CSF Leak Awareness Ireland @csfleakaware
Raising awareness of cerebrospinal fluid (CSF) leaks * Spontaneous Intracranial Hypotension #SIH / CSF-venous fistula *Iatrogenic Leaks / Chronic PDPH Joined May 2021-
Tweets1K
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Followers805
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Following684
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Likes6K
CSF Leak Awareness Ireland retweeted
#SIH #CSFLeak artwork by @parnian_habibi vote now! rsna.wishpond.com/art-of-imaging…
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CSF Leak Awareness Ireland retweeted
Calcific lesions are ubiquitous in spontaneous ventral spinal CSF leaks but size does not seem to matter @spinalCSFleak @issclsociety
CSF Leak Awareness Ireland retweeted
Very nice study from Ajay Madhavan, @NeuroradLal @Niklas_Luetzen and @Federicoca36019 on the benefits of saline pressurisation for improving detection of CSF-venous fistulas at myelography in #SIH ajnr.org/content/early/…
CSF Leak Awareness Ireland retweeted
#PDPH in it's chronic form is yet often overlooked and undertreated! 👇check out this newly released paper on #CSF dynamics in chronic #PDPH ! #headache #neurology #CSFleaks doi.org/10.1212/WNL.00… @EANSCSF @JrgenBeck @issclsociety @Uniklinik_Fr
CSF Leak Awareness Ireland retweeted
🚨New Paper Alert 🚨 “Both contrast density and time influence conspicuity of CVFs on CTM; however, the greater relative impact of density suggests that myelogram technique should prioritize maximization of [density]” ajnr.org/content/early/…
CSF Leak Awareness Ireland retweeted
Spinal fluid path @PTFlashcards
CSF Leak Awareness Ireland retweeted
📢SAVE THE DATE: March 9th to 15th, 2026. There are currently 860,000+ people living in Ireland with a neurological condition. Each year, Brain Awareness Week gives us a platform to show our support for those affected and to promote a greater understanding of brain conditions 🧠
CSF Leak Awareness Ireland retweeted
Spinal CSF leak is often misunderstood & overlooked. Our annual conference Bridging the Gap aims to spotlight patient experiences & share physician expertise. Join us for a fully virtual event on Nov 15th. Free for patients! The theme this year is: “Making the Invisible Visible".
CSF Leak Awareness Ireland retweeted
This week’s SPIN-POV: Post-LP CSF leaks are not uncommon in children. This child presented with a severe headache and MRI features of intracranial hypotension and was treated with targeted epidural blood patching. Using atraumatic pencil-point needles can reduce the risk.
CSF Leak Awareness Ireland retweeted
🚨NEW feature: Spinal CSF Leak Literature Round up! 🚨 📖 Want to keep up with SIH pubs but don’t have time? 📖 Check out our new summary of recent impactful literature! isscl.org/education Free to all now - for members in the future. Join ISSCL today!
CSF Leak Awareness Ireland retweeted
Interesting new paper from🇨🇭& 🇩🇪 CSF leak centers. 1/5 patients with SIH have persistent HA after leak is sealed. Not surprising, but very important to study and understand better. Need better pathways for dx/tx of refractory HA post SIH. tinyurl.com/43pf6hzy
CSF Leak Awareness Ireland retweeted
Part One of Two: Your Guide to Self-Advocacy: including the reasons why self-advocacy is so necessary, the benefits of practicing it, and tips on how you can do it well - both generally and for appointments specifically. #csfleaks #csfleakassociation #selfadvocacy #patientvoice
CSF Leak Awareness Ireland retweeted
90+% of patients we see with infratentorial superficial siderosis have an underlying spinal CSF leak. This week we saw two other causes: a IVth ventricular ependymoma (postop dural thickening from overdraining shunt) and bilateral jugular vein occlusion @LivingwithSS
CSF Leak Awareness Ireland retweeted
CSF Leak Awareness Ireland retweeted
Now I finally understand why in some cases of SIH with SLEC I was confused about the membranes surrounding the spinal cord: there are new ones! 🤦🏼♂️ pubmed.ncbi.nlm.nih.gov/37747369/
CSF Leak Awareness Ireland retweeted
1/2 To celebrate #ParentsDay2025 we've sat down with Trustee and Mum of two; Bern Hard, to talk through her #parentingtips and hear how she told her sons about her #CSFLeak diagnosis...
CSF Leak Awareness Ireland retweeted
This is a nice paper: Mesoscale CISS Imaging for the Detection of Dural Defects in Spinal CSF Leaks. Wegscheid et al. medrxiv.org/content/10.110…
CSF Leak Awareness Ireland retweeted
Excited to invite you to #ESRA2025, Sept 10–13 in Oslo 🇳🇴- a city of fjords, architecture & ideas. I'll be speaking on: 🔹#PDPH: what's still missing 🔹 Nerve injury after popliteal block 🔹 Platform trials Join us. Challenge ideas. Discover new ones. 👉 esracongress.com
CSF Leak Awareness Ireland retweeted
🧠 World Brain Day 🧠 On #WorldBrainDay and every day, we advocate for greater awareness and more research to improve diagnostic tools, treatment options, and long-term outcomes for patients affected by #spinalCSFleak/#SIH
CSF Leak Awareness Ireland retweeted
"Prevalence and Characteristics of Microspurs in Patients with Spontaneous Intracranial Hypotension Compared with the General Population" doi.org/10.3174/ajnr.A… @DanialNasiri94 @The_ASSR
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