M_P @MchP66592467
35y/o w Post-Acute SARS Cov2 Syndrome/ME/CFS,POTS,MCAS.Fmr Fin Analyst-now unable 2 work. ME/CFS=biggest Med scandal in history.Experiments w novel therapeutics USA Joined March 2022-
Tweets6K
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Followers3K
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Likes34K
My talented and courageous friend, @RuthBraham, created this powerful painting, capturing the essence of life robbed by #MECFS . It portrays so well the agonizing reality of being bound to a bed for decades. There's no illness quite as cruel and merciless as this one.
The man who faked ME and had a miraculous recovery through exercise, is up to his old tricks again by trying to undermine NICE Guidelines. He always ignores the organic problems and wouldn't dream of presenting his views at a conference because he would be howled down.
The man who faked ME and had a miraculous recovery through exercise, is up to his old tricks again by trying to undermine NICE Guidelines. He always ignores the organic problems and wouldn't dream of presenting his views at a conference because he would be howled down.
Why is everyone so F*CKING STUPID!!! Can’t even imagine being even remotely close…was given good brain but body/immune system etc couldn’t hold up… 😡. Brain must have outdone rest of makeup idk…
Bullllshiiiitttt minor “treatments” DO NOT eradicate cancer & same bullshit or similar is NOT going to get body out of severe state of malfunction either!!!! STOP!!!!
“Modern medicine” my ASSSSSSSSSSSSS!!!!! These MF’s know fuck-all!!!!!!!
Previously I have mentioned about things like Ativan & alcohol helping A BIT w symptoms. HOWEVER even that requires an asterisk. Just want to clarify. If I am already in extra bad shape it DOES NOT help. It’s only the times when I am already feeling just a bit not as hellish that…
This hellish extreme fatigue/exhaustion & I can’t even describe it feeling in my head/brain is so torturous…. F*CK!!!!!
If “Long Covid” means anything then it means nothing!! Enough w the extremely loose terms. Why are so many in charge, w PhD’s, MD’s etc so stupid & incompetent….can’t stand stupid & lazy people…clueless, dumb people run everything… 😡
PPP $ went to already wealthy business owners. Trillions from the time Covid began, enriched the already wealthy while those of us who had our whole lives ruined by post Covid/ME illness get nothing but laying here & suffering. Talk abt an injustice…much of the PPP was outright…
PPP $ went to already wealthy business owners. Trillions from the time Covid began, enriched the already wealthy while those of us who had our whole lives ruined by post Covid/ME illness get nothing but laying here & suffering. Talk abt an injustice…much of the PPP was outright…
Hard to believe they can’t even come up with one treatment for this. Even a half assed one would be nice 😩
Many of us w post Cv illness, ME have been slowly declining over the years & yet still 0 urgency or serious attempts by our Gov to do anything abt it. They will gladly & ambitiously advocate & pass all kids of bills & money to propagate wars in foreign countries…no $ for the…
Many of you may not know that I'm personally impacted by these invisible illnesses. My beautiful, vibrant teeanage daughter experienced sudden onset of symptoms at age 16 - over 10 long years ago. And they remain. They have stolen so much - I know those who walk this journey…
Scientists, researchers, drug developers are muzzled & cannot speak out or criticize the NIH, FDA, CDC bc they will retaliate & not fund their work or approve their drugs bc these orgs are very political. I was told of a very dirty trick that was pulled in regards to ME & what…
GeoCK @GeoEduOne
6K Followers 955 Following MSc | AD | ICL, UCL, UOB alum | Geoscientist, cyclist, adventurer, athlete, dad | Sidelined after a “mild” Covid infection, Dec 2021 | #LongCovid #FBLC #Climate
LongCovidPharmD @organichemusic
37K Followers 1K Following Doctor of Pharmacy. Long Covid, EBV & ME/CFS research. Here to share & learn. Tweets not medical advice. https://t.co/jqc4g8cFLa https://t.co/lKQezPwtQs
Brad @Bradgolf1216
3K Followers 2K Following Bachelor of Biological Science Degree. #LongCovid #TeamAutoantibodies #Bc007. Any tweet is my opinion and not medical advice. Check out my podcast on Spotify
Brian Fog @useless_priest
6K Followers 5K Following Struggling to live, laugh, love in the midst of a global mass disabling event | #LongCOVID Apr 2022 | #MECFS #PostVac ally | 🏳️🌈 | 🇮🇪
Billy Hanlon @bhanlon15
12K Followers 11K Following Director of Advocacy & Outreach, Minnesota ME/CFS Alliance | Long COVID Ally
Ippokratis @IpLongCovid
7K Followers 1K Following Physical education and sport science BSc #LongCovid
Mark @longcovidman
3K Followers 5K Following On pause: management consultant, tech founder & powerlifter. Follow for smart answers to long cov*d as I find them
T@Sunset @TeiaSunset
6K Followers 6K Following #LongCovid 2003/2020 / Cancer survivor. 🎵🎶Humming music, writing under trees watching sunsets.🏝️😻
Pam Bishop, PhD @pamelarbishop
10K Followers 3K Following Was research professor, now disabled by #LongCOVID (12/5/20) & subsequent #POTS #MECFS #MCAS #SFN #cSVD Patient advocate when able. Tell your story if you can.
elle W @elleW902
3K Followers 5K Following Nature lover🌊⛰wx watcher🌪️❄️ Ally🌈 ♍️creative🖌#LongCovid Sept 2021 #Dysautonomia #LCPOTS #LCHashimotos KINDNESS is the #1 attribute in a human❤
Seets💫 @MamaSitaa__
8K Followers 845 Following Lover of plants, astrology, and being a good human. Long Covid sucks. Hot people wear masks. 🤌✨
Agy Lena 🏳️�.. @agy_lena
9K Followers 291 Following Ex athlete, biker, climber, 1st class biomedicine grad. Entire life lost 2017 post viral ME/CFS. C💉injured 2021 thus turned from pro to anti vax
Fuck Long Covid ❌ @fucklongcovid
5K Followers 3K Following exposed late january 2020, fucked up since march 2020. here to learn and make sense of what's happening inside us. longtime lurker. alt @cancellongcovid
Seeking Boston Marath.. @seeksboston26mi
7K Followers 2K Following 5x Boston Marathoner trying to get life back.#LongCovid since Jan '20 https://t.co/y2MahstKts
Cat Herding Science N.. @catladyactivist
18K Followers 11K Following Plant-fueled 🌱 religion-free 🕊 healthcare for all ⚕️ leave it better than you found it 🌏 equity in all things ⚖️ #CovidIsAIRBORNE 😷
Michael ⚕️🦁 @MichaelCWilder
2K Followers 2K Following Long Covid 3/22--BS Biology-Lawyer RETWEET not endorsement--I'm gathering/reviewing evidence of Causation and Facts re #LongCovid and Pandemic
Ramy @ramyvaldes
2K Followers 617 Following Attorney, part time poet, musician. Life on pause due to mecfs.
MB @Mjbt223
1K Followers 507 Following Long COVID sufferer of 2+ years. Made this account to gain/share information to better inform myself and others about LC. As well as raise awareness.
Ryrasa @Ryrasa140262
37 Followers 2K Following
TiffanyJessie @xXfDtf7WBc3fk7b
2 Followers 272 Following
Willie Frawkin @frawkin74985
82 Followers 5K Following
Pamela @ookotom41597783
2 Followers 880 Following
Sheshee @Sheshee44jc
4 Followers 141 Following
No S @NoS82253340
75 Followers 61 Following
DeniseKathleen @Tm4XUJTmv6Q878o
0 Followers 113 Following
McTythoo @McTythoozVf_
0 Followers 125 Following
Seshos @Seshos124376
3 Followers 299 Following
Starsh @_Starsh
0 Followers 367 Following
Soteysh @SoteyshZgz2Z
2 Followers 262 Following
Noelle Reddick @ReddiNoell
22 Followers 3K Following
Tarepout @TarepoutBA5
1 Followers 288 Following
David Kincaid @DaveK2000
352 Followers 1K Following Came down with MS in 2010 that took my balance away. Now walk with crutches, but always trying to find ways to improve the balance. Never give up!
Floather @FloatherCT4Guy
0 Followers 174 Following
GillCrichton @7Arba744LjEtq
1 Followers 231 Following
ⲉⲓⲅⲟⲛ @touskonkouda
552 Followers 575 Following Nubian from Halfa. ⲁⲓ̈ ⲕⲓⲥⲥ ϩⲁⲗⲫⲁⲗⲧⲱⲛⲓ. Ex Law. Amateur Linguist/Translator/Nubiologist. Seeking ⲙⲉⲧⲁⲛⲟⲓ̈ⲁ. Neurodivergent.♿️ #LC #CovidIsAirborne 😷 N95+
Shesthoresh @ShesthoreshYhA
0 Followers 270 Following
MildredDolly @dqO82OSrFNRn42
0 Followers 223 Following
DeborahDonne @OGD9qOpB4r892ns
1 Followers 292 Following
Zara Guderjahn @ZGuderjahn99011
23 Followers 5K Following
COVID IS NOT OVER @billiebuttons64
1K Followers 3K Following Covid is an airborne multi-systemic, vascular, thrombotic, neurotropic, Severe Acute Respiratory Syndrome. Fibro/poly arthritis/asthma
metalheart74 @metalheart741
5 Followers 28 Following
Bella🇿🇦 @longcovidcafe
20 Followers 139 Following Founder of @skoonskin. Full time Long Covid, two years+. Anything in SA takes 10×🏀 and grit! Won't give up - attempting the Leisk Protocol.
Real Elon Musi @RealElon10305
165 Followers 2K Following
Joshua Elkington @elkingtonxy
25K Followers 6K Following Founder and General Partner at Axial @axialxyz
MarciaEmmie @30nbl02z6ByRC4
1 Followers 232 Following
Eleni @fromnycwithlove
163 Followers 729 Following Here for the latest science, medical updates & support 🧪 🧬 😷 💊 🦠 LC deniers, minimisers & trolls=blocked & flagged (flogged would be more appropriate)
MorgenLeFay @Morgen_LeFay
264 Followers 727 Following ✨Friendly, weird fairy learning to take up space and exist more boldly✨ AuDHD queer witchy artist w/hEDS and ME/CFS. 🐈⬛🪻🏞️🩶18+
Phelipe Siani @PhelipeSiani000
122 Followers 2K Following
Madison Dill @madison_di6559
1 Followers 12 Following
Romana @Romana45377427
81 Followers 413 Following
TomCat @TomCatsTours
1K Followers 372 Following Official Twitter for TomCat's Tours, addons for World of Warcraft
Teesees @Teesees276548
4 Followers 284 Following
Miriam @miriamfrankmac
548 Followers 658 Following Comms. London. Coming back to life following Long Covid. Chasing peak health…
MirabelleLewis @Kg65w7VnRIiLdyn
2 Followers 240 Following
PaulaNell @6H53wy6s3323Cw
7 Followers 411 Following
Alysa Moraites @aly_moraite
31 Followers 5K Following
Prof Gemma Carey, PhD.. @gemcarey
26K Followers 2K Following Public admin, social policy, public health. Lots of NDIS @UNSW. PROVAX, vax injured - in severe ME recovery. (And non aca-author). Views are my own
Bethu @Bethu420259
40 Followers 2K Following
Douglas Sweetman @Stockzorg
339 Followers 570 Following Cyber Security professional including vulnerability and threat management and security incident response team leadership.
Arwa Melstrom @a_melstr
72 Followers 5K Following
purple_rhapsody @rockthekazbah17
169 Followers 333 Following Love animals, supporter of animal & human rights. Interests include art, design, anthropology, wild science, nature, spirituality, energetic healing.
G R A C E 🌸 @withgrace___
90 Followers 292 Following 🥀 severe ME/CFS mama to baby son ❤️ heart full, body broken 🌻 INFJ
Cassandra Dyment @DymeCassand
86 Followers 5K Following
Dr Claire Taylor @drclairetaylor
66K Followers 2K Following Doctor|Special interest in Long Covid,POTS,ME/CFS&MCAS| neuroscientist🧠Long Covid kids champion|WHN expert advisor|long Covid clinic🏴Views my own
GeoCK @GeoEduOne
6K Followers 955 Following MSc | AD | ICL, UCL, UOB alum | Geoscientist, cyclist, adventurer, athlete, dad | Sidelined after a “mild” Covid infection, Dec 2021 | #LongCovid #FBLC #Climate
LongCovidPharmD @organichemusic
37K Followers 1K Following Doctor of Pharmacy. Long Covid, EBV & ME/CFS research. Here to share & learn. Tweets not medical advice. https://t.co/jqc4g8cFLa https://t.co/lKQezPwtQs
Shaney Wright @ShaneyWright
15K Followers 494 Following @WestHam Fan ⚒ | Accidental Centrist; Pro-Pragmatism/Science; Anti-Dogma. Fighting for Biomedical Research into, and Awareness of, #LongCovid. #FBLC
Resia Pretorius @resiapretorius
27K Followers 218 Following Distinguished Prof: Physiological Sciences, Stellenbosch Univ, South Africa; Honorary prof: Univ of Liverpool Research: coagulation, inflammation
Brad @Bradgolf1216
3K Followers 2K Following Bachelor of Biological Science Degree. #LongCovid #TeamAutoantibodies #Bc007. Any tweet is my opinion and not medical advice. Check out my podcast on Spotify
Brian Fog @useless_priest
6K Followers 5K Following Struggling to live, laugh, love in the midst of a global mass disabling event | #LongCOVID Apr 2022 | #MECFS #PostVac ally | 🏳️🌈 | 🇮🇪
Billy Hanlon @bhanlon15
12K Followers 11K Following Director of Advocacy & Outreach, Minnesota ME/CFS Alliance | Long COVID Ally
Ippokratis @IpLongCovid
7K Followers 1K Following Physical education and sport science BSc #LongCovid
Mark @longcovidman
3K Followers 5K Following On pause: management consultant, tech founder & powerlifter. Follow for smart answers to long cov*d as I find them
T@Sunset @TeiaSunset
6K Followers 6K Following #LongCovid 2003/2020 / Cancer survivor. 🎵🎶Humming music, writing under trees watching sunsets.🏝️😻
Pam Bishop, PhD @pamelarbishop
10K Followers 3K Following Was research professor, now disabled by #LongCOVID (12/5/20) & subsequent #POTS #MECFS #MCAS #SFN #cSVD Patient advocate when able. Tell your story if you can.
Prof. Akiko Iwasaki @VirusesImmunity
221K Followers 2K Following We study antiviral immunity and viral disease pathogenesis. #COVID19 #longCOVID #vaccines @HHMINEWS @YaleIBIO @YaleMed @YaleCII President of @ImmunologyAAI
Putrino Lab @PutrinoLab
34K Followers 382 Following We make people (and technology) better at Mount Sinai. Opinions are my own.
elle W @elleW902
3K Followers 5K Following Nature lover🌊⛰wx watcher🌪️❄️ Ally🌈 ♍️creative🖌#LongCovid Sept 2021 #Dysautonomia #LCPOTS #LCHashimotos KINDNESS is the #1 attribute in a human❤
Seets💫 @MamaSitaa__
8K Followers 845 Following Lover of plants, astrology, and being a good human. Long Covid sucks. Hot people wear masks. 🤌✨
Dysautonomia Intl. @Dysautonomia
26K Followers 343 Following Dysautonomia International is a 501(c)(3) non-profit that raises funds for research and promotes awareness of disorders of the autonomic nervous system.
Jonas R. Kunst (@kuns.. @KunstJonas
17K Followers 725 Following Professor of Psychology @UniOslo. Past @Yale @Harvard @UiB. Founder @Advances1n. Father. Views are my own. @kunstjonas.bsky.social @[email protected]
Gottfried Weibler @goddyw567
1K Followers 4K Following Formerly CIO / Group IT Director, now on sabattical leave / retirement due to #MECFS
CytoReason @Cytoreason
567 Followers 1K Following CytoReason’s computational disease model, used by 5/10 top pharma leaders, minimizes need for animal trials and makes human trials more accurate and focused.
Joshua Elkington @elkingtonxy
25K Followers 6K Following Founder and General Partner at Axial @axialxyz
John L Whiting @John_CFS
2K Followers 331 Following Physician, expertise in Myalgic Encephalomyelitis
MGH Martinos Center @MGHMartinos
6K Followers 228 Following The Athinoula A. Martinos Center for Biomedical Imaging at Massachusetts General Hospital develops and applies innovative biomedical imaging technologies.
BrainBehavImm @BrainBehavImm
3K Followers 693 Following Brain, Behavior, and Immunity publishes peer-reviewed studies dealing with behavioral, neural, endocrine, and immune system interactions in humans and animals.
Sajid Javid @sajidjavid
304K Followers 1K Following Rt Hon Sir Sajid Javid MP | Member of Parliament for Bromsgrove | Former Chancellor of the Exchequer
MonzaMayhem @MayhemMonza
675 Followers 2K Following Mother of child with ME/CFS. Trying to create moments of joy in a challenging life.
Darth Powell 🦈🇺.. @GRomePow
22K Followers 898 Following Top 25 Business School Grad - Finance Formerly Series 7, 6, 63 Licensed New Century Mortgage (Big Short) Account Exec Backup: @gromepowburner
Mitodicure @mitodicure
608 Followers 57 Following Start-up with the mission to cure ME/CFS and Fibromyalgia. Follow us on LinkedIn: https://t.co/KrQ7qyxX0f
Frederik J. Stratmann @FJStratmann
143 Followers 58 Following M. Sc. Industrial Engineer | Software Developer | Science & Nature Enthusiast 🏄🏼 | ME/CFS 🧬
purple_rhapsody @rockthekazbah17
169 Followers 333 Following Love animals, supporter of animal & human rights. Interests include art, design, anthropology, wild science, nature, spirituality, energetic healing.
TomCat @TomCatsTours
1K Followers 372 Following Official Twitter for TomCat's Tours, addons for World of Warcraft
medRxiv @medrxivpreprint
18K Followers 0 Following The non-profit preprint server for the health sciences
Shin-jie Yong @Shin63714105
927 Followers 869 Following MSc (Research) | Independent researcher and science writer | Named Standford's world's top 2% of most-cited scientists | Powerlifter with national records
AI Proteins @AI_Proteins
2K Followers 22 Following better medicines, created rapidly through de novo protein design
Nic Corr 🇬🇧🏴.. @Nic_Corr
465 Followers 393 Following Life in a darkened room is my reality due to Myalgic Encephalomyelitis (ME). I will never stop fighting for equal access to funding & research!
NIMI VASHI (bio/acc t.. @nimivashi15
3K Followers 5K Following Scientist. Always tinkering. bio/acc. Alum: @mskcancercenter @icgeb @beondeck. Mentor & Judge @IGEM, @stanford,@MIT hack. Cancer expert @bbcworld.
InHonourOfThomasWPhel.. @ConradEnge98050
458 Followers 57 Following Chemist, Biochemist - accumulating companies and coffee-canning them for large compounded returns. *Sharing my personal strategy and research, not advice.
Vikram Jha @invinciblejha
3K Followers 5K Following Founder & CEO @puchodigihealth. Working towards patient Centered #longcovid research for diagnostic,care & treatment. #Healthequity
penny #ME🕊️🕊�.. @TheOldLostRoad
2K Followers 3K Following 31yrs #MECFS. Lone mother of daughters. Left/Green. I have been a hermit and an outcast. And now carer. Not waving.
Katy @sunnyayrshire
1K Followers 2K Following Love the Gers 💙, Pro UK🇬🇧, hate having MECFS, Long Covid and Fibro😪. Exist rather than live.
Ali Madani @thisismadani
6K Followers 1K Following Founder & CEO of Profluent (https://t.co/GpoVdKW1zQ, we're hiring!). AI+Biology to cure disease. Berkeley PhD. formerly Research @ Salesforce AI.
Peter Neehus @PeeNee2
1K Followers 1K Following #pwME | Dutch | Living on a boat | Art&Copy | Creative Director | SciFi | History | Science | Optimist | Granddad | @[email protected]
Rubedo Life Sciences @LifeRubedo
121 Followers 64 Following Treating age-related diseases to extend health-span
Long Covid Moonshot @LCMoonshot
3K Followers 317 Following 18 million Americans suffering with Long Covid, and ZERO treatments. We need a moonshot for Long Covid research funding! Press: [email protected]
D. @fadeintoyou7
35 Followers 126 Following Just a place to vent thoughts and feelings. Partner of someone with very severe progressive M.E. Trying to navigate this sea of grief & uncertainty.
Neuro Sjo @neuropsychSjo
495 Followers 1K Following Research : ~ up to 55% of CIDP, POTS, SFN, MG, MECFS, NMO, long COVID & other neuro pts have Sjogrens Most clinicians : Sjogrens is just dry eye & dry mouth!
Nameandnumber @nameandnumber79
572 Followers 3K Following Doing my time on a matchbox. A most engrossing epistle.
Shadowlifes ME @shadowlifes_me
955 Followers 286 Following Saskia 🦋 • #MECFS • #MillionsMissing Team @lightup_4ME 💙
LiegendDemo auf dem W.. @LiegendDemo
2K Followers 1K Following Hier werden alle Infos bezüglich der LiegendDemos und Trauergänge bekannt gegeben. 11.05.2024 große LiegendDemo in Berlin! Plakate und Handouts s. Link⬇️
Suzaku has Long Covid.. @Suzaku_loves_L
482 Followers 1K Following NS Larrie 💚💙 ot5 💯 she/her • 🏳️🌈🏳️🌈🏳️🌈 • very very tired Long Covid / MECFS patient🏨
TreatyofWestphalia @TWestphalia
322 Followers 2K Following Comparative Literature (Western & Eastern European Lit 19th century) Twitter focus: Covid-LC/ME; Europe, Black Sea region; Russian invasion of Ukraine
Suzanne Forbes ♿️.. @slurketta
2K Followers 3K Following Fat, queer, disabled NY artist, now immigrant with MECFS in Berlin. Filth Elder. Past: DC artist Star Trek, CBS court artist https://t.co/44YT0tAoQE
Heike @will_ins_Gruene
922 Followers 1K Following #MECFS| One of #millionsmissing since 2002| Sorry für Vehler! Wenn ich es ohne schaffe, ringe ich beruflich um schöne Worte. Header-Foto: @MariaWagnerBER
Matt @TowardsHealth2
25 Followers 118 Following Australian ME/CFS spoonie since 2014. Largely housebound, moderate-severe #MECFS . Learning to love myself, my condition, and my life now.
Chronic Illness Chann.. @Chronic_Channel
1K Followers 5K Following Youtube channel covering Chronic Illness, Universal Basic Income and Air Pollution. @chronicchannel.bsky.social Threads: @chronic_channel
Astellas Pharma US @AstellasUS
52K Followers 1K Following A pharma company dedicated to changing tomorrow by improving the health of people around the world. Tweets for U.S. audience. Guidelines: https://t.co/AJlgiDgWSG
Ry @ry60003333
507 Followers 2K Following 🍎 engineer (opinions are my own). Former game dev student @RITtigers and startup co-founder at Venture Creations. Frozen fan 💙 Pfp credits to @frostharmonic!
Channel 5 News @5_News
34K Followers 2K Following Bringing you the stories that matter to you, from across the UK and the world. 📺 Weekdays 5-6pm on Channel 5.
Baz @allthatbazzz
418 Followers 694 Following #LongCovid since 2021. Hoping this is the year I get my life back ❤️🩹 #LongCovidAdvocacy indie music lover and art fangirl ✨ Gaylor🪻
Neurology Today @NeurologyToday
64K Followers 3K Following The official news source of the American Academy of Neurology, published by Wolters Kluwer.
#FreeAssange @fascismcantwin
279 Followers 1K Following My body is materially disabled. MECFS, EDS, & more.
Illustrator Interrupt.. @FranceyME
3K Followers 2K Following Illustration career interrupted by #ChronicIllness advocating for #MyalgicEncephalomyelitis #LongCovid #GWI #POTS #EDS @franceyme.bsky.social
Trends in Immunology @TrendsImmuno
31K Followers 317 Following Cell Press Reviews journal covering Immunology. Tweets by Editor-in-Chief, Catarina Sacristán.
BMBF @BMBF_Bund
87K Followers 1K Following Hier twittert die Social-Media-Redaktion des Bundesministeriums für Bildung 📐🏫💻 und Forschung 🔬🌎🛳️. https://t.co/lsJKxdeL6U
Staffan @kalvfond
183 Followers 1K Following
Doctor Radio @NYUDocs
20K Followers 1K Following SiriusXM's Doctor Radio Channel, powered by @nyulangone - @SIRIUSXM 110 https://t.co/slnbKnvVdpMy head hurts SO bad. It’s been SO bad for years now, but even at that baseline, I can’t remember the last time it was THIS bad. :( how could the human body be capable of this level of pain? It’s not fair
Why is metabolomics hard? Because all of this (and more) is happening in every cell of your body, differentially and spatially, all at the same time. Wanna be really freaked out? Think about the fact that nobody ever talks about concentrations when they talk about this stuff.
How is this sport not banned
Building products on time and on budget requires a monomaniacal leader who kicks asses to make things run right. Government, which is based on lobbying, backscratching and committee-based decision-making, is uniquely unsuited for this.
California mocked over $11 billion high-speed rail bridge to nowhere that took 9 years to build trib.al/lIjxh43
I think about this a lot. How much time will I lose this to this disease? I developed #LongCovid at 30.. I’m now 34 — and unless one of the few major clinical trials shows promise, we’ll be counting on a drug that’s not in trial yet, which means it is many years away…
sometimes the realisation that I will probably lose my whole 20s comes creeping in. the fact that this disease is doing that to whole generations: making them lose their 20s, 30s and even worse their childhood (!) when will we take this life wrecking disease serious? #LongCovid
My talented and courageous friend, @RuthBraham, created this powerful painting, capturing the essence of life robbed by #MECFS . It portrays so well the agonizing reality of being bound to a bed for decades. There's no illness quite as cruel and merciless as this one.
Energy Drain: Could an African Virus Tell Us Much about ME/CFS, Long COVID and other Postviral Illnesses? #MECFS #longCOVID healthrising.org/blog/2024/04/3…
Before developing #MECFS, I could never have imagined an illness that punishes you for simply *thinking* too hard. #LongCovid
Symptoms like this that make it impossible for 'normals' /people with other chronic conditions to relate to #MECFS #LC. It is truly UNimaginable! I know I would never have been able to understand ME/CFS before becoming ill with it. The old phrase 'just short of dying' applies.
Before developing #MECFS, I could never have imagined an illness that punishes you for simply *thinking* too hard. #LongCovid
I will keep repeating, even if nobody pays attention. We don't want to test what #H5N1 does to the brain. Influenza viruses are usually not neutropic, but we know this is not true for H5N1. Back in 2009 we already knew they are particularly bad for dopaminergic neurons.
The trials for Ampligen and BC007 should absolutely have their patients wear a device like Garmin or Fitbit to track steps. This wasn't part of the trial I was in. Luckily I wore one myself and went from 60,000 steps a month to 140,000 steps at its peak.
People won’t do the bare fucking minimum if it inconveniences their lives to the slightest even if it could GREATLY improve someone else’s and possibly even save it
I'm tired of being the good person when everyone treats me like shit. I wish everyone who had abused me when I can't even talk or see the light, the worst. I wish karma existed somehow. #mecfs #longcovid #pwme
Those in the #USA, pls support the #LongCOVIDMoonshot by calling or sending an e-letter to your congress reps to include #LongCOVID research in the FY25 budget! See tweet below for a link that makes sending an e-letter quick to do! #pwLC @LCMoonshot @patientled @exceedhergrasp1
@NeurologistMom @LCMoonshot Yes — here’s a link for sending emails actionnetwork.org/letters/long-c…
@te_rztoo @UllmannMdB @TimoStrotmann @fdpbt @starkwatzinger Herr Ullmann, das ist doch kein Argument. Es wird aktuell gar kein Geld in die Therapieforschung gesteckt, d.h. wir verschlafen wichtige Jahre in denen weiterhin nichts passiert. Alles Geld fließt in die Versorgungsforschung! Und wir haben sehr wohl Forscher nur können die ohne/1
@RorPreston It is absolutely linked! We learned a great deal about this through our research on #MECFS, which also shows some similar perturbations. In fact, I commented some time ago that studying ME/CFS would greatly help us understand the role of these physiological networks during aging.
Note to everyone who wishes for a very long and healthy life: Aging is a progressive disorder that eventually results in progressive deterioration of all physiological functions necessary for survival! Try to slow it down until we figure out how to reverse it, soon!
You need to do more Media if you want people to believe you have the chops to lead.
Yesterday, when responding to the news of Astra Zeneca admitting severe injuries from their own vaccine, I misnamed the CICP & NVICP (injury comp systems) with the VAERS reporting system. I have the corrected descriptions below. It is my sincere hope that the injured can…
@ShaneyWright @AppgCoronavirus Let’s go. How do we get started? I’m in
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