Amanda Bennett @AmandaB55744931
Usually up mountains, sidetracked by long covid since Dec 2020 (infection Mar 2020). @[email protected] London, England Joined December 2020-
Tweets11K
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Following245
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Amanda Bennett retweeted
@IAmJessPlant PIP is meant to be extra support but for myself and others, it’s often the only income we have. Further changes only belittles us more than the less than minimum wage they pay us already.
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Amanda Bennett retweeted
@AmandaB55744931 My hands aren't swollen, but my skin looks EXACTLY the same. (Not dry and very soft, looks 'detached'.)
And while we are at it, wtf has happened to my hands? How can they be both swollen and have weird snake-skin wrinkles at the same time?
Amanda Bennett retweeted
This is breathtaking: almost all Latvian classrooms' CO2 levels can be checked online. This is what world-leading actually looks like. More info: eng.lsm.lv/article/societ…
This is breathtaking: almost all Latvian classrooms' CO2 levels can be checked online. This is what world-leading actually looks like. More info: eng.lsm.lv/article/societ…
Have noticed my muscles are failing super-quickly. Can’t scrub a pan as my fore-arm and hand cramp within seconds. Can’t whisk a sauce. I think only my head is unaffected at this point. Need a body transplant.
Thyroid test normal so that’s good, one less possibility. Woke up still with horrendous pain in my ankles and legs though. Steroids haven’t worked on anythjng this time which is odd. Normally my shoulders, wrists and hands are ‘healed’. Wonder if GP injected fat not muscle?
Amanda Bennett retweeted
@MEawareness @5_News Jesus. That’s someone clearly struggling to breath with a clinical quality hospital device showing an emergency level low blood oxygen. The hospital, instead of addressing this…just turned off the obs machine 😧 I just…what is wrong with them??
Me, shouting at the article, “endo on the bladder or interstitial cystitis!”. My sympathies go out to this lady being gaslit by her doctors. bbc.com/news/articles/…
GeoCK @GeoEduOne
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LongCovidPharmD @organichemusic
37K Followers 1K Following Doctor of Pharmacy. Long Covid, EBV & ME/CFS research. Here to share & learn. Tweets not medical advice. https://t.co/jqc4g8cFLa https://t.co/lKQezPwtQs
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2K Followers 3K Following no 🚫🦠 if you want to stay healthy wear a respirator 😷 ex-athlete 🏸 #ENDMECFS #ENDLONGCOVID
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@AmandaB55744931 Thank you for this. It's a shame I couldn't understand all of the questions. I swear they phrase them poorly deliberately.
@AmandaB55744931 I do know this. It's an electrolyte & 'water' problem (from in/outer cells). I do have that myself sometimes (kidneys...liver). Perhaps try: banana AND sea salt (!!), enough protein and drink water. If you can handle the fruit? Afterwards: cheese, parmesan. All about combination.
@AmandaB55744931 Sent you the link via email.
@AmandaB55744931 Tried emailing the link but it was kicked back.
@AmandaB55744931 Same here. I do have psoriatic arthritis but no active psoriasis at the moment. The back of my hand is swollen / puffy around unaffected joints.
@AmandaB55744931 I have several, coeliac, lupus, sjogrens and ME, but they are all old diagnosis and this thing with my hands is relatively new. I do know I have dysautonomia. So following with interest to see if anyone comes up with any answers.
On a mission to be really annoying about this
I’ll take vouchers instead of cash if I can spend them on a cook, cleaner, taxi driver, shopper, basic HCA, gardener etc. No? #PIPShit
@AmandaB55744931 @longcovidisreal good. I am not a doctor but a relative had bad side effects from cholesterol meds
This Conservative Govt defends cuts to disability payments as delivering 'better value for the taxpayer'. They say it is part of a 'grown up conversation'. The reality is this is yet more scapegoating of people who are entitled to #PIP support. Shameful.
As an experiment for May 2024 (and perhaps onwards), I am going to try to measure, record, and share the extra costs I face due to my disabilities. (My aim is to show that for some #PersonalIndependencePayment (#PIP) even in its current form isn't always enough to cover the…
You are only an accident or an illness away from becoming disabled. Lets keep talking about the reality of payments that are used to buy in goods and services that reduce the impact of disability. #PIP Personal Independence Payment
"I DON'T CARE IF YOUR FAMILY WILL BE DESTITUTE WITHOUT #PIP, YOU SHOULD HAVE THOUGHT OF THAT BEFORE YOU DECIDED TO BE DISABLED"
Workhouses are only a couple of steps away aren’t they? #PIP #ToryBrokenBritain #ToryGreed #Disability
@PhoebsBo @MelJStride Maybe he's talking about those one off thousands payment you get after waiting 2 years and going through the tribunal system because they didn't do the job right in the first place to give you your £60 a week. - I mean after 2 years of not paying people who deserve it it's 1000s
@AmandaB55744931 I purchased through Amazon.
@AmandaB55744931 So does my mum, she always looks slightly dehydrated like this , it's pretty hard on your liver and kidneys
@AmandaB55744931 Same. Bookmarking if others figure it out. I keep moisturizing my hands thinking I’m just a dry bitch but it doesn’t seem to alleviate it long.
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