PZ @pzneedsrest
Music🎶 Film🎞️ Investigative Journalism🧐 Hot Chips🍟 Happiest by the sea 🌊 I used to do things, now living small as a #pwME #MillionsMissing 👻 Whadjuk Noongar Boodjar Joined November 2013-
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PZ retweeted
If anyone is wondering what happens when a person with severe ME has no support—they die. They become homeless. They disappear. Their stories are erased. At best, they’re remembered as tragic incidents of people who “lost their battle with mental health issues”
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PZ retweeted
Community video for Severe ME awareness day, please share and tag politicians and public figures who need to see this! All participants IG handles tagged at the end 💙💙 #SevereME #SevereMEAwarenessDay #MECFS #MillionsMissing #UnitedForME
PZ retweeted
On this Severe ME Awareness Day, I present to you my newest exhibition: “In the Absence of Light”. It is a deeply personal photographic essay that tells the story of my experience with very severe ME — the toughest period of my life. 1/2
PZ retweeted
On #SevereMEDay we think of those who are suffering with the worst, most debilitating form of #MyalgicEncephalomyelitis If you've experienced #SevereME it will be one of the most difficult things you've lived through. #GreatestMEdicalScandal dialogues-mecfs.co.uk/films/severeme/
"All of these signals align with how people with ME/CFS describe their illness" Yep. If you listen to the language we use, it's pretty unmistakable. We know our bodies. #MyalgicEncephalomyelitis #MillionsMissing #pwME #GreatestMEdicalScandal
"All of these signals align with how people with ME/CFS describe their illness" Yep. If you listen to the language we use, it's pretty unmistakable. We know our bodies. #MyalgicEncephalomyelitis #MillionsMissing #pwME #GreatestMEdicalScandal
Sorry, not sorry to all the neurologists, neuropsychs and other #MyalgicEncephalomyelitis science deniers who insist we are depressed and anxious... You've gotta do something about those false illness beliefs! #GreatestMEdicalScandal #MillionsMissing #pwME
Sorry, not sorry to all the neurologists, neuropsychs and other #MyalgicEncephalomyelitis science deniers who insist we are depressed and anxious... You've gotta do something about those false illness beliefs! #GreatestMEdicalScandal #MillionsMissing #pwME
I often think "when I'm better I'm going to find #pwME around my area and cook them meals and bring them treats and make sure they have clean and cosy bedlinen and just be a little helper" Because that's what I need, a little helper 😔
PZ retweeted
PZ retweeted
A Palestinian state isn't some reward. It's a right. It's their country.
It was just over a week ago that this investigation by @emilydugan ran in the UK. What is going on? Is this another warped strategy to deal with the increasing numbers of sick and disabled children?
It was just over a week ago that this investigation by @emilydugan ran in the UK. What is going on? Is this another warped strategy to deal with the increasing numbers of sick and disabled children?
PZ retweeted
Palestine Film Index now has 700+ films, 50+ publications, & various other resources. we remain committed as we continue to work collectively on it's expanding form. as always, we hope it can be useful as tool in study & struggle towards liberation. docs.google.com/spreadsheets/d…
PZ retweeted
$350 for critical medical appt needed by 8/4 No movement yet on this. Cannot reschedule. Trying to stay out of the hospital. Please help. Constantly being online and using this much energy is worsening my baseline.
$350 for critical medical appt needed by 8/4 No movement yet on this. Cannot reschedule. Trying to stay out of the hospital. Please help. Constantly being online and using this much energy is worsening my baseline.
PZ retweeted
Many of you are cool with allowing disabled people to suffer and die while simultaneously claiming to be in community and saying you don’t want to lose any more community members. Uplift mutual aid or accept that there is more you could’ve done. People die from unmet needs.
Naomi Harvey PhD #Wea... @Naomi_D_Harvey
17K Followers 4K Following Zoologist. She/her. ME/CFS since 2002, now Severe. Pro-vax but vaccine injured. Life on pause (views my own - unemployed) ♿️ https://t.co/YeMrEWwEg5
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35K Followers 1K Following Doctor of Pharmacy. Long Covid, EBV & ME/CFS research. Here to share & learn. Tweets not medical advice. https://t.co/jqc4g8cFLa https://t.co/lKQezPwtQs
Dan Wyke 🦠➡️�... @Dan_Wyke
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Tom Kindlon @TomKindlon
15K Followers 622 Following With ME 36 years (31 yrs severe). 95% of posts on #MEcfs/#LongCovid/#chronicillness. 26 publications in peer-reviewed journals. @IrishMECFSAssoc trustee 28 yrs
Wading through treacl... @kimisgubbed
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ME/CFS News @MECFSNews
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Dr Asad Khan FRCP FRA... @doctorasadkhan
27K Followers 3K Following Lung Dr on pause since Nov 20 #LongCovid #POTS #MCAS #HSD #pwME #Aotearoa Views my own; Retweets≠endorsements #freepalestine #TeamClots ZIONISTS WILL BE BLOCKED
Janet Dafoe @JanetDafoe
16K Followers 225 Following Caregiver for very severe ME/CFS son, advocate and fundraiser for End ME/CFS PROJECT at OMF and CFSRC at Stanford. The rest of my life is on hold...
Adam @ABrokenBattery
8K Followers 1K Following Severe ME patient currently on a 10% battery, the gas goes out more than I do. I also compile ME/CFS Awareness videos.
Lizzy H @hopefullizzy
7K Followers 3K Following 30y/o creative, with complex health issues🤞🏼ME/CFS biomedical research. Passion for the wild, for kindness, and helping all people have a voice. Co-author✨
davidtuller @davidtuller1
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Katy B @KatyBruce108
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Eliza Charley | Actre... @ElizaCharley
6K Followers 2K Following 🎥 ✨Australian Actress in Italy. Care about #mecfs #longcovid #climate #dv #auspol 🎭co-founder Mi Casa Theatre 📚Words in SoulTread & RoutledgePress She/her
PwME 4 bioMEdical res... @ValeBodi
4K Followers 3K Following Surviving #MyalgicE #AAG to tell the story, patient&advocate w/ a JD, into: MEdicine, Social justice & the Arts, Human neutrino/MEdical apolide/gnarled Pacer
Tess Falor, Ph.D. | R... @tessfalor
9K Followers 6K Following Founder - Renegade Research @renegaderes - RemissionBiome @remissionbiome
Brian Fog @useless_priest
8K Followers 5K Following Mild LC/ME Apr 2022 | ME, when triggered by SARS-CoV-2, is a subset of Long COVID | Repeated triggering of PEM leads to lowering of baseline | 🏳️🌈 | 🇮🇪
Paula Knight @Paula_JKnight
6K Followers 4K Following Author Artist THE FACTS OF LIFE (Myriad) Kidlit books x3 author. Words and pictures. Disabled. Bedridden 7yr v severe M.E. IG: @paulajkstudio
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86 Followers 435 Following
kelly Redd @mir29896
73 Followers 2K Following Volunteer Firefighter 🚒 | Serving Motley, MN with courage, teamwork & community pride | Emergency response, fire safety & rescue.. Add me on znagi 1087326896
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243 Followers 3K Following
Hillary Johnson Autho... @oslersweb
4K Followers 956 Following Investigating ME for 39 years The Why "Indispensable" Reimagining Ruth "..has a raw power" Osler's Web "A relentless, meticulous, highly persuasive expose"
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8 Followers 89 Following
Kinsley Williams @KinsleyW48737
14 Followers 103 Following
Ⓜ️𝗶𝗱𝗮�... @MidasBull
649 Followers 7K Following Trading✶Brain✶Biohacking✶Longevity✶Biotech✶Science✶Tech✶AI✶Wellness✶Martial Arts✶Liberty
RonjaKa | @RonjaR_Ka
696 Followers 941 Following #MECFS since 2004 #severeME since 2018 #hEDS #POTS #MCAS #CCI 👉 https://t.co/xPOCn0eNcE
Mitchter Potato Head @MitchPotato
206 Followers 204 Following OG police defunda. Y'all still unda dat consent decree? 61st mayah of New Orleans, babe. 🥥🌴 Parody. Blocked by @mitchlandrieu 😥
Lugaalxul @lugaalxul
9 Followers 102 Following
RiverSong @__RiverSong
278 Followers 1K Following https://t.co/efI0AmCiBi #LongCovid 4/22 #MECFS #PEM #POTS #MCAS #NotRecovered *342ppm
a tired human @saffronandsky
2K Followers 1K Following disability justice💜. Mod chronic illness 4 decades. long covid in '22 = very severe MCAS, ME&POTs= bedbound. Parent, mixed race, writer, gardener ♿ 🏳️🌈☸️
Long COVID is a mass ... @lhaztknup
5K Followers 8K Following One of Millions Missing, had severe LC. Now its getting better. I want to help reaching attention f this TERRIBLE illness. No medical advice.
SODA🌹 @sodaba__
309 Followers 1K Following Mindset | Trading | Psychology Empowering Minds & Mastering Markets💎📈
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12K Followers 10K Following Basic Scientist, mainly 🐴 F(ab')2🐴No political affiliations, they’re all incompetent. Views my own.
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OpusAnneglicanum 🖤... @SteelGoldfish
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6K Followers 6K Following Retired soldier, trying to keep in touch with the World. Born on Barunggam country. NO Direct Messages please 🇵🇸
Tony Field @theillme83
18 Followers 118 Following 4 years in horizontal mecfs prison/long covid 2021
Broden 🇬🇧♿✝... @Gavtaraysin
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Midnight Hammer 🇦�... @WaldorfWal72125
57 Followers 283 Following Thankyou for your attention to this matter!
Mike Howells @howellsmike
414 Followers 2K Following
Julia 🇫🇮 @juliaresister
556 Followers 3K Following Pro democracy. Resister. Slava Ukraini! 🇺🇦 #ME #MyalgicEncephalomyelitis
P @coupdecoeur
241 Followers 701 Following
PhoenixLights @PhoenxLights
2K Followers 2K Following
Frank Bushell @Frank_Bushell_
339 Followers 6K Following
verenabee @verenabee
421 Followers 376 Following Classical Pianist, Piano teacher and lover of the sea and the mountains (a little less). Thrown out of life as I knew it by Covid and ME/CFS since Feb 2023.
Becca von Hattifnatt @vonHatti
658 Followers 2K Following Freelance book editor, sometime actor/cabaret. @HeraldPatch for silly songs. Chronic illness tweets. Fake name but real face. https://t.co/lF9M1kzkoj
Manuella Figuerra @manuellafiguer2
504 Followers 1K Following “Plutôt que de maudire les ténèbres, allumons une chandelle, si petite soit-elle.” #Confucius
Blessing Olulakin @FUNDRAISING___
20 Followers 430 Following I am a Fundraising Crowdfunding Expert Connecting those in need to Potential donors is my passion GoFundMe, Kickstarter, Individual I will love to see you HAPPY
Elle Deran @ElleDeran
14 Followers 158 Following is frequently cited as a common saying about the city It reflects the perception of Los Angeles as a place where people from all walks of life and with diverse
Angelina_Clara @victoria_graceK
31 Followers 590 Following Crowdfunding Strategist | $10M+ Raised | Real Tactics, Real Results | Turning Big Ideas into Funded Dreams
JD @jill_d35
4K Followers 3K Following Capt Blackadder: Just one tiny flaw in the plan. Lt George: Oh, what was that? Capt Blackadder: It was bollocks. Being British. Now there isn't even a plan....
Katja Rueegg @KatjaRueegg
2 Followers 247 Following
Caffeinated Polymath @Audra4Nm
2K Followers 4K Following Freelance 2A Rep. Ace of many, Master of a Few. Writer, fighter, farmer, rancher, artist. World Champ of Destruction (x2) ,3Gun, World Shotgun Medalist.
Home Sweet Home Decor @Decors4World
950 Followers 2K Following Ideal decor, furniture, and accessories to suit your style. Daily Amazon product links with over 4.5 ⭐ ++
gameplaydoomer @postholocene
234 Followers 1K Following your host to the collapse of the capitalist metabolism & the concurrent extermination of most contemporaneously instancing flora & fauna in the known universe!
Missing Life @MissingMELife
31 Followers 148 Following Bedbound, very severe #MECFS, #POTS #MCS #MCAS. No life anymore. I'm a ghost that's still here, forgotten. I'm rarely online. Keep Fighting. #millionsmissing
Naomi Harvey PhD #Wea... @Naomi_D_Harvey
17K Followers 4K Following Zoologist. She/her. ME/CFS since 2002, now Severe. Pro-vax but vaccine injured. Life on pause (views my own - unemployed) ♿️ https://t.co/YeMrEWwEg5
LongCovidPharmD @organichemusic
35K Followers 1K Following Doctor of Pharmacy. Long Covid, EBV & ME/CFS research. Here to share & learn. Tweets not medical advice. https://t.co/jqc4g8cFLa https://t.co/lKQezPwtQs
Dan Wyke 🦠➡️�... @Dan_Wyke
13K Followers 5K Following M.E. inactivist; person-centred counsellor (currently not practicing); recovering poet (Rack & Waterloo Press)
Bhupesh K Prusty @BhupeshPrusty
15K Followers 66 Following A passionate molecular virologist who believe in patient oriented scientific research. Using viruses to understand human existence. Science is for society.
Tom Kindlon @TomKindlon
15K Followers 622 Following With ME 36 years (31 yrs severe). 95% of posts on #MEcfs/#LongCovid/#chronicillness. 26 publications in peer-reviewed journals. @IrishMECFSAssoc trustee 28 yrs
Wading through treacl... @kimisgubbed
3K Followers 3K Following Advocate & sharer of bio research for INFECTION ASSOCIATED CHRONIC DISEASES inc MECFS, Long COVID, MCAS, Dysautonomia, Vaccine injuries, FMS, Sjogrens & Lyme 🔬
ME/CFS News @MECFSNews
14K Followers 687 Following I used to post news and interesting information on ME/CFS but have retired to focus on other things.
Dr Asad Khan FRCP FRA... @doctorasadkhan
27K Followers 3K Following Lung Dr on pause since Nov 20 #LongCovid #POTS #MCAS #HSD #pwME #Aotearoa Views my own; Retweets≠endorsements #freepalestine #TeamClots ZIONISTS WILL BE BLOCKED
Janet Dafoe @JanetDafoe
16K Followers 225 Following Caregiver for very severe ME/CFS son, advocate and fundraiser for End ME/CFS PROJECT at OMF and CFSRC at Stanford. The rest of my life is on hold...
Adam @ABrokenBattery
8K Followers 1K Following Severe ME patient currently on a 10% battery, the gas goes out more than I do. I also compile ME/CFS Awareness videos.
Lizzy H @hopefullizzy
7K Followers 3K Following 30y/o creative, with complex health issues🤞🏼ME/CFS biomedical research. Passion for the wild, for kindness, and helping all people have a voice. Co-author✨
davidtuller @davidtuller1
11K Followers 2K Following Senior Fellow in Public Health and Journalism, Center for Global Public Health, UC Berkeley. My academic position is largely funded by donations from patients.
Katy B @KatyBruce108
6K Followers 6K Following Myalgic Encephalomyelitis ME + POTS 39 yrs Donor to @mecfsbiobank for 10 years & @DecodeMEstudy Please watch https://t.co/pUUJO34e5k #pwME
#MEAction Network @MEActNet
19K Followers 3K Following A global network fighting for equality for Myalgic Encephalomyelitis. #MEAction #MillionsMissing https://t.co/JhhNZoFYJi
Eliza Charley | Actre... @ElizaCharley
6K Followers 2K Following 🎥 ✨Australian Actress in Italy. Care about #mecfs #longcovid #climate #dv #auspol 🎭co-founder Mi Casa Theatre 📚Words in SoulTread & RoutledgePress She/her
PwME 4 bioMEdical res... @ValeBodi
4K Followers 3K Following Surviving #MyalgicE #AAG to tell the story, patient&advocate w/ a JD, into: MEdicine, Social justice & the Arts, Human neutrino/MEdical apolide/gnarled Pacer
Tess Falor, Ph.D. | R... @tessfalor
9K Followers 6K Following Founder - Renegade Research @renegaderes - RemissionBiome @remissionbiome
Brian Fog @useless_priest
8K Followers 5K Following Mild LC/ME Apr 2022 | ME, when triggered by SARS-CoV-2, is a subset of Long COVID | Repeated triggering of PEM leads to lowering of baseline | 🏳️🌈 | 🇮🇪
Hillary Johnson Autho... @oslersweb
4K Followers 956 Following Investigating ME for 39 years The Why "Indispensable" Reimagining Ruth "..has a raw power" Osler's Web "A relentless, meticulous, highly persuasive expose"
OpusAnneglicanum 🖤... @SteelGoldfish
412 Followers 1K Following Disabled; European; Embroiderer. 'I do not care what comes after; I have seen the dragons on the wind of morning'. ~ The Farthest Shore - Ursula Le Guin
Tony Field @theillme83
18 Followers 118 Following 4 years in horizontal mecfs prison/long covid 2021
a tired human @saffronandsky
2K Followers 1K Following disability justice💜. Mod chronic illness 4 decades. long covid in '22 = very severe MCAS, ME&POTs= bedbound. Parent, mixed race, writer, gardener ♿ 🏳️🌈☸️
c4b4n4. @CabanaDrives2
45K Followers 4 Following
th_Redd @robynasaldino
2K Followers 2K Following She/Her, Sober, #LongCOVID, AuDHD, ME, EDS, POTS, cPTSD. #CovidIsNotOver #SendOrShare💸🔁💬❤️
florentdrive2 @coltranefanboy
40K Followers 39 Following @yrralFisherman | ltbxd list & drive folder https://t.co/qJdWHNEI77 | https://t.co/settvzI3TW
cabana. @CabanaDrives
129K Followers 37 Following
Lelena @LelenaPeacock
12K Followers 9K Following Human Being. pain patient, chronic illness, healthcare EDS/Arachnoiditis.
Kyle MacLean @kmaclean5
361 Followers 628 Following
Martha Ahumuza @MarthaAhumuza
9K Followers 594 Following Weak Black Woman🖤😇 Medical Student ✌️ Women supporting women 🔥 FEMINIST 💃
Jewish Council of Aus... @jewishcouncilAU
11K Followers 87 Following The Jewish Council of Australia provides an independent, expert Jewish voice opposing antisemitism & racism and supporting Palestinian freedom & justice
rêve ﴿ @jinafile
23K Followers 2K Following books, films, long walks, mangas, music & stills. 26/30,,, japanese experimental film enthusiast ☆
Jaffa @KiddieChronicle
10K Followers 4K Following A poet walking sideways. Tales for the ones who speak to shadows and laugh in riddles. Cosmic crumbs, stitched by hand. ↓ follow the signal to Revealed Cosmos
florian 🏳️⚧... @floriando14
895 Followers 6K Following (elle/they/iel/elu) 26 años 🇻🇪🇨🇩🇵🇸🇸🇩🇭🇹🇨🇺 libres y aún luchando contra la pandemia #CovidIsAirborne white dykefag trans disabled veneke
ChronicLivingTherapy @ChronicLiving1
164 Followers 420 Following Directory of counsellors and therapists who understand the biomedical nature of ME/CFS, Long Covid, Fibromyalgia and other similar chronic illnesses.
Ambrose Andrews @znalo
341 Followers 2K Following F-35s don't kill kids, penny kills kids ( @[email protected] || https://t.co/cEK244s4oR )
Adam H @adamaitch
161 Followers 371 Following
Leonore @LeonoreTweet
1K Followers 5K Following Broad spectrum retweeter. Tech. Data. Information. Human rights. Citizenship. Dystopia. Can’t sleep #FBPE #FBIR 🇪🇺🏳️🌈🇳🇱 @[email protected]
Larissa Waters @larissawaters
74K Followers 1K Following Leader of the Australian Greens and Senator for Queensland. She/her. Authorised by L. Waters, The Greens, Brisbane.
Maud Sac 💢🍉 @papillyon
283 Followers 703 Following Moderate ME/CFS, mainly housebound with my three cats. One of the MillionsMissing since 2018. @papillyon.bsky.social
Carmen Scheibenbogen @C_Scheibenbogen
13K Followers 70 Following Immunologist and ME/CFS researcher MD @ChariteBerlin
Elisabeth Klaar | Oak... @lammas_leaves
2K Followers 5K Following Marketing for SMEs and NGOs. Mentoring & Tuition: WordPress, Marketing. Also @chronicliving1 - project built with WordPress
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180 Followers 77 Following A socialist voice for elections in WA - newly expanded from @vic_socialists
Peel a Satsuma @find_the_pound
257 Followers 838 Following To paint is the most terrific thing that there is, but to do it well is very difficult. - Frida Kahlo #ME #LongCovid #PANS #PANDAS
Martin @MartinMECFS
150 Followers 268 Following Living with the immuno-compromised neurological condition Myalgic Encephalomyelitis (ME/CFS)
Nathan Lee @NathanLee
4K Followers 5K Following Democracy, politics, fairness, rights, education, tech. Rants=own views.
star 🇵🇸 @onbeing_ill
225 Followers 206 Following disabled dyke poet tearing at the yellow wallpaper • they/them • 26 • me/cfs et al.
Gwyn @gw411954
251 Followers 957 Following
Hiroshi Suzuki @AmbJapanUK
152K Followers 95 Following Japanese Ambassador to the United Kingdom @JAPANinUK. Reposts and links are not endorsements. Ambassador's greeting message: https://t.co/TjnRawj5i7
John Urane @UraneJohn
7K Followers 8K Following Appalled by the butchery & starvation of civilians in Gaza. Burdened with a desire to leave this place a little better. Say NO to AUKUS.
Craig Wallace @CraigWtweets
7K Followers 4K Following Head of Policy at Advocacy for Inclusion. Views here are my personal opinions. RT do not = endorsements. Pronouns - him/disabled person
Basel Adra @basel_adra
59K Followers 268 Following I’m a Palestinian journalist and activist fighting to save my community, Masafer Yatta, from forced eviction. #SaveMasaferYatta
MissMion @MionMiss
159 Followers 170 Following Selten hier, keine Kraft, da #MECFS #ME über 21 J, #POTS #MCAS #MCS #CCI usw + Behörden verweigern Hilfe. Bell 5. 🔃über Krankheiten. Bitte informiert euch🙏
Make ME Visible @makemevisible24
599 Followers 272 Following An initiative in India to spread awareness about ME/CFS (Myalgic Encephalomyelitis/Chronic Fatigue Syndrome).
NZ_fund_MECFS 🦋 @NZ_fund_MECFS
700 Followers 1K Following Life lost back in 2022. #MECFS #LongCovid #PostVac #NotRecovered #MillionsMissing https://t.co/VVu3MaZ2y9
Amarine Rose Ravenwoo... @AmarineRaven
127 Followers 194 Following #youngadultfantasy novels, poetry, https://t.co/92Im4i2l1Q
Emma 🛌♿🌱☮�... @emma_vegan_mua
1K Followers 3K Following She/her. Severe ME, CCI/AAI, hEDS & co, AuDHD. Ex makeup artist, ethical vegan, socialist. #BlackLivesMatter #TransRightsAreHumanRights Support striking workers
Dana Leigh Lyman @DanaLeighLyman
2K Followers 4K Following Lit Nerd, Writer, Arts Lover 📚24/7 Sylvia Plath, dealing with #LongCovid #pwLC #pwME #POTS
Nour Haydar @NourHaydar
13K Followers 4K Following Host and Senior Producer @GuardianAus Full Story podcast | formerly Federal Political Reporter ABC News | views my own | retweets and likes ≠ endorsementsTrends for United States
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