ME/CFS Research Foundation @MECFSResearch
Für mehr ME/CFS Forschung! We promote & finance #MECFS research! 🍋 https://t.co/M9rXZkNPX2 ME/CFS: Myalgic Encephalomyelitis / Chronic Fatigue Syndrome mecfs-research.org Hamburg, Germany Joined March 2023-
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Doppelte Wirkung für die #MECFS-Forschung! 🎉 Wow! – Alle Beträge der Geburtstagsspenden-Aktion von @FrauXausNRW, die bis zum 16.09.25 eingehen, werden von einem anonymen Unterstützenden verdoppelt! 😍 Vielen Dank für euer großartiges Engagement! 🙌
Doppelte Wirkung für die #MECFS-Forschung! 🎉 Wow! – Alle Beträge der Geburtstagsspenden-Aktion von @FrauXausNRW, die bis zum 16.09.25 eingehen, werden von einem anonymen Unterstützenden verdoppelt! 😍 Vielen Dank für euer großartiges Engagement! 🙌
🚨 Over 60 leading international researchers are raising their voices! ME/CFS & Long COVID affect millions – but there is too little research & no causal treatments. 👉 Find out which researchers are involved and what exactly they are demanding 🔗 declaration.mecfs-research.org
🚨 Über 60 renommierte, internationale Forschende erheben ihre Stimme! #MECFS & #LongCOVID betreffen Millionen – doch es gibt zu wenig Forschung & keine ursächlichen Therapien. 👉Finde heraus, welche Forschende beteiligt sind und was genau sie fordern 🔗 declaration.mecfs-research.org
💚🚴♀️ €21,700 for #MECFS research thanks to Liegefrosch! Adelheid rode her electric recumbent bike “Liegefrosch” 🐸 for 5 weeks from Tübingen to the Netherlands to raise awareness & much-needed donations. A big thank you to all supporters! 🙏
💚🚴♀️ 21.700 € für die #MECFS-Forschung dank Liegefrosch! Adelheid fuhr mit ihrem Elektro-Liegefahrrad „Liegefrosch“ 🐸 5 Wochen von Tübingen bis in die Niederlande, um Aufmerksamkeit & dringend benötigte Spenden zu sammeln. Vielen Dank an alle Unterstützer*innen! 🙏
MEET THE TEAM: Elena 👋 Elena supports us in public relations and fundraising to generate more funds for #MECFSResearch. Personally motivated by her daughter’s illness with #MECFS, she founded @NGKGermany. We’re happy to have you on board, Elena! 🙏
MEET THE TEAM: Elena 👋 Elena unterstützt uns in Öffentlichkeitsarbeit & Fundraising, um mehr Geld für #MECFSForschung zu generieren. Persönlich motiviert durch ihre an #MECFS erkrankte Tochter gründete sie @NGKGermany. Wir freuen uns, dich an Bord zu haben! 🙏
Strong first half of 2025! THANK YOU for your trust & the generous support of our donors! With your help, we were able to further advance #MECFS and #LongCOVID research & expand important projects from 2024! 🔗 Read the mid-year report: mecfs-research.org/2025summer-rep…
Starkes 1. Halbjahr 2025! DANKE für Euer Vertrauen & die großzügige Unterstützung unserer Förder*innen! Mit Eurer Hilfe konnten wir #MECFS und #LongCOVID Forschung weiter vorantreiben & wichtige Projekte aus 2024 ausbauen! 🔗 Zum Halbjahresbericht: mecfs-research.org/2025summer-rep…
Robert Habeck, FC Bayern & Revolverheld – they all joined the #LemonChallengeMECFS! 🔥 Reached 1 million people 💛 >€90,000 donated 🙏 Massive support from the community, politicians & celebrities THANK YOU all! 🍋 Grab a lemon & keep it going! ➡️ mecfs-research.org/en/lemonchalle…
Die Bundesregierung nennt #MECFS & #LongCOVID in der Hightech Agenda Deutschland (S. 32) als Forschungspriorität. Ziel: die biomedizinische Forschung zu beiden Erkrankungen verbindlich, umfassend & nachhaltig fördern. Wir sind gespannt auf Umsetzung @ninawarken @DoroBaer
📢 Wir wurden im @Tagesspiegel zitiert! @Karl_Lauterbach spricht über die dramatische Unterfinanzierung der #MECFS-Forschung. Die Einschätzung unseres Gründers Jörg Heydecke wird dort ebenfalls aufgegriffen. Ein starkes Zeichen. Jetzt braucht es Taten! 🔗 tagesspiegel.de/gesundheit/mus…
Currently €70,000 for #MECFS research thanks to Lottie & you! 💛 On May 12, Lottie (Visa Vie), herself living with ME/CFS, sparked a fundraiser with her true crime episode “Buried Alive – (No) Life with ME/CFS.” Your support brings us one step closer to a breakthrough! 🙏🏽
Costs for #LongCOVID & #MECFS will remain at the high level reported in our study for the foreseeable future. Current federal & state funding for research & care is not sufficient to deal with this crisis. More research is urgently needed! 📊 Report: mecfs-research.org/costreport-lon…
Die Kosten für #LongCOVID & #MECFS werden auf absehbare Zeit auf dem hohen Niveau bleiben, wie unsere Studie zeigt. Bund & Länder fördern Forschung & Versorgung, doch das reicht längst nicht. Mehr Forschung ist dringend notwendig! 📊 Zum Bericht: mecfs-research.org/costreport-lon…
🚀 We’re supporting additional research initiatives at the Munich Chronic Fatigue Center for young people #MCFC that establish vital foundations and infrastructure. The pilot ward 🏥 opened in May. Interviews coming soon! #MECFS #MECFSResearch 🔗 mecfs-research.org/en/mcfc-projec…
🚀 Wir fördern am Münchner Chronische Fatigue Centrum #MCFC für junge Menschen drei weitere #Forschungsvorhaben, die dringend erforderliche Grundlagen und Infrastrukturen der #MECFS Forschung schaffen bzw. erhalten. 🔗 Details: mecfs-research.org/mcfc-projects-…
The COVID-19 pandemic has not only sparked acute crises but also a wave of chronic illness: #LongCOVID und #MECFS now affect over 1.5 million people in Germany—almost four times more than before the pandemic! 📈 All study details: 🔗 mecfs-research.org/costreport-lon…
Die COVID-19-Pandemie hat nicht nur akute Krisen ausgelöst, sondern eine Welle chronischer Erkrankungen: #LongCOVID und #MECFS betreffen heute über 1,5 Mio. Menschen in Deutschland – fast viermal mehr als vor der Pandemie! 📈 Alle Details zur Studie: 🔗 mecfs-research.org/costreport-lon…
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