Initiative #LiegendDemo, ME/CFS @LiegendDemo
Wir organisieren Demonstrationen und Aktionen für Aufklärung, Versorgung und Forschung für ME/CFS, unabhängig vom Auslöser. Plakate und Handouts s. Link⬇️ mecfs-info.de Berlin, Deutschland Joined September 2022-
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Initiative #LiegendDemo, ME/CFS retweeted
Diese Taschen entstehen nicht, um irgendwo in Schubladen zu verschwinden – sie sollen raus in die Welt, in die Hände der Menschen. Damit sie endlich lesen, endlich hören, endlich merken, dass wir da sind. Bei der nächsten @LiegendDemo z.B. werde ich Stapel davon mitnehmen und…
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Bettina Grande @GrandeBettina
8K Followers 765 Following Psychotherapeutin | Charité Berlin & HD | S2K Leitlinie |Netzwerk Psychotherapie #MECFS | Aufklärung, Schutz & Versorgung #PEM #PEMistnotnegotiable
Juli Maëlle 🍋 @julimaelle
7K Followers 3K Following Ex-Fotografin 📸 & Musikerin 🎶, jetzt 1 v #Millionsmissing wg #MECFS & #Fibromyalgie. Leidenschaft still on. #noAfD #wirsindmehr
Dt. Ges. für ME/CFS @dg_mecfs
5K Followers 250 Following ME/CFS ist eine schwere körperliche Erkrankung, die bisher kaum erforscht ist. Wir setzen uns für die Interessen der Erkrankten und mehr Forschung ein.
Sandra 👩🏻�... @RSandra266
4K Followers 834 Following https://t.co/tv9iKDwMkf.Biosystems Engineering #neurobiology #Nature #teaching 🍂 | #LongCovid & #MECFS Aktivismus ✊🏻 #NaturalMedicine 🌱
Ulli Brand- Ich behin... @radineulla
4K Followers 2K Following #MECFS #severeME #MCAS #severeMCAS nichtlängenabhängige #SFN #POTS #Sjögren etc seit Feb 2021 dank #COVID Darf ich Max Ernst zitieren?
Marximus @MarximusOne
1K Followers 1K Following
Ralf Wittenbrink @RWittenbrink
21K Followers 1K Following Es gibt immer noch eine große Lücke zwischen dem, was die Öffentlichkeit über COVID-19 weiß, und dem, was sie wissen sollte. Deshalb hier Infos über COVID-19.
Birgit Gustke @BeeGee26168032
2K Followers 917 Following Aktiv für mehr #MECFS #Information, Forschung, Fortbildung, Menschen mit ME/CFS #LongCovid #PCS #PostVAC #MCAS #POTS #FatigatioeV
Martin @pausedME
8K Followers 494 Following #MECFS-activist⎮#Lawyer by profession: Legal consulting for digital creators and influencers | #Musician by passion
Fatigatio e.V. - Bund... @FatigatioeV
4K Followers 510 Following Myalgische Enzephalomyelitis, Patientenorganisation Wissenschaft, Forschung, intern. Netzwerk Selbsthilfe, Info, Unterstützung #MECFS #LongCOVID #Longcovidkids
Martin Rücker @martinruecker
5K Followers 1K Following investigativjournalist. gründer investigativstation: https://t.co/dea8NbQGnX | Threema: TUFVC84Z | @riffreporter | https://t.co/zgWDgCj5I2
MECFS Stuttgart @MECFS_Stuttgart
2K Followers 2K Following Informationen & Aufklärung über #MECFS und #LongCovid 🇬🇧🇩🇪
S. Das Bett im Dunkle... @pocimo82
583 Followers 463 Following #mecfs '87 Bett im dunklen #SevereMecfs #covid 03/23 12/23 kranke Kinder
Raoul Schendel @Raoul__Lucas
2K Followers 549 Following 26 I ME/CFS seit 2021 I https://t.co/lXLUhs2Prj I WING @uni__augsburg I DE II EN
Timo @TweetingTimo
4K Followers 392 Following Tech Enthusiast - Software Engineer - Health Advocate Co-Founder of https://t.co/0klWgSE1lR
MightyMermaid @MightyMermaid87
1K Followers 905 Following M.A. Early Childhood Education // #MECFS #SFN #Behandlungsfehler #ChronicPain #Hashimoto #Kinderschutz // [email protected] (she/her)
Ulrike_longcovid_figh... @Ulrike_1985
2K Followers 1K Following FW Gesundheit- & Sozialwesen // SPD kommunal // AG Selbst Aktiv Hessen Süd & Bundesvorstand// #MEcfs // #Postcovid // #MaskUp // privat hier
charlotta12345 @charlotta123456
871 Followers 720 Following #meawarenesshour #MECFS #LongCovidKids #LongCovid #POTS #POSTVAC
Christian Zacharias M... @ChrZacharias
2K Followers 248 Following Former software developer, ME/CFS since 2019. 90% bedbound, advocating for more research.
Mirja @mi_r_ja
0 Followers 38 Following
Anna @Anna59217075
573 Followers 4K Following
Maud Sac 💢🍉 @papillyon
283 Followers 703 Following Moderate ME/CFS, mainly housebound with my three cats. One of the MillionsMissing since 2018. @papillyon.bsky.social
Grieving ME Caregiver... @mecaregiver
1K Followers 993 Following Caregiver of #MyalgicEncephalomyelitis patient & lost one son to #MEkills #PostVac #VaccineCritical IMPORTANT INFO: ME IC PRIMER: https://t.co/tnfTPKyIGj
MO @skorckjevje
9 Followers 252 Following
Suzaku has Long Covid... @Suzaku_is_tired
1K Followers 2K Following Long Covid / MECFS patient since March 2021 • 🇪🇦🇨🇵🇬🇧 •
ONG PEM @AsociacionPEM
2K Followers 1K Following Asociación de Personas con Encefalomielitis Miálgica (PEM) Spain #EncefalomielitisMiálgica #MyalgicEncephalomyelitis #TestimoniosPEM #pwME [email protected]
Matt D. Preston @MattDPreston
262 Followers 2K Following Food Supply Chain • Grower • Surfer • Songwriter • Twin Brother • Best friend • Thankful son • (he / his / him) • All opinions are my own • #BLM • #LongCOVID
miriam @mmavv
86 Followers 430 Following gleder meg til dagen hele norge later som de aldri støttet lightning process
Tracey Burgess @TraceyABurgess
3K Followers 4K Following Mum to a trans daughter 🏳️⚧️ who loves the natural world.🌿Degrees in Hist/Phil & Counselling/Psychotherapy. Unwell since 2007, worse 2016/17. Improved.🌼
Torsten Meyer @urinalbecken
1 Followers 15 Following
Dr. Dirk V. Seeling @DrSunnyMoon1
230 Followers 223 Following Dipl. Psych., Testentwicklung, komplexes Problemlösen, COVID-LÖSUNGEN #CSmedicus #Sound-of-Truth. Grundgesetz. Meinungsfreiheit. Demokratie, Bildung!
turned @turned88633
75 Followers 398 Following I am an Icon, i am a Legend and i am the Moment. Here to fuck up Nazis! Try me, Bitch! 🖕
Leni @Leni3500
131 Followers 1K Following
Kitten from Hell @ScaryKitten667
567 Followers 3K Following pansexuell, enby, survivor, any pronouns, polyamor, künstler, lonely, horror - fantasy lover nyctophil, tagträumer, clown, freak, weirdo, chaotisch, introvert
S @ENShomie
63 Followers 650 Following
Anton Vikström @Anton_Vikstrom
2K Followers 1K Following #ZeroCovid #CovidIsAirborne #WearAMask (FFP2/FFP3) Software developer, former physics researcher
Christian Palm @cpalm1974
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Heike Maaßen @mecfs_hope
88 Followers 139 Following severe MECFS 🛏️ Bell 5-10 |POTS| EDS | CCI | MCAS | IIH
Ines Arnsmann @InesA99078
0 Followers 32 Following
DieEinzigartigeBlume @Iris64609179
619 Followers 1K Following
Ute Behrend @ute_behrend
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Sunchild @Sunchild530238
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BirgUd @BirgUd
168 Followers 486 Following GRÜN ist die Hoffnung #wirsindmehr Nur der BVB Hunde sind die besseren Wesen
Rainer Stablo @RainerStablo
283 Followers 421 Following
micha @micha66542428
44 Followers 57 Following
Lisette @lisettehsb
263 Followers 810 Following #pwME #PAIS (Lyme & Q-koorts) 🌱 “The purpose of a system is what is does” @niethersteld
Tom Molmans, MD @Molbaas
2K Followers 1K Following Psychiatrist | Life on hold since Oct. '21 due to long Covid | LC foundation NL | Carpe diem sed non inpensa crastina | Tweets are my own | No medical advice
Vave @quant_wave
46 Followers 335 Following Anonymous quant, with a background in GenAI and interests in medicine.
Dominique @Dominique_B_W
616 Followers 806 Following 💚 @[email protected] @dominiquebw.bsky.social Da ich gern lese, ist das auch hier meine Hauptbeschäftigung. Hochallergisch auf Schwurbelei & rechts
NordseeKrabbe @NordseeKrabboe
1 Followers 437 Following
Jascho De @Jay_Dee_125
292 Followers 744 Following
Stefan Helge Kern ker... @Kernie5
419 Followers 368 Following Schulleitung, Schulentwicklung Digitale Medien, Lehrkräftefortbildung
Jo @GRRR_Jo
120 Followers 671 Following
@prisma 🌎🌍🌏�... @positiv_handeln
1K Followers 2K Following Hope for the best, prepare for the worst and do what you can.
Pushok @Pushok0508
1 Followers 17 Following
extrem badebojen fan ... @darkspookers
666 Followers 2K Following nur spitposting hier // there be sharks 🦈 // #TeamAwkward // extrem mehlgate fan // she/her // on-off-beziehung mit twister
Benjamin Ehng @BenjaminEh45888
1 Followers 5 Following
Mara @Mara5330127826
0 Followers 12 Following
Sylke #Unite2Fight�... @Menzel21716447
75 Followers 422 Following PostCovid ohne AG sucht dringend Anstellung.
Carmen Scheibenbogen @C_Scheibenbogen
13K Followers 70 Following Immunologist and ME/CFS researcher MD @ChariteBerlin
Michael Stingl @neurostingl
16K Followers 1K Following Facharzt für Neurologie ME/CFS ▪ Long Covid ▪ Nervenultraschall ▪ ENG/EMG ▪ Hirngesundheit ▪ Telemedizin Ordination @cereprax
Dr. Daniel Loy @loy_daniel_de
6K Followers 1K Following Ehemann, Jurist. #MECFS. Team #SIGNforMECFS. Team #GOfundMECFS. One of the #MillionsMissing.
Bettina Grande @GrandeBettina
8K Followers 765 Following Psychotherapeutin | Charité Berlin & HD | S2K Leitlinie |Netzwerk Psychotherapie #MECFS | Aufklärung, Schutz & Versorgung #PEM #PEMistnotnegotiable
Juli Maëlle 🍋 @julimaelle
7K Followers 3K Following Ex-Fotografin 📸 & Musikerin 🎶, jetzt 1 v #Millionsmissing wg #MECFS & #Fibromyalgie. Leidenschaft still on. #noAfD #wirsindmehr
Dr. Bettina Hohberger @Dr_B_Hohberger
8K Followers 45 Following PD Dr. med. Dr. rer. biol. hum. Bettina Hohberger
Dr.C.Werner 🎗️�... @DrCWerner
31K Followers 1K Following #Familydoctor #GP #InternalMedicine #Prävention #MedicalTribune #nutritionalMedicine #O-TonAllgemeinmedizin @[email protected]
Dt. Ges. für ME/CFS @dg_mecfs
5K Followers 250 Following ME/CFS ist eine schwere körperliche Erkrankung, die bisher kaum erforscht ist. Wir setzen uns für die Interessen der Erkrankten und mehr Forschung ein.
Sandra 👩🏻�... @RSandra266
4K Followers 834 Following https://t.co/tv9iKDwMkf.Biosystems Engineering #neurobiology #Nature #teaching 🍂 | #LongCovid & #MECFS Aktivismus ✊🏻 #NaturalMedicine 🌱
Claudia Ellert @claudia_ellert
7K Followers 217 Following Gefäßchirurgin, Autorin, Triathlon, medizin. Schwerpunkt Aufklärung und Prävention @LongDeutschland #Covid19 #LongCovid #mecfs #Leistungsdiagnostik
Ulli Brand- Ich behin... @radineulla
4K Followers 2K Following #MECFS #severeME #MCAS #severeMCAS nichtlängenabhängige #SFN #POTS #Sjögren etc seit Feb 2021 dank #COVID Darf ich Max Ernst zitieren?
Marximus @MarximusOne
1K Followers 1K Following
Ralf Wittenbrink @RWittenbrink
21K Followers 1K Following Es gibt immer noch eine große Lücke zwischen dem, was die Öffentlichkeit über COVID-19 weiß, und dem, was sie wissen sollte. Deshalb hier Infos über COVID-19.
Dr. Robert @Robert83563198
11K Followers 348 Following Ärztliche Kunst beginnt dort, wo evidenzbasierte Medizin endet.
Birgit Gustke @BeeGee26168032
2K Followers 917 Following Aktiv für mehr #MECFS #Information, Forschung, Fortbildung, Menschen mit ME/CFS #LongCovid #PCS #PostVAC #MCAS #POTS #FatigatioeV
Martin @pausedME
8K Followers 494 Following #MECFS-activist⎮#Lawyer by profession: Legal consulting for digital creators and influencers | #Musician by passion
Dr. Anna Brock @BrockAnnaDr
4K Followers 65 Following Fachärztin für Innere Medizin, special interest in #postcovid, #postvac and #MECFS. I hope to find a way to help all of you. Believe me, I know how it feels.
Bhupesh K Prusty @BhupeshPrusty
15K Followers 66 Following A passionate molecular virologist who believe in patient oriented scientific research. Using viruses to understand human existence. Science is for society.
Fatigatio e.V. - Bund... @FatigatioeV
4K Followers 510 Following Myalgische Enzephalomyelitis, Patientenorganisation Wissenschaft, Forschung, intern. Netzwerk Selbsthilfe, Info, Unterstützung #MECFS #LongCOVID #Longcovidkids
Martin Rücker @martinruecker
5K Followers 1K Following investigativjournalist. gründer investigativstation: https://t.co/dea8NbQGnX | Threema: TUFVC84Z | @riffreporter | https://t.co/zgWDgCj5I2
Thorsten Runge @Thorsten_Runge_
504 Followers 492 Following
MissingDOCTORSandPSYC... @MEDocsPsytheras
800 Followers 296 Following Austausch für Mediziner*innen, Apotheker*innen und Psychotherapeut*innen, die von ME/CFS, LongCovid, PostVac oder ähnlichen Erkrankungen betroffen sind.
LiegendDemo Hannover @liegenddemoHann
19 Followers 19 Following
CerePrax | Praxis fü... @cereprax
214 Followers 1 Following Praxis für Neurologie & Psychologie Michael Stingl @neurostingl | Jana Stingl-Goldmann Ab Juni 2025
G.F @GritliAnne
42 Followers 163 Following
BildungAberSicherHess... @BildungSicherHE
562 Followers 88 Following Für Infektionsschutz, sichere Schulen u. Kitas (#CleanAir, #Luftfilter), #Teilhabe für alle, hessischer Account von @BildungSicher [email protected]
Community4ME - Engage... @Community4MEcfs
214 Followers 17 Following Wir wollen Aktionen und Aktivitäten anderer Organisationen unterstützen. Wir wollen mit euch neue Ideen entwickeln und umsetzen. https://t.co/cCK7oBYqOK
Willow @__Granuaile__
3K Followers 1K Following Autistic w SWS, hEDS, LC - navigating life w brain aneurysms & terminal dx. 1st Wave Covid survivor & stroke survivor. Posts focus on LC & my cats 🐈 🏳️🌈
Long COVID Foundation @LongCFoundation
5K Followers 356 Following U.S. 501(c)(3) non-profit supporting those with Long COVID & others affected by the pandemic. Advocates for those with chronic illness & chronic SARS-CoV-2.
Gabriele Ströck @gabrielestroeck
836 Followers 652 Following CEO at Ströck Bakery & Director @weandmecfs | Supporting our sons and everyone else fighting with #MECFS and #PAIS |
Max Schwarz @schwarz_psycho
96 Followers 226 Following 👫 Psychologe für Verständigung zwischen den Geschlechtern 🎙️ Podcast ''Weiblich & Männlich. Besser leben durch Ergänzung''. Überall, wo es Podcasts gibt!
Fabian Fritz @FFHambu
3K Followers 4K Following Dr. phil.; former professor; #Sozialpädagogik #Demokratiebildung #KinderundJugendarbeit #socialwork #fcsp 🤎🤍❤ Now #longcovid #mecfs 12/23 https://t.co/mzdstmuhps
☮️Kinderrechte �... @_Kinderrechte_
20K Followers 19K Following AfD-Verbot jetzt! Kinderrechte. Kinderschutz. Demokratie. Antifaschismus. #NoAfD Meinungen Anderer sind nicht meine. @AVachssZitateDt @ThomasKnorra
Mike Hoerger, PhD MSC... @michael_hoerger
38K Followers 12K Following Expert in weighing medical evidence, cancer, COVID forecasting & mitigation, health disparities, financial analytics. 120 publications. PhD program director.
Dr. Carlos Gonzalez D... @Carlotes247
1K Followers 4K Following 📜Multimodal ML Researcher @uni__augsburg Member of @BAFTA #Connect2024 & @vision_claire Prev @MSFTResearchCam, @Playstation R&D @[email protected]
Sarah Buckel @sarah_buckel
4K Followers 147 Following Ehemals leidenschaftliche Kinderpflegerin in der KiTa. Anfang 2022 schwer an #ME und #POTS erkrankt. #learnaboutME * 31.01.94 - † 08.07.25
irene hartmann @hermione0000016
2K Followers 6K Following 🇩🇪🇮🇱🇺🇦 wife, stepmother, grandmother, ✝️, hetero, passionate defender of all consentual ways to love and live, of genuine democracy. Never again is now.
Joao @JoaoWalker79
170 Followers 419 Following Long Covid / ME/CFS / cycling / anti-fascism / und anderes
Sam @HumanManifold
518 Followers 236 Following Evidence-based medicine over eminence-based medicine. ME/CFS
Doktor Whatson @DoktorWhatson
6K Followers 226 Following Cedric Engels | Videos über Wissenschaft, Technik & die Zukunft
Laura Miers @LauraMiers
72K Followers 12K Following Pro-Kindness/Compassion/Love. Wealth inequality will destroy us. Ex-Texan, Global citizen. Law, Medicine, Sustainability, Languages. LongCovid since 2020.
🌱 katski 💙 @katkatski
529 Followers 2K Following One of the #MillionsMissing I miss singing, gardening, travelling, seeing friends and family, doing the ordinary things in life... I miss work. Cat mum 🐾🐾
Olli @OlliBamboli
68 Followers 336 Following ME/CFS 30+ yrs - weird stuff 🙂↔️! Pragmatisch-lösungsoffene Sicht statt Ideologie: I prefer being healthy to being right 🙏
DIE LINKE. Bockenheim... @dielinke_bwk
273 Followers 503 Following Wir sind DIE LINKE. Bockenheim / Westend / Kuhwald. Wenn Du Dich für unsere politische Arbeit interessierst, dann schreib uns einfach eine PN.
Maik 'Skywalker' Herb... @mherberholdbsky
618 Followers 2K Following Kinder- u. Jugendpsychiater u. -psychotherapeut. Flog übers Kuckucksnest. War mal ein paar Jahre Vorsitzender unseres Berufsverbandes bkjpp. Steuerfrei Katholik
Roboost #CleanAir �... @Ro16956046
1K Followers 6K Following 🐘 @[email protected] #Soziales #Bildung #DontLookup #Klima #Infektionsschutz 😷 #wirsindmehr #NieWiederIstJetzt Trolle&Bots➡️Block, Views are my own, privat
Navina Lala @NavinaLala
932 Followers 795 Following Journalistin ARD/WDR, Auslandsredaktion, ehemalige TV-Korrespondentin im ARD-Studio Paris
Dr. Blome aka Dr. Str... @BlomeChristine
3K Followers 2K Following ❗️bin umgezogen: @blomechristine🟦.social COVID nerd | LC & ME/CFS researcher | Patient-Reported Outcomes Research Group | Hamburg Center for Health Economics
PostX #UniteToFight20... @TeamPostX
2K Followers 2K Following Co-Founder of @U2Fight_World /#UniteToFight2024//Long Hauler since 2020
Philipp Heckmann🤍 @HeckmannPhilipp
110 Followers 268 Following M. Eng. Umwelttechnik | Projektleiter im Anlagenbau von Kläranlagen| Humanist @pdh_eu stellvertretender Landesvorsitzender @pdh_NRW| Trommler & Stabspieler
Hannah Rebekah Rice @HannahRRice
1K Followers 8K Following Sewing the fragments of my life together. Disabled. Philosophy. Loves to learn. Curiousity & wonder. Mom. #MECFS #LongCovid #ExFundy #POTS #hEDS #Dysautonomia
Michael @steptoback
333 Followers 409 Following ME/CFS after Covid 2k22; Bell 10 always try to climb up
Sofia Newton @newtsofia
176 Followers 533 Following medical researcher — artist — recovering from severe myalgic encephalomyelitis @Sorbonne_Univ_, @TU_Muenchen, @Stanford
Lydia @LydiaLu32420531
1K Followers 2K Following N95. Worimi country. Dog mom to Maeve. The planet we think we're living on no longer exists. Not a fan of many humans. 🍉
Blub @johanna_kosl
199 Followers 0 Following
Dr. with Mask😷 @sonas893
2K Followers 4K Following Dr. in Physik, #NoAFDP, #TeamWissenschaft, #CovidIsNotOver #MaskUp, #DavosStandard für alle
Didier @DidierLobby
177 Followers 776 Following Severe #ME after Covid infection Feb'22. Young dad. Bedbound. 🛌
StarDust949 @StarDust949
675 Followers 5K Following Aspiring to write for Stage & Screen. Dyslexic - So pardon the spelling. She/her. #pwME #POTS
Marco Patriarca 🌹 ... @MarcoPatriarca4
316 Followers 979 Following #MEcfs #politics “When the facts change, I change my mind. What do you do, sir?” (attributed to J.M. Keynes)
Kathrin Vogler @voglerk
7K Followers 2K Following 🇬🇱 @voglerk.bsky.social Linkes Landei. #Bundestag 2009-2025 #Abrüstung, #Frieden, #Gesundheit, #Pflege, #Queer, Landessprecherin Die Linke #NRW
Tanja @ajnatah
2K Followers 1K Following
T @TLDnoR
46 Followers 106 Following
Kathi @Kathi53654
135 Followers 251 Following #MECFS Seit 4 Jahren bettlägerig. 32 Jahre alt. Bell Skala 10
Soleil Völkl @SoleilVoe
93 Followers 109 Following Wertschätzende Kommunikation ist mir wichtig || Zusammen gegen ME /CFS bei Kindern || Long Covid @NGKGermany
Frau K. ♀️ @teilsaniert
352 Followers 103 Following Leuchtturm der gesell. Peripherie, Mecfs, CFNBC, ENDO, Radfem, Team Realität, psychologische Beratung, Bindung vs. Trauma, Biografiearbeit
Colin-Roy Hunter @criquaer
2K Followers 3K Following Happy queer pantheistic Quaker, despite being disabled by & sufferer from inter alia #MyalgicEncephalomyelitis. Non-partisan. Always follow back #pwME. %)Trends for United States
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