Olenka Sayko @coco_chatel
Ukrainian-American. Theater/film/music/book lover. Former arts finance girlie. Left-ish Libertarian-ish. Life on pause due to disabling #LongCOVID. White Plains, NY Joined October 2008-
Tweets23K
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Followers3K
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Likes45K
Rapamycin for LC 💊 For anyone who has tried it…have you experienced things getting better, then worse, then better again? I’m used to meds making me feel like 💩 for a few weeks or even months before normalizing and even potentially helping. But usually they only go from…
🚨 Novavax update 🚨 Danny's Pharmacy on upper west side will start offering Novavax boosters starting September 4. No prescription necessary, walk-ins welcome. 347-754-3161
Exclusive footage of me at any given time. #LongCOVID #MECFS #POTS #MCAS
Exclusive footage of me at any given time. #LongCOVID #MECFS #POTS #MCAS
Vaccine with spike protein? BAD Virus with spike protein? GOOD Am I understanding this correctly?
Vaccine with spike protein? BAD Virus with spike protein? GOOD Am I understanding this correctly?
“All you do is talk about your illness and COVID” Heaven forbid a girl hold a grudge about having her life blown to smithereens and want to prevent that for others…
Chip in for a good cause - raising money for @polybioRF’s biomarker program for Long COVID!
Chip in for a good cause - raising money for @polybioRF’s biomarker program for Long COVID!
I pray that the youths clutching their pearls about Sabrina Carpenter’s lyrics never encounter Janet Jackson’s later works because that shit will literally put them in comas.
And the increasingly more common expectation that artists need to be THAT literal in their work honestly makes so much art utterly fucking insufferable for those of us with literally any critical thinking skills and media literacy.
And the increasingly more common expectation that artists need to be THAT literal in their work honestly makes so much art utterly fucking insufferable for those of us with literally any critical thinking skills and media literacy.
#MECFS Bitte retweeten! Hat jemand anfänglich eine anhaltende Verschlechterung vom langsamen Aufdosieren von Low Dose Abilify gehabt (0,01mg - 0,5mg) und später aber eine deutliche Verbesserung erfahren bei höherer Dosis (0,7-2mg)? Danke!
Sent off my samples for the Amatica 31 marker test and RNA sequencing in the past couple weeks and now I’m just…waiting. Patience is a virtue but it’s never been a strong suit of mine.

Dr Claire Taylor @drclairetaylor
65K Followers 2K Following Doctor|Special interest in Long Covid,POTS,ME/CFS&MCAS| neuroscientist🧠Long Covid kids champion|long Covid clinic🏴Views my own
LongCovidPharmD @organichemusic
35K Followers 1K Following Doctor of Pharmacy. Long Covid, EBV & ME/CFS research. Here to share & learn. Tweets not medical advice. https://t.co/jqc4g8cFLa https://t.co/lKQezPwtQs
Hannah Davis @ahandvanish
56K Followers 4K Following Research, algorithmic music, machine learning, anti-bias in AI data. #LongCovid research & advocacy @patientled. DMs rarely checked
GeoCK @GeoEduOne
6K Followers 865 Following MSc | AD | ICL, UCL, UOB alum | Geoscientist, cyclist, adventurer, athlete, dad | Sidelined after a “mild” Covid infection, Dec 2021 | #LongCovid #FBLC #Climate
John K @j_b_kennedy
17K Followers 6K Following I tasted chronic illness in the form of Long Covid. It tasted horrible. But I was lucky & improved over 4 years. Now I’m here for those still struggling
Shaney Wright @ShaneyWright
16K Followers 449 Following @WestHam Fan ⚒ 🏴 | Accidental Centrist I Pro-Pragmatism and Real World Outcomes I Anti-Ideologues.
Prof. Akiko Iwasaki @VirusesImmunity
213K Followers 2K Following We study antiviral immunity and viral disease pathogenesis. #COVID19 #longCOVID #vaccines @HHMINEWS @YaleIBIO @YaleMed @YaleCII
Laura Miers @LauraMiers
72K Followers 12K Following Pro-Kindness/Compassion/Love. Wealth inequality will destroy us. Ex-Texan, Global citizen. Law, Medicine, Sustainability, Languages. LongCovid since 2020.
Brian Fog @useless_priest
8K Followers 5K Following Mild LC/ME Apr 2022 | ME, when triggered by SARS-CoV-2, is a subset of Long COVID | Repeated triggering of PEM leads to lowering of baseline | 🏳️🌈 | 🇮🇪
Naomi Harvey PhD #Wea... @Naomi_D_Harvey
17K Followers 4K Following Zoologist. She/her. ME/CFS since 2002, now Severe. Pro-vax but vaccine injured. Life on pause (views my own - unemployed) ♿️ https://t.co/YeMrEWwEg5
Pam Bishop, PhD @pame... @pamelarbishop
10K Followers 3K Following Was research professor, now disabled by #LongCOVID (12/7/20) & subsequent #POTS #MECFS #MCAS #SFN #cSVD
Seets💫 @MamaSitaa__
9K Followers 852 Following Lover of plants, astrology, and being a good human. Long Covid sucks. Hot people wear masks. 🤌✨
Christoph Ströck @cstroeckw
8K Followers 603 Following Soon, people will look back in disbelief at what has happened to patients with ME/CFS | Godspeed 🙇🏼
Joaquín Beltrán Fre... @joaquinlife
20K Followers 10K Following
alyssum ✨ @a_lil_bow
5K Followers 5K Following Fangirl of scientists. Bibliophile. Collector of cool people. Immunocompromised. Full-time incubator for chaos ☕️ 🧬
Ramy @ramyvaldes
1K Followers 557 Following Attorney, part time poet, musician. Life on pause due to mecfs.
Mark @longcovidman
3K Followers 5K Following On pause: management consultant, tech founder & powerlifter. Follow for smart answers to long cov*d as I find them
ⓛ.ⓛ 🇵🇸🔻 @234769669O
58 Followers 819 Following
Coley Gabriel james @ColeyGabri24517
3 Followers 93 Following Let love lead ❤️🩹. One with God is majority.
TubaTJ @TubaTJ1
2K Followers 5K Following I play the tuba and live in Hawai'i. COVID isn’t over. #ClimateEmergency Heavyweight 🥊 fan. I support #m4a #GND and #UBI
Sarah Marshall @Sarah_Marshall1
25 Followers 736 Following
James White @JamesRWhite85
169 Followers 2K Following
Anne Takeuchi @AnneTakeuchi
246 Followers 1K Following
Michael 🇨🇦 🇵... @michaelilnicki
410 Followers 2K Following Polish/Ukrainian Canadian. Country/pop-punk/emo/synthwave/EDM/polka & sports fan. Las Vegas traveler. Craft beer.🍺
BirdieBittern @BirdieBittern
6K Followers 6K Following
Thomas Spademan, JD, ... @SpademanTh78302
125 Followers 998 Following Proud philosophy faculty at Mott Community College in Flint, Michigan. Anti-COVID. Pro-compassion. 35 years ME, LC since 2022. I follow people who mask.
(@[email protected]... @FolkyHel
1K Followers 3K Following COVID-averse, self-recognised autistic. Mainly here for Wordle league these days. Love a dog picture. 😷 Follow me on Bluesky or Mastodon. She/her.
Franz Münchinger @blazergt
26 Followers 549 Following
Scott Dos Santos @Scott_Santos93
384 Followers 2K Following He/Him | Scientist working on microbiomes @ Western University, ON, Canada 🧬 | Full-time nerd 🎮
K @hEDSmedstudent
47 Followers 290 Following
Jack | amatica health @JackHadfield14
5K Followers 1K Following ex Aerospace Engineer, now ME/CFS & LC patient researcher and cofounder @amaticahealth https://t.co/BvmsOvch0p - email [email protected] questions
P Wilband @p__willbard
17 Followers 725 Following
Lisa @_Lisa_LJ
697 Followers 2K Following Mum of 2, physician. Mostly here to read and learn - special interest in covid. Still adcovating for masks, clean air and the precautionary principle.
Daniel @DamSheesh1
372 Followers 968 Following I am against religion because it teaches us to be satisfied with not understanding the world. It’s easier to live in denial than face the uncomfortable truth.
POTS DOC @JusticeInMed
6K Followers 5K Following
Empty Reservoirs,Ragi... @Cantweseekpeace
769 Followers 4K Following He/Him Born 320+ppm CO2 (not counting Methane)
Bean & Sprout's Mom @beansprouts_mom
6K Followers 3K Following Woman in STEM encouraging science-based, ethical policy. Blessed mom of 2, nature-lover, ankylosing spondylitis warrior. #COVIDAwarenessWeek
stm @stm2121
1K Followers 3K Following
Anna (needs a SAFE HO... @halcionandon
3K Followers 8K Following 👉NEED SAFE HOME 🏡Inquiring mind derailed by health in hell mode #SevereME #LongCovid #Migraine #POTS #ChronicPain & more Beem: halcionandon #SaveAnna
Dave Hoffmann @DHoffmann54028
110 Followers 5K Following Single, work with the UN in the United States ArmForce , orthopedic surgeon
Ousman Fatty @ousmanfatty124
43 Followers 2K Following
G-man @g_pounce
123 Followers 1K Following
gameplaydoomer @postholocene
233 Followers 1K Following your host to the collapse of the capitalist metabolism & the concurrent extermination of most contemporaneously instancing flora & fauna in the known universe!
J @jbvelas94
192 Followers 2K Following
azy ★彡 @azy_poppy
600 Followers 929 Following ꩜ inner scales ⚖️ | deciphering | accuracy in judgement equals less sins
Olya Hontsa @hwisoo_olya
223 Followers 5K Following International Business Management student 🎓and Korean culture researcher 🇰🇷. My first book on 5G K-pop with @CloudHeino on Jan 2026 📚
Data Report @CovidDataReport
26K Followers 1K Following Tracking the Covid Pandemic and other health news. Opinions are my own. My YouTube channel: https://t.co/CYHulpYCge
Nebal Nebal @nebal44587
464 Followers 5K Following I am Nibal from Gaza, I am 26 years old and I am pregnant. I hope you can help me.🇵🇸🤰🙏
Holly O'Hara @HollyEOhara
2K Followers 3K Following • Founder @EO_Collective • 🎶Artist Manager • Producer • Multimedia Artist • Dyslexic, AuDHD & Disabled • 🏳️🌈🏳️⚧️ Nonbinary Pan • PNW 🇮🇪• 🛑StopCopCity
Virgil Rogahn-Lehner @LehnerRoga91262
32 Followers 2K Following
Xicanasaures Rex @muertapoeta11
92 Followers 2K Following 𝕿𝖍𝖊 𝖔𝖓𝖑𝖞 𝖌𝖔𝖔𝖉 𝖈𝖔𝖑𝖔𝖓𝖎𝖟𝖊𝖗 𝖎𝖘 𝖆 𝖉𝖊Ⓐ𝖉 𝖈𝖔𝖑𝖔𝖓𝖎𝖟𝖊𝖗. 🔪💣🌹
kk Kkk @Mkhvvl
0 Followers 986 Following
Bazz Azz @BazzAzz196968
81 Followers 1K Following I DO NOT BUY CONTENT!! The only exception from this is if we are going to collaborate. I make content myself are you going to buy mine? Didn't think so.
Custódiotó Monteiro @CustodiotoM
96 Followers 3K Following
Scott Friedrich @BiranilmaMello
80 Followers 421 Following
Dr Claire Taylor @drclairetaylor
65K Followers 2K Following Doctor|Special interest in Long Covid,POTS,ME/CFS&MCAS| neuroscientist🧠Long Covid kids champion|long Covid clinic🏴Views my own
LongCovidPharmD @organichemusic
35K Followers 1K Following Doctor of Pharmacy. Long Covid, EBV & ME/CFS research. Here to share & learn. Tweets not medical advice. https://t.co/jqc4g8cFLa https://t.co/lKQezPwtQs
Hannah Davis @ahandvanish
56K Followers 4K Following Research, algorithmic music, machine learning, anti-bias in AI data. #LongCovid research & advocacy @patientled. DMs rarely checked
GeoCK @GeoEduOne
6K Followers 865 Following MSc | AD | ICL, UCL, UOB alum | Geoscientist, cyclist, adventurer, athlete, dad | Sidelined after a “mild” Covid infection, Dec 2021 | #LongCovid #FBLC #Climate
John K @j_b_kennedy
17K Followers 6K Following I tasted chronic illness in the form of Long Covid. It tasted horrible. But I was lucky & improved over 4 years. Now I’m here for those still struggling
Shaney Wright @ShaneyWright
16K Followers 449 Following @WestHam Fan ⚒ 🏴 | Accidental Centrist I Pro-Pragmatism and Real World Outcomes I Anti-Ideologues.
Prof. Akiko Iwasaki @VirusesImmunity
213K Followers 2K Following We study antiviral immunity and viral disease pathogenesis. #COVID19 #longCOVID #vaccines @HHMINEWS @YaleIBIO @YaleMed @YaleCII
Brian Fog @useless_priest
8K Followers 5K Following Mild LC/ME Apr 2022 | ME, when triggered by SARS-CoV-2, is a subset of Long COVID | Repeated triggering of PEM leads to lowering of baseline | 🏳️🌈 | 🇮🇪
Resia Pretorius @resiapretorius
28K Followers 259 Following Distinguished Prof: Physiological Sciences, Stellenbosch Univ, South Africa; Honorary prof: Univ of Liverpool Research: coagulation, inflammation
Naomi Harvey PhD #Wea... @Naomi_D_Harvey
17K Followers 4K Following Zoologist. She/her. ME/CFS since 2002, now Severe. Pro-vax but vaccine injured. Life on pause (views my own - unemployed) ♿️ https://t.co/YeMrEWwEg5
WesElyMD @WesElyMD
57K Followers 343 Following Husband & Dad. ICU Doc. Vanderbilt. @CIBScenter studies Covid & Long Covid, ICU Survivorship, PICS, Dementia, Delirium. Tweets my own. Still learning.
Putrino Lab @PutrinoLab
36K Followers 399 Following We make people (and technology) better at Mount Sinai. Opinions are my own.
Pam Bishop, PhD @pame... @pamelarbishop
10K Followers 3K Following Was research professor, now disabled by #LongCOVID (12/7/20) & subsequent #POTS #MECFS #MCAS #SFN #cSVD
Seets💫 @MamaSitaa__
9K Followers 852 Following Lover of plants, astrology, and being a good human. Long Covid sucks. Hot people wear masks. 🤌✨
Christoph Ströck @cstroeckw
8K Followers 603 Following Soon, people will look back in disbelief at what has happened to patients with ME/CFS | Godspeed 🙇🏼
Joaquín Beltrán Fre... @joaquinlife
20K Followers 10K Following
Ramy @ramyvaldes
1K Followers 557 Following Attorney, part time poet, musician. Life on pause due to mecfs.
Jonathan Howard MD @19joho
21K Followers 4K Following Author: We Want Them Infected: How the Failed Quest for Herd Immunity Led Doctors to Embrace Anti-Vaccine Movement https://t.co/LrW2um1R01
RiShawn Biddle @dropoutnation
9K Followers 3K Following Father, Husband. Senior Scholar, and Editor, DN. Chronicling education, health and social policy. Opinions are my own. https://t.co/NCWNKBKEk8
David S. Younger @DavidSYounger2
814 Followers 51 Following Dr. David Younger is a highly trained neurologist, and an expert in the use of immunotherapy to treat specialized childhood and adult neurologic disorders.
RonaldwDavis @Ronaldw_Davis
652 Followers 22 Following
poems for namjoon @poemsfornamjoon
13K Followers 16 Following just some poems i think namjoon would like (slow updates, because life is hard rn sorry)
Whitney Dafoe @DafoeWhitney
11K Followers 72 Following Severe ME/CFS patient and advocate. Sick since 2004, bedridden since 2013. Never. Giving. Up. ✊ Useful info for ME/CFS and Long Covid patients in bio link.
Tanya Vyhovsky for Ve... @tanyavforvt
1K Followers 1K Following Activist, Social Worker, Community Organizer, State Senator Chittenden Central district - she/they
Nancy Wolfson @NancyWolfson
5K Followers 899 Following Apex no-nonsense VOICE OVER teacher/casting director/demo producer who Brands & Breaks You In: https://t.co/da3gPDqtYZ https://t.co/BpnpnFaFAl
Rohit Gupta @rogupta50
201 Followers 24 Following
Daniel Missailidis, P... @DanMissailidis
4K Followers 625 Following Researching the cell biology of PD, ME/CFS & Long COVID at La Trobe Uni in Melbourne, Aus. Papers: https://t.co/JMi5U6cBLI
sxwrkr @sxwrkr_
2K Followers 4K Following no clients, no mains. diagnosed autistic, adhd, eds, pots, etc. just tweetin. CC4ever
Becca Roth @Becca_Roth
4K Followers 1K Following Writer/Director | #Nicholl Semifinalist | @GLAAD List | buncha other stuff 🏳️🌈
Jessica Riedl 🧀 �... @JessicaBRiedl
50K Followers 842 Following Sr. Fellow @ManhattanInst. Past: Sen. Portman chief economist (2011-17), budget policy @ 4 prez campaigns. Fiercely independent and tribeless. Views mine.🏳️🌈
Eyup Lovely @eyuplovely
66K Followers 2K Following Woke New Left Citizen Journalist fostering political dialogue & respectful analysis. Love life, hate bullies, hoping to make a difference. [email protected]
Ben Noll @BenNollWeather
86K Followers 170 Following Global weather writer and meteorologist for @washingtonpost | Weather and climate analysis and visuals | #HudsonValley snow days
tayoncé @lambchoptay
2K Followers 2K Following writer. theatre artist. she/her. 1922. not a professional account. don't ever repost one of my tweets somewhere else without my permission.
Gabriele Ströck @gabrielestroeck
836 Followers 652 Following CEO at Ströck Bakery & Director @weandmecfs | Supporting our sons and everyone else fighting with #MECFS and #PAIS |
Ubaka Ogbogu @UbakaOgbogu
46K Followers 31 Following Professor. Member, RSC College. Tweeting about law, health, science policy, politics, antiracism, sports, fashion, culture. #BlackLivesMatter. he/him 🇨🇦🍁
Dr. Marcus Shepard @MarcusShepard
15K Followers 443 Following USC PhD in Communication/Scholar/Singer & Author of “Midnight Musings: Interpersonal Communication & Social Media”
Jerome Adams @JeromeAdamsMD
89K Followers 662 Following Father, physician, author of Crisis and Chaos, Purdue University Distinguished Professor, Former IN Health Commissioner and 20th US Surgeon General
Jack | amatica health @JackHadfield14
5K Followers 1K Following ex Aerospace Engineer, now ME/CFS & LC patient researcher and cofounder @amaticahealth https://t.co/BvmsOvch0p - email [email protected] questions
Secretary Kennedy @SecKennedy
1.1M Followers 2 Following Official page of @HHSGov Secretary Robert F. Kennedy, Jr.
дарина 🇺🇦 @lilslimer69
80 Followers 83 Following Ukrainian, prev Very Severe, now Severe #MECFS, Myasthenia Gravis 🎗️ #PostVac #pwME
Lakyn Thee Stylist @OgLakyn
50K Followers 984 Following The Ethical Stylist. Mentioned in @bof @slate @harpersbazaarus @marieclaire +more. Remake ambassador. she/her
Nick Melia @arta_semita
2K Followers 2K Following Interdisciplinary systems & translational scientist; focused on severe ME Chief Research Officer, scientific advisor @ Macdonald Foundation @RenegadeRes
J Scotch McClure @joshuamcclure
19K Followers 2K Following ⚕️CEO @ Maxwell Biosciences - developing a Synthetic Immune System effective vs viruses, fungi & bacteria. Restore immunity. Heal people. MAHA ❤️🩹🫵🏼🇺🇸🌎✝️
Maxwell Biosciences @MaxwellBiosci
1K Followers 201 Following We are developing the Claromer ™ drug platform to end AMR pandemic infectious disease, extend health span, & create health for the world. safely & affordably.
T Bird @tbirdtko
1K Followers 2K Following Liberation, abolition, disability justice, clean air. ME/cfs. Everything begins small in the bayou. Dayenu. 🐊🦐♿️🌈✡️ 🇵🇸🌹
Meghan O'Rourke megha... @meghanor
21K Followers 2K Following Author of NY Times Bestseller THE INVISIBLE KINGDOM: REIMAGINING CHRONIC ILLNESS, a finalist for the National Book Awards. Editor, The Yale Review.
CardanoKarma @RFlummerfelt
3K Followers 5K Following Canon Lawyer/Attorney#NAFO AntiFash & AntiCommie, Ukrainian Catholic
Oq @Nnwwzz124
3K Followers 7K Following My latest music video: Naught A Fallacy - The recursive entendre of self overcoming https://t.co/6D9WnrvxJ4
Marc Johnson @SolidEvidence
37K Followers 144 Following Molecular virologist, Professor, and wastewater detective. Same handle on bsky. Ignore the check, I'm doing an experiment.
Yasmin Nair (One Tena... @NairYasmin
10K Followers 710 Following Co-founder, Against Equality, Editor at Large, Current Affairs, Gender JUST. Stalks your cats.
Critically Argumentat... @noquakquak
810 Followers 678 Following Former DeepTech SciComm founder, journalist and sustainability master’s student fighting the undercomplex | LC POTS MECFS MCAS ADHD | I blog my suffering
Stella Chadwick | Fun... @stella_chadwick
4K Followers 573 Following Founder of Brainstorm Health | Functional Medicine & Nutrition Expert | Specialist in #Autism, #PANDAS, #PANS, #ADHD | No stone left unturned
Nick Wellings @Nick_Wellings
3K Followers 6K Following used to love opera + ballet, some books. now disabled by ME
Dr. Joonas Ryssy @taurine330
1K Followers 2K Following Postdoctoral Researcher at Aalto University - Working towards improving mental health in Academia
Marci Shore @marci_shore
9K Followers 633 Following Hist. prof, Munk. Author "The Ukrainian Night: An Intimate History of Revolution;" "The Taste of Ashes: The Afterlife of Totalitarianism;" "Caviar and Ashes."
itsbabs.bsky.social �... @babs_zone
6K Followers 4K Following artist📸 + activist / have lupus, studying the spectacularization of HCQ / just tryin to have a nice time On The Internet™️ / she/they😷🍐🏳️🌈 #DoMaskBlocShit
Jason Gale @jwgale
6K Followers 3K Following Snr editor @business. Interested in medical science & global health. Signal: Jasongale.89 Author of After Covid: The Health Impacts That Will Last Generations
Jessica | Biomedicine... @jessicaalanas
33K Followers 550 Following BSc Biomed | MSc Longevity Science. Researching immunodeficiency, peptide therapeutics and regenerative medicine. Science-led recovery ↓
Laura Weiss/ lauralew... @lauralew105
3K Followers 3K Following Writer covering health justice, disability, labor, immigration, and more, mostly for Prism Reports & New Republic. Editor at @IndyKidsNews. Here for research.