Sarah Barker @SarahBarx035
Joined April 2024-
Tweets179
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Followers30
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Following132
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I haven't made a proper post on here for about 4 years. However I have been watching what has been happening across various chronic illness communities. Particularly recently with the stories coming out of the ME/CFS community Carla, Millie and Karen being examples (1/)
I’ve had ME 35 years ,I’ve improved from severe ME to moderate & can now care for myself , but would have no say in these NHS hospitals ,they steam roller over ‘lived experience ‘ of #severeME when they know nothing ! Nice nurses with no training of #severeME are dangerous ,sadly
NEED ME LEGAL DEFENCE FUND only way hospitals might think twice before they section someone for nothing etc ………
NEED ME LEGAL DEFENCE FUND only way hospitals might think twice before they section someone for nothing etc ………
#BringMillieHome Brilliant local #ME group BUT lousy attitude at Lancaster Royal infirmary.What sort of medical direction is there apart from remove visitors from acute care if they mention #ME. Oh and section someone who is so more ‘with it ‘ than they are regarding her health !
#BringMillieHome Brilliant local #ME group BUT lousy attitude at Lancaster Royal infirmary.What sort of medical direction is there apart from remove visitors from acute care if they mention #ME. Oh and section someone who is so more ‘with it ‘ than they are regarding her health !
Thank you @joan_crawford1 for submitting an urgent safeguarding concern. #SaveCarlasLife #MedicalAbuse
Thank you @joan_crawford1 for submitting an urgent safeguarding concern. #SaveCarlasLife #MedicalAbuse
Ill people looking out for ill people - whilst the well people - who are supposed to be helping - are turning a blind eye - & even getting payed for it ! Morecambe Bay ME group even had to make a video 2024 to describe basic symptoms in #SevereME for Lancaster Royal Infirmary NHS
Ill people looking out for ill people - whilst the well people - who are supposed to be helping - are turning a blind eye - & even getting payed for it ! Morecambe Bay ME group even had to make a video 2024 to describe basic symptoms in #SevereME for Lancaster Royal Infirmary NHS
Has there really been a deafening silence from @MEAssociation & @actionforme since the @TheChronicColab shared the video of Carla's abuse at the hands of the Dr's & Nurses meant to be caring for her @WestMidHospital? Nothing to say? #SaveCarlasLife #DontLetMEdie #ExposeMEnow
A simple yet powerful message. Can the UK borrow this please? 😁🙏🏼 #pwME #MyalgicEncephalomyelitis #ME #SevereME
A simple yet powerful message. Can the UK borrow this please? 😁🙏🏼 #pwME #MyalgicEncephalomyelitis #ME #SevereME
So many! I'm sorry to be the bearer of more sad news this morning. Condolences to friends and family. 🕯️ #MyalgicEncephalomyelitis #MECFS
Begging hospitals to get #severeME sufferers home to calm the bodies down ,stop the sensory overload , stop the stress & to please listen to the survivors of #severeME that exposure to light & sound causes rapid tiring & massive physical deterioration #SaveCarlasLife
Begging hospitals to get #severeME sufferers home to calm the bodies down ,stop the sensory overload , stop the stress & to please listen to the survivors of #severeME that exposure to light & sound causes rapid tiring & massive physical deterioration #SaveCarlasLife
Here is a picture of endothelial debris floating in my blood, compliments of @resiapretorius! Microclots are taking out my endothelial layer in my blood vessels and making me so sick. POTS, MCAS, cognitive decline, dysautonomia, hearing loss. #vaccineinjury #LongCovid
Adapt to Carla’s body sensitivity & Millie’s sensitivity, they are both physically incapable of adapting to over stimuli of a hospital environment #BringMillieHome #SevereME #SaveCarlasLife protect them from light and sound - (that can be human voice & natural light )
Adapt to Carla’s body sensitivity & Millie’s sensitivity, they are both physically incapable of adapting to over stimuli of a hospital environment #BringMillieHome #SevereME #SaveCarlasLife protect them from light and sound - (that can be human voice & natural light )
It’s just not safe for #severeME to be in hospital ,its a lottery . Tell me how this sort of action by Hospitals supposed to make us better . If I ever need a stomach tube I’m going private if I can ,awful to have to write this NHS !
It’s just not safe for #severeME to be in hospital ,its a lottery . Tell me how this sort of action by Hospitals supposed to make us better . If I ever need a stomach tube I’m going private if I can ,awful to have to write this NHS !
@TheChronicColab Would Carla have had a seizure if the hospital had listened to Carla and both her parents when they pleaded with the hospital staff to protect Carla from the daylight or light coming from the window . They were begging !
When we have a CELL BURN OUT SCALE ( I mean actually individual cells in the body of a #SevereME ) then we won’t be sending ME sufferers off to hospital or putting them through MRI scans & EEG when their bodies are so energy depleted ……
When we have a CELL BURN OUT SCALE ( I mean actually individual cells in the body of a #SevereME ) then we won’t be sending ME sufferers off to hospital or putting them through MRI scans & EEG when their bodies are so energy depleted ……
Heartbroken that Carla is being put through too much ! The sensory protection needs drastically improving , in ME/cfs LIGHT EXPOSURE CAN CAUSE SEIZURES
Heartbroken that Carla is being put through too much ! The sensory protection needs drastically improving , in ME/cfs LIGHT EXPOSURE CAN CAUSE SEIZURES
BMJ Rapid Response: Steps doctors and other medical professionals can take today to improve medical care for people with Myalgic Encephalomyelitis #MyalgicEncephalomyelitis bmj.com/content/383/bm…
LauraEdmund @vQT1806Lzsp93
160 Followers 3K Following
John @John04952515955
77 Followers 819 Following Orthopedic Surgeon Doctor (MD) Specializing: Bones&joints 🩺🇸🇾 We Treat God heals 🙏
Amy Johnson @AmyJohn63080230
17 Followers 772 Following
Maddy Corper🦼🚂�.. @BRTractorDrver2
36 Followers 107 Following Mother, wife, ex-locomotive engineer, singer, learner bass player, long hauler/pwME and amateur virologist!!
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2 Followers 167 Following
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Frances @francesnewman1
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Kirst @kirstler31
2K Followers 945 Following Severe #MECFS 🛌 #LongCovid - March 2020 #PostVac #POTS #Renegade50 💫 @RemissionBiome
AprilHabakkuk @6rxZa8zS47E2tkW
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Luann @luann_pemberton
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Borhanrasal @kING1895265
3 Followers 557 Following Keep smiling. Because life is beautiful and there is so much to laugh about. 💞
San Morales @SanM52172826
1K Followers 5K Following Non citoyenne : ME/EM Endogirl Sopk Adenomyose Covidlong/persistente 4 años calvario/pacientes en abandono calducha en alma Los 23 CampoM la 🎼🎹 ma vie
Tracey Burgess @TraceyABurgess
2K Followers 3K Following Mum to a trans daughter 🏳️⚧️ who loves the natural world.🌿Degrees in Hist/Phil & Counselling/Psychotherapy. Unwell since 2007, worse 2016/17. Improved.🌼
Maria-louise Williams @Mariararoo
1K Followers 3K Following Severe M.E warrior (One of the missing millions). Crohn's disease in remission.
Jane Tandy @JaneTandy18
1K Followers 4K Following
Sarah @SarahLizzyLou
2K Followers 2K Following She/her. Physio student on hold since #longcovid #MEcfs Oct 2021. 💙 our NHS. Former neuro-rehab assistant. #CognitiveDysfunction 🧠♿️ #FBLC
Carole Bruce @CaroleBruce17
6K Followers 5K Following Severe #ME for 32+ years. Ex- psychotherapist. Daughter, severe ME 38 years. Eldest son, MS. Apart from that ❤️Art, people,nature, books, some music.
Marit Skotheim @MaritSkotheim
2K Followers 3K Following Society, politics, human rights, science, research. MSc ChemEng. Myalgic encephalopathy (ME) since 2010. Mainly Norwegian and English tweets. Whistleblower.
Milo Anthony Ventimig.. @Milo_anthony665
4 Followers 285 Following Art owner #Meilivodka &#Meilivodka Authorized private account On X...Aloha
Leonie Potgieter @Despicable_M_E
885 Followers 2K Following Living with M.E. as best I can. Love nature, humans not so much.
Elon musk @EMusk66776
89 Followers 151 Following Chairman, CEO and chief technology officer of SpaceX; angel investor, CEO, product architect.🚀🚀
Anna @halcionandon
2K Followers 5K Following Inquiring mind derailed by #SevereME #LongCovid #Hypothyroidism #Migraine #POTS #ChronicPain & more #FBLC. Health in hell mode-NEED SAFE HOME, ADVOCATE, GP
Prof Doug Kell CBE #F.. @dbkell
14K Followers 10K Following Liv Uni. ENTJ. CBE. Against brexit and Govt lies. #FBPE https://t.co/Z2XFPIxkfi https://t.co/F5o0wIMw1H. Nothing I say is medical advice @[email protected]
Rachel @frazier_ba38584
84 Followers 519 Following Conservative Christian mom #maga Trump_2024 Love my country 🇺🇲 Freedom figther🗽#truth.
Miranda Arens @MirandaArens5
711 Followers 1K Following
Maria Holland @MariaHo6ward
1K Followers 2K Following
Rachel Looney @RachelLooney10
2K Followers 3K Following
It's ME Helen @positively___ME
834 Followers 571 Following Living alone with moderate ME, not coping, getting worse. Struggle with such poor brain function. Try to make stuff on my good days, hoping to sell some, maybe
Naomi Harvey PhD #Wea.. @Naomi_D_Harvey
15K Followers 4K Following Zoologist. She/her. 22yrs with ME/CFS. Pro-vax but vaccine injured. Life on pause (views my own - unemployed) ♿️ https://t.co/YeMrEWwEg5
Tracey Burgess @TraceyABurgess
2K Followers 3K Following Mum to a trans daughter 🏳️⚧️ who loves the natural world.🌿Degrees in Hist/Phil & Counselling/Psychotherapy. Unwell since 2007, worse 2016/17. Improved.🌼
Maria-louise Williams @Mariararoo
1K Followers 3K Following Severe M.E warrior (One of the missing millions). Crohn's disease in remission.
Naoum pierre @CaillouxNm
1 Followers 3 Following
LongCovidPodcast @longcovidpod
5K Followers 4K Following Podcast hosted by Jackie Baxter, bringing together lived experience, medical experts, researchers & solidarity on this lonely #LongCovid journey #FBLC
Sarah Richardson 🌻 @nosdrahcirharas
1K Followers 2K Following Raising awareness about the need for more medical research and treatment change for people with ME/CFS/PVFS/LC and other Chronic Life-stealing Illnesses
Sarah Wilding @sarahzajacowa
14 Followers 79 Following Northern. Ex- adrenaline junkie and lover of the sea. Missing from life since Oct 2019.
Sarah @SarahLizzyLou
2K Followers 2K Following She/her. Physio student on hold since #longcovid #MEcfs Oct 2021. 💙 our NHS. Former neuro-rehab assistant. #CognitiveDysfunction 🧠♿️ #FBLC
Long Covid Advocacy �.. @LongCovidAdvoc
14K Followers 13K Following 📘Legislate ⚕️Investigate 🌬️Ventilate 👥Educate Advocacy4 #LongCovid #MECFS #COVIDisAirborne
Robertt @CarllRobertt
160 Followers 53 Following We often take for granted the very things that most deserve our gratitude.
Rachel @frazier_ba38584
84 Followers 519 Following Conservative Christian mom #maga Trump_2024 Love my country 🇺🇲 Freedom figther🗽#truth.
Robert Carl @carll_rob
291 Followers 1K Following My attitude is my approach. Reality is wrong. The dream is real. History is written by Survivors.
Anna @halcionandon
2K Followers 5K Following Inquiring mind derailed by #SevereME #LongCovid #Hypothyroidism #Migraine #POTS #ChronicPain & more #FBLC. Health in hell mode-NEED SAFE HOME, ADVOCATE, GP
Elon musk @EMusk66776
89 Followers 151 Following Chairman, CEO and chief technology officer of SpaceX; angel investor, CEO, product architect.🚀🚀
Milo Anthony Ventimig.. @Milo_anthony665
4 Followers 285 Following Art owner #Meilivodka &#Meilivodka Authorized private account On X...Aloha
RareBirdAlertUK @RareBirdAlertUK
81K Followers 5K Following The UK's longest running instant birdnews service. Over 110,000 sightings each year. Visit our website to try our app, website and pager services for free.
British Dragonfly Soc.. @BDSdragonflies
20K Followers 967 Following British Dragonfly Society, conserving dragonflies, damselflies & their wetland habitats since 1983. @ScotlandBds for news from Scotland Officers🏴🐉
Kerry Newnham @Squashedhedgi
1K Followers 942 Following Tube-fed, bedbound, a very severe M.E. veteran, wounded on the battlefield. Unlikely to come out of this intact or alive. UK has allowed ME neglect. LW-green
Dave Goulson @DaveGoulson
37K Followers 1K Following Professor of #Biology, specializing in #bumblebees. Author of: A Sting in the Tale; A Buzz in the Meadow; Bee Quest; The Garden Jungle. Youtube: https://t.co/fEGSoXoj0f
markmooch @MarkMooch
1K Followers 1K Following Elder Millennial & Social Justice Warrior. ME Patient. Drummer. Northerner. Pontificate a lot. Cannot read research papers due to fatigue. Dry Humour. 🌱
BBC Wildlife @WildlifeMag
230K Followers 24K Following BBC Wildlife Magazine - bringing you closer to nature with advice, news, the best nature writing and stunning wildlife photography
BTO Garden BirdWatch @BTO_GBW
58K Followers 726 Following A network of 20,000+ garden birdwatchers and citizen scientists, spread across Britain and Ireland, and organised by @_BTO
Natural England @NaturalEngland
172K Followers 2K Following We're here to establish thriving #nature for people and planet by building partnerships for nature’s recovery.
British Birds @britishbirds
61K Followers 1K Following British Birds publishes articles on identification, distribution, migration, conservation and taxonomy. We're THE bird journal of record in Great Britain.
Visible @visible_health
5K Followers 134 Following The activity tracking platform for illness, not fitness. #MECFS #LongCovid #invisibleillness
Society for Neuroscie.. @SfNtweets
215K Followers 334 Following The largest nonprofit of scientists & physicians devoted to understanding the #brain & #nervoussystem. Follow us at @NeuronlineSfN, @SfN_Events & @SfNJournals
@TheChronicCollaborat.. @TheChronicColab
4K Followers 2K Following A resistance movement for chronically ill & disabled people. Joining the dots between conditions. Resisting psychologisation. Fighting for justice & equality.
Megan McCubbin @MeganMcCubbin
88K Followers 924 Following Zoologist | Wildlife TV Presenter 🐾🌿| Author of #AtlasofEndangeredSpecies …… ORDER NOW 👇🦅👇🐸👇🦥👇🦁👇
Natural History Museu.. @NHM_London
2.3M Followers 3K Following We’re the museum looking deeper into the Earth’s past to shape a new future where both people and planet thrive. Protecting the planet, it’s in our nature. 🌍
Dept. of Agriculture @USDA
991K Followers 3K Following Leadership on #food, #agriculture, natural resources, #rural development, #nutrition, & related issues based on public policy, science, & effective management.
Butterfly Conservatio.. @savebutterflies
112K Followers 4K Following The official Twitter account for Butterfly Conservation. UK Charity. Saving butterflies, moths and the environment! 💚 #RestoreNatureNow
UK Butterflies @ukbutterflies
44K Followers 441 Following UK Butterflies is a community website providing comprehensive information on all butterfly species in Britain & Ireland. Posts by Pete Eeles.
Phoenix Rising @aboutmecfs
7K Followers 4K Following A community for people with Myalgic Encephalomyelitis & related conditions. Fibromyalgia, Long Covid, Dysautonomia, EDS & MCAS all welcome!
GreenPartyNorthWest �.. @GreenPartyNW
939 Followers 766 Following Join us for a Greener future for the North West of England. Promoted by Sam Riches on behalf of the North West Green Party, both at 17 Scotforth Road, LA1 4TS
Action for M.E. @actionforme
14K Followers 2K Following We take action to end the ignorance, injustice & neglect faced by the 250,000 #pwME in the UK. Online: Mon-Fri 10-4. Helpline: 0117 927 9551 Mon-Fri 10.30-3pm
Food and Agriculture .. @FAO
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MEpedia @MEencyclopedia
3K Followers 776 Following The MEAction encyclopedia, crowd-sourcing the history, policy & science of the disease. Edit and improve an article today! @MEActNet
CureME - UK ME/CFS Bi.. @mecfsbiobank
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Science for ME online.. @s4me_info
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Marit Skotheim @MaritSkotheim
2K Followers 3K Following Society, politics, human rights, science, research. MSc ChemEng. Myalgic encephalopathy (ME) since 2010. Mainly Norwegian and English tweets. Whistleblower.
World ME Alliance @WorldMEAlliance
2K Followers 246 Following An alliance of ME organisations across the world, we want to see a coordinated public health response to ME from the WHO and together founded #WorldMEDay.
PwME 4 bioMEdical res.. @ValeBodi
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Gez Medinger @gezmedinger
20K Followers 719 Following Author of The Long Covid Handbook with @daltmann10, published by @penguinUKBooks (see link). Represented by the Blair Partnership @TBP_agency
Dr Asad Khan FRCP FRA.. @doctorasadkhan
28K Followers 3K Following Lung Dr on pause since Nov 20 #LongCovid #POTS #MCAS #HSD #pwME #Aotearoa Views my own; Retweets≠endorsements #freepalestine #TeamClots ZIONISTS WILL BE BLOCKED
Resia Pretorius @resiapretorius
27K Followers 218 Following Distinguished Prof: Physiological Sciences, Stellenbosch Univ, South Africa; Honorary prof: Univ of Liverpool Research: coagulation, inflammation
Prof Doug Kell CBE #F.. @dbkell
14K Followers 10K Following Liv Uni. ENTJ. CBE. Against brexit and Govt lies. #FBPE https://t.co/Z2XFPIxkfi https://t.co/F5o0wIMw1H. Nothing I say is medical advice @[email protected]
Carole Bruce @CaroleBruce17
6K Followers 5K Following Severe #ME for 32+ years. Ex- psychotherapist. Daughter, severe ME 38 years. Eldest son, MS. Apart from that ❤️Art, people,nature, books, some music.
UHMBTOccHealth @UHMBT_OccHealth
1K Followers 318 Following Occupational Health and Wellbeing Service @UHMBT, helping to care for #teamUHMBT #Health and #WellbeingCarla's case is a stark reminder of the urgent need for proper medical care and understanding of ME. The lives of our daughters, mothers, sisters, brothers, fathers and sons are at stake. #SaveCarlasLife #MEAwarenessHour
Don't. Look. Away. #SaveCarlasLife CW: distressing Videos from last night. Carla is worse today. We are watching the NHS kill an #MEcfs patient in real time. We're struggling to get anyone to help. So, we want everyone here at 8pm for #MEAwarenessHour. We need to act.
I haven't made a proper post on here for about 4 years. However I have been watching what has been happening across various chronic illness communities. Particularly recently with the stories coming out of the ME/CFS community Carla, Millie and Karen being examples (1/)
I haven't made a proper post on here for about 4 years. However I have been watching what has been happening across various chronic illness communities. Particularly recently with the stories coming out of the ME/CFS community Carla, Millie and Karen being examples (1/)
Don't. Look. Away. #SaveCarlasLife CW: distressing Videos from last night. Carla is worse today. We are watching the NHS kill an #MEcfs patient in real time. We're struggling to get anyone to help. So, we want everyone here at 8pm for #MEAwarenessHour. We need to act.
Sophia Mirza, Kara Jane Spencer, Maeve Boothby-O’Neill and Merryn Crofts These young women are no longer with us They all died from #MyalgicEncephalomyelitis, #ME * 23 yo Carla is deteriorating rapidly #SaveCarlasLife #ExposeMENow @channel5_tv @ITV 📷: MEpedia, KJSblog
#MEAwarenessHour #SaveCarlasLife
This situation has clearly gotten to the point where criminal charges will have to be brought against many healthcare workers in this hospital. Urgent intervention is required now to #saveCarlaslife #meawareness
I truly believe we need an ME Legal Defence Fund, to be ready to go when extremely severe ME patients are trapped & pushed torturously towards death in NHS hospitals at the hands of psychiatrists🛡️ We need the power to fight with every tool available to us @actionforme…
UK hospitals are holding these young women against their will because doctors refuse to acknowledge their illness is organic, not psychological. You can't bully someone out of diabetes or MS--it doesn't work for ME either! #SaveCarlasLife #BringMillieHome #MEAwarenessHour
Alternative black background with white text #SaveCarlasLife #BringMillieHome
What's #BringMillieHome about? Watch: youtu.be/lA6zTRf38ek?fe… Read: mirror.co.uk/news/health/se… #DontLetMEDie
Thank you @joan_crawford1 for submitting an urgent safeguarding concern. #SaveCarlasLife #MedicalAbuse
@CraftyMissB I have submitted an urgent adult safeguarding concern with Richmond and Wandsworth adult safeguarding team this morning regarding Carla. I hope that it helps 🙏
YOU MADE THIS HAPPEN: Another Twitter news story on #SaveCarlasLife, thanks to your day of action yesterday. x.com/i/trending/178…
Has there really been a deafening silence from @MEAssociation & @actionforme since the @TheChronicColab shared the video of Carla's abuse at the hands of the Dr's & Nurses meant to be caring for her @WestMidHospital? Nothing to say? #SaveCarlasLife #DontLetMEdie #ExposeMEnow
This is so beautiful and so powerful. It sums up the complete isolation that we all feel, despite the #ME community, whatever friends or family we may or may not have, as our very existence just as we are, is not acknowledged.
We are excited to show you the first video of our campaign. This video will air on Austrian television over the next few weeks. Please help us raise awareness by sharing this tweet. More info: weandmecfs.org/awareness Donations help us liberate those affected. 🙏 #MECFS 💙
A simple yet powerful message. Can the UK borrow this please? 😁🙏🏼 #pwME #MyalgicEncephalomyelitis #ME #SevereME
We are excited to show you the first video of our campaign. This video will air on Austrian television over the next few weeks. Please help us raise awareness by sharing this tweet. More info: weandmecfs.org/awareness Donations help us liberate those affected. 🙏 #MECFS 💙
As a consultant clinical psychologist, I stand against the psychologisation of #ME and with those fighting for justice and service provision. #ME patients face similar testimonial deflation as those given the BPD label, which costs and ruins lives. Solidarity X #SaveCarlasLife.
DON'T. LOOK. AWAY. #SaveCarlasLife #MEAwarenessHour Please meet Pierre, Carla's father. We cannot overstate how distraught he is by what is happening to his daughter. However, he wanted to speak to everyone directly. Please watch & share widely. She is running out of time 💚
So many! I'm sorry to be the bearer of more sad news this morning. Condolences to friends and family. 🕯️ #MyalgicEncephalomyelitis #MECFS
DON'T. LOOK. AWAY. #SaveCarlasLife #MEAwarenessHour Please meet Pierre, Carla's father. We cannot overstate how distraught he is by what is happening to his daughter. However, he wanted to speak to everyone directly. Please watch & share widely. She is running out of time 💚
#MEAwarenessHour #SaveCarlasLife "We should add that after the SpO2 reading dropped to 71% (even though the nurse said Carla was 'deliberately' making noises like she was struggling to breathe) the hospital then removed the obvs machine entirely." Don't look away @Channel4News
Don't. Look. Away. #SaveCarlasLife CW: distressing Videos from last night. Carla is worse today. We are watching the NHS kill an #MEcfs patient in real time. We're struggling to get anyone to help. So, we want everyone here at 8pm for #MEAwarenessHour. We need to act.
How come @5_News are courageously talking about this appallingly difficult story when other news outlets are too afraid. #MEAwarenessHour what is it that scares the others so much??
Myalgic encephalomyelitis (ME), known as Chronic Fatigue Syndrome, is a long-term condition with a range of symptoms, including extreme tiredness and muscle pain. @Ruth5News speaks to the parents of a 23-year-old woman, who suffers from the serious condition. @TheChronicColab
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