CSF Leak Association @csfleakscot

Scottish Charitable Incorporated Organisation promoting awareness of cerebrospinal fluid (CSF) leaks. Charity No. SC046319. Main Twitter feed @csfleakinfo csfleak.info Scotland Joined April 2016

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CSF Leak Association @csfleakscot

10 years ago

Please visit our main Twitter feed @csfleakinfo

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The CSF Leak Association is a registered charity in England & Wales (1210442) and Scotland (SC046319) working to raise awareness of cerebrospinal fluid leaks.

CSF Leak Association @csfleakuk

954 Followers 838 Following The CSF Leak Association is a registered charity in England & Wales (1210442) and Scotland (SC046319) working to raise awareness of cerebrospinal fluid leaks.

ChapiChapo @chapichapodada

8 Followers 39 Following

2011年脳脊髄液減少症発症→RI検査漏れ○→BP1回目→回復。2018年再発→安静2W→半年で自力回復。2021年再発→安静→自己療養→検査漏れｘ→生食パッチ→回復。2022年再発→安静→生食パッチ→好転→検査漏れｘ→BP2回目→回復。2025年再発→安静→RI/CT検査漏れ○→BP3回目→やや回復→再発→BP4回目

翆(みどり) @cfh_workabroad

317 Followers 408 Following 2011年脳脊髄液減少症発症→RI検査漏れ○→BP1回目→回復。2018年再発→安静2W→半年で自力回復。2021年再発→安静→自己療養→検査漏れｘ→生食パッチ→回復。2022年再発→安静→生食パッチ→好転→検査漏れｘ→BP2回目→回復。2025年再発→安静→RI/CT検査漏れ○→BP3回目→やや回復→再発→BP4回目

I post educational info/videos of the worlds wonderful animals, birds, insects & fish.

I love GOD, my family & friends, animals & my country.

NO DM's please.

Animals are Earth Ang... @DBDK0051

236 Followers 3K Following I post educational info/videos of the worlds wonderful animals, birds, insects & fish. I love GOD, my family & friends, animals & my country. NO DM's please.

lazy fairy @lazyfairylib

60 Followers 1K Following

Vanessa Hitchman @nessahitch

74 Followers 258 Following Remembering the important things in life everyday and being thankful for them ❤️

Nathalie Görs @Natze008

0 Followers 29 Following

Claire Fleetwood @ClaireFlee67304

0 Followers 16 Following

KK @littledogchick

13 Followers 225 Following

Pilar Carrasco @PilarCarra61329

16 Followers 101 Following

Alma Hewison @almahew61

2 Followers 32 Following

There is dignity in a diagnosis. Once a research & clinical OD and nationwide speaker, now a decade completely flattened by spontaneous Spinal Fluid Leaks.

CSFLeakMatters @CSFLeakMatters

544 Followers 939 Following There is dignity in a diagnosis. Once a research & clinical OD and nationwide speaker, now a decade completely flattened by spontaneous Spinal Fluid Leaks.

Sue Ellen from Paris ... @PayeTonPseudo1

233 Followers 2K Following Lacune du claustrum.

@adoptatrucker @chris_garrah

2K Followers 2K Following adopt a trucker fighting for freedom anyway anyhow for all mankind Iam trusting in Christ (was in Ottawa for 3 weeks )

ｌｉｖｅｆｒ�... @bigfatbaldguy

102 Followers 1K Following İ ̇l̇i̇k̇ė ̇ẏȯu̇

Laura Freed @LauraFreed19

12 Followers 51 Following

Misdiagnosed more times than is funny..write a diary they said - here goes... #CSFleak #tinnitus #dogs - parking articles for later

Miss DIAGNOSED @_MISS_DIAGNOSED

347 Followers 1K Following Misdiagnosed more times than is funny..write a diary they said - here goes... #CSFleak #tinnitus #dogs - parking articles for later

Being the best person I can be with a CSF Leak #csfleak #cerebrospinalfluidleak #disabled #painwarrior #hEDS #intracranialhypotension #raredisease

Connie Rim @ConnieHRim

37 Followers 86 Following Being the best person I can be with a CSF Leak #csfleak #cerebrospinalfluidleak #disabled #painwarrior #hEDS #intracranialhypotension #raredisease

Nikki Ball @NikkBall

138 Followers 657 Following

(she/her) Medically retired (at 30) peds PharmD. Prolific maker of CSF-venous fistulas, flattened for 3+ years by #spinalcsfleak. Fierce advocate for leak care!

ribbonrx @ribbonrx

540 Followers 742 Following (she/her) Medically retired (at 30) peds PharmD. Prolific maker of CSF-venous fistulas, flattened for 3+ years by #spinalcsfleak. Fierce advocate for leak care!

Ani @oadriana7

7 Followers 53 Following

Megha Sharma @MeghaSh78823549

5 Followers 36 Following

CJ @CJBroon

1K Followers 3K Following Family man, Rangers, Freemasonry, golf, Main Stand Rear ST Holder. 🇬🇧 🇬🇧 🇬🇧

Hiya @hiyajellyz

2 Followers 544 Following

Srirangan Thangarajah @SriranganThang1

0 Followers 34 Following

Peer & RA #intracranialhypotension@Christian T. Ulrich Neurosurgery, Bern CH/ Advocate #csfleak #RIH #chronicpostpunctionalheadache #SIH #leakwarrior

Carolina Iten-SpinalC... @CarolinaIten

249 Followers 373 Following Peer & RA #intracranialhypotension@Christian T. Ulrich Neurosurgery, Bern CH/ Advocate #csfleak #RIH #chronicpostpunctionalheadache #SIH #leakwarrior

Gaijin_脳脊髄液�... @Gaijin20431980

265 Followers 227 Following 脳脊髄液減少症という難病に奮闘しています。外人です。脳脊髄液減少症についての海外から得られた情報を日本にいる皆さんにもお知らさせて頂きたいです。気軽にフォロー、リプライ、DMください。みんなと仲間です。

Watt’s Cielo Ciela Cosmoses 💡 & The Chairmin Ramón Santiago Cazorla González Meow Erasure :3✨ @GoogleCloud 🌩️ @Arsenal 🇬🇧 & 🇮🇪 & 🇺🇦 & 🇷🇺🕊️.#DJDimmock

Henry Watt @Charlie_Dimmock

10K Followers 8K Following Watt’s Cielo Ciela Cosmoses 💡 & The Chairmin Ramón Santiago Cazorla González Meow Erasure :3✨ @GoogleCloud 🌩️ @Arsenal 🇬🇧 & 🇮🇪 & 🇺🇦 & 🇷🇺🕊️.#DJDimmock

Kerry @kerry3105

66 Followers 445 Following

trisha king @aribeth33

9 Followers 93 Following

tbstanford @tbstanford1

67 Followers 238 Following Patient and advocate for #spinalcsfleak #csfleak #SIH Board Member, Spinal CSF Leak Foundation

UK charity and leading headache clinic with over 40 years' experience. Self-refer via our website to see world-class doctors. Heads Up podcast: @HeadsUpNMC

National Migraine Cen... @NatMigraineCtr

7K Followers 3K Following UK charity and leading headache clinic with over 40 years' experience. Self-refer via our website to see world-class doctors. Heads Up podcast: @HeadsUpNMC

Lynne Johnson @capecodlynne

128 Followers 924 Following She/her, CSF leak patient & educator

Disability Columnist, Honolulu Civil Beat
https://t.co/lLVgUp2CcT
Master of Typos, Raiser of Hell
https://t.co/0nTnUuZagK
✡
She/Her

Allison Wallis ♿ @allylovespono

5K Followers 5K Following Disability Columnist, Honolulu Civil Beat https://t.co/lLVgUp2CcT Master of Typos, Raiser of Hell https://t.co/0nTnUuZagK ✡ She/Her

carolyn heard @carolynaheard

114 Followers 275 Following

Neuroradiologist | Educationalist | Kings College, Guys & St Thomas’s Hospitals | Love the brain/spine/nerves/CSF(+leaks). Show up. Be of value. Make an impact.

Lalani Carlton Jones @NeuroradLal

2K Followers 1K Following Neuroradiologist | Educationalist | Kings College, Guys & St Thomas’s Hospitals | Love the brain/spine/nerves/CSF(+leaks). Show up. Be of value. Make an impact.

ashley @nettleswife

1 Followers 33 Following

clairesecker @clairesecker

208 Followers 567 Following Ironman Triathlete, Ultra distance runner, Mother and Grandmother!..

Sandra Marie @SandraMarie53

1K Followers 3K Following Pacific Northwest gardener extraordinaire, blogger, artist and antique enthusiast!

Juleh Merfae🐬👾🌱Mutant DINFOS #ArmyVet #arooo🐺 #SolarPunk #ComedyofErrors #EhlersDanlosAwareness Wag Walker code:JULIA42009 https://t.co/kMKsGUfImO

Spyral Justa StormInA... @juliemurphyarts

237 Followers 1K Following Juleh Merfae🐬👾🌱Mutant DINFOS #ArmyVet #arooo🐺 #SolarPunk #ComedyofErrors #EhlersDanlosAwareness Wag Walker code:JULIA42009 https://t.co/kMKsGUfImO

$Skull fracture in occipital bone causing a cranial CSF leak. Was in an MVA 10 years ago. Skull fracture was missed. Ontario may not be able to fix me.$

Sally e Loewen 👗�... @sally_loewen

77 Followers 1K Following Skull fracture in occipital bone causing a cranial CSF leak. Was in an MVA 10 years ago. Skull fracture was missed. Ontario may not be able to fix me.

Simon Hesp @simon_hesp

15 Followers 219 Following

Disabled scientist interested in bench-to-bedside and patient advocacy. Vice President @spinalcsfleak. Opinions are my own. 🧪🧫🧬👩🏼‍🔬🦓

Amanda Pickard, PhD @AmandaJPickard

186 Followers 414 Following Disabled scientist interested in bench-to-bedside and patient advocacy. Vice President @spinalcsfleak. Opinions are my own. 🧪🧫🧬👩🏼‍🔬🦓