jhanne45 @B12Henk @jacqpostma💃52 nu

DAY 5 - ENERGY BUDGET When you are diagnosed with M.E. you have to learn how to manage the illness. This means pacing and rest. You have to learn how to live within your energy envelope. #MyalgicEncephalomyelitis #MEAwareness #MillionsMissing #SevereME #MEAwarenessmonth

Lying flat, doing absolutely nothing. With a HR of 215. However, Alice has been awake for OVER 140hrs, could this be making it worse? 🤪😭#VerySevereME #PoTS #vasculardysfunction #pwME #NEISvoid #insomniac #tachycardia #hEDS #severeME

Valuable info for ALL hospital staff to be aware of when dealing with very #SevereME patients #ExposeMENow #SaveCarlasLife #BringMillieHome 💙 Karen

ME Advocates Ireland @MEAdvocatesIre

a day ago

Valuable info for ALL hospital staff to be aware of when dealing with very #SevereME patients #ExposeMENow #SaveCarlasLife #BringMillieHome 💙 Karen

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#MEcfs #MyalgicE #MyalgicEncephalomyelitis #pwme #severeME #verysevereME #MedicalScandal #MedicalCorruption #MedicalNeglect #MedicalAbuse #iatrogenesis #DisabilityDenial #Gaslighting #ScienceNotStigma #PsychAbuse #PsychologisingIllness #ExposeMEnow #DontletMEdie #MillionsMissing

@TheChronicCollaboration @TheChronicColab

a day ago

#MEcfs #MyalgicE #MyalgicEncephalomyelitis #pwme #severeME #verysevereME #MedicalScandal #MedicalCorruption #MedicalNeglect #MedicalAbuse #iatrogenesis #DisabilityDenial #Gaslighting #ScienceNotStigma #PsychAbuse #PsychologisingIllness #ExposeMEnow #DontletMEdie #MillionsMissing

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@GovWesMoore Hey @GovWesMoore I'd love to be able to exercise again but because of #LongCovid #SevereME I've been bedbound 4 years and counting. What are you doing to help Marylanders like me, and stopping more? Disability rates going straight up since 2020

Finally got around to organising my #DearMinister postcards for the #MEAwarenessDay campaign. Thanks very much to @RorPreston for organising and to @MEFoggyDog for the artwork. #MEAwarenessMonth #TeachMETreatME #SevereME #MillionsMissing #MedicalEducation #MECFS #VerySevereME

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DAY 4 - DESPAIR TRIGGER WARNING some may find this upsetting. Many with M.E. suffer to the point of despair and depression which is a result of all the suffering not the cause #MyalgicEncephalomyelitis #MEAwareness #MillionsMissing #SevereME #MEAwarenessmonth

#MEcfs #MyalgicE #MyalgicEncephalomyelitis #pwme #severeME #verysevereME #ScienceNotStigma  #ExposeMEnow #DontletMEdie #Neglect #DomesticViolence #Abuse #Oppression

@TheChronicCollaboration @TheChronicColab

2 days ago

#MEcfs #MyalgicE #MyalgicEncephalomyelitis #pwme #severeME #verysevereME #ScienceNotStigma  #ExposeMEnow #DontletMEdie #Neglect #DomesticViolence #Abuse #Oppression

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@Iromg @TalkTV Been great listening to you in the mornings Mike. Being long term housebound/bedridden it’s important to have inspiration to endure another day, especially at the break of dawn🌤️ Keep up the great work and championing common sense! ⭐️⭐️⭐️⭐️⭐️ #Radio #YouTube #MikeGraham #SevereME

T H I S 😊 #LightUpTheNight4ME #MECFS #pwME #severeme #verysevereme #blueroses #millionsmissing

LightUpTheNight4ME @lightup_4ME

3 days ago

T H I S 😊 #LightUpTheNight4ME #MECFS #pwME #severeme #verysevereme #blueroses #millionsmissing

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A member of our ME/CFS community asks: "I am trying to find reviews from people who have had firsthand experience of a recent admission to the NICPM. Do you have any information that would help my daughter make a decision regarding a referral ?" #SevereME #VerySevereME

We talk about how difficult it is for women to leave abusive households, but rarely is it discussed the additional hardships of leaving if you are disabled. Please read and share this story of a person with #SevereME in Australia who needs a safe place to go.

Canary @TheCanaryUK

2 days ago

We talk about how difficult it is for women to leave abusive households, but rarely is it discussed the additional hardships of leaving if you are disabled. Please read and share this story of a person with #SevereME in Australia who needs a safe place to go.

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Australia’s state & services are trapping a woman living with #SevereME #MEcfs in domestic abuse - & they keep passing the buck. Thank you to @h_sharland @TheCanaryUK for documenting @halcionandon appalling situation. Can ANYONE help #MEAwarenessMonth? thecanary.co/global/world-a…

DAY 3 - BROKEN BATTERY This poem is using the analogy of a broken battery that's hard to recharge and we have little or no energy #MyalgicEncephalomyelitis #MECFS #MillionsMissing #MEAwareness #SevereME #VerySevereME #MEwarrior #NEISvoid #LongCovid #MEAwarenessmonth