A Tired Owl @aTiredOwl
#MaskUp #MyalgicEncephalomyelitis LC ally. Networking with #pwME and other chronic illnesses. ⒶⓋ USA Joined December 2023-
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Lost my best friend to cancer today. She turned her one year life expectancy diagnosis into 6 years. I'll never forget how shitty our healthcare system is that she had to work until just months before her death. Without free healthcare, we have an immoral society. #Medicare4All
We May Be At The Start Of A New Tsunami, But Hopefully Your Mother’s Death Will Be Relatively Small.
COVID killed people in prisons at disproportionately higher rates, and has been the leading cause of US police deaths over the last few years. Yet, police officers are ripping masks off protestors.
The most pernicious piece of pseudoscience served up to the public in recent memory is that of 'immunity debt'. To be blunt: children keep getting pneumonia because they keep getting Covid-19. smh.com.au/national/nsw/t…
I definitely crashed hard. Slept a lot and didn't get much done since then. Now I'm waking at 11PM and hoping to get back to work while avoiding crashing further.
I definitely crashed hard. Slept a lot and didn't get much done since then. Now I'm waking at 11PM and hoping to get back to work while avoiding crashing further.
Medical neglect due to being disabled leads to trauma Family and friends abandoning you because you are disabled leads to anxious attachment Denial of SSI and SSD despite being disabled leads to feeling like your life means nothing Being told you are not “disabled enough” for…
Sharing this with regret, but solidarity and understanding. This chronic illness is hell, and it's understandable that if it progresses, it can become worse than death itself for many of us. Thinking of all of you who are barely making it through each day with ME/LC. 🫂 😭🤬
Sharing this with regret, but solidarity and understanding. This chronic illness is hell, and it's understandable that if it progresses, it can become worse than death itself for many of us. Thinking of all of you who are barely making it through each day with ME/LC. 🫂 😭🤬
@UPS_Canada @TheUPSStore_CAN Hey, UPS Canada. I'm immune compromised and wear a mask for my health and safety. Your employees at UPS Store 187, 1641 Lonsdale Ave North Vanc BC just forced me to remove my mask in order to pick up an important delivery. I had no choice but to
New Wave starting to build steam. ♨️ I'll give ten points to the first person who spots and shares a new tweet from someone who "can't figure out why everyone is ill the whole time". 🔟
New Wave starting to build steam. ♨️ I'll give ten points to the first person who spots and shares a new tweet from someone who "can't figure out why everyone is ill the whole time". 🔟
Hospital acquired COVID has a 10% mortality rate … but rather than clean the air and implement meaningful infection control we are choosing to simply stop reporting it. Dreadfully bad decision making & yet another reason so many of us feel unsafe seeking medical care.
Hospital acquired COVID has a 10% mortality rate … but rather than clean the air and implement meaningful infection control we are choosing to simply stop reporting it. Dreadfully bad decision making & yet another reason so many of us feel unsafe seeking medical care.
Today is the last day U.S. hospitals will be required to report COVID admissions, capacity, or occupancy data to the federal government. This will make it even more difficult to track the state of the ongoing COVID pandemic, as well as monitor potential pandemics like bird flu.
Update about Millie Petition change.org/p/save-millie-… #MillieSevereME #SevereME #pwME #saveMillie #BringMillieHome #DontLetMEDie #ExposeMENow
Within a 12 month period, I nearly went broke, went through a divorce and lost my dad. For a short season during that period of time, about 6 months, I moved in with my mom to get re-balanced. You can imagine what felt like being in my mid 40's and moving in with my mom.…
I'm skirting a crash, still have a lot to do today putting an ME primer together, but had a telehealth appt, and the Doc confirmed he's got the ME diagnosis in the medical codes, is prescribing Mestinon and Suvorexant, and is adding Dysautonomia and POTS to my active conditions.
@RishiSunak Acknowledge the cause. #LongCovid. It cannot be ignored indefinitely. Constant Covid leads to Long Covid.
@RishiSunak Hey Rishi, we told you allowing SARS2 to just let rip would be a mass disabling event and economically unsustainable. Now you’re discovering it is unsustainable and you’re blaming the sick! You did this. You’re to blame for this not the sick people YOU have disabled.
Folks, I did it. I needed to gather some other studies and news articles for work I'm currently caught up in non-stop, so I went back through my bookmarks. I saved them in various spreadsheets and removed them from being bookmarked on Twitter, so my bookmarks are finally clear.
The “lockdowns hurt so bad” rhetoric is just internalized subservience to your capitalist overlords who need you to believe that any disruption to the constant flow of wealth and power up to them is akin to society falling apart. It’s for those bastards, you’re carrying water
Long Covid day 465. I just left my doctor’s office, and she doesn’t think I’ll ever recover. She only has one Long Covid patient who has 100% recovered. So yeah, I guess that was my life, done at 32, lol—so much for those super mild variants. Thanks for nothing, public health.
Steve is currently at West Middlesex Hospital speaking to Carla's family and will be giving a full update on Carla and her situation this evening. #SaveCarlasLife
It's ME Lauren @LaurenPwME
5K Followers 4K Following Disabled wife, mother, survivor, humanist, activist, and author. “Invisible Illness” available on Amazon. #MECFS #hEDS🦓 #fibro #gunsense #BLM #lgbtqally
Exhausted @hsminnie
2K Followers 4K Following I’ll attempt reasoned discourse and block persistent bigots🙂I’m not voting for a murderer she/her/hers)#ACAB #usafvet #BLM TikTok @hsminnie
Julie @izquierdo15juli
172 Followers 3K Following
med help @medhelp9
2K Followers 5K Following Medhelp World is a non-partisan, community-based pharmacy that works to support pain patients and their physicians with access to lifesaving pain relief.
Gimme the Tea @Crazy_4_Tea
174 Followers 233 Following
Paul Schleifer 💙�.. @PaulSchleifer
42K Followers 34K Following The road to Hell is paved with broken biscuits. I follow-back likes, but please don’t spoil it with a DM. #GTTO #ProEU #ClimateAction #RwandaNotInMyName #FckNZS
Rainer S. Cheis @rainer_s_cheis
618 Followers 331 Following 💚☕🍪🍀 #mecfs #CovidIsNotOver yet #ImpfenSchützt #CleanAir #WirSindMehr #noAfD achja #Klimakrise ME/CFS since 1998 Gen X
Dr LG @subversivepsych
4K Followers 5K Following 🇮🇪➡️🇪🇸Dr(MD/MRCPsych) BSc(Hons)Pharmacol. Not medical advice. Life on hold. SARSCoV2 04/20 #LC #MECFS #CH #coagulonaut p/t #sloth 🦥 #endmedicalgaslighting
Dr Rebecca Healey @beccyjanehealey
2K Followers 2K Following NHS Doctor on pause #LongCovid | Registered Nutritionist (Public Health) | #CovidIsAirborne | We need #cleanair yesterday.
Merel @merelpianist
830 Followers 3K Following Freelance pianist/accompanist Choir Leader @lckchoir2022 Choir Leader @longcovidchoir Vocal Coach Piano teacher Film/TV 🇱🇺 in London Long Covid
AlmaStuart @fSl89OTaY0nH5
19 Followers 413 Following
The Ghost of Carl Sag.. @sum_social
2K Followers 2K Following A tsunami of Cosmic truths; spindrift on Kali Yuga’s rip curl of causation. Shield the twin-flames of compassion & scientific rationalism, or all is truly lost.
Ramy2.0 @Ramyisback
2K Followers 709 Following I am back from the twitter grave, with memes, and other stuff about mecfs and long covid.
Maria-louise Williams @Mariararoo
1K Followers 3K Following Severe M.E warrior (One of the missing millions). Crohn's disease in remission.
Wilhelmina Jenkins @minadjenkins
2K Followers 1K Following
Yr buskined mistress .. @rhymeswithvery
2K Followers 4K Following Post-vaccine syndrome: Booster #2 05/22. Now orthostatic hypotension, Sjogren's, MCAS, pre-diabetic, fibromyalgia, #ME. Pro-vax but #FcktheNIH. Wear a mask FFS.
Stephanie Mathis @Stephan90411631
2K Followers 5K Following Medical Laboratory Scientist who works nights and loves Microbiology and Blood Bank! 🧪🧫🧬🔬
Rewild: Rebel For Lif.. @_SpaceStarFish_
407 Followers 707 Following XR Activist/Anticapitalist/Anticolonialist/dx OCD/DM for credit #endangeredspecies #wildlife #biodiversity #covidisairborne #FREEPALESTINE #FUCKTROPHYHUNTERS
♥ Sarah ♥ @SaZzzby
798 Followers 3K Following Mum of two, disabled by a chronic illness and ignorance, just trying to make the most of life! Passionate about equality issues, inclusion, access.
Jo Clare @j0clare
51 Followers 2K Following Personal Trainer & Private Spin Class Instructor (DM for details) Hanging in there....still have own teeth, hips & knees!
azy 🐟 @azy_chronos
1K Followers 3K Following equanimity - 時間がないね、時間がないね 🔞 DNI - “every action counts” - Muslim ☪️ - 🇵🇸
Sonia Monette @SoniaMonette
912 Followers 1K Following ME/CFS, POTS, French, English, Montreal 🇨🇦. LGBTQ+🏳️🌈🏳️⚧️ ☮️ NO TERFS OR MAGAS 🤢
Life pre C19 @gottattleva
392 Followers 600 Following
MumME @pamrosling
1K Followers 5K Following Mum & carer to severely Covid-vaccine-injured daughter desperate for treatment to get her life back :-( Also passionate about climate and biodiversity crisis.
Debster, Resister @debstehn
3K Followers 3K Following Let’s just take care of each other, no religion, no borders, just love, art and science. More radical the older I get!#Resist And I’m OLD! Her/She
jenna @thehaloclime
426 Followers 938 Following time enthusiast and pun extraordinaire. proud mother of eight 3d puzzles. i also like muscat grapes, dimes, and ulysses wilson.
JBOAT ☮️ @jboat500
190 Followers 450 Following Liberal. Good without a god. Animals are better than people. Peace.
Blast Professing @gaymerherb
1K Followers 4K Following (Them) 🌈👾🕹️🏳️⚧️ Health is #1. Gaming, Polyam, Mutual Aid + rants of a Queer Arcade Organizer, Streamer, Writer, Artist | Trans Rights = Human Rights!
Andy @yowhatsupimandy
88 Followers 136 Following
Nameandnumber @nameandnumber79
568 Followers 3K Following Doing my time on a matchbox. A most engrossing epistle.
ike ifh @ifeelhow1
298 Followers 167 Following
Michael Stonehouse @uchitelstoney
163 Followers 769 Following Former Science Teacher & Local Councillor. Leeds fan & eco-socialist. Suffered from ME/CFS since 2012
Leona Lee @FleurDeLeeArt
1K Followers 2K Following Please mask up w/ N95! #ADHD #Bipolar #Fibro #Osteoarthritis. Housing @ltbcoalition, Disability Rights @accessliving, #DisabledDebtorsCohort with @strikedebt
Tracey 💙 @oakey_doakey
2K Followers 5K Following Concerned about climate. Concerned about covid. Vegetarian. Parent. Crazy cat lady 🐈 Never voted Tory, never will. #GeneralElectionNOW
Katy @sunnyayrshire
1K Followers 2K Following Love the Gers 💙, Pro UK🇬🇧, hate having MECFS, Long Covid and Fibro😪. Exist rather than live.
The Streaming Tree @StreamingTree
13 Followers 100 Following finding and sharing music & concert livestreams
nora 😷🌻🌎 @thankyousante
64 Followers 112 Following she/her student of disability justice. covid is airborne.
Nova (but not the coo.. @ohhellnova
111 Followers 432 Following 33 || She/her || Bi and poly, yet still not into you || Chronically (Ch)ill **I post NSFW content on occasion, DNI if you're younger than 18**
Just a girl with opin.. @agirlopinions
2K Followers 1K Following *Raptor trainer* of 2 kids 3 dogs #Peekatboo . PTSD, Endometriosis, autism, hEDs Some heroes wear capes,all heroes wear masks. *Comedian 🇨🇦
nonbinary krampus @ccinthecities
3K Followers 4K Following Silly Little Queer. Outdoorsy. Pet parent. Disabled. Still masking. ACAB. ☭ They/them/she/her.
Jennifer Shequin 😷.. @Cameo818
317 Followers 1K Following Disney fanatic, especially Disneyland and Scrooge McDuck. Not a big Tweeter, but re-Tweet anything I find important to share. Loving life!
ніхто / recoveri.. @fiddlerotroof
265 Followers 190 Following ukrainian-american who just wants peace & a better world… wear a mask + free palestine, syria & ukraine!
genXsamantha ☮️ @GenXsamantha
3K Followers 4K Following atheist, og gamer, GHSD, disabled & denied, mother of Autists, neurodivergent, tweets to think about across the Entire left. cash app: $sjm724
Rizz 🌻 @Rizz4321
187 Followers 840 Following
Marion Michell @marjojo2004
2K Followers 1K Following visual artist, writer, blogger: https://t.co/wFbhZwm4AG… https://t.co/ZqucVKvJcF Author of SUPINELY SUBLIMELY
Scribble Nut - #DERB .. @Scribbleknut
930 Followers 1K Following Just a #disabled Canadian trying to survive legislated poverty. If you'd like to help me out continuing my journey, https://t.co/eptjyxybHG
samcam @samtothecam
1K Followers 2K Following Smiler. Rapper 4 change. Quiet the ego. He/Him. Love moar. Cashapp: $samtothecam rugsafeshoes.eth Empathy/Equality/Music/NFTs/Sports&Cards/BLM/Crypto/Run/Yoga
Jeff Cavanagh @JeffCavanagh1
2K Followers 65 Following Canuck. #LongCovid sufferer - which is why I can't always follow back. I retweet mostly info I want to find again later.
Sure That's Me Destro.. @EssTeaEm
54 Followers 112 Following Use alt text! death sucks anarchism for all schizo loli futa queer omniphile
Exhausted @hsminnie
2K Followers 4K Following I’ll attempt reasoned discourse and block persistent bigots🙂I’m not voting for a murderer she/her/hers)#ACAB #usafvet #BLM TikTok @hsminnie
Ceri Turner @Ceri_turns
1K Followers 2K Following Politics esp Eco-Socalist 🍉 Green 💚 🌱 🌍 & Covid 😷 🐝💙 #GreensAgainstCovid ~ ♀️ 🏳️🌈 ~❤️💃~ Holistic Therapist - Massage, Aromatherapy, Reflexology.
Gimme the Tea @Crazy_4_Tea
174 Followers 233 Following
Rainer S. Cheis @rainer_s_cheis
618 Followers 331 Following 💚☕🍪🍀 #mecfs #CovidIsNotOver yet #ImpfenSchützt #CleanAir #WirSindMehr #noAfD achja #Klimakrise ME/CFS since 1998 Gen X
someBees🐝 @someBees
226 Followers 951 Following PLAGUE!! and YOU beHAVE like THIS?! #WhatIsTheCostOfLies #BSL3 #DavosSafe no one could have foreseen this ..having a fine Dunning-Kruger, aren't we?
why the jedi aint fre.. @belindaxbeans
157 Followers 448 Following Disabled af chronically ill/masking NB cat parent 🐈🐈⬛ Anti ytsupremacy they/them
Not a fan of the rich.. @notafanofcops
152 Followers 380 Following Not sure what I am, but I know I'm not a capitalist. #Mutualaid is how we'll survive. My politics are whatever feeds and houses the poor, the elderly, the child
Amor Vincit Omnia �.. @pathaholic
211 Followers 251 Following anarchist . autonomy is liberation . Pan ( He/they) | TERFS/SWERFS are scum
@TheChronicCollaborat.. @TheChronicColab
4K Followers 2K Following A resistance movement for chronically ill & disabled people. Joining the dots between conditions. Resisting psychologisation. Fighting for justice & equality.
Lucinda Bateman @LBatemanMD
6K Followers 695 Following Physician determined to mainstream ME/CFS and FM into modern science and medicine
Dana Leigh Lyman @DanaLeighLyman
2K Followers 4K Following Lit Nerd, Writer, Arts Lover 📚 buy me books! https://t.co/ErLKlKIUE8 📚 read my reviews! @dana_is_reading, dealing with #LongCovid
Kristie De Garis @KristieDeGaris
3K Followers 3K Following Writer // Photographer // Drystone Waller // Scotland Pronouns - She/Her #CovidIsNotOver #ClimateEmergency
Marie Snyder @MarieSnyder27
5K Followers 5K Following Covid and measles and TB, oh my! We can reduce the spread if we care to! Stay alive with an N95!
Jenny Bunker (PhD) @JennyBunker
777 Followers 2K Following Pepperaddict, Spinoza fan, glitter evangelist. Never knowingly underdressed. (Suffering from Long Covid since March 2020)
Prof. Akiko Iwasaki @VirusesImmunity
220K Followers 2K Following We study antiviral immunity and viral disease pathogenesis. #COVID19 #longCOVID #vaccines @HHMINEWS @YaleIBIO @YaleMed @YaleCII President of @ImmunologyAAI
Anthony Ⓥ🌹 @sauteslut
3K Followers 4K Following Vegan for the animals. Misanthrope for the people. Professional plant cooker https://t.co/caGYjBhpoo
Louise @WillowLymeInfo
809 Followers 721 Following Ex-biology teacher, Lyme advocate and mum, singer, walker. On Facebook and Blue Sky.
Kirsten Nakken @Kirsrana
728 Followers 1K Following Mum, grandma. Love(d) running, hiking, skiing, tapdancing. One of the #millionsmissing/#ME for 18 years. 90% bedridden. #handquilting# #Audiobooks#
Philip Neustrom @__philipn__
4K Followers 528 Following My accidental #SARSCoV2/#COVID19 focused account. I am @philipn. Not a doctor or medical professional.
Katie @katie_andME
1K Followers 552 Following 19 year old bedridden for over 3 years with severe M.E. ill since 2017 #ME #MECFS #severeME #verysevereME
Kitty (not a cat) @shamingjezebel
194 Followers 155 Following Full of inappropriate comments, jokes. Cat twitter resident. Serving in the #Captains Army. 🖤🩶🤍💜
Dr. Ashley | The Pani.. @PanickedFoodie
9K Followers 4K Following Scientist | Cornell Alum | Food Blogger | #FluidMechanics #HeatTransfer #CovidIsAirborne On TikTok under The Panicked Diaries.
♥ Sarah ♥ @SaZzzby
798 Followers 3K Following Mum of two, disabled by a chronic illness and ignorance, just trying to make the most of life! Passionate about equality issues, inclusion, access.
#FreeAssange @fascismcantwin
277 Followers 1K Following My body is materially disabled. MECFS, EDS, & more.
Rewild: Rebel For Lif.. @_SpaceStarFish_
407 Followers 707 Following XR Activist/Anticapitalist/Anticolonialist/dx OCD/DM for credit #endangeredspecies #wildlife #biodiversity #covidisairborne #FREEPALESTINE #FUCKTROPHYHUNTERS
Corey Slumkoski @slumkoski
939 Followers 426 Following Assoc Prof @MSVU_History | Digital Comm Editor @Acadiensis | Dad | Husband | Historian | Disability Rights Advocate | Old School BMX/MTBer | Tweets my own
TamaraDnomad @TamaraDNomad
601 Followers 864 Following Disabled advocate - #Interiordesigner - Nomad - #Anthropology student - Multi local - #SWYer - #Fibro + #MECFS - 1 of the #MillionsMissing + #Disabledguerrera
Amanda Hu @amandalhu
29K Followers 2K Following An artist who likes talking about clean air. Not a doctor/engineer/scientist. She/her. Profile pic: @stwatson2 Banner: @calgaryhester
@invest_in_me (Invest.. @Invest_in_ME
8K Followers 732 Following An independent UK charity finding, funding, facilitating biomedical research into ME and providing better education and awareness of this disease in UK & Europe
LongLonghauler @sketchingwitht
127 Followers 203 Following
MumME @pamrosling
1K Followers 5K Following Mum & carer to severely Covid-vaccine-injured daughter desperate for treatment to get her life back :-( Also passionate about climate and biodiversity crisis.
Debster, Resister @debstehn
3K Followers 3K Following Let’s just take care of each other, no religion, no borders, just love, art and science. More radical the older I get!#Resist And I’m OLD! Her/She
Life pre C19 @gottattleva
392 Followers 600 Following
Blast Professing @gaymerherb
1K Followers 4K Following (Them) 🌈👾🕹️🏳️⚧️ Health is #1. Gaming, Polyam, Mutual Aid + rants of a Queer Arcade Organizer, Streamer, Writer, Artist | Trans Rights = Human Rights!
Andy @yowhatsupimandy
88 Followers 136 Following
Jo Harvey @joharvey21
307 Followers 245 Following Curriculum lead, primary schl teacher. Adapting to life w Long Covid and 2 chadults. Here for chat, books, dance and the outdoors while waiting for a cure.
Nameandnumber @nameandnumber79
568 Followers 3K Following Doing my time on a matchbox. A most engrossing epistle.
Michael Stonehouse @uchitelstoney
163 Followers 769 Following Former Science Teacher & Local Councillor. Leeds fan & eco-socialist. Suffered from ME/CFS since 2012
Sam Connor @criprights
18K Followers 5K Following human + disability rights activist | cofounder bolshy divas + criparmy | antifaaa | social media assassin | cripchick | disability consultant | views are my own
#RespiratorsWork #Air.. @flowermusickids
5K Followers 5K Following Eco-socialist, I RT rational socialist & scientific voices. #ZeroCOVID, end capitalism & qualified immunity. Anti-racist. Anti-colonialist. #FitTestYourPPE
SARS‑CoV‑2 (COVID.. @COVID19_disease
9K Followers 0 Following Coronavirus and other health-related updates. Regular updates on Outbreaks, Pathogens For more updates follow @COVID19_disease
Introvert Problems @IntrovertProbss
311K Followers 0 Following Can I stay home and read a book instead? Providing humor and memes about the introverted life.
Twitter is doing the thing where it disappears my likes, so please know I appreciate you all. ❤️And I'm fine, just sharing my hatred for our fucked up for profit healthcare system.
Thanks for the condolences, they're appreciated. It was a rough few months for her, so there's comfort in her peace. And I want to say thanks to the people many moons ago who helped her get past her initial cancer via her GoFundMe. She (and I) were very moved by the support. ❤️
Lost my best friend to cancer today. She turned her one year life expectancy diagnosis into 6 years. I'll never forget how shitty our healthcare system is that she had to work until just months before her death. Without free healthcare, we have an immoral society. #Medicare4All
@Arash7Akbar @KyleKulinski They were effective when I used them starting in 1970. That's how we got rid of the Confederate flag on my high school's campus. MLK and Gandhi also found them to work.
BITE YOUR TONGUE
@Greg_Lindsay I have described Teslas as an electric dodge neon with an ipad in the console. Seems similar.
Don’t say fuck but sure, pillage and rape he’ll support 😳🤢
@HopperCreative I don’t condone the cussing, but Christians will stand up and fight like they did during the Crusades for what’s right.
@arxhiiie @Davinci23638919 Pandemic is ongoing.
@arxhiiie @Davinci23638919 It’s an active pandemic cmon
@arxhiiie @Davinci23638919 We're no closer to the end of the pandemic than we were 4 years ago.
@arxhiiie @Davinci23638919 not after, into. the virus still kills.
@arxhiiie @Davinci23638919 We’re still in the pandemic. The current & previous presidential administrations just don’t care enough to protect us.
@arxhiiie @Davinci23638919 Yes, that would still be wierd if it happened after the pandemic is over. Terrible thing to do while that pandemic is still with us, still killing people, and causing various long term health problems (Long Covid) after around 1 in 10 infections, affecting millions globally.
@arxhiiie @Davinci23638919 During a global pandemic that has killed millions so far
@Davinci23638919 Also to expose them to viruses during an ongoing pandemic.
@Davinci23638919 Some of us do not in fact wish “to be constantly sick” and we are free to wear a mask if we so choose. Remember?
@Davinci23638919 The E in PPE is equipment. This is not an accessory. It is not only to provide some anonymity from facial recognition. It is a way to allow everyone who is able to protest to do so with less worry of getting sick. This is possibly an ADA issue?
all you motherfuckers that were dogpiling and fedjacketing people for asking to mask.....i hope you see what side you've been on.
#UCLA cops are removing the masks from the protesters so they can’t hide … from their parents, neighbors , future employers
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