Spinal CSF Leak Foundation @spinalCSFleak
A US 501(c)3 nonprofit org that helps raise awareness, educate, & support research on intracranial hypotension & spinal cerebrospinal fluid (CSF) leaks. spinalcsfleak.org Joined July 2014-
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Check out the innovative work one of my neurosurgery colleagues, Dr. Meng Huang, is doing to advance minimally invasive spinal #CSFleak repairs! authors.elsevier.com/c/1ljyh3S0FS-c… @MethodistHosp @HMNeurosurgery @spinalCSFleak
"Advanced Imaging of Type 2 Spinal CSF Leaks with Ultra-High-Resolution Conebeam CT Myelography" doi.org/10.3174/ajnr.A… @The_ASSR #CSFLeak
"Optimization of Photon-Counting CT Myelography for the Detection of CSF-Venous Fistulas Using Convolutional Neural Network Denoising: A Comparative Analysis of Reconstruction Techniques" doi.org/10.3174/ajnr.A… @AjayMadhavanMD @The_ASSR
Very nice study from Ajay Madhavan, @NeuroradLal @Niklas_Luetzen and @Federicoca36019 on the benefits of saline pressurisation for improving detection of CSF-venous fistulas at myelography in #SIH ajnr.org/content/early/…
Calcific lesions are ubiquitous in spontaneous ventral spinal CSF leaks but size does not seem to matter @spinalCSFleak @issclsociety
We are thrilled to announce our new Executive Director, Olivia Chelko, who joins us with 20+ years experience in nonprofit healthcare leadership and patient advocacy: spinalcsfleak.org/executive-dire…
🚨New Paper Alert 🚨 “Both contrast density and time influence conspicuity of CVFs on CTM; however, the greater relative impact of density suggests that myelogram technique should prioritize maximization of [density]” ajnr.org/content/early/…
🆕️🔓 Quality of life in patients with spontaneous intracranial hypotension: A systematic review and meta-analysis ✒️ @JulienOgnard et al. #spinalCSFleak #CSFleak #CSFVF #SIH #NeuroX sciencedirect.com/science/articl…
This week’s SPIN-POV: Post-LP CSF leaks are not uncommon in children. This child presented with a severe headache and MRI features of intracranial hypotension and was treated with targeted epidural blood patching. Using atraumatic pencil-point needles can reduce the risk.
90+% of patients we see with infratentorial superficial siderosis have an underlying spinal CSF leak. This week we saw two other causes: a IVth ventricular ependymoma (postop dural thickening from overdraining shunt) and bilateral jugular vein occlusion @LivingwithSS
This is a nice paper: Mesoscale CISS Imaging for the Detection of Dural Defects in Spinal CSF Leaks. Wegscheid et al. medrxiv.org/content/10.110…
🧠 World Brain Day 🧠 On #WorldBrainDay and every day, we advocate for greater awareness and more research to improve diagnostic tools, treatment options, and long-term outcomes for patients affected by #spinalCSFleak/#SIH
“A discogenic microspur is a common incidental finding and may be found in almost one-third of the general population. The length of the culprit microspur and the diameter of the spinal canal are distinct morphologic characteristics for type I associated CSF leaks."
“A discogenic microspur is a common incidental finding and may be found in almost one-third of the general population. The length of the culprit microspur and the diameter of the spinal canal are distinct morphologic characteristics for type I associated CSF leaks."
An INCREDIBLE #spinalcsfleak conference in Amsterdam! So much knowledge sharing, fresh ideas, hard hitting talks, controversies! introduction of @isscl & of course catching up with colleagues & dear friends. Thank you for a fantastic weekend! @WouterSchievink @PeterGKranz
Below is Dr. @WouterSchievink’s talk from the Superficial Siderosis Research Alliance’s annual symposium this past June, presenting on surgery in superficial siderosis:
Below is Dr. @WouterSchievink’s talk from the Superficial Siderosis Research Alliance’s annual symposium this past June, presenting on surgery in superficial siderosis:

WouterSchievink @WouterSchievink
2K Followers 86 Following #CSFleak expert #neurosurgeon #spinalCSFleak @CedarsSinai Los Angeles #SIH [email protected]
Peter Kranz @PeterGKranz
3K Followers 673 Following Division Chief of Neuroradiology at Duke University Medical Center. Research in #spinalCSFleak/#SIH. Tweets my own. No discussion of individual patient care.
Mark Mamlouk @MarkMamloukMD
3K Followers 302 Following Neuroradiologist @KPSantaClara | Volunteer faculty @UCSF | Interests: #CSFleak #vascularanomalies #pedsneuro #HNrad
American Society of S... @The_ASSR
9K Followers 789 Following The ASSR is dedicated to improving spine diagnostics & therapeutics. Join us for #ASSR25 in San Diego, CA. #Spine #Radiology #NeuroRad #MskRad
Lalani Carlton Jones @NeuroradLal
2K Followers 1K Following Neuroradiologist | Educationalist | Kings College, Guys & St Thomas’s Hospitals | Love the brain/spine/nerves/CSF(+leaks). Show up. Be of value. Make an impact.
Miss DIAGNOSED @_MISS_DIAGNOSED
348 Followers 1K Following Misdiagnosed more times than is funny..write a diary they said - here goes... #CSFleak #tinnitus #dogs - parking articles for later
AJNR @TheAJNR
24K Followers 464 Following The American Journal of Neuroradiology is a peer-reviewed journal focusing on diagnostic and interventional neuroradiology. Published by @TheASNR
The American Society ... @TheASNR
21K Followers 1K Following American Society of Neuroradiology members interpret head and neck CT, MRI, brain and spine imaging, and perform interventional radiology @TheAJNR
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S Blitshteyn MD, FAAN... @dysclinic
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528 Followers 194 Following Neurointerventional Radiologist. University Hospital Bern, Switzerland @StrokeBern
Andrew L Callen MD @AndrewCallenMD
2K Followers 405 Following Associate Professor, Neuroradiology and Neurology - Director, CU CSF Leak Program - University of Colorado Anschutz Medical Campus - Alumni: UCSF - #CSFLeak
Duke Radiology @DukeRadiology
7K Followers 952 Following Providing a world-class curriculum, research, advanced technical skills, and hands-on, practical, clinical experience. Like Duke Radiology on Facebook.
Spinal CSF Leak Canad... @SpinalCSFCanada
947 Followers 380 Following 🇨🇦 National health charity with a vision to improve the health and lives of those suffering from Intracranial Hypotension caused by Spinal CSF Leaks.
Eytan Raz @eytanraz
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Soliman Oushy, MD @OushyMD
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307 Followers 248 Following Interventional Neuroradiology Fellow, Nottingham, UK. Bhangra enthusiast.
Dorothea Altschul MD ... @DrAltschul
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Dr DARA.VENKATA RAMAN... @VenkataDara
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長嶋友希🍙お�... @tomo4nagashima
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Jennifer or Mulva🚘 @JENisJUICY
1K Followers 2K Following Old AF, living the dream w a titanium plate in my head and holes in my spinal cord #Chiari #CSFLeaks Frequently rage tweeting
seef khan @chiefseif4327
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Luke Ichor @LukeIchor30
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Mona Gad, MD @mona_gad_
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Ceylan Altintas Tasli... @CTaslicay
899 Followers 1K Following Neuroradiology fellow at @UTSW_Radiology 🧠Former research fellow at @MDAndersonNews
WouterSchievink @WouterSchievink
2K Followers 86 Following #CSFleak expert #neurosurgeon #spinalCSFleak @CedarsSinai Los Angeles #SIH [email protected]
Peter Kranz @PeterGKranz
3K Followers 673 Following Division Chief of Neuroradiology at Duke University Medical Center. Research in #spinalCSFleak/#SIH. Tweets my own. No discussion of individual patient care.
Mark Mamlouk @MarkMamloukMD
3K Followers 302 Following Neuroradiologist @KPSantaClara | Volunteer faculty @UCSF | Interests: #CSFleak #vascularanomalies #pedsneuro #HNrad
Wende Gibbs @WendeNGibbs
13K Followers 3K Following Neuroradiologist #Spine #Oncology #Intervention #Standardization and #reporting #Patientcare #Patientsafety #Communication #AI/#ML
American Society of S... @The_ASSR
9K Followers 789 Following The ASSR is dedicated to improving spine diagnostics & therapeutics. Join us for #ASSR25 in San Diego, CA. #Spine #Radiology #NeuroRad #MskRad
Lalani Carlton Jones @NeuroradLal
2K Followers 1K Following Neuroradiologist | Educationalist | Kings College, Guys & St Thomas’s Hospitals | Love the brain/spine/nerves/CSF(+leaks). Show up. Be of value. Make an impact.
AJNR @TheAJNR
24K Followers 464 Following The American Journal of Neuroradiology is a peer-reviewed journal focusing on diagnostic and interventional neuroradiology. Published by @TheASNR
American Society of P... @The_ASPNR
14K Followers 830 Following The objective and purpose of the ASPNR is to develop, foster, and support the care of pediatric patients undergoing neuroimaging.
The American Society ... @TheASNR
21K Followers 1K Following American Society of Neuroradiology members interpret head and neck CT, MRI, brain and spine imaging, and perform interventional radiology @TheAJNR
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S Blitshteyn MD, FAAN... @dysclinic
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528 Followers 194 Following Neurointerventional Radiologist. University Hospital Bern, Switzerland @StrokeBern
Judy Gadde, DO, MBA @JudyGadde
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Andrew L Callen MD @AndrewCallenMD
2K Followers 405 Following Associate Professor, Neuroradiology and Neurology - Director, CU CSF Leak Program - University of Colorado Anschutz Medical Campus - Alumni: UCSF - #CSFLeak
Duke Radiology @DukeRadiology
7K Followers 952 Following Providing a world-class curriculum, research, advanced technical skills, and hands-on, practical, clinical experience. Like Duke Radiology on Facebook.
Spinal CSF Leak Canad... @SpinalCSFCanada
947 Followers 380 Following 🇨🇦 National health charity with a vision to improve the health and lives of those suffering from Intracranial Hypotension caused by Spinal CSF Leaks.
J. Levi Chazen MD @LeviChazen
600 Followers 205 Following Neuroradiologist at Hospital for Special Surgery
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8K Followers 442 Following The official journal of the American Headache Society @ahsheadache | Follow also on Instagram: https://t.co/A5sXQbAYSK
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Ali A. Baaj MD @AliBaajMD
13K Followers 885 Following Spine Neurosurgeon | Professor & Vice-Chair for Int’l Outreach | Director of Technology, Innovation, & Fellowship Programs in Spine Surgery | Northwestern
Julien Ognard @JulienOgnard
63 Followers 122 Following
Federico cagnazzo @Federicoca36019
44 Followers 55 Following Interventional Neuroradiologist, Department of Neuroradiology, Montpellier, France
Carolina Iten-SpinalC... @CarolinaIten
250 Followers 373 Following Peer & RA #intracranialhypotension@Christian T. Ulrich Neurosurgery, Bern CH/ Advocate #csfleak #RIH #chronicpostpunctionalheadache #SIH #leakwarrior
Katharina Wolf @KathaDCwolf
159 Followers 149 Following Neurologist / Clinician Scientist CSF Center Freiburg
Ana @anamartinfr
177 Followers 295 Following Leaker en lucha. Presidenta de AHIFUGA, Asociación de Hipotensión Intracraneal y Fugas de LCR. #CSFLeak #SIH #FugasdeLCR #intracranialhypotension
Parag Sayal @SayalParag
565 Followers 226 Following Neurosurgeon. London, National Hospital for Neurology & Neurosurgery. Wellington Hospital. Complex spine & Skull base endoscopy #csfleak #siderosis #deformity
Jamie Clarke, MD, MS @JamieClarkeRad
2K Followers 5K Following Neurorad-in-Training, Researcher, & Innovator! @RadioGraphics SMDI | @TheAJNR JEB @ARRSresidents Vice Chair | @The_ASSR SMC @CRSRFS VP | @RadiologyUcla #RadRes
David Butteriss @Neuroshadow
80 Followers 76 Following
Vinil Shah @vinil_shah
642 Followers 56 Following Associate Professor & Chief Neuroradiology @UCSFImaging , #UCSF, #Neurorad, #Spineintervention
Ferdinand @Ferdinandhui
254 Followers 256 Following
Matt Bender @mtbendermd
1K Followers 667 Following Cerebrovascular neurosurgeon @UofR / alumnus @hopkinsnsurg @mckinsey @yale / @ironmantri triathlete, marathoner, run commuter
SVIN @svinsociety
10K Followers 5K Following Society of Vascular and Interventional Neurology; Journal @SVINJournal; Research @SVINRegistry; Global Outreach @MThrombectomy
MeshaMartinezMD @MeshaMartinezMD
1K Followers 487 Following Pediatric Neurointerventionalist, lover of people, books and fun, educator, collaborator, researcher #healthequity #diversifymedicine
Eva María @evampoco
38 Followers 86 Following Asociación AHIFUGA (Asociación de Hipotensión Intracraneal y fugas de LCR) #csfleak
C Douglas Phillips �... @CDP_Rad
3K Followers 3K Following Neuroradiologist, amateur wine critic/cook. ❤️ my lovely wife. ❤ #NYC & ❤️Asbury Park. Trying not to embarrass the children. Tweets my own.
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6K Followers 119 Following Official account of the Radiology journal editor, published by RSNA. Sharing the latest in imaging research, education, and radiology innovations.
Kevin Tsang @drtintin99
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Insun Chong, MD @insunchong
471 Followers 480 Following fmr @BCM_Radiology Neuroradiology fellow and Radiology resident | @TulaneMedicine and @DukeU alum
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Katie 🙏🌍 💙�... @KathrynWeimann
549 Followers 987 Following Grateful Mama. Therapist for chronic illness. Palliative Care and Hospice Social Worker. #SkoBuffs Psalm 46:5 . ChiTown ➡️ Colorado
Liquorunterdruck/CSFL... @CSFleaks
316 Followers 446 Following 🐳#Liquorunterdrucksyndrom #chronicPDPH #pPDPH #intracranialhypotension #SIH & co. FB Group: https://t.co/NdByjRkiUT
Thanh Nguyen 🇺🇦 @NguyenThanhMD
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Pascal Jabbour MD, FA... @PascalJabbourMD
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378 Followers 311 Following Cerebrovascular Neurosurgeon, Visual story teller, NIMHANS, LSU Health, @Pennnsg
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Gayle Salama MD @GayleRSalama
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Abhishek Lenka @AbhiLenka11
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Niklas Lützen @Niklas_Luetzen
168 Followers 170 Following Neurointerventional Radiologist | University Hospital Freiburg, Germany #SIH #spinalCSFleak @Uniklinik_fr
Eike Piechowiak @Eikeip
359 Followers 58 Following Neurointerventionalist @University Institute of Diagnostic and Interventional Neuroradiology @inselgruppe. SIH-Research
Charlotte Zander @ZanderCharlotte
49 Followers 52 Following
Isaac Brodsky @IsaacBrodsky
503 Followers 1K Following
Emma Sechrist @EmmaSechrist
70 Followers 87 Following Future Neuro-radiologist🧠🤓. Outdoor enthusiast. Live for the ☀️🌈. Resident at Loyola University.
ribbonrx @ribbonrx
541 Followers 742 Following (she/her) Medically retired (at 30) peds PharmD. Prolific maker of CSF-venous fistulas, flattened for 3+ years by #spinalcsfleak. Fierce advocate for leak care!
Casey Albin, MD @caseyalbin
22K Followers 1K Following Neurointensivist @EmoryNeuroCrit | @ContinuumAAN media AE | Passionate about #FOAMncc & acute neurology
Carrie King @CarrieAKingFW
171 Followers 853 Following Avid reader and occasional writer. Erstwhile attorney. Music lover and lyric rememberer. Accidental #spinalcsfleak, #hEDS, #MCAS patient and advocate.
Spinal CSF Leak Austr... @SpinalCSFLeakAu
23 Followers 12 Following
Chuck Marvin @chuckmarvin
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Tomáš Klail @KlailT
26 Followers 46 Following
sajal.akkipeddi @SajalAkkipeddi
132 Followers 401 Following PGY-1 @URneurosurgery, studying stroke clots with @mtbendermd. @URochester_SMD class of 2025, @Swarthmore class of 2020
Derrek Schartz, MD @D_SchartzMD
137 Followers 141 Following Neuroradiology Fellow @DukeRadiology and future Neurointerventional Fellow @Dukeneurosurg
Judith @judyintheskynet
2K Followers 923 Following Ex researcher (PhD) & artist, very severe #MECFS. Co-founder of https://t.co/VPjgomJIFA #CSFleak #MCAS #PostVAC #queer https://t.co/LWMqGMe7L9
Jürgen Beck @JrgenBeck
177 Followers 103 Following