Martin @MartinMECFS
Living with the immuno-compromised neurological condition Myalgic Encephalomyelitis (ME/CFS) Joined December 2023-
Tweets145
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Followers150
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Following269
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Likes5K
Martin retweeted
Ten months ago I sat down for my first online CBT session to address my severe agoraphobia and health anxiety. 30 minutes after the therapy session ended my life changed completely and I've been trapped in a suicidal, emotionally distressed state ever since.
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Martin retweeted
theguardian.com/science/audio/… 20 min listen. Very good - @NickyProctor speaks brilliantly for all of us with #MECFS
Martin retweeted
Clip from The Guardian’s Science Weekly podcast: @NickyProctor describes how doctors dismissed her #MECFS as psychological, before she crashed completely and became mostly bedbound, unable even to hold a conversation.
Martin retweeted
Almost two years ago, our beloved, brilliant #bethmazur ended her life while visiting me. The grief has softened with time, but the impact has reshaped me. I've written about it here: jrehmeyer.substack.com/p/holding-what…
Martin retweeted
accepting that I am sick with Myalgic Encephalomyelitis must be the most challenging, saddest, terrifying, painful, lonely, scary, worst thing that has ever happened to me in my life
Martin retweeted
Advice: if you get disabled make sure you don’t end up living in someone else’s house - a place you have zero legal rights over but are an unwelcome “guest” in.
Martin retweeted
ME/CFS is a slow execution. Your body becomes a trap. Every cell feels poisoned. Standing, thinking, even breathing can break you. You lose work, friends, family, dignity. You are gaslit by doctors, abandoned by those who promised to love you, and left to rot in rooms you…
Martin retweeted
The 5 stages of having abled friends when you get #MECFS/#LongCovid: 1. Sympathy: "Oh I'm so, so sorry!" 2. Bafflement: "You mean you're STILL sick?" 3. Impatience: "OK. This is getting old." 4. Hostility: "What is WRONG with you??" 5. Silence: Because by now they've walked away.
#LongCovid #LongCovidAwarenessDay #LongCovidAwarenessDay2025
#LongCovid #LongCovidAwarenessDay #LongCovidAwarenessDay2025
#LongCovid #LongCovidAwarenessDay #LongCovidAwarenessDay2025
#LongCovid #LongCovidAwarenessDay #LongCovidAwarenessDay2025
#LongCovid #LongCovidAwarenessDay #LongCovidAwarenessDay2025
#LongCovid #LongCovidAwarenessDay #LongCovidAwarenessDay2025
Martin retweeted
Es ist #LongCovidAwarenessDay Ich würde heute gern auf den Protest in meiner Stadt gehen, aber Long COVID hält mich im Bett. Seit 538 Tagen bin ich jeden Tag schwer krank, ohne Behandlung, Versorgung o. Perspektive. Also demonstriere ich von hier aus. #LongCovidAwarenessDay2025
Martin retweeted
I used to live life to the fullest, workout every day, travel & have nonstop energy. Now I’m severe & bedbound. I miss that person & my life so much 💔 I have lost everything. Long Covid has ruined 400 million lives. We need funding & treatments now! #LongCovidAwarenessDay
Martin retweeted
This is Long COVID. There is no better way to describe the unimaginable pain than this photo and caption. Suicide. It tells of the intense and constant pain and terror of the infected. #COVID19 #CovidIsNotOver #LongCOVID #LongCOVIDAwarenessDay #pwLC #LongCOVIDTreatmentsNOW
Martin retweeted
5 years of #longCovid with no end in sight. A shell of the person I once was. Still no treatment. Barely any medical support. We need funding for research, and we need treatments. #longCovidAwarenessDay
5 years of #longCovid with no end in sight. A shell of the person I once was. Still no treatment. Barely any medical support. We need funding for research, and we need treatments. #longCovidAwarenessDay
Martin retweeted
#LongCovidAwarenessDay2025 #LongCovid #Ireland TW-this post references thoughts of suicide.
Martin retweeted
#LongCovid #LongCovidAwarenessDay #LongCovidAwarenessDay2025 #covid #cognitiveimpairment #BrainFog
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Kags ❇ 😷 #pwME �... @Klang764
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PZ @pzneedsrest
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plague rat 🐀 @x3r0gx4
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LongWaiter @LongWaitME
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María Richardson @_diatoma
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Niko Suvisto @nikosuvisto
770 Followers 405 Following Life on hold by severe #MECFS, currently 99% bedbound 🛌 Documenting my life like it is now, advocacy through photography 📷 📍Finland
Supporting Healthcare... @SupportingHH_UK
1K Followers 2K Following 💙UK Registered Charity: 1205685 💙Long COVID doesn’t stop the care - neither do we. 💙Join our 2025 Campaign: #SafeAir4All
T @Yrrepmot
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NZ_fund_MECFS 🦋 @NZ_fund_MECFS
705 Followers 1K Following Life lost back in 2022. #MECFS #LongCovid #PostVac #NotRecovered #MillionsMissing https://t.co/VVu3MaZ2y9
Emma 🛌♿🌱☮�... @emma_vegan_mua
1K Followers 3K Following She/her. Severe ME, CCI/AAI, hEDS & co, AuDHD. Ex makeup artist, ethical vegan, socialist. #BlackLivesMatter #TransRightsAreHumanRights Support striking workers
Gadget @Gadget440
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82 Followers 1K Following BOOST YOUR FUNDRAISING CAMPAIGN! Let's work together to reach new heights and make your project a success!
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103 Followers 2K Following Search Engine Optimization, Facebook Ads Management, Social Media Marketing Services, Google Ads Management, Email marketing services, campaign optimization.
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10 Followers 26 Following
ME Action Now @MEActNOW
4K Followers 6K Following https://t.co/Vyrf7yGws7 🌱#Vegan 💙Photography💙Birds💙Animals 🌱Gardening 💙#MECFS LongCovid #POTS #MCAS💙BLM💙Resist💙Equal rights💙Gun Control IFollow
👻ghost of submersi... @MECFScomrade
2K Followers 1K Following she/her | life on pause due to severe ME & co (since 2019)♿️ land back! 🇵🇸🇨🇩🇸🇩🏳️⚧️
Star💫 @Starseeker1986
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Dr Melanie @MelanieWeckert
11K Followers 12K Following ME, MCAS, POTS from 2011. PhD Microbiology (not medical). Living on Yuin land, Australia. Writer poetry, fiction. Voted YES. No bombing ANY civilians.
Disabled Trash Witch�... @StinkRatsCharms
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Hugo @mx__worldwide
775 Followers 1K Following They/them | 29 | ME/CFS since 2016, very severe since covid in 2022 (now 99% bedbound) | Pain-hyperacusis | Pro disability justice & pro 🇵🇸 mxworldwide on 🦋
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1K Followers 250 Following PhD candidate researching ME/CFS at La Trobe University
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@TheRealMcCoy aka Meg... @RipperMD41
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CSF Leak Awareness Ir... @csfleakaware
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Robin. 23m in US have... @robinsoped101
3K Followers 6K Following 20yr disabled from #ME. #ME child. #MECFS #MEkids #POTS/OI #MCAS #hEDS #LongCovid #LongCovidKids https://t.co/LH3gVB1GbV @pandemic_equity
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Taylor of Samsara (Re... @taylorpartdeux
735 Followers 1K Following 29 | Chemist | Disabled | ME/LC/PsA/CPP | AuDHD | #FreePalestine 🍉🇵🇸| Chess player ♟️| #FreeLuigi | Acolyte™ | banner by @SurvivingCFS | ♋️♎️♍️
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1K Followers 1K Following Tube-fed, bedbound, a very severe M.E veteran, injured in this battle. Unlikely to come through intact or alive. UK harmed pwME & then neglected us. LW-green
Andrea Fighting for #... @MECFSNanoneedle
1K Followers 3K Following Severe #MECFS Patient Bedridden. No energy to speak. #MECFSBiomarkers #RadicallyRestForMECFS The battle I choose is for ME/CFS Diagnostic Biomarkers
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PwME 4 bioMEdical res... @ValeBodi
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Briana Mills, LMFT �... @theBrianaMills
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3K Followers 516 Following #LongCovid patient (mar '20); MBA candidate @StanfordGSB | ex @37angelsny @paypal @inturnhq
Emily Pomroy-Smith �... @EmilyP_Smith
3K Followers 4K Following Award winning entrepreneur, disability rights activist, SW Wilts PPC 2019, Jo Cox WIL Cohort 5
brainfrog 🫁🧑... @brain__frog
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thetranscendedman @atranscendedman
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575 Followers 485 Following
Tweets @ChronicMyalgicE
1K Followers 801 Following Dutch | life derailed due to #IBD & #MECFS | sofa bound | on Twitter to raise awareness for post infectious diseases | one of the #MillionsMissing
Erin M @ErinAPN1
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Robert 😷5+LC 🇨�... @Rob_DeRosa
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Sally Doherty writes ... @Sally_writes
13K Followers 4K Following MG author: TOBY & THE SILVER BLOOD WITCHES. Winner @bbnya_official, SL Selfies & Rubery 2022. MAX & MONTY @collinsprimary. Nature. Dogs. Books. ME/CFS♿
Anna Wood @Annakwood
3K Followers 2K Following STEM Ed researcher @UniEdinburgh (part-time). Physicist, digital education, bird photographer, #mecfs Author of 25 Birds: https://t.co/DcN0WiZVAy
Emily @emsea_squared
1K Followers 592 Following Animal lover, former over-achiever. ✨ Now just surviving dystopia. LC since March 2020
Joan McParland MBE-Ne... @JoanMcparland
559 Followers 510 Following 1999 Sudden-onset-virally induced Myalgic Encephalomyelitis. IT instantly removed ability to care for my family, took career too. Life remains mostly horizontal
Antoine | Severe MECF... @JeunePOTS
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Emma 🦋✝️ @Emma40025133
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Nick Wellings @Nick_Wellings
3K Followers 6K Following used to love opera + ballet, some books. now disabled by METrends for United States
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