Princess, The Tower @APainPrincess
Chronic Pain Healing Portal for everyone affected by severe #chronicpain & #chronicillness—by a princess with full body #CRPS #Fibromyalgia #PainSupport #CPP princessinthetower.org The Tower Joined November 2012-
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Followers28K
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Likes10K
"When a person has a chronic illness, an #InvisibleIllness and/or one that is long-term, so many people tend to drift away… To each of you reading this and understanding… because you’ve been there, it’s their loss… know your worth.” buff.ly/2numhtR #chronicpain
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“The real hardships come from the repercussions of being in #pain all the time—the exhaustion, mental blur, inability to connect… because of the constant blinding discomfort… Even the simplest things become so unbelievably complicated when you’re sick.” buff.ly/pCaYlV9
“Noise, crowds and other stimuli can make #pain skyrocket, exacerbating #brainfog so we’re left even less able to explain—or escape it. It can become so painful, we may avoid it entirely, no matter how rare or how deeply we long to go out.” buff.ly/3uj2VZF #ChronicPain
“You carry a water bottle wherever you go (with at least one sip left) just in case you need to pop that emergency med.” Tell Me You're Chronically Ill Without Telling Me You're #ChronicallyIll buff.ly/lZaOn80 @AChVoice #Memes #ChronicPain #PainAwarenessMonth
“Listening to music. It can be so soothing… lay in bed with your eyes closed listening to each word, the notes, melody… It’s hard to keep going sometimes when it feels like nothing is getting better… I’m here with you in the struggle—#YouAreNotAlone.” buff.ly/yNX52b2
“Perhaps the cruelest contradiction is the simultaneous pressure to both overcome illness ("never give up fighting!") and accept limitations. This impossible dual mandate leaves many feeling they're failing no matter what.” buff.ly/01tiVoL #ChronicIllness
“Like a battery that’s been damaged and never seems to recharge properly…these are people who for decades don’t feel rested… The next time someone with an invisible #disability says they’re tired, please don’t treat them as if they’re lazy.” buff.ly/3Icle8M #ChronicPain
“With #ChronicPain wearing the facade helps… If we spend all our time focusing on our pain, talking about our pain, thinking about the pain… our life will be about the pain… It creates a heavy weight… with #depression—we’re fighting twice the battle.” buff.ly/aiP47XK
“Imagine plugging in a dead cell phone over night. When you awake, you expect it to be at 100%. But when you wake, it’s only at 9% and you have to try and function on that 9 percent. You’re never fully charged.” buff.ly/3rRDYWM #chronicillness #severeME #pwLC #pwME #cpp
“It’s one of the cruelest parts of being #chronicallyill. Every hard won gain in function comes at a significant energy cost, but it takes virtually nothing to lose it and be forced to start all over.” buff.ly/r1UWlLz @broadwaybabyto #Disabilities #ChronicPain
“It’s the fear of being bedridden…the guilt of letting people down, the pain of feeling left behind and missing out…and the unpredictability of the illness itself… It’s the constant struggle…nobody has any idea how disabling it can be.” buff.ly/3wxpDh7 #chronicillness
“Medication is not failure. You’re not broken because you need support—you’re resilient because you keep showing up… And if all else fails? Cancel everything…and give yourself the grace to rest. That too is part of the plan.” buff.ly/7VnekDM #ChronicPain
“I wake up, and my first conscious thought is #pain. If I can manage to get to sleep… Every moment of every day… over the years, it’s gotten worse, with a wider variety in types of pain… #fatigue has continued to be debilitating.” buff.ly/37MCqDP #painAwarenessMonth
“Grocery shopping, you pay the price. If you force yourself to do something… you pay the price… the day after or even several days after… dealing with exhaustion, flared up symptoms like #migraines and crippling #pain.” buff.ly/7M19Zqi @invisiblymeblog #ChronicallyIll
“Nobody chooses #chronicillness… So, before judging, remember that they may have done everything right, but illness is unpredictable, unfair and unforgiving. The fact you see [them] out at all is a testament to their efforts to live, despite the #pain.” buff.ly/zkpLqYo
“Being home all day is not a dream lifestyle… I doubt they’d say, “I wish I could be home all day with #pain that no medicine can relieve” or “I wish I could be home all day with such debilitating #fatigue, I can’t concentrate on anything.” buff.ly/grrBQNi #Disability
“It is not the strength of the body that counts, but the strength of the spirit.” ~ J.R.R. Tolkien #ChronicPain #ChronicIllness #Disability #MentalHealthMatters
“#AS & #Fibromyalgia are rated on the McGill Pain Index as extremely painful diseases. #ChronicPain associated with these comes close to or is the same [acute] pain experienced with assisted childbirth… but it never ends with FM & #AnkylosingSpondylitis.” buff.ly/410N7KE
“You don’t ever get a break from chronic pain. #ChronicPain is a vicious cycle, and wears you out to your core. Not only does everything hurt, but you also are always so incredibly tired from not being able to #sleep, you don’t get good rest.” buff.ly/yLkg3I6 #painsomnia
“People won’t get it unless they get it… they can’t begin to know the extent of how it runs our lives… Being #chronicallyill is devastating, isolating, complicated… It forces us to know the limits of our bodies and also how very fragile they can be.” buff.ly/4Y0rBof
Bev Schechtman🇮�... @ibdgirl76
13K Followers 4K Following Wife, mom of 2 girls & an Aussiedoodle, Crohn’s, PsA, PTSD, sexual abuse survivor, chronic pain advocate. VP/Researcher for The Doctor Patient Forum/DPP
Fibro Bloggers @FibroBloggers
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Claudia A. Merandi @CMerandi
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Candace D. @DiaryofaSickGrl
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Angie B @quinky_dink
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Joe Newman @JoeAllenNewman
10K Followers 1K Following A Dr said he could not see, measure, or prescribe for pain because it is invisible. Wrong, Doc, pain looks like me & millions more who die if u are blind. #IPP
Arianne @ravensspirit68
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A Chronic Voice @AChVoice
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Nia | The Chronic Not... @chronicnotebook
10K Followers 848 Following Here to smash societal stigmas about #chronicillness & #disability💊 Life with #ibd #eds #migraine #fibro #dysautonomia & more 🦓 IG 49K📷 Join Discord⬇ she/her
Burning Nights CRPS @BNightsCRPS
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Orkney Fibromyalgia S... @OSufferer
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Illicit fentanyl is k... @JSG_54
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SomeWoundsAreNotVisib... @PTSDAdvocate
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Laird Law PLLC @DanLairdMD
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Pain Prisoner #001000... @PainPlayhouse
4K Followers 4K Following I suffer from never ending pain in a society that does not believe it is real. A pain in your ass to remind you of the sadistic treatment of the incurable.
Journal of Endocrinol... @EndocrinMetab
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@Neuro_AI @NeuroAI_Nexus
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Lieutenant Colonel Re... @bobbyr75
37K Followers 35K Following Retired Army. Husband, Brother, Son. Legion of Merit and 2x Bronze Star Recipient. 40 is my hero! #Reagan #Yankees #RollTide #God #Blessed
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Mike Smith 🇪🇺�... @mikesmith934
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pug owners hub @pugownershub
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MJreview @jreview9049
131 Followers 533 Following All content on this page is provided for educational and informational purposes only. It is not intended to be a substitute for professional medical advice
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Dean A Wilson 🇺�... @Dean_A_Wilson
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Protrek Adventure @ProtrekNepal
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WordsMatter 🌻💔�... @millj919
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Molly Armstrong @MollyAr27100745
40 Followers 828 Following CRPS🔥 EDS🦓 and POTs warrior💪🏽 Wife and dog mom❤️🐶 2x National Champion⚽️ “Even if you don’t get your miracle you can still BE a miracle to someone else”
Dianthrax (she/her) @theDianthrax
117 Followers 500 Following #Disabled writer and crafter. Lover of crows, comic books, & all the spooky #horror stuff. Semi-recent cyborg, lifelong Social Justice Necromancer.
ProhibitionBlunder.or... @prohibitblunder
390 Followers 4K Following https://t.co/wVyENE961S outlines the case against Drug Prohibition and connects voices against it.
AMACOP | Asociación ... @covid_madrid
5K Followers 872 Following Asociación madrileña de #CovidPersistente #LongCovid. ✉️[email protected] Hazte SOCIO https://t.co/a2om4I8zpN For English @covid_madrid_e
Michelle Compton-Jone... @lostnthemidnite
272 Followers 3K Following Mother of a sarcastic daughter. Life is tough so just roll with it. I'm a single mother.
pokharipaach @pokharipaach
0 Followers 10 Following
Lidia Thompson @LidiaThompson14
382 Followers 318 Following Studied and taught physics. Love science. Have a strong faith (work that one out.) Ill with ME for 30+ years. Doing my bit to promote biomedical knowledge of ME
'dekunle @ASqudus
351 Followers 677 Following || Physiotherapist || Myofacial release specialist || Movement Specialist || Equity and Fairness || Rehabilitation. #staysafekeepsafe.
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31K Followers 14K Following God girl. Chronically fabulous. Wavy-haired queen of leggings. Shimmying dynamo of wild hair and attitude. Commies suck. אני בעד ישראל. #TeamIronWill
Dr. Jamshed @JamshedUSA
34K Followers 33K Following Unique & passionate; embracing life’s adventures, sharing insights, and spreading positivity. journey together! آیئں سب کو ساتھ لے کر چلیں انشاء اللّہ🌹🌺💐
Broden 🇬🇧♿✝... @Gavtaraysin
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Bev Schechtman🇮�... @ibdgirl76
13K Followers 4K Following Wife, mom of 2 girls & an Aussiedoodle, Crohn’s, PsA, PTSD, sexual abuse survivor, chronic pain advocate. VP/Researcher for The Doctor Patient Forum/DPP
Fibro Bloggers @FibroBloggers
18K Followers 8K Following Connecting fibro bloggers, inspired by all the #fibro bloggers and their stories at Fibro Blogger Directory #FibromyalgiaAwareness #FunnyFibro #FibroFriday
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14K Followers 493 Following Founder - Doctor Patient Forum/Don’t Punish Pain (opinions are my own)
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Angie B @quinky_dink
5K Followers 3K Following Chronic pain patient. Multiple autoimmune diseases. Patient Advocate. Fighting the fight of my life everyday.
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29K Followers 18K Following Joanna (she/her) 29 Queen of Allergies 👑 MCAS. POTS. EDS. CCI 💛 Autistic. ADHD. OCD. PMDD. Striving to live my best life 💕 #ForTinu
Joe Newman @JoeAllenNewman
10K Followers 1K Following A Dr said he could not see, measure, or prescribe for pain because it is invisible. Wrong, Doc, pain looks like me & millions more who die if u are blind. #IPP
Arianne @ravensspirit68
16K Followers 9K Following Old soul, creating, hoping, learning. ME/cfs C-spine injury Chronic pain Adenomyosis survivor Married Underestimate me, that'll be fun.🌸💞🌸
A Chronic Voice @AChVoice
18K Followers 15K Following I share #ChronicIllness, #ChronicPain & #disability info fr VARIOUS #perspectives. #Lupus #Sjogrens #AntiphospholipidSyndrome #epilepsy #MentalHealth
Nia | The Chronic Not... @chronicnotebook
10K Followers 848 Following Here to smash societal stigmas about #chronicillness & #disability💊 Life with #ibd #eds #migraine #fibro #dysautonomia & more 🦓 IG 49K📷 Join Discord⬇ she/her
☃️☃️Fibro Slo... @FibroSloth
6K Followers 2K Following Epilepsy fibromyalgia POTs depression anxiety ptsd psoriasis👩🦼love sloths,cats all animals and sea life Halloween.Laughter is the best medicine💕
Burning Nights CRPS @BNightsCRPS
11K Followers 10K Following Burning Nights CRPS Support is a UK charity raising awareness & supporting all those affected by Complex Regional Pain Syndrome (CRPS). RT=Not Endorsement
Justice 4 Dr. Norris @Justice4Norris
5K Followers 4K Following Advocate 4 Drs - #ChronicPain - #SUD - #EndTheDrugWar - Repeal the 70s Substance Abuse Act Lo💘e's the only 🏠 big enough for all the pain in this 🌎
Orkney Fibromyalgia S... @OSufferer
4K Followers 5K Following Writer, aspiring speaker, blogger, Advocate for Fibromyalgia & Invisible Disabilities. Fibromyalgia, FND & MECFS sufferer for over a decade.
Illicit fentanyl is k... @JSG_54
9K Followers 3K Following Advocate for individualized treatment of high impact Chronic pain. Seeking to discredit PROP'S,CDC guidelines,CDC & CDC Foundation.
SomeWoundsAreNotVisib... @PTSDAdvocate
5K Followers 3K Following #Married #ChronicPain #SA #PTSD #Survivor #NotAllWoundsAreVisable #SuicidePrevention #FightForYourLife #YouAreWorthIt #SUPERFAMILY Politics🤷♀️ 🚫DMs
Laird Law PLLC @DanLairdMD
14K Followers 5K Following Dan Laird, JD, MD, Wrongful Death & Medical Malpractice Lawyer. Riley Bldg., 4175 S. Riley St., Suite 102. 89147. Phone (702) 800-0300. Antisemites blocked.
BilkedToTheBrink @Bilked2TheBrink
6K Followers 4K Following ■STOP•WEALTH•HOARDING: MORE Money, in fewer hands than ANY TIME IN HISTORY is à threat to all! Rich $idiots$ need food, h2O, Oxygen, TOO. https://t.co/Ta0925IdHc
Stefan Kertesz, MD, M... @StefanKertesz
16K Followers 8K Following Physician/research in primary care, homelessness, addiction. Professor. Fencer 🤺
eve (always spelled w... @msevereddin
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catharine 🧡 @coffeecatharine
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211 Followers 156 Following #fibromyalgiawellness Posting about fibromyalgia and related health disorders. I am also a vestibular migraine warrior. Not selling anything! 😉
'dekunle @ASqudus
351 Followers 677 Following || Physiotherapist || Myofacial release specialist || Movement Specialist || Equity and Fairness || Rehabilitation. #staysafekeepsafe.
NickyProctor @NickyProctor
2K Followers 5K Following Writing up my #PhD in coach learning & development @LeedsBeckett and campaigning for better healthcare #MEcfs #POTS
Beth Pollack @ChronicResearch
160 Followers 5 Following Research Scientist @MIT🔬Leads Research on Chronic Illnesses & How They Connect🕵🏻♀️ME/CFS Long COVID Lyme POTS EDS MCAS & Co | Env Health🌱Advocate & Advisor
Lili Bell @LiliBell84
834 Followers 2K Following Christian, ME 19ish yrs, Autistic. I’ll always give a hug to anyone who needs one 🫂.
Robert Chapman 💙 @RbrtChpmn
179 Followers 934 Following Life is for others. Existence ruined by illness. #pwME #MECFS #longCOVID #hypothyroidism
Suzie Bird @musicsuzie
180 Followers 735 Following ME/CFS warrior: Proud mama; musicals geek; quirky bird; living life the best I can
Hal Pop @HalleeTucker
517 Followers 1K Following My daughter got so ill after Glandular fever (a viral illness) she was 8 years old and very healthy and happy before. Now left with ME and POTS.
Danny. @dannyjred
689 Followers 837 Following
Lidia Thompson @LidiaThompson14
382 Followers 318 Following Studied and taught physics. Love science. Have a strong faith (work that one out.) Ill with ME for 30+ years. Doing my bit to promote biomedical knowledge of ME
Becca @Bexypie
556 Followers 423 Following Bird mum. Vegan. Animal & nature lover. Tea addict. Español lover. 🇪🇸🌼🌸🌺🌞🌱❤️ ME & POTS & Stage 4 Endo Fighter. Supporter of Biomedical Research into ME.
Jan Sussex @JanSussex
779 Followers 961 Following Living a 1/4 of a life due to #MyalgicEncephalomyelitis, lost my future, missing who I might have been.
Dom @domsalisbury
1K Followers 1K Following Ex-atmosphere/ocean scientist. Ill with M.E #pwME. Patient advocate (when able). Interested in how we live. Open-minded, but always sceptical.
Carlos López Cubas @CLopezCubas
10K Followers 1K Following Fisioterapeuta, alguna que otra vez profesor, pero siempre alumno, y recubierto de inquietudes (o, sin eufemismos, culo de mal asiento, vamos...)
ManuSB_fisio @ManuelSantosBe2
181 Followers 459 Following Physiotherapist, MsC. Clinician & researcher. #chronicpain #painneuroscience #predictiveprocessing #NIBS #play #virtualreality
Ownership Health @ownershiphq
26 Followers 374 Following Secure, private management of your wearable health data—accessible anytime, anywhere.
cj @clarkf3nt
335 Followers 2K Following gaming, trolling, basketball, and brain rot. battling CRPS every second of my life.
jojowedge99 @jojowedge979434
7 Followers 90 Following
Diary of Lydia @diaryoflydia_mh
5K Followers 7K Following #lgbt #actuallyautistic 🦋27🦋London🦋 she/her 🦋arthritis, CKD, pots, t1 diabetes, adhd, autism, Schizoaffective bipolar type, ednos, ptsd, anxiety, MDD 🦋
chronicallyanita @chronicanita
7 Followers 29 Following Long-COVID | Asthma | Adenomyosis | and more! | Archer 🎯 | Disabled ♿️ Check my linktree to donate to my walk for Long Covid Kids! 📸: madmanphoto_
Flick Williams @flickhwilliams
5K Followers 3K Following Disability Rights Activist / Electoral Reform Campaigner/Access & Inclusion Warrior (she/her) Impairment is personal, Disability is Political 💜
lets heal and recover @recovery_your
34K Followers 8K Following Expert by experience.mental health& addiction./ suicide & childabuse survivor. ADHD. ASD, BPD, CPTSD Sharing content to make others feel less alone. GEN X
Brian Flatcat @flatcat68xlr8
2K Followers 725 Following musician, audio engineer, observer of life, Patriot and cat lover! CRPS, complex regional pain syndrome warrior / survivor! don't tread on me!
Yihan @hisunnyhere111
2 Followers 10 Following Migraine couple 💫 Both my husband & I live with migraines (his are the tough ones). Sharing our journey, triggers, and what actually helps. 🧊🕶️
Texas Courtney @AlaskanCourtney
31K Followers 14K Following God girl. Chronically fabulous. Wavy-haired queen of leggings. Shimmying dynamo of wild hair and attitude. Commies suck. אני בעד ישראל. #TeamIronWill
Nina Riggins, MD, PhD... @NinaRiggins
3K Followers 2K Following Nina Riggins is the Vice Chair of BrainPac and Headache & Facial Pain Section of AAN. Through her work, she hopes to help every patient live pain-free.
International Disabil... @IDA_CRPD_Forum
25K Followers 2K Following We are the International Disability Alliance, united for the rights & inclusion of all persons with disabilities #CRPDNow Retweets ≠ endorsements
Madam Mitochondria @Madam_Mito
10K Followers 11K Following Obsessed with Mitochondria & Optogenetics/Anti-Aging Ringleader/Longevity Chaser/Aging is inflammation/Philosophy, Art, Music & Love make existence bearable
Martin Picard @MitoPsychoBio
22K Followers 843 Following Mitochondrial Psychobiology. Bridging the science of energy and the human experience to create Healing Science. Upcoming book: ENERGY (2027).
B. Smith @bsmithroom301
864 Followers 5K Following Helping students become better thinkers, readers, and writers. #CovidIsNotOver #BanGunsNotBooks
Caffeinated Polymath @Audra4Nm
2K Followers 4K Following Freelance 2A Rep. Ace of many, Master of a Few. Writer, fighter, farmer, rancher, artist. World Champ of Destruction (x2) ,3Gun, World Shotgun Medalist.
Broden 🇬🇧♿✝... @Gavtaraysin
2K Followers 3K Following Fighting for social justice and fairness for all. My interests are; #disability, and have been fighting #LongCovid since Dec '22.
Hope @hopestardust20
2K Followers 3K Following Raising awareness of Pans Pandas - brain inflammation triggered by a Virus or infection. B12 deficiency
Wondering While Wande... @_whilewondering
4K Followers 4K Following https://t.co/xXzo0gBLE5 $NotthatLC
Schnauzers for Schnau... @JessHan92073869
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Omega @jaymie_hu
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