CSF Leak Association @csfleakuk
The CSF Leak Association is a registered charity in England & Wales (1210442) and Scotland (SC046319) working to raise awareness of cerebrospinal fluid leaks. linktr.ee/csfleakuk Scotland, England, Wales & NI Joined April 2016-
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CSF Leak Association retweeted
šļøš Syrinx in spontaneous intracranial hypotension treated by surgical disconnection of CSF venous fistula ā¬ļø (š) āļø @_davidrowland et al. via @PracticalNeurol #spinalCSFleak #CSFVF #SIH #CSFVenousFistula #Syringomyelia #Syrinx pn.bmj.com/content/early/ā¦
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š„ Bern looks forward to the EANSāHydrocephalus SocietyāCSF Leak Association Joint Session on SIH at #Hydrocephalus2025 š£ Bern will advocate and connect with clinicians driving change in SIH treatment
š£ Hydrocephalus World Congress 2025! Thanks to our charityās advocacy, this yearās Congress includes a dedicated session on #CSFleaks, a vital step for awareness and better patient care. Letās connect collaborate and make positive change happen. Together we make a differenceš
CSF Leak Association retweeted
Very nice study from Ajay Madhavan, @NeuroradLal @Niklas_Luetzen and @Federicoca36019 on the benefits of saline pressurisation for improving detection of CSF-venous fistulas at myelography in #SIH ajnr.org/content/early/ā¦
CSF Leak Association retweeted
#PDPH in it's chronic form is yet often overlooked and undertreated! šcheck out this newly released paper on #CSF dynamics in chronic #PDPH ! #headache #neurology #CSFleaks doi.org/10.1212/WNL.00ā¦ @EANSCSF @JrgenBeck @issclsociety @Uniklinik_Fr
š£ We're heading to #Hydrocephalus2025! š”A unique opportunity to: š„ Spark vital conversations š¤ Build global collaborations š„Advocate for clinical excellence š Put CSF leaks on the global agenda Letās connect, collaborate, and transform care for CSF leaks š
š„ Trustee Bern shares why attending the Hydrocephalus Congress matters. weāre connecting with global experts: š§ Neurologists š©» Radiologists & Neuro-radiologists š§¬ Neurosurgeons š¬ Researchers š¤ Letās work together to improve CSF leak patient healthcare.
Your Experience Matters! NICE are eager to hear from those who have had a Transvenous Embolisation for treating CSF venous fistula! Their survey takes just 10 minutes and you could help deliver this treatment for others. Open until 26 August 2025. Survey: nice.welcomesyourfeedback.net/s/IP1996
CSF Leak Association retweeted
90+% of patients we see with infratentorial superficial siderosis have an underlying spinal CSF leak. This week we saw two other causes: a IVth ventricular ependymoma (postop dural thickening from overdraining shunt) and bilateral jugular vein occlusion ā¦@LivingwithSSā© ā¦
2/2 With many people with a #CSFLeak voicing feeling like they spend half their lives in waiting rooms, weāve put together 5 tips to help you get through the anxiety, stress, frustration, nerves, and all the other emotions you may go through whilst waiting...
1/2 With many people with a #CSFLeak voicing feeling like they spend half their lives in waiting rooms, weāve put together 5 tips to help you get through the anxiety, stress, frustration, nerves, and all the other emotions you may go through whilst waiting...
DAY SIX of #LeakyLies - a week-long Series of daily posts that are set to do some serious myth busting around #CSFLeaks!
DAY FIVE of #LeakyLies - a week-long Series of daily posts that are set to do some serious myth busting around #CSFLeaks!
DAY FOUR of #LeakyLies - a week-long Series of daily posts that are set to do some serious myth busting around #CSFLeaks!
DAY THREE of #LeakyLies - a week-long Series of daily posts that are set to do some serious myth busting around #CSFLeaks!
DAY TWO of #LeakyLies - a week-long Series of daily posts that are set to do some serious myth busting around #CSFLeaks!
DAY ONE: The launch of #LeakyLies - a week-long Series of daily posts that are set to do some serious myth busting around CSF Leaks!
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3K Followers 616 Following A US 501(c)3 nonprofit org that helps raise awareness, educate, & support research on intracranial hypotension & spinal cerebrospinal fluid (CSF) leaks.
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