Cristina kicking Long Covid @Fighting_LC
#LongCovid since Summer 2022. Doctor of Humanities. On Pause. Curious. Arty. Messy. A #Renegade50 with @RemissionBiome! #TreatLongCovid #MECFS Europe/UK Joined June 2023-
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English: “Hey, how are you?” ‘Not too bad’ ( wtf does that even mean)
English: “Hey, how are you?” ‘Not too bad’ ( wtf does that even mean)
Let’s all adopt these!
Hey @U2Fight_World, can you make the programe PDF downloadable? I would love to highlight sessions and see it on my laptop. Thanks! #LongCovid #mecfs
While lying on my couch, disabled by ME/CFS, I sometimes fantasize how my life would have been different if Simon Wessely had been a plumber.
Yes. I thought it was lung cancer at age 34, but then got #LongCovid a couple years later and that changed my life drastically
Yes. I thought it was lung cancer at age 34, but then got #LongCovid a couple years later and that changed my life drastically
Reminder: This Friday, 5/3 at 1:00pm ET - @RenegadeRes & @MEActNet bring you this Clinican's roundtable with @sunsopeningband - Clinican's can earn 1 CME credit. Register at: us06web.zoom.us/webinar/regist… #MedTwitter #MECFS #longcovid #IACI
#LongCovid patients have: 1. Functional impairment worse than stroke; comparable to Parkinson's 2. Worse quality of life than metastatic cancers 3. Worse fatigue than stroke, bowel disease, & end stage renal disease We need clinical trials urgently! bmjopen.bmj.com/content/13/6/e…
Tell me you don’t know what you’re talking about without telling me you don’t know what you are talking about
Tell me you don’t know what you’re talking about without telling me you don’t know what you are talking about
There is no red in this picture. Your brain is filling in the colour. The picture is made entirely of light blue, black and white. Zoom in, you'll see.
Today, Portugal celebrates 50 years of FREEDOM! The peaceful Carnation Revolution happened on 25 Abril 1974 when the army freed the country from dictatorship. A soldier asked for a cigarrete, a lady offered a carnation. TO FREEDOM! #25deabrilsempre
I don’t know of a worse situation to happen to someone than to end up with Long Covid or ME/CFS. It is the Living Death…#LongCovid #pwME #MECFS
ME/CFS: Changing the Definition - Sign the Petition! #MECFS #LongCovid chng.it/p976PfQW via @UKChange
🆓Win a FREE carbon dioxide monitor (AIRVALENT CO2 Monitor)!…
Are the UK not highly embarrassed their trials for #longcovid consist of things like smoothies and puzzles? Whereas other European countries are trialling things like BC007. We are an absolute joke.
Populations get sick when you remove social protections, defund public health, and underfund primary care. The sickness crisis in the UK is not caused by doctors issuing too many sickness notes. It's caused by years of harmful political choices.
Populations get sick when you remove social protections, defund public health, and underfund primary care. The sickness crisis in the UK is not caused by doctors issuing too many sickness notes. It's caused by years of harmful political choices.
Querides, tomorrow there's a @RenegadeRes @remissionbiome Clinician Roundtable with Dr. Gilete, #CCI expert! #ME #LongCovid #EDS #hEDS #POTS #MCAS
Querides, tomorrow there's a @RenegadeRes @remissionbiome Clinician Roundtable with Dr. Gilete, #CCI expert! #ME #LongCovid #EDS #hEDS #POTS #MCAS
Doing harmful things to someone's body without their consent is abuse. The fact that this happens in hospitals and by healthcare professionals doesn't suddenly make it not abusive. On the contrary, it's a very specific form of abuse. #SaveCarlasLife #ExposeMENow
What do #MECFS & #LongCovid have in common biologically speaking? We already know it. AND we might already know how to fix it too! We just need to try it out👩🏻🔬 Read this thread from a Spanish technobiology company that's been working on it for years (use X's translation tool)⬇️
What do #MECFS & #LongCovid have in common biologically speaking? We already know it. AND we might already know how to fix it too! We just need to try it out👩🏻🔬 Read this thread from a Spanish technobiology company that's been working on it for years (use X's translation tool)⬇️
#MedTwitter, I have been waiting to see this doctor for 1h30min already. Last time I waited 2h. Why can’t doctors respect patients? I am exhausted just from sitting in the waiting room #LongCovid #MECFS
Carolina Novak @carolina_n3707
109 Followers 3K Following
Deirdre O'Kelly 🕷�.. @deeokelly1
11K Followers 11K Following feminist, mum, living with #LongCovid, Rejoiner, musician 🎶 #SaveOurNHS #LeaveALightOn 🕯 #GTTO @decibellesuk
DerAlteHaseChris @SatoshiNakacro
1K Followers 2K Following Seniler Senior aus Essen der störrisch auf seiner Meinung beharrt weil sein Ego gekränkt wurde /Satire
Red Carpet Medical @RedCarpetSolut1
253 Followers 1K Following Specializing in helping people improve + gain healthier lifestyles through the use of patented wearable wellness products AND improving their #IAQ, I am #EBV+
Dee @po_move
2K Followers 2K Following Mental health, inequality & disability. Long covid research & treatment. #LongCovid #MCAS #POTS #MECFS #vaccineinjuries #FBLC
Lena Cebulla @Anel_Le13
3 Followers 133 Following
Thoytiez @thoytiez75677
6 Followers 204 Following
NickyProctor @NickyProctor
1K Followers 4K Following Writing up my #PhD in coach learning & development @LeedsBeckett and campaigning for better healthcare #MEcfs #POTS
KayMoulton @e770A2qy2STpE16
1 Followers 305 Following 32歳独身で、フィットネス、ゴルフ、ダイビング、料理が好きで、お互いに共通の趣味を持ってほしいhttps://t.co/8HdsUU2WMB
YuriJolivette @JolivetteY54737
5 Followers 953 Following
Adam Van Bavel @AdamVanBavel
5K Followers 6K Following +Δ | 4X @City_Paper #DoGooder | @Baltimoremag @ProBuilderMag #40Under40 | ✊ #GoodTrouble | 🦠#LongCOVID @U2Fight_World | https://t.co/MFopsFZgUa
Andrew Boland @Avose243
115 Followers 90 Following Theoretical Physics/Mech. Eng/Software Engineer #LongCovid #DeSci
Dr LG @subversivepsych
4K Followers 5K Following 🇮🇪➡️🇪🇸Dr(MD/MRCPsych) BSc(Hons)Pharmacol. Not medical advice. Life on hold. SARSCoV2 04/20 #LC #MECFS #CH #coagulonaut p/t #sloth 🦥 #endmedicalgaslighting
A Tired Owl @aTiredOwl
1K Followers 3K Following #MaskUp #MyalgicEncephalomyelitis LC ally. Networking with #pwME and other chronic illnesses. ⒶⓋ
Massimiliano @Snipperspace
750 Followers 3K Following 52y/man/Nurse and Osteopath/#MECFS (Long Mumps, The only one in the world) from 13/08/2021.🇮🇹 Italy
witness the sick Ness @UrgleyClark
1K Followers 2K Following she/ her. MIA Secondary SEND teacher. Volcanologist at heart. M.E, fibromyalgia, chronic migraine. Trapped in an unsuitable home #EndTheCladdingScandal
Fiona Wood ♿️💙.. @fionangreg
420 Followers 819 Following Wife, mum, Christian pwSME/CFS, FND, ME & FND Advocate. Observe small things, don't rush, love & forgive ❤️ #chronicillnesswarrior #loveyourself #loveothers
Long Covid Patient Ac.. @LC_UK_Action
4K Followers 2K Following @[email protected] https://t.co/DlgXF9BQSe
The impatient patient @HalfThePerson
914 Followers 479 Following Ultramarathoner, triathlete & #LongCovidAdvocate I never wanted to be
Chronically Illumise .. @ChronIllumise
22 Followers 247 Following Lily. #pwME, pwPOTS, Pokémon fan (she/her).
Sarah O'Connell @SarahOC_MECFS
4K Followers 4K Following ME #pwME patient 10 yrs & mum of 2 with ME, #LongCovid & PANS • ME & LC Advocate • Co-Founder LCAI • Women's Health; Endometriosis,PMDD • Sci-fi & movie lover
Deb @buckleydebbie
862 Followers 5K Following
Katharina 🍀 @katha.. @katha1970
885 Followers 2K Following Here for research + info on #ChronicMigraines #MECFS #LongCovid #MCS #MCAS #ChronicPain #Neuroscience #Psychology #MedicalGaslighting, posts German & English 🎶
Emma Wooller @WoollerEmma
2K Followers 3K Following Coding is caring. Not that kind of Coder. I told you I was ill.
Survivor Network CA @survivornetca
8K Followers 8K Following Canadian Cancer Survivor Network | Promoting the very best standard of care, support, follow up and quality of life for cancer patients and survivors.
COLT @COLT1416201
33 Followers 551 Following
maude 🍉 @sheisartmoney
40K Followers 25K Following abstract painter • collage artist Be-bop • Dada • Pyramids • 🌱plant stuff 🦚 love and mercy #LongCovidRuins
#NotJustFatigue @njfatigue
596 Followers 663 Following We are a 501(c)(3) sounding the alarm on ME/CFS through digestible, creative content. This is #NotJustFatigue
Helena 😳 @Helena_S4285
3 Followers 248 Following Bе warned, уou wоn't be able to rеsist my irrеsistible аllurе
Brad @Bradgolf1216
3K Followers 2K Following Bachelor of Biological Science Degree. #LongCovid #TeamAutoantibodies #Bc007. Any tweet is my opinion and not medical advice. Check out my podcast on Spotify
mercedes calleja @mercecalleja
138 Followers 953 Following
plague rat 🐀 @x3r0gxx
8K Followers 7K Following federation of plague rats against forced mass infection 🐀 🐀 🐀 🏴
Renegade Research @RenegadeRes
1K Followers 73 Following Community science, patient-led, philanthropically funded, decentralized research org. Open source, power to and from the patients. Runs @remissionbiome
Sara Popomme @SaraPopomme
8 Followers 17 Following
Laurie Kuhn @laurie_kuhn
231 Followers 367 Following Passionate about human, artificial and mycelium intelligence. Former tech innovator/founder. Recent Long Covid + cancer survivor. Focused on health and joy.
Meriam Rllb @lowbatterydream
550 Followers 410 Following PharmD, 26, Long Covid March 2020 | ME/CFS | POTS | Personal IG : meriamrhallab | Chronic illness IG : lowbatterydreams
Anrg @Anrg007
23 Followers 226 Following
Autisdick ☭ 😷 �.. @hiimjakekthx
1K Followers 2K Following @Remissionbiome n=50 Participant🍳🧠 🏳️🌈. Disabled by SARS2, Marxist, jew-ish. @hiimjakekthanks priv alt. rts ≠ endorsement
NelbaM @EnelbaM
253 Followers 2K Following
Bill G. (頑張る) @freshheroo
436 Followers 561 Following 32 y/o Big 4 consultant CPA. Aspiring career in commodity private equity. On Hold: V injury, Infection LC for 22 months. Against all odds. #24
Carrie Lukacth @carrielukatch
1 Followers 123 Following
Ivona @Ivi81
2K Followers 84 Following (paused) Marathon-runner ➡️09/2020, ever since LongCovid fighter 🦾 positive vibes only 💃
MEinSEATTLE @emmydugas
989 Followers 2K Following
Erin Tarantino 🇨�.. @erincandy
10K Followers 3K Following 🇨🇦SPORTS/#LeafsForever•Movies/History/Gaming/Politics/Creator/Cat Rescuer• Anti-disinfo activist. Leukaemia cancer survivor! #LongCovid since March 2022 ♑️
Long Covid & ME/CFS W.. @LongCovidWeekly
2K Followers 443 Following OG March 2020 longhauler focused on Weekly Newsletter dedicated to Long Covid & ME/CFS news. https://t.co/HfDW6UJ5ry author: @biotechbuzznews
Scott Daniska @scott_scientist
351 Followers 212 Following Scientist & chronic illness advocate raising awareness of environmental research for ME/CFS & more. Let's drive change together! #ChronicIllnessAwareness
Screen. Dance. Now. @ScreenDanceNow
70 Followers 712 Following We are a one-day festival in Southeast Michigan showcasing screen dance shorts, artist talks and workshops on 10.07.17. Tickets now on sale!
The International Jou.. @IJScreendance
6 Followers 3 Following The International Journal of Screendance is an international, artist-led journal exploring the field of Screendance.
InShadow - Lisbon Scr.. @inshadowfest
29 Followers 81 Following De 15/11 a 15/12 o Festival InShadow está de regresso a Lisboa! From 15/11 to 15/12 InShadow Festival is back in Lisbon!
ScreenDance Festival @ScreenDanceFest
555 Followers 208 Following The Festival's main aim is to showcase Swedish dance film, and establish international collaborations and networks with other dance filmmakers.
Screendance Centre @screendance
366 Followers 86 Following The Centre for Screendance creates a research forum for critical debate and publication of screendance.
Wicklow Screendance L.. @WScreendanceLab
257 Followers 909 Following Wicklow ScreenDance Laboratory - WSL is a yearly event that celebrates the art of Dance in all its forms
screen.dance @screendancescot
256 Followers 382 Following Celebrating the art of dance on screen through a programme of events and awards in Scotland and beyond. Touring Scottish screen dance launched at #DanceLive2021
Brad @Bradgolf1216
3K Followers 2K Following Bachelor of Biological Science Degree. #LongCovid #TeamAutoantibodies #Bc007. Any tweet is my opinion and not medical advice. Check out my podcast on Spotify
Anil van der Zee © @AnilvanderZee
9K Followers 824 Following Former professional ballet dancer | Bed/sofa-bound M.E. patient | Using Twitter to raise awareness for #MyalgicE | #art2cureME #pwme #millionsmissing
Dee @po_move
2K Followers 2K Following Mental health, inequality & disability. Long covid research & treatment. #LongCovid #MCAS #POTS #MECFS #vaccineinjuries #FBLC
Nick Chambers @NickChambers2
889 Followers 418 Following Using Twitter to improve my health. CFS since 2015. Worsened in 2021 after vaccine. Let’s do this 👏🏼💪🏼
Treacle Goblins @TreacleGoblins
667 Followers 530 Following Living with M.E. is like goblins broke into your house and threw you in a big pot of treacle. Viral onset in 2013. Late 30s. #pwME #MECFS
Black Cat (french PT) @BlackCa92876007
306 Followers 456 Following Physiotherapist and climber, in pause : Long covid. Team autoantibodies
Katharina 🍀 @katha.. @katha1970
885 Followers 2K Following Here for research + info on #ChronicMigraines #MECFS #LongCovid #MCS #MCAS #ChronicPain #Neuroscience #Psychology #MedicalGaslighting, posts German & English 🎶
NickyProctor @NickyProctor
1K Followers 4K Following Writing up my #PhD in coach learning & development @LeedsBeckett and campaigning for better healthcare #MEcfs #POTS
Raoul Schendel @Raoul__Lucas
2K Followers 488 Following 25 I ME/CFS seit 2021 I https://t.co/lXLUhs2Prj I WING @uni__augsburg I DE II EN
AIRVALENT @AIRVALENT_com
304 Followers 216 Following AIRVALENT - smallest indoor air quality monitor for your home, office, or school. Shipping Worldwide now: https://t.co/xEf1sV5NEw
Stephen Smith @smithsj
5K Followers 2K Following
Iñigo Ximeno @iximeno
2K Followers 655 Following Cuenta autorizada para divulgación científica de los proyectos de investigación adscritos a IXILKA RESEARCH TECHNOLOGIES
Wading through treacl.. @kimisgubbed
3K Followers 3K Following Advocate & sharer of bio research for INFECTION ASSOCIATED CHRONIC DISEASES inc MECFS, Long COVID, MCAS, Dysautonomia, Vaccine injuries, FMS, Sjogrens & Lyme 🔬
Andrew Boland @Avose243
115 Followers 90 Following Theoretical Physics/Mech. Eng/Software Engineer #LongCovid #DeSci
Juan Alcazar @Jalcazargalan
234 Followers 231 Following
A Tired Owl @aTiredOwl
1K Followers 3K Following #MaskUp #MyalgicEncephalomyelitis LC ally. Networking with #pwME and other chronic illnesses. ⒶⓋ
witness the sick Ness @UrgleyClark
1K Followers 2K Following she/ her. MIA Secondary SEND teacher. Volcanologist at heart. M.E, fibromyalgia, chronic migraine. Trapped in an unsuitable home #EndTheCladdingScandal
Long Covid Patient Ac.. @LC_UK_Action
4K Followers 2K Following @[email protected] https://t.co/DlgXF9BQSe
The Man in Seat 61 @seatsixtyone
136K Followers 296 Following Mark Smith, the Man in Seat 61, the chap who runs train travel site https://t.co/HfViO7RbwW. YouTube: https://t.co/OIZkYXHYZL.
The impatient patient @HalfThePerson
914 Followers 479 Following Ultramarathoner, triathlete & #LongCovidAdvocate I never wanted to be
Rae @Sunny_Rae1
12K Followers 2K Following Dr Rae Duncan MBChB,BSc(HONS), MSc,MD,FRCP, SCMR3,BSE TTE/TOE Accr. Consultant Cardiologist & Long Covid Researcher. #TeamClots #LongCovidKids #WHN.Views my own
Steve Topple @MrTopple
33K Followers 5K Following Journalist @TheCanaryUK | Journalist @BywireNews | Vibes @Reggaeville @PauzeRadio | Contrib @RadArtReview | Project lead @ #CanaryAmplify | Views my own etc.
Ann Garvin @AnnGarvin_
15K Followers 6K Following I think everything is funny and a little bit sad. USA Today Best Sellling Author & Founder of @tallpoppywriter
@invest_in_me (Invest.. @Invest_in_ME
8K Followers 732 Following An independent UK charity finding, funding, facilitating biomedical research into ME and providing better education and awareness of this disease in UK & Europe
Carole Bruce @CaroleBruce17
6K Followers 5K Following Severe #ME for 32+ years. Ex- psychotherapist. Daughter, severe ME 38 years. Eldest son, MS. Apart from that ❤️Art, people,nature, books, some music.
Deb @buckleydebbie
862 Followers 5K Following
Tiago Silva @tfouto
118 Followers 329 Following
Anna Burtt @annamburtt
4K Followers 5K Following Founder of West Hill Writers. Producer @radioreverb Brighton Book Club. Former events @jerichowriters. @TMOALpod. Little Book of Ick. Trustee @newwritingsouth
World ME Alliance @WorldMEAlliance
2K Followers 246 Following An alliance of ME organisations across the world, we want to see a coordinated public health response to ME from the WHO and together founded #WorldMEDay.
Open Medicine Foundat.. @OpenMedF
14K Followers 1K Following OMF is fundraising to support open, collaborative research to find effective treatments and diagnostic markers for ME/CFS, Long COVID, and related diseases.
nunosep @nunosep1
658 Followers 88 Following Researcher and eternal curious about science. Head of the Immune-Stats group with special interest on tropical diseases and ME/CFS.
Dr. Gustavo Aguirre-C.. @Aguirre1Gustavo
9K Followers 10 Following Treatment of LongCOVID,Post-Vax,ME/CFS,FM Creator of Test for: Viral Persistence,Microclots https://t.co/6Y0z9pQN13 https://t.co/TXxbrQw8QW
Michael A Osborne @maosbot
33K Followers 1K Following Dad, spouse, Professor of Machine Learning @UniofOxford, Co-Founder Mind Foundry, Director @aims_oxford. Bayes, Long Covid, porridge, AI must be good for humans
#NotJustFatigue @njfatigue
596 Followers 663 Following We are a 501(c)(3) sounding the alarm on ME/CFS through digestible, creative content. This is #NotJustFatigue
Pam Bishop, PhD @pamelarbishop
10K Followers 3K Following Was research professor, now disabled by #LongCOVID (12/5/20) & subsequent #POTS #MECFS #MCAS #SFN #cSVD Patient advocate when able. Tell your story if you can.
LongCovidSpain @LongCovid_Spain
1K Followers 2K Following Dando voz a los pacientes e investigadores de #CovidPersistente #longcovid Encuentra tu asociacion mas cercana ⬇️
@queencharlot He should NOT have kicked her, that’s awful 😢 But I have to say it’s also not acceptable to let your dog wonder up to strangers. That doesn’t justify what he did, but no matter how friendly you know they are, many people don’t want strange dogs coming near them.
@Fighting_LC 😆 I’m doing a little video editing as we speak! It will be up soon I’m really excited about, very unique story
@gezmedinger Have you run across a therapy protocol that seems to be working?
@CaroleBruce17 🫂. Following as I have never watched one before so also curious of opinions. The last guy didn’t seem in any rush to publish the plan IMO. And we don’t need symptom management to get on with our lives we need treatment.
@seastarsal He’d be trying to convince you that your leaky tap wasn’t actually leaky.
While lying on my couch, disabled by ME/CFS, I sometimes fantasize how my life would have been different if Simon Wessely had been a plumber.
#mecfs diagnosis in 2008
Does everyone have a life event that changes them so much and rocks their very being to the core that everything before this event becomes "the before times" in their mind. Like there becomes a line where you were one person before the event and another after. Does everyone have…
@kirstler31 Hi it was 30mg twice a day alongside two antiplatelets. However I had confirmed microclots and took the combination under the supervision of a knowledgeable and experienced physician.
me saying good morning to my intestinal microbiome:
@phi_psd The future is not yet written 🙌
@Fighting_LC It can be. Not often but I’ve heard of the South African doc sometimes using it in place of heparin I think!
@saffronandsky I did fine with it even though I took it when my mast cells were at their most reactive. It really helped me and I saw a baseline increase. As far as antibiotics go, its action is limited to the gut. I took it for a month for SIBO. But obvs our bodies are all different.
I'm the primary decision maker on all technical hires in my company At the end of the interview process I ask candidates what salary they would be looking for If they say really high I say "well done, you should always ask for as much as possible" If they ask for less than I…
@Fighting_LC Does it cause depression? I have occipital neuralgia, but I was given sibelium anyway, not at the same time with melatonin.
@Fighting_LC @U2Fight_World Same. Plus time difference issues in Australia.
I’ve improved more than I thought was possible four months ago. Normal life looks attainable from here. But I’m barely allowing myself any positive emotion because the danger of backsliding is so serious and will be lifelong. #MECFS
Yesterday at @remissionbiome we discussed how nice it would be if we could all pool our spoons and distribute them evenly “socialist chronic illness” and pull the most severe out of that state. Then we could all have enough spoons to help each other get more.
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