Kerry Newnham @Squashedhedgi

Tube-fed, bedbound, a very severe M.E veteran, injured in this battle. Unlikely to come through intact or alive. UK harmed pwME & then neglected us. LW-green Joined December 2010

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Carole Bruce @CaroleBruce17

19 hours ago

‘The Day After’ by Edvard Munch 1894. Norwegian 1863-1944. - (also known as PEM, and there don’t need to be bottles for #ME people!)

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ITV News are still looking to speak to someone from Kent and East Sussex. If you're from these areas and interested in sharing your experience with PoTS, please complete our survey by clicking this link: surveymonkey.com/r/5KV6LZK @itvnews #PoTS #RaisingAwarenessOfPoTS

PoTS UK @UKPoTS

3 weeks ago

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Stripy Lightbulb CIC @StripyLightCIC

2 days ago

The DALY score exposes the true toll of ME/CFS: years lost to disability, suffering, and silence. Why is #UK research still underfunded? Find out in our reposted blog. #MEcfs #Health #Justice 👉 stripylightbulb.com/2025/04/14/the…

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Adam @ABrokenBattery

2 days ago

Highlights from ABC Primetime Live segment on #MECFS Hillary Johnson describes how CDC employees joked about #MECFS as a fake bogus disease. The segment marked the release of Hillary‘s book Osler’s Web, which exposed the government’s inaction investigating #MECFS.

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ᗰᔕ ᑕᗩT @Oshunsprite

2 days ago

My GP should have known better and not sent me to a clinic for Graded Activity Therapy, miles from home. Instead, he should have said; "If you have the extra spoons, then use them to do something that adds meaning and purpose to your life." #MEAwarenessHour

Whitney Dafoe @DafoeWhitney

10 months ago

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ME/CFS Research Foundation @MECFSResearch

5 days ago

🚨 Over 60 leading international researchers are raising their voices! ME/CFS & Long COVID affect millions – but there is too little research & no causal treatments. 👉 Find out which researchers are involved and what exactly they are demanding 🔗 declaration.mecfs-research.org

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Janet Dafoe @JanetDafoe

2 days ago

#MECFS25 Michelle James talking about PET imaging using TSPO tracers in whole body imaging. Inflammation/immune response.

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Kerry Newnham @Squashedhedgi

2 days ago

@PaulRKeeble And the small number of papers is the problem with the US ME charities rallying around a “modest” ask for m.e research funding , one that apparently isn’t going to have much campaigning Or anything, it is inadequate & out of proportion to the moonshot they supported for L Covid

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UKRI Mental Health Platform @MHPlatform

3 days ago

⏳ 1 month left to register! MHP Research Summit (10th Oct | Edinburgh) – tickets going fast. Keynotes, partner-led sessions (@MQmentalhealth & @DatamindUK, @MedDiscCat, @McPinFoundation) & networking. 👉 Sign up before 3rd Oct: rebrand.ly/research-summi… #MHPSummit2025

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Todd Maderis, ND @dr_todd

3 days ago

New research shows gut bacteria may drive #fibromyalgia pain. When gut microbiota from people with fibromyalgia were transplanted into germ-free mice, the mice developed widespread pain, immune activation, metabolite changes & reduced skin nerve fibers. In a small human trial,…

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S Blitshteyn MD, FAAN, FANA, Dysautonomia Clinic @dysclinic

4 days ago

Magical thinking that thinking and wishing away your illness is how you get better or even recover is how we ended up having ZERO FDA-approved therapies for post-acute infectious syndromes pre-pandemic and nothing effective to offer to patients with #LongCovid so far... Science,…

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Rupert Read 🌍 🔥 @GreenRupertRead

4 days ago

Defeated Green Party leadership candidate Adrian Ramsay MP co-led the Party to an extraordinary quadrupling of its parliamentary numbers at last year’s general election. Three cheers for Adrian! (Pse retweet to agree)

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Brighton & Hove Green Party @BHGreens

4 days ago

BOLD LEADERSHIP NOW. The Green Party has today elected @ZackPolanski as Leader, with @rachelmillward and @MothinAli as our new Deputies. The system is broken. If you want a radical alternative in Brighton & Hove, there's only one answer: vote Green. join.greenparty.org.uk

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Peter W 🇺🇦 @mediumwhite

4 days ago

While UK campaigning for better research funding for ME/CFS and LongCovid has targetted @wesstreeting and @AshleyDalton_MP, Medical Research Council funds sit in UKRI, under the Dept for Science, Innovation and Technology, under @peterkyle + Lord Patrick Vallence @SciTechgovuk.

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Farrukh @implausibleblog

4 days ago

Sian Berry, "We can't ignore the disaster of Brexit" Jacob Rees Mogg, "Brexit was wonderful" Sian Berry, "I know you're going to say that but the facts do speak for themselves" Jacob Rees Mogg, "Free trade deal with Australia, with New Zealand, with the United States, it's…

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New Scientist @newscientist

4 days ago

People who do several very short bouts of strenuous activity each day are much less likely to die in the next few years than those who do no exercise at all newscientist.com/article/249426…

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Billy Hanlon @bhanlon15

5 days ago

Columbia University: 'Study Reveals Details of Overactive Immune System in Patients with Chronic Fatigue Syndrome (ME/CFS)' “These results suggest that specific intracellular pathways correlate with symptoms,” adds Amit Ranjan, PhD, co-first author eurekalert.org/news-releases/…

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ME/CFS Science @mecfsskeptic

3 weeks ago

1) 🩸 New paper by the team of Ronald Davis. They found that red blood cells from ME/CFS patients are slower and less responsive to low oxygen levels in a lab device that mimics small blood vessels.