MoleyME 🦔 @MoleyMECaroline

feel like a mole living in a dark ME/CFS #mecfs hole sharing thoughts ,trying to make a small difference. Lancs U.K. - #bekind also https://t.co/KxMHrvrqZ8 North West, England Joined July 2017

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MoleyME 🦔 @MoleyMECaroline

11 hours ago

My sisters on the Queen Elizabeth Hubbard Glacier Alaska (80 miles long) and sent me these of one dropping ice and bald eagle and orcas . Wow what an experience

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MoleyME 🦔 @MoleyMECaroline

2 days ago

Never seen eggs as brown as these in my Tesco delivery ? Have you ? Are they ok ?

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I went 40 mins away for a weeks holiday in a log cabin with my daughters . I sat while they walked etc Suffering for it now but it did wonders for my mental health . Silverdale beach here good for the soul

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MoleyME 🦔 @MoleyMECaroline

2 weeks ago

What the heck are the kids into these days on sale in Tesco ! This is a Fuggler look at the teeth !! Makes me feel sick ! £25 to own this !!!

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MoleyME 🦔 @MoleyMECaroline

3 weeks ago

I’ve no clue on it but if there was a way of collaboration of researchers of #mecfs feeding all their detailed results unto the same AI program maybe it will come up with something like the recent antibiotic breakthrough for us ? @OpenMedF @MEResearchUK @DecodeMEstudy

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Bottsie Hicks @BottsieHicks

3 weeks ago

#MECFS and #LongCovid communities...The Master Puzzle-Solver...aka Superman...is on Twitter/X and Facebook!!! And he's hit both platforms announcing a Community Symposium on September 5th!! 💥 I'm thinking it has to be BIG if Ron has a page on social media...lol 😉😄🫶🧩🧩🧩

RonaldwDavis @Ronaldw_Davis

3 weeks ago

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Daniel Missailidis, PhD @DanMissailidis

3 weeks ago

Putting the finishing touches on a new paper looking at some particular molecules in cells derived from people with ME/CFS. Some pretty striking results! Stay tuned. I wish I could share it with you all already.

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MoleyME 🦔 @MoleyMECaroline

4 weeks ago

Small bananas delivery from Tesco I get every week usually twice this size !!! These should be labelled minuscule bananas !! 😂size does matter in this instance!

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Daniel Missailidis, PhD @DanMissailidis

4 weeks ago

Seriously worth supporting this.

Tom Kindlon @TomKindlon

4 weeks ago

Seriously worth supporting this.

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Illustrator Interrupted @FranceyME

4 weeks ago

Today is Severe ME Awareness Day. Severe ME is worse than you think. Imagine feeling like you’re dying—every single day—for years. Not months. Not weeks. Years.

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CJB @ChrisjbofYorks

9 months ago

@fionangreg @cfs_jo @actionforme I donated to @DecodeMEstudy so am extremely happy that my DNA that’s on record will be used by #SequenceME to try and further understand&hopefully crack this awful disease! @actionforme @SonyaChowdhury @andrewgwynnemp @LaylaMoran @CommonsHealth @JoPlattLeigh #ThereForME

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Matthew Dalby @MatthewJDalby

9 months ago

@DecodeMEstudy That would give a lot more detail to look at in the whole genomes and would be a good use of all the research samples. actionforme.org.uk/news/sequencem…

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NickyProctor @NickyProctor

8 months ago

It would be great to see the charities in this sector working together to develop a fundraising campaign with £7m target for #SequenceME @MEAssociation could use its current reserve funds to put £1m in the starter pot!

Tom Kindlon @TomKindlon

8 months ago

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Tom Kindlon @TomKindlon

4 weeks ago

The #DecodeME study only looked at a subset of the total DNA. The same research team would like to deeper with a study called SequenceME but unfortunately need significant funds to do this. Fingers crossed it happens. 🤞 #MEcfs

Tom Kindlon @TomKindlon

9 months ago

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Tom Kindlon @TomKindlon

4 weeks ago

Short YouTube video from DecodeME team briefly explaining the DecodeME Initial DNA Results youtube.com/shorts/0S5u88q… #MEcfs #PwME

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Julie Houston @JulesAHouston

4 weeks ago

With all the excitement tonight, I totally missed this in the @DecodeMEstudy email. Webinar discussing the results on Thursday 14 August at 3.30pm. Opportunity to ask questions. #pwME #Myalgicencephalomyelitis #DecodeME us02web.zoom.us/webinar/regist…

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KJ Cassells @lifeinacrash

4 weeks ago

Hope has been in short supply for the community in recent years, so today's news is incredibly welcome. The powers that be must acknowledge how late this research has come in the context of the illness, they need to properly fund, educate and keep this momentum going. #MECFS

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Lou Thornley @Lou_vs_ME

4 weeks ago

A good explanation of the Decode ME results & meaning. Each genetic signal is like an ‘X’ on a treasure hunt map indicating roughly where researchers should dig for treasure. Next step: to find that treasure – the specific genes that are causing ME/CFS. decodeme.org.uk/x-marks-the-sp…

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MoleyME 🦔 @MoleyMECaroline

4 weeks ago

Scientists find link between genes and ME/chronic fatigue syndrome | ME / Chronic fatigue syndrome | The Guardian theguardian.com/society/2025/a…

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Billy Hanlon @bhanlon15

4 weeks ago

The Telegraph: 'ME is a real illness, genetic study shows' 'Breakthrough provides ‘credibility and validity’ for sufferers of the disease known as chronic fatigue syndrome' #DecodeME telegraph.co.uk/news/2025/08/0…