Picture

Liquorunterdruck/CSFLeak 𝗔𝘄𝗮𝗿𝗲𝗻𝗲𝘀𝘀 by Аni @CSFleaks

🐳#Liquorunterdrucksyndrom #chronicPDPH #pPDPH #intracranialhypotension #SIH & co. FB Group: https://t.co/NdByjRkiUT facebook.com/Liquorunterdru… Germany Joined December 2021
  • Tweets
    1K
  • Followers
    317
  • Following
    446
  • Likes
    5K
CSFleaks Profile Picture

Liquorunterdruck/CSFLeak 𝗔𝘄𝗮𝗿𝗲𝗻𝗲𝘀𝘀 by Аni @CSFleaks

4 days ago

😎 youtu.be/6fOBqQk8-Z4?si…

Liquorunterdruck/CSFLeak 𝗔𝘄𝗮𝗿𝗲𝗻𝗲𝘀𝘀 by Аni retweeted
KerenLeah Profile Picture

Keren Leah @KerenLeah

3 weeks ago

❗️And brain MRI can be normal, too 🧠 The thought of a child enduring these pain levels 💔 #PDPH #Anes #Anaes #cPDPH #pPDPH

spinacademics Profile Picture

SPIN | Society of Pediatric Neuroimaging @spinacademics

3 weeks ago

❗️And brain MRI can be normal, too 🧠 The thought of a child enduring these pain levels 💔 #PDPH #Anes #Anaes #cPDPH #pPDPH

CSFleaks Profile Picture

Liquorunterdruck/CSFLeak 𝗔𝘄𝗮𝗿𝗲𝗻𝗲𝘀𝘀 by Аni @CSFleaks

4 weeks ago

I heard this too😓. Very sad. My heartfelt condolences to his family and friends.🕯 #cPDPH and #SIH is a serious disease.

foggyleakybrain Profile Picture

Csfdisordered @foggyleakybrain

4 weeks ago

I heard this too😓. Very sad. My heartfelt condolences to his family and friends.🕯 #cPDPH and #SIH is a serious disease.

CSFleaks Profile Picture

Liquorunterdruck/CSFLeak 𝗔𝘄𝗮𝗿𝗲𝗻𝗲𝘀𝘀 by Аni @CSFleaks

4 weeks ago

👍🏾If you don't stand up for yourself, no one else is likely to do it for you. You are right to look for help.💪 #Rarediseases #CSFleak #selfadvocacy #Empowerment

csfleakuk Profile Picture

CSF Leak Association @csfleakuk

a month ago

👍🏾If you don't stand up for yourself, no one else is likely to do it for you. You are right to look for help.💪 #Rarediseases #CSFleak #selfadvocacy #Empowerment

CSFleaks Profile Picture

Liquorunterdruck/CSFLeak 𝗔𝘄𝗮𝗿𝗲𝗻𝗲𝘀𝘀 by Аni @CSFleaks

4 weeks ago

Exactly. Over and over again💪. Even if it takes sometimes a loooong time 🐢 and is turbulent🎢🎡. It is possible. #PTBS #kPTBS #cPTSD #PTSD #Posttraumaticstressdisorder

cptsdfoundation Profile Picture

CPTSD Foundation @cptsdfoundation

4 weeks ago

Exactly. Over and over again💪. Even if it takes sometimes a loooong time 🐢 and is turbulent🎢🎡. It is possible. #PTBS #kPTBS #cPTSD #PTSD #Posttraumaticstressdisorder

Liquorunterdruck/CSFLeak 𝗔𝘄𝗮𝗿𝗲𝗻𝗲𝘀𝘀 by Аni retweeted
Kranke_Medizin Profile Picture

Kranke_Medizin @Kranke_Medizin

a month ago

Chronisch kranke Menschen gehen häufig arbeiten bis zur völligen Erschöpfung. Sie lassen sich nichts anmerken, leiden still und kämpfen. Jeden. Fucking. Tag. Wer jetzt noch fordert, die Lebensarbeitszeit zu verlängern, sollte das hier dringend lesen! 👇🏻 mdr.de/nachrichten/de…

Liquorunterdruck/CSFLeak 𝗔𝘄𝗮𝗿𝗲𝗻𝗲𝘀𝘀 by Аni retweeted
LorenzoPinelli Profile Picture

Lorenzo Pinelli @LorenzoPinelli

a month ago

Now I finally understand why in some cases of SIH with SLEC I was confused about the membranes surrounding the spinal cord: there are new ones! 🤦🏼‍♂️ pubmed.ncbi.nlm.nih.gov/37747369/

CSFleaks Profile Picture

Liquorunterdruck/CSFLeak 𝗔𝘄𝗮𝗿𝗲𝗻𝗲𝘀𝘀 by Аni @CSFleaks

2 months ago

#Csfleak over 30 years from #lumbarpuncture ☹️ #PDPH is not allways self-limiting. Now, this is not New. And nobody can say something others. instagram.com/reel/DKX7jedB-…

CSFleaks Profile Picture

Liquorunterdruck/CSFLeak 𝗔𝘄𝗮𝗿𝗲𝗻𝗲𝘀𝘀 by Аni @CSFleaks

2 months ago

I hope that I will never have such complaints again 🍀🙏. It has ruined my life again. This was the second time I had a “rare” serious illness in my life that lasted a very long time. Thank you all for being so diligent and dedicated.💐✌🏽🦄

NeuroradLal Profile Picture

Lalani Carlton Jones @NeuroradLal

2 months ago

I hope that I will never have such complaints again 🍀🙏. It has ruined my life again. This was the second time I had a “rare” serious illness in my life that lasted a very long time. Thank you all for being so diligent and dedicated.💐✌🏽🦄

Liquorunterdruck/CSFLeak 𝗔𝘄𝗮𝗿𝗲𝗻𝗲𝘀𝘀 by Аni retweeted
LivingwithSS Profile Picture

SSRA | Living with SS @LivingwithSS

2 months ago

#neurosurgeon Dr. Wouter Schievink on Surgical Treatment of Superficial Siderosis youtu.be/cIiJs09CpmQ?si… @WouterSchievink @spinalCSFleak #2025SSsymposium

Liquorunterdruck/CSFLeak 𝗔𝘄𝗮𝗿𝗲𝗻𝗲𝘀𝘀 by Аni retweeted
spinalCSFleak Profile Picture

Spinal CSF Leak Foundation @spinalCSFleak

2 months ago

And the final talk of this section, Dr. @JrgenBeck discussed surgical treatment of PDPH, including some of the anatomical findings he's seen when performing surgeries on patients with PDPH:

Trends for United States

Iowa
20,5 B posts
Karen
192 B posts
San Jose State
2.418 posts
#UFCParis
13,4 B posts
Baylor
5.257 posts
Livingstone
2.176 posts
Duke
21,1 B posts
Drew Allar
Davey Johnson
6.221 posts
Duce Robinson
Elizabeth Warren
48,4 B posts
SJSU
1.532 posts
Sam Patterson
Tavares
2.247 posts
UConn
2.504 posts
CJ Bailey
Thug
130 B posts
Gophers
1.389 posts
#iufb
#Illini

You might like

There is dignity in a diagnosis. Once a research & clinical OD and nationwide speaker, now a decade completely flattened by spontaneous Spinal Fluid Leaks.
CSFLeakMatters
@CSFLeakMatters
544 Followers
The CSF Leak Association is a registered charity in England & Wales (1210442) and Scotland (SC046319) working to raise awareness of cerebrospinal fluid leaks.
CSF Leak Association
@csfleakuk
954 Followers
#CSFleak expert #neurosurgeon #spinalCSFleak @CedarsSinai Los Angeles #SIH csfleak@cshs.org
WouterSchievink
@WouterSchievink
2K Followers
Associate Professor, Neuroradiology and Neurology - Director, CU CSF Leak Program - University of Colorado Anschutz Medical Campus - Alumni: UCSF - #CSFLeak
Andrew L Callen MD
@AndrewCallenMD
2K Followers
A US 501(c)3 nonprofit org that helps raise awareness, educate, & support research on intracranial hypotension & spinal cerebrospinal fluid (CSF) leaks.
Spinal CSF Leak Found...
@spinalCSFleak
3K Followers
Neuroradiologist | Educationalist | Kings College, Guys & St Thomas’s Hospitals | Love the brain/spine/nerves/CSF(+leaks). Show up. Be of value. Make an impact.
Lalani Carlton Jones
@NeuroradLal
2K Followers
Neuroradiology Division at Duke University Medical Center
DukeNeuroradiology
@DukeNeurorad
348 Followers
Peer & RA #intracranialhypotension@Christian T. Ulrich Neurosurgery, Bern CH/ Advocate #csfleak #RIH #chronicpostpunctionalheadache #SIH #leakwarrior
Carolina Iten-SpinalC...
@CarolinaIten
249 Followers
🇨🇦 National health charity with a vision to improve the health and lives of those suffering from Intracranial Hypotension caused by Spinal CSF Leaks.
Spinal CSF Leak Canad...
@SpinalCSFCanada
947 Followers
Neurointerventional Radiologist. University Hospital Bern, Switzerland @StrokeBern
Tomas Dobrocky
@TDobrocky
527 Followers
Co-chair #Imaging @CedarsSinai, #endovascular, #interventional #neuroradiology, #CSFleak
Marcel Maya
@marcelmaya
829 Followers
CSF leaker since 2015. Personal researcher into CSF leak cause, detection and treatment.
Paul Kaufmann
@pmkmann
141 Followers
Neuroradiologist @Mayoradiology
Ian Mark
@iantmark
659 Followers
follow the science | ecosystem health | climate | #CleanTheAir | #spinalCSFleak
Connie Deline
@ConnieDelineMD
664 Followers
Official Twitter account for Mayo Clinic’s Interventional Radiology Integrated Residency in Rochester, MN #IRad #IRadRes @SIRRFS @futureradres @ACRRFS
Mayo Clinic Intervent...
@MayoMN_IRadRes
604 Followers