María Richardson @_diatoma
ES-EN. I write, I teach, I draw plants. Chronically ill en la Ciudad de México. #MyalgicEncephalomyelitis #GreatestMEdicalScandal linktr.ee/mariarga cdmx Joined May 2014-
Tweets37K
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Followers3K
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Following6K
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María Richardson retweeted
#MECFS25 PLEASE! Be sure to tune in or listen later to Brayden Yellman’s talk tomorrow. It’s amazing, validating, informative, transformative. Really.
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María Richardson retweeted
🚨 Over 60 leading international researchers are raising their voices! ME/CFS & Long COVID affect millions – but there is too little research & no causal treatments. 👉 Find out which researchers are involved and what exactly they are demanding 🔗 declaration.mecfs-research.org
María Richardson retweeted
We are currently at a Long Covid Hackathon with Dutch NL scientists to get new ideas for collaborative projects. 🤓🙃 We are wondering if bone marrow transplantations have been performed in a patient that also has long covid? What were the outcomes related to LC?
María Richardson retweeted
Exercise Testing in LC and MECFS: 🔔muscle oxygen diffusion was the most impaired parameter The ability to get oxygen from 🩸 blood into tissue didn’t work well. 🔔This is consistent with low cap flow/microclots in capillaries and thickened / (scarred) small vessels.
Exercise Testing in LC and MECFS: 🔔muscle oxygen diffusion was the most impaired parameter The ability to get oxygen from 🩸 blood into tissue didn’t work well. 🔔This is consistent with low cap flow/microclots in capillaries and thickened / (scarred) small vessels.
María Richardson retweeted
#VerySevereME emergency in México 🚨 @stefan_arce has asked we share his posts & asks if @JanetDafoe @LBatemanMD @OpenMedF @WorldMEAlliance can share his story & offer some support. We have NO #ME support or recognition in MX. #GreatestMEdicalScandal gofundme.com/f/stefan-arce-…
María Richardson retweeted
@CoRESinai On days I test positive, I have started testing nose and throat separately for more data. Consistently, the throat test is positive, while the nose is negative. Sharing this to inform & connect w/ others who may have had similar experiences—to help move the science forward. /end
María Richardson retweeted
@CoRESinai Interestingly, once I started Truvada, my positive C19 tests increased! I started testing positive more consistently but the acute C19 sx did not return. (I don’t know why this is and would be curious of others’ thoughts/hypotheses.) 10/
María Richardson retweeted
By July, my acute sx had subsided. I had also noticed that some of my LC sx were reduced (ie, fatigue, brain fog, some POTS). BUT I still was testing positive sporadically—about 1-2x a week. 4/
María Richardson retweeted
C19 Reinfection w/ surprising twists 🧵 TL; DR: still testing positive 3 mos later (at times); LC sx reduced after Pax and Truvada; not recovered but increased baseline 1/
María Richardson retweeted
Rapamycin for LC 💊 For anyone who has tried it…have you experienced things getting better, then worse, then better again? I’m used to meds making me feel like 💩 for a few weeks or even months before normalizing and even potentially helping. But usually they only go from…
María Richardson retweeted
Additionally, the benefits from the protocol were long-lasting, with almost all patients reporting sustained improvement up to 720 days after the protocol! #LongCovid researchsquare.com/article/rs-750… 2/
María Richardson retweeted
New from @PutrinoLab & Dr. Pridgen: A combo of 120 days of celecoxib & valacyclovir with 15 days of Paxlovid is significantly more effective than celecoxib & valacyclovir alone! The combo had vastly greater response rates for brain fog, dysautonomia, & fatigue. #LongCovid 1/
María Richardson retweeted
We’re excited to announce the official launch of the Minnesota Home Help Navigation program, a new pilot program created by #MEAction & funded by a grant from the Minnesota Department of Health’s Long COVID Program. ow.ly/Cuva50WPSow #LongCovid #MECFS #disability
María Richardson retweeted
Can anyone help? #SevereME #MEAwarenessHour
María Richardson retweeted
“You cannot believe that COVID is mild, chose to freely spread COVID and refuse to participate in any mitigations, and also believe that there is a large group of people badly suffering because they caught COVID and never recovered.” Another banger from @julia_doubleday
“You cannot believe that COVID is mild, chose to freely spread COVID and refuse to participate in any mitigations, and also believe that there is a large group of people badly suffering because they caught COVID and never recovered.” Another banger from @julia_doubleday
María Richardson retweeted
Those of us with Long COVID have been grievously harmed by our government’s failure to implement disease control measures. That same government's denial of COVID's harms has also created massive stigma around our illness, redoubling that harm. My latest: thegauntlet.news/p/long-covid-s…
María Richardson retweeted
🚨URGENT REQUEST Someone with very severe MECFS in Mexico needs assistance. Please see the QT tweets for more details.
🚨URGENT REQUEST Someone with very severe MECFS in Mexico needs assistance. Please see the QT tweets for more details.
Can somebody from #ME global community talk to @stefan_arce's carers about #SevereME #PEM? EN or ES I don't have the ATP to manage/be very present, but can put you in touch with @stefan_arce &/or representative @sunsopeningband @JanetDafoe @BatemanHorne @OpenMedF @microbeminded2
Can somebody from #ME global community talk to @stefan_arce's carers about #SevereME #PEM? EN or ES I don't have the ATP to manage/be very present, but can put you in touch with @stefan_arce &/or representative @sunsopeningband @JanetDafoe @BatemanHorne @OpenMedF @microbeminded2
María Richardson retweeted
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