Candles and Chronic Illness 🦄 🦄 🦄 @candlelovers12
Disabled spoonie. lover of candles and stuff. #pwME #POTS. Link is iherb rewards. I love this company. iherb.com/?rcode=MRX9003 Joined December 2022-
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Dr: try this Beta blocker Me: I did and it made my asthma worse and seemed to block my inhaler (a well known issue in these drugs). Also they don't work when I am upright (shares data). Dr: Try increasing your dosage of BB.
It's World Tapir Day on Saturday, it's also someone's birthday. Send Tapirs. tapirday.org
Ugh. I am having an allergic reaction to the clonidine patches. I thought was under control with allergy meds. Last night I saw a red spot where I put a patch 2-3 weeks ago(the exact shape of the patch) .I can't take the pills .On H1 and H2 blockers . 😢
Breaking news: Someone on Twitter thinks #pwME should do a groundbreaking never thought of before action to get treatments: educating your doctor and advocating for yourself ! In my 33+ years of illness I'd never think of something so smart and effective. /sarcasm
#pwME I found this video from the 90's. It is obviously a bit dated but still worth a watch I think. Sad that nothing has changed. #MECFS youtu.be/AW0x9_Q8qbo?si…
I have met a few doctor online friends through Hive (blockchain blogging ).One is no longer practicing (disability)the other is a young doc in residency. They are blown away when I give them facts about ME, the history QOL etc .I hope to make a difference for others through them
Worth a read
Please help me raise funds to support the next generation of health care practitioners! pacific.scalefunder.com/gday/giving-da… #PacificGives
"The abused become the abusers" No, this really isn't true and it stigmatised victims. The vast majority of victims are kind, compassionate, amazing people who actually vow to become the exact opposite of those who harmed them.
BMJ Rapid Response: Steps doctors and other medical professionals can take today to improve medical care for people with Myalgic Encephalomyelitis #MyalgicEncephalomyelitis bmj.com/content/383/bm…
I had one of the best dreams ever last night. It was a guinea pig squeak competition. So cute. Probably dreamt this because one of our piggies sang her "squeak song" last night right before bed. Her squeak song mimics one of the songbirds outside and it's too cute for words.
Allegra is still in the hospital. She needs a feeding tube but has been ignored. She has #MECFS and is currently at @RUMCSI. We need advocates in New York. Please support the hashtag #SaveAllegra
Our 2018 estimate of global incidence of ME/CFS was conservatively 65 million. Doesn’t pre-COVID ME/CFS need a billion for research also? Tell Senator Sanders at [email protected] ncbi.nlm.nih.gov/pmc/articles/P…
Neurologist here: These are clear epileptic seizures triggered by reduced blood volume because you forced a patient with neurovascular irregularities due to her dysautonomia to sit! We need help to #SaveAllegra. She is at @RUMCSI in NY. Please share this message #MECFS
Hannah Lubbers @HannLubbe
99 Followers 5K Following
Hayleigh Taton @haylei_tat
73 Followers 5K Following
Alvera Shoemaker @AlveShoemake
62 Followers 5K Following
Jade Savoca @JadieIsTired
670 Followers 616 Following 39F / AZ🌵➡️MN🌲 / Rescue 🐕🦺🦮 mom / Investments 💵 / Music 🎵 / #LongCovid community #FBLC / Politics #NeverTrump
Courtney Stiens @StieCourtne
56 Followers 5K Following
MumME @pamrosling
1K Followers 5K Following Mum & carer to severely Covid-vaccine-injured daughter desperate for treatment to get her life back :-( Also passionate about climate and biodiversity crisis.
Sammy James @SuperSalmon1992
218 Followers 3K Following
Renate-new account�.. @Renate834601
79 Followers 406 Following Myalgic Encephalomyelitis since -87,severeME,Bedbound, diagnosecriteria /name matters!separate ME from ME/cfs; use ICC -G93.3 for ME❤️#Enterovirus
Alice Ripoll @ripol_al
78 Followers 5K Following
Sarah @BirbsAreReal
403 Followers 1K Following Forty-something retired biologist and ME advocate. Lover of birds and yarn. Former athlete. https://t.co/rBbNBTEspH
Emy with ME @EmyWithME
162 Followers 239 Following BME PhD student, lover of nature. Learning everything about #ME/#LC/#POTS/#MCAS/#hEDS in hopes of recovering+helping others. She/her. #ActuallyAutistic 🖤🩶🤍💜
Marina Paskow @pask_mari
71 Followers 5K Following
Janine Stillabower @JanineStil28650
90 Followers 5K Following
Tom Kentish @FatiguableME
158 Followers 414 Following ME/CFS (Severe), Fibromyalgia, Anxiety, Depression. Hoping to get better; fighting not to get worse
Filomena Hunnings @FHunnin
40 Followers 5K Following
Sinan Mellaart 🔺 @sinanmellaart
563 Followers 5K Following Ava Labs. Ex Google, JPMorgan, Brown University
InvisibleGLove @GoreLloyd
447 Followers 727 Following DELTA-qualified EAL teacher; previously in EFL, ESOL and EAP (and subtitling). Caregiver to partner with v severe ME from Long Covid She / her
KeepingHope95 @KeepingHope95
502 Followers 2K Following Disabled Advocate, Progressive Liberal, 💙🌈🏳️🌈🏳️⚧️ She/Her Exvangelical & Atheist #FBLC #EDS #LongCovid since 3/2020-pre-vaccine. #pwME ❌MAGA and ❌DM’
Zed Zha, MD, FAAFP is.. @DrZedZha
25K Followers 6K Following Physician | Writer | Freelance OpEd contributor | WIP on medical rape culture rep'd by @knwillms | NERFC fellow | Dartmouth grad | FQHC | #AskThePatient polls
Twisted4.0 @YvonnBLU22
123 Followers 351 Following The More You Know The Less You Need 🕊️ Palestine, Olive Trees, kitties 🫒🍉 Guardian of Animals and Environment 🤕 🙃
StarDust949 @StarDust949
695 Followers 5K Following Aspiring to write for Stage & Screen. She/her. #pwME - Spoutible - @StarDust949. Threads - @stardust_949 Mastodon - [email protected]
Miss Genung @MissGenungTeach
276 Followers 682 Following Special Ed teacher in Virginia. I love giving my students unique experiences. I am from Sussex County, NJ. I love traveling, spending time with friends & fam
Patty Smith @Solutions2Work
3K Followers 5K Following US two-party oligarchy is guilty of genocide. The people must unite and help one another. Plant gardens, assist your neighbors, support small local business.
potatum🥔 @pot8um
27K Followers 9K Following appalachian autistic artist ✺ AuDHD ✺ advocate 🌻 autodidact ✺ anti-capitalist ✺ activist 🌈 she/they
med help @medhelp9
2K Followers 5K Following Medhelp World is a non-partisan, community-based pharmacy that works to support pain patients and their physicians with access to lifesaving pain relief.
Nella Sarkar @sarkar11426
66 Followers 5K Following
MatteKat2 @mattekat2
91 Followers 194 Following
Germain Kyle 🍄 @microdosingpsy
2K Followers 7K Following Profession grower® & vendor of psychedelics products also a psychotherapist been treating many people suffering from anxiety, depression, PTSD,adhd,pain & more.
LA2LAGURL @La2Arceri
426 Followers 2K Following Questioning everything : 𝚖𝚎𝚗𝚊𝚐𝚎𝚛𝚒𝚎 𝚘𝚏 𝚠𝚑𝚊𝚝 𝚠𝚊𝚜: spiritual & narcissistic abuse survivor #CPTSD: severe #ME/CFS: POTS, CCI 20yrs
Wilhelmina Ruzycki @WilhelmRuzy
67 Followers 5K Following
Noa Drinkwater @Drinkwater74452
66 Followers 5K Following
Regulated Safesupply @K2spiceN8745
212 Followers 2K Following We are in favor of a safe regulated supply of FDA approved prescription medications. Check link and get a safe supply now
Kyle Bradley 🍄 @aneem_indigo
870 Followers 2K Following I’m a professional vendor of Psychedelics products, also a psychotherapist been working with many people suffering from anxiety,depression,PTSD, pain and more.
Everly Newbold @eve_newbo
78 Followers 5K Following
Isela Gach @GachIsela78388
60 Followers 5K Following
Sharon Cohen @SharonC97936831
814 Followers 4K Following #TwitterHaiku; Tulane MBA; LSE; Univ of Wisc Mad; former career financial services; international bus. #chronicillness; #physicaldisability.. 4 NIH studies
Melody Matto @MelodyMatt8281
81 Followers 5K Following
stjepanhausercello @stjepanhau60751
226 Followers 5K Following I'm stjepan hauser I am into Super music I love playing cello music 🔥🎻🇭🇷 I am on (YouTube)
Cambridge ME group @CBMEgroup
1K Followers 2K Following CBME is a support group based in #Cambridge UK for people with #MECFS, #MyalgicE , #CFS, #PostViralFatigue, #Fibromyalgia, including #pwME caused by #LongCovid
dr. rattus flattus �.. @RattusFlattus
737 Followers 1K Following Disabled academic, animal enthusiast #pwme , vax injured and fuck you no I’m not an “anti vaxxer”
Gabriella Gusman @gabriel_gusma
47 Followers 5K Following
Scott A. Cook 🇺�.. @beachboyrocker
84 Followers 248 Following Artistic Producer, TheatreWorks Florida https://t.co/OzT7V9fKch
Jerry Durham @Jerry_DurhamPT
16K Followers 11K Following Physio... Beastie Boys, Biz, Baseball, Books, Bourbon .... #bizPT #ptexp #CLexCo #PatientSuccess #FrontDeskSuccess #BusinessSuccess #SFGiants #FTTB #Warriors
McCrudden J @JohnMcCrudden9
450 Followers 3K Following
Umaima Aman @umaima_umai
41 Followers 5K Following
MEinSEATTLE @emmydugas
974 Followers 2K Following
Jade Savoca @JadieIsTired
670 Followers 616 Following 39F / AZ🌵➡️MN🌲 / Rescue 🐕🦺🦮 mom / Investments 💵 / Music 🎵 / #LongCovid community #FBLC / Politics #NeverTrump
The Road Jess Travell.. @JessPected
13K Followers 2K Following Feminist. Atheist. Progressive. Intersectional. Pro-Abortion. Bot collector extraordinaire. Enthusiastic blocker of ads, checks, & bigots.
Neurologist Mom @NeurologistMom
5K Followers 263 Following A neurologist, M.D. a mother of a 15-year-old girl with severe neuroCOVID/ME/CFS who has been managing her daughter's treatment at home since October2022
Dr Keith Geraghty @keithgeraghty
9K Followers 500 Following Research Fellow | Primary Care, Medical & Health Psychology | People-focused, evidence-based | @FBMH_UoM, @PrimaryCareMcr
Nick Wellings @Nick_Wellings
3K Followers 5K Following used to love opera + ballet, some books. now disabled by ME
Christoph Ströck @cstroeckw
7K Followers 455 Following Soon, people will look back in disbelief at what has happened to patients with #MECFS and #PAIS | @weandmecfs co-founder
Bernie Sanders @SenSanders
12.2M Followers 2K Following Sen. Sanders of Vermont, Chair of the U.S. Senate Committee on Health, Education, Labor & Pensions, is the longest-serving independent in congressional history.
zedsrigil @sunsweptforest
428 Followers 852 Following forest.haven they/them autistic me/cfs and more nature music outer space
Patty Smith @Solutions2Work
3K Followers 5K Following US two-party oligarchy is guilty of genocide. The people must unite and help one another. Plant gardens, assist your neighbors, support small local business.
Nick Melia @arta_semita
1K Followers 1K Following Systems biochemist, researcher @RenegadeRes Studying the etiology and pathogenesis of Long COVID and Myalgic Encephalomyelitis (ME)
Chelsea Kenna @chelseakenna
6K Followers 2K Following 🎨 Freelance illustrator 🐾🐈 Kitten enthusiast ♿️🦓 I sometimes tweet about EDS, ADHD, and other disability issues ✨🌈🌧️☕️🌱🐱🎮✨ https://t.co/wlNajsAyPJ
Andrew Green @AndrewG76201347
1K Followers 717 Following ME/CFS, POTS, MCAS. Female (ignore name). I post anonymously because I share medical details of my child too young to consent to public sharing.
Miles W. Griffis @mileswgriffis
4K Followers 1K Following Co-founder/editor @thesicktimes Columnist @highcountrynews [email protected] #LongCovid 🇵🇸
UniteToFight2024 @U2Fight_World
3K Followers 121 Following 100% crowdfunded LC & ME/CFS conference project. community-driven. independent. global.
Eden McPherson @EJMcPherson94
437 Followers 256 Following AuADHD, Mother, jewellery maker, artist, gamer, progressive, I've never had an abortion but I am pro-choice, agnostic, Feminist, and sometimes witty.
Liam Nissan™ @theliamnissan
327K Followers 14K Following What I have is a particular set of skills; skills that make me a nightmare for Nazi dickbags on the internet. I joke, and drive a Nissan (parody)
Sabrina Poirier (On H.. @Sabrina_Poirier
6K Followers 6K Following Community Builder / Passionate Collaborator / Chair - #MedicalEducation Group / #ResearchPartner / #MECFS #LongCovid Advocate / #PwME / #MCAS / #POTS / #Fibro
Thought Provoking Ber.. @Paultheheretic
9K Followers 5K Following Thought Provoking memes and ideas #Memesmith Follow this account for more Thought Provoking memes and ideas.
ThreeDShadow @moveablecube
177 Followers 708 Following Art, animals, nature, and learning. Never take your health for granted.
Arianne @ravensspirit68
14K Followers 9K Following Old soul, creating, hoping, learning. ME/cfs C-spine injury Chronic pain Adenomyosis survivor Married Underestimate me, that'll be fun.🌸💞🌸
Amanda Bennett @AmandaB55744931
1K Followers 253 Following Usually up mountains, sidetracked by long covid since Dec 2020 (infection Mar 2020). @[email protected]
Derya Unutmaz, MD @DeryaTR_
290K Followers 4K Following Professor, medical scientist, immunologist @jacksonlab research in aging & cancer immunotherapy. Interests: #longevity #robotics #AI #Scifi #tech #space🇺🇸🇹🇷
Stormy Daniels @StormyDaniels
1.4M Followers 307 Following Award winning director,writer&adult film star.Paranormal investigator/ host of https://t.co/nenEZtplfb press/manager:[email protected]
George Monbiot @GeorgeMonbiot
583K Followers 3K Following The corpse at every wedding, the bride at every funeral.
GC @ThePOTSPostman
5K Followers 1K Following Just a mailman with #POTS. Here to spread awareness and advocate for those with #dysautonomia #chronicillness
🌻Sarah Diekman, MD.. @JusticeInMed
6K Followers 6K Following Instructor @unc Gillings School of Public Health. OEM& MPH Hopkins 22|FAMU 20| Indiana 13|not Med/legal advice. 🐎🐎🦓🐎#Dysautonomia #LongCovid #POTS
Paul Keeble ME/CFS/LC @PaulRKeeble
2K Followers 302 Following ME/CFS since 2017 (Mild) Long Covid since March 2020 (V Severe) Currently Funcap55 = 2.13 (Severe)
Autisdick ☭ 😷 �.. @hiimjakekthx
1K Followers 2K Following @Remissionbiome n=50 Participant🍳🧠 🏳️🌈. Disabled by SARS2, Marxist, jew-ish. @hiimjakekthanks priv alt
Marcia (Mar c aa) @MarciaPenney
1K Followers 3K Following 🇨🇦 My family, BFF/FFF, Audiobooks & Music literally save me. ❤️ 🐶🐱++, ✍️, 🎥 📷 & being warm. I’m a spoonie. Have ?’s Just Ask! Spread Love not Hate or BS!
Amanda Crist @ZebraLoveCo
214 Followers 442 Following Writing about #hEDS 🦓, #muscle, health☕️, genetics, and how I’m trying to walk again🌱 #bedbound #homebound #calfproblems #zoology
MC @eschersillusion
61 Followers 109 Following
Lizzy H @hopefullizzy
6K Followers 3K Following 29y/o creative, with complex health issues🤞🏼ME/CFS biomedical research. Passion for the wild, for kindness, and helping all people have a voice. Co-author✨
Sinéad @spoonless_me
2K Followers 821 Following dog lover • plant mad • software engineer • chronically ill #CanWeTalkAboutIt #PostVacSyndrome #MECFS #LongCovid #SFN #POTS #Fibromyalgia
The Sick Times @thesicktimes
3K Followers 281 Following Non-profit news site chronicling the #LongCovid crisis. Founded by @betsyladyzhets and @mileswgriffis. Donate: https://t.co/YBFRSWzcJx
Taylor with ME/LC (DE.. @taylorpartdeux
502 Followers 806 Following 27 | Chemist | ME/Long COVID/RA/CPP | AuDHD | @realKingCarrot ❤️ | #FreePalestine 🇵🇸| Chess hobbyist ♟️| Expert of my own experience | banner by @SurvivingCFS
Jess Sylvie @scotjess3
383 Followers 468 Following Animal lover, mother of lizards, audiobook worm, The Sims since the beginning, Greek Myths obsessed. She/her #MillionsMissing #MEcfs @[email protected]
Tatiana Trifan #Count.. @trifan_tatiana
375 Followers 1K Following Life is full of surprises, but never when you need one. Completely allergic to any form of racism, sexism, genderism. #StandWithUkraine Views are my own
Dr LG @subversivepsych
4K Followers 5K Following 🇮🇪➡️🇪🇸Dr(MD/MRCPsych) BSc(Hons)Pharmacol. Not medical advice. Life on hold. SARSCoV2 04/20 #LC #MECFS #CH #coagulonaut p/t #sloth 🦥 #endmedicalgaslighting
Mrs. Betty Bowers @BettyBowers
302K Followers 756 Following TITHE:https://t.co/szedDgeTFN https://t.co/RyyAdxKX9j Americasbestchristian *at* https://t.co/f4D08olUe1
Melissa Mazur @PhillyPhile215
2K Followers 3K Following Just a Philly girl, livin' in a lonely world…and a Luddite learning to Twitter. #LongCovid since March 2020 || Lawyer on Pause
Alisa Niksch, M.D. �.. @alisadoc1
5K Followers 3K Following Pediatric cardiologist/EP, Medtech Executive, pushing innovations in #digitalhealth, #AI, #Healthcare equity. Politically curious. (she/her/hers)
Chronically Surviving @Chronically2784
113 Followers 83 Following Queer & Disabled. ME, POTS, Ulcerative Colitis. (she/her)
daringshift @daringshift
2K Followers 1K Following Complexly chronically ill 2015-2023. Recently achieved full remission of symptoms. Hoping to help others do the same.
NickyProctor @NickyProctor
1K Followers 4K Following Writing up my #PhD in coach learning & development @LeedsBeckett and campaigning for better healthcare #MEcfs #POTS
Minnesota is having our FIRST @MEActNet #MillionsMissing 2024 #MECFS education program first thing tomorrow morning. Woo hoo! Teach ME, Treat ME! millionsmissing.meaction.net/mm24/
@WildNycgirl @MEActNet #TeachMETreatME going strong in Minnesota!
"C'mon dude. Watch the comments. What if she was your sister or girlfriend or wife?" Yeah but...what if she isn't anyone's? What if she wasn't defined or valued based on her relationship to you or to any other man? What if we respected her simply because she was a human being?
All unwanted pregnancy is caused by irresponsible ejaculation.
@CLGElectric @sassistheword Thereby removing all responsibility from women by forcing others into a surgery that can be avoided if women just showed a little common sense? Could you hate yourself a little less, Curt? Or has the cuckery done too much damage already?
Reparenting my inner child is just me being the Miss Honey to my inner Matilda
In a sea of depressing Tory posts, here’s a cute SmorkyFace. #CatsOfTwitter #CatsOnTwitter #Smorky #SmorkiesAgainstTories
See why we choose the bear??
@candlelovers12 It’s just wild how they try so hard to minimize the threat they actually pose to women.
I feel like I should just start posting screenshots of men proving the point.
Man or Bear triggered so many men into jumping right up to fully prove the point and y’all still don’t see it. 🤦🏻♀️
All it takes is a healthy-looking person with a stupid smile on their face holding literally *anything* and I’m ready to buy it now like a dog after a chew toy hoping it will make an impact on my health. And Instagram knows it! 😂 #mecfs #SevereMECFS #pwME #LongCovid
The pyramid scheme is collapsing & the beneficiaries are worried.
@amandajanewd Male violence against women is an ongoing and important issue and we need to teach our young men that violence toward women (and anyone for that matter) is unacceptable. I fail to see why would anyone would ‘feel attacked’ by this.
@DystopiaEsq @daniellinn @James66Noonan The bear thanks you for this self own. Your projection that the only reason a man would interact with women is to have sex with them is one of the many reasons we choose the bear.
@daniellinn The men describing in detail what they hope the bear will do to us while they watch. I'm honestly finding out that a whole lot of men are much worse than I originally thought.
What’s the fun in being a manager when people aren’t as easy to exploit?! 😩
Olive Keogh: Quiet quitters are hard to handle because they continue to complete their assigned workload to the same (often high) standard, giving their managers an uneasy feeling but nothing specific to complain about. irishtimes.com/business/work/…
@cmjomglol Who knew unethical people don’t keep it to just one area?
*points out misogynistic behavior* *lots of women say “yeah that happens to me so often!”* *lots of men support it & look within* Then ONE MAN: it’s not about gender, trust me!🫠 Ok sir, we’re all gonna take a long hard look in our lives & negate our lived experiences. BRB.😂
Someone: “I like your little website!” Me: “Just my website. Not little. Thanks.” Can we stop using “little” or “cute” or “adorable” to describe professional women’s work? This cute little misogynistic conversion is over. 😂
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