Alice Knows Chronic @SmallTownBusy

Fibromyalgia, New Diagnosis of AxSpa, RA warrior, Autoimmune Disability Advocate, Pain Fighter, Mental Health Comrade, Love my #chihuahua #spoonie Kansas, USA Joined April 2014

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Princess, The Tower @APainPrincess

a week ago

“We usually wake up feeling worse than when we went to sleep. Perhaps, this is part of the crux of it… at some subconscious level I don’t want to go to sleep, knowing there is a good chance I’ll wake up feeling so much worse for it.” buff.ly/f1mKrM7 @creativefibro #Fibro

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A Chronic Voice @AChVoice

2 weeks ago

"In the first 4 hours after u go to bed, these neurons ensure that you have enough #glucose so that you don't become #hypoglycemic overnight..To do so, the neurons direct the body to burn #fat through a process called #lipolysis.": buff.ly/WR690Jv via @ScienceDaily #sleep

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Princess, The Tower @APainPrincess

2 weeks ago

“If someone healthy woke up with the level of pain I live with on a daily basis, they'd be straight into A & E… The fact that I'm not crying or screaming…is not because I'm brave… You have to learn to live with it…there's no other choice.” buff.ly/LcFIXIm #ChronicPain

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Carrie Kellenberger - SpA & Fibro Advocate @globetrotteri

2 weeks ago

"When I say I'm out of SPOONS, I don't mean I have a few left. It's more like the ones I have left were in the garbage disposal & are banged up & covered with goo from last night's mac & cheese I made with slightly spoiled milk because I was too tired to buy more." #SpoonTheory

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A Chronic Voice @AChVoice

2 weeks ago

"So much water and Nuun. Taking my #painkillers before I start and having voodoo tape on hand to wrap up the dislocation. - @Invisiblenotbrk": buff.ly/v9d2p5R #ChronicPain #ChronicIllness #PainManagement #spoonies

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GC @ThePOTSPostman

3 weeks ago

Chronic illness isn’t just pain or fatigue. It’s grieving the life you thought you’d have, while battling every day not to lose the one you’ve been left with.

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Carrie Kellenberger - SpA & Fibro Advocate @globetrotteri

2 weeks ago

"While you're overthinking and doubting yourself, someone else is looking at you wondering how you do it all. Keep going." Credit: OTHER PERSPECTIVES #KeepFighting #SelfCare #MySeveralWorlds #KeepOnGoing #MentalHealthReminders

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Fibro Bloggers @FibroBloggers

4 weeks ago

🤪 😍 💔 #chroniclife #chronicillness #spoonies #chronicpain #fibromyalgia

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Candace D. @DiaryofaSickGrl

a month ago

If me just explaining my day to day life with chronic illness feels like “trauma dumping” to you, imagine what it is like to actually endure it.

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Carrie Kellenberger - SpA & Fibro Advocate @globetrotteri

a month ago

Life with #arthritis, especially in the heat: Did you know it might look easy to hold a glass, but it is a difficult thing to do for many people living with arthritis? I never thought it would be so difficult/painful to do a simple task that most people do not think twice about.

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Princess, The Tower @APainPrincess

a month ago

If I only could explain How much I miss that precious moment when I was free from the shackles of chronic pain. ~ Jenni Johanna Toivonen #chronicpain #chronicillness

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Orkney Fibromyalgia Sufferer ♿ @OSufferer

a month ago

#Fibromyalgia

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Carrie Kellenberger - SpA & Fibro Advocate @globetrotteri

a month ago

I'm Disabled. I don't owe you an apology for: My access needs My lived experience Self-advocating Asking for adjustments Needing rest Masking or unmasking Communicating differently Saying no Taking up space Setting boundaries Disabled By Society #DisabilityPrideMonth

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Carrie Kellenberger - SpA & Fibro Advocate @globetrotteri

a month ago

"We never get to see people living with pain or disability because guess what? They can't leave their houses. Pain flares are unpredictable. You might make plans and then have to say, 'I'm sorry. I can't do this today." #DisabilityPrideMonth #DisabilityAwareness #MySeveralWorlds

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Carrie Kellenberger - SpA & Fibro Advocate @globetrotteri

a month ago

"To be disabled is almost always to be traumatized. It's living in a body that can't keep you safe. It's doctors dismissing you. It's family/friends abandoning you. It's living in a society that doesn't see your value.";@theBriana Mills #DisabilityPrideMonth #DisabilityAwareness

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Sjogrens_Speaks @elisa_comer

2 months ago

Heard this yesterday, it has me thinking and doing a re-set of my daily morning default: "Every day I wake up is a win" When I combine this w/thought that as long as I'm breathing and taking up space I have a purpose, it re-focuses me on what I can ... 1/2

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Carrie Kellenberger - SpA & Fibro Advocate @globetrotteri

2 months ago

"What abled people don't understand is that if a disabled person manages to do A Thing, there is a cost. If you don't have to worry about losing 40% of your day to A Thing, you have no right to comment on my ability to do A Thing." Credit: wondravanian #DisabilityAwarenessMonth

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Carrie Kellenberger - SpA & Fibro Advocate @globetrotteri

2 months ago

AxSpA & PsA have caused more damage to my bones, soft tissues & organs. It's irreversible. Fibromyalgia whips my autoimmune brew up into a horrible frenzy. Every day we pain warriors make a choice to keep on going. #DisabilityPrideMonth #MySeveralWorlds #TeamFibro #FibroNerds

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Princess, The Tower @APainPrincess

2 months ago

“If I endure one day of pushing my body’s boundaries I can become almost completely bedridden. If I am lucky it only lasts days—but sometimes I’m put into a flare that lasts weeks—even months… unable to even get up to shower, eat… anything.” buff.ly/CA0bH71 #ChronicPain

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GC @ThePOTSPostman

3 months ago

Stop telling us “it could be worse.” When It comes our illness. We lost our bodies. We lost our energy. We lost parts of us you’ll never understand. Just because it won’t kill us doesn’t mean it hasn’t killed parts of us. Please stop minimizing things you don’t understand.