WouterSchievink @WouterSchievink
#CSFleak expert #neurosurgeon #spinalCSFleak @CedarsSinai Los Angeles #SIH [email protected] Los Angeles, CA Joined January 2021-
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Calcific lesions are ubiquitous in spontaneous ventral spinal CSF leaks but size does not seem to matter @spinalCSFleak @issclsociety
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90+% of patients we see with infratentorial superficial siderosis have an underlying spinal CSF leak. This week we saw two other causes: a IVth ventricular ependymoma (postop dural thickening from overdraining shunt) and bilateral jugular vein occlusion @LivingwithSS
WouterSchievink retweeted
An INCREDIBLE #spinalcsfleak conference in Amsterdam! So much knowledge sharing, fresh ideas, hard hitting talks, controversies! introduction of @isscl & of course catching up with colleagues & dear friends. Thank you for a fantastic weekend! @WouterSchievink @PeterGKranz
Grateful for a @CMECedarsSinai well-run 2025 Amsterdam CSF leak meeting. An impactful Royal patient testimony and call to action, thought provoking scientific presentations and posters, introducing the @issclsociety, and camaraderie @spinalCSFleak
Congratulations to our former @CedarsSinai resident #DrAngeliqueTay’s 6th CSF leak paper! A systematic review of CSF-venous fistulas in patients with a good story for SIH but normal brain & spine imaging. Yield is not zero! @spinalCSFleak pubmed.ncbi.nlm.nih.gov/40533349/
An unforgettable evening with patients caregivers and physicians passionate about solutions for superficial siderosis. Humbled to meet the giants of SS care #ProfessorDavidWerring and #DrMichaelLevy @Harvard Loeb House @LivingwithSS @spinalCSFleak
Visit beautiful Amsterdam, the Netherlands 🇳🇱, in 4 weeks to participate in the 2-day Intracranial Hypotension conference bit.ly/3Z86Sin hosted by @CedarsSinai @DukeU @FreiburgUni @UvA_Amsterdam sponsored by @spinalCSFleak
Spontaneous intracranial hypotension is caused by spinal CSF loss in 99.9% of patients. In this girl the cause was not only at the level of the skull base but CSF was exposed to the milieu extérieur resulting in 2 bouts of meningitis @spinalCSFleak jamanetwork.com/journals/jaman…
WouterSchievink retweeted
A new study on the crucial role of Ferumoxytol-enhanced MRV in embolization of CSF Venous Fistulas: Spinal venous anatomy showed substantial variability MRV guides tailored embolization and reveals unexpected findings like azygos stenosis ajnr.org/content/early/…
WouterSchievink retweeted
Great #CSFLeak / #SIH session at #asnr2025 with my friends and role models @PeterGKranz and @WouterSchievink @TheASNR
WouterSchievink retweeted
The Inaugural Superficial Siderosis Symposium is coming this June. Join researchers, clinicians, and patients as we unite for the first time to advance SS care and research. Remote viewing is available: DM your email for access.#symposium #SuperficialSiderosis #RareDisease
We see spontaneous fistulas daily but traumatic ones are distinctly less common. This young man developed orthostatic headaches 2 years after a brachial plexus avulsion. Surgery with @DreBoyke was able to address both a lateral leak and a fistula @spinalCSFleak
Hurt his back while hunting elk. Now an inoperable pseudomeningocele after 1 discectomy and 5 CSF leak repair attempts. What is risk of superficial siderosis? Maybe @LivingwithSS symposium in Boston or bit.ly/3Z86Sin in Amsterdam will tell @spinalCSFleak
An amazing presentation by @HopkinsMedicine MD/PhD student Cassie Parks at the #AANAM today on our research on fibrillin-2 (FBN2) mutations in patients with spontaneous spinal CSF leaks. This groundbreaking research was performed in Hal Dietz lab @spinalCSFleak
Getting ready for an afternoon session @AANmember in beautiful San Diego on low and high CSF pressure disorders with fellow CSF aficionados @Ferdinandhui #DrKKnievel #DrCSchusse. @spinalCSFleak
Submit your abstract for the 2-day Amsterdam Intracranial Hypotension conference. Be part of the discussion on CSF leak care. Submit at bit.ly/3Z86Sin Oral presentation for the two best abstracts and $2000 for the #1 abstract (educational grant) @spinalCSFleak
WouterSchievink retweeted
Superficial Siderosis Symposium June 11-13 2025 ssra.livingwithss.com/blog/superfici… #teamsuperficialsiderosis
International collaboration in CSF leak care is essential. We have been fortunate to host CSF leak specialist Dr M Slot from @amsterdamumc. Dr Slot is the youngest and first woman chair in neurosurgery in the Netherlands @spinalCSFleak @AmsNeuroscience
It took this metal hook 23 years to make its way through the dura resulting in a CSF leak with intractable orthostatic headaches and brain sagging @isscl @spinalCSFleak @SRS_org
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