TTP Network @TTP_Network
Patient Support Group. Registered Charity. Supporting patients, families and professionals dealing with Thrombotic Thrombocytopenic Purpura in UK and Eire. ttpnetwork.org.uk England, United Kingdom Joined January 2014-
Tweets318
-
Followers257
-
Following109
-
Likes168
Bridgathon 2025 has started. Supporting the UCL TTP Education & Research Fund. Donate here: justgiving.com/page/ttpwalk20…
0
0
0
28
0
Download Image
Are you a patient with iTTP? Would you like to take part in research on the Psychological Impact of iTTP? read more here: liveuclac-my.sharepoint.com/personal/ucjum… take part here: forms.cloud.microsoft/pages/response…
The 2025 TTPNetwork Patient event is happening soon. Get your ticket here: buytickets.at/ttpnetwork/156… Learn more about TTP, meet others with cTTP and iTTP and their families. Have fun! Plus refreshments and lunch included.
Tom is raising funds for TTPNetwork. Support him here: justgiving.com/page/tomkellet…
Missed the last post? no need to worry - send an e-card and support TTPNetwork at the same time! dontsendmeacard.com/ecards/chariti… #DontSendMeACard #Christmas2024
As Christmas approaches we are offering two opportunities to support TTPNetwork. Send an e-card or pick a penguin! dontsendmeacard.com/ecards/chariti… visufund.com/ttpnetwork-chr…
Today we celebrate International Day of Charity. Thank you for all of your support, enabling us to continue our work.
Don't forget to take your TTP Travel letter, translated into the language you need: ttpnetwork.org.uk/resources/trav…
Are you planning a trip abroad? Take a look at the Your Travel and Health website yourtravelandhealth.com Lots of tips about what to pack, where to put your medications and travel insurance for a pre-existing condition &more.
Get your Voice Heard - sphinxonline.com/surveyserver/s…
Are you a TTP Patient? Would you like to know more about relapses? join us for our free webinar: buytickets.at/ttpnetwork/131…
Make your voice heard: take the new Rare Barometer survey on the impact of rare diseases on everyday life! To make your voice heard & share your experience, take the survey by clicking here, before 8 September: tiny.cc/RB_DailyLifedis @eurordis
apply here share-eu1.hsforms.com/1Nxs3awihQbS5D…
A huge thank you to all our volunteers including our Trustees who volunteer their time. We couldn’t do it without you.
Another fabulous TTP consultant running for us this year. Dr Rachel Evans from Newcastle is bringing up the north with this ULTRA MARATHON!!! You can support her here: justgiving.com/page/rachel-ev…
Dr Will Thomas ran a marathon on Sunday in an incredible 3.5hrs. After months getting up super early to train. We are so grateful for his support. justgiving.com/page/will-thom…?
On this very #rarediseaseday we are delighted to launch our new website ttpnetwork.org.uk thank you to @TakedaPharma and @AppCentricLtd for your support and expertise
This is such an innovative film and will be a fabulous resource for patients and their families. We are proud to have been invited to the premiere!
This is such an innovative film and will be a fabulous resource for patients and their families. We are proud to have been invited to the premiere!
Our Christmas fundraiser has arrived! visufund.com/ttpnetwork-chr…
Shruti Chaturvedi @BloodClotDoc
1K Followers 970 Following Assoc Prof @HopkinsHeme | Clinical research: TTP, clots, complement | Wife @DrKohli, 🐕🦺 & 👧🏻mom | 👩🏻🎓 #MAMC @VUMCHemOnc @ClevelandClinic 🇮🇳🇺🇸
Cathy Harrison 💙 @CathyAH1980
1K Followers 1K Following Haemophilia ANP. WFH nurses committee Chair. Wife & mum, artist, forever learning. Winner of Nursing Times Nurse of the Year Award 2024. Opinions are mine.
The Qual Guy @abookclubof1
532 Followers 584 Following Qualitative Research, Gene Therapy, Rare Diseases, Bleeding Disorders, Cardiomyopathy, Nursing, PhD Life and Books...lots of books (He/Him)
HaemSTAR 💙 @HaemSTAR_UK
2K Followers 140 Following UK wide network of haematologists supporting research in non-malignant haematology. NIHR supported. Follow our podcast: Don't Just Read the Abstract.
Haemophilia Nurses' A... @NursesHna
501 Followers 192 Following The HNA is a professional group that represents specialist nurses caring for people with bleeding disorders in the UK.
Erica Wood @erica_m_wood
1K Followers 610 Following Professor, Head, Transfusion Research Unit, Monash University. Haematologist, Monash Health. Past President, ISBT. Personal account: @EricaW_personal
JTH @JTHjournal
10K Followers 7K Following JTH will no longer have an active presence on X. While this account will remain available as an archive, we will no longer monitor comments or post new content.
Professor Beverley Hu... @bhwords
10K Followers 3K Following Passionate about thrombosis & bleeding care. Founder of Thrombosis UK but views are my own. Crazed cyclist.
Dr Kate Khair PhD @katekhair
1K Followers 866 Following Nurse, researcher, Director of Research @haemnet. Passionate about bleeding disorder care for people globally ....... and 🐘🐘🐘🐘
evrybdy hates kris @KRISTINDI0R
530 Followers 828 Following associate professor of american studies at @csuf . writing teaching thinking about body politics. DE . MI . CA. | she/her
ghalb @MAblhsn
18 Followers 59 Following
Warren White @W2_Spider
241 Followers 366 Following Threads on marketing and healthcare | 7 business cycle survivor | Entrepreneur | Mktg Exec | dad | cultivating my curiosity daily
Kirollos Kamel @DrKiro_Kamel
114 Followers 534 Following
🩲 SLIP RYDER 🩲 @SLIPRYDERFUTUR
53 Followers 237 Following 🩲 | Crypto analyste en sous-vêtements. 0% FUD, 100% style. 🇫🇷 | French Investor 📈 | Trading | Crypto | Bourse
T @tkhan2024
1 Followers 34 Following
Reem Ahmed @reem_sanhuri
2 Followers 22 Following
Steven Green @SGreen1876
53 Followers 428 Following
Arun Vamadevan @arunneelivelil
355 Followers 2K Following Research Matron, BSc (N), MPH, PGDip.THS, MRQA, Epidemiologist, DProf Student (MLTCs & Health Inequalities) NIHR CRF Liverpool University Hosptls of Liverpool
のりこママ@み�... @norinori2022
257 Followers 591 Following 難病サポートfamiliaやまぐち代表| 先天性血栓性血小板減少性紫斑病| FMスマイルウェーブ「みらいポケット」 | PPI（患者・市民参画）推進| 臨床研究審査委員会一般委員| e-Sports | NPO法人なんれん西日本 理事| Ji4pe理事| スマイルプランナー
National Voices @NVTweeting
15K Followers 1K Following A coalition of over 200 charities making what matters to people matter in health and care Find us on Bluesky: https://t.co/fVxdzBKsEl
Pauline Rainsbury @PaulineRai56879
0 Followers 6 Following
Cai @sillypig233
177 Followers 805 Following
St.John's Pediatric H... @StJohnsPHO
228 Followers 701 Following The official twitter handle of the Department of Pediatric Hematology Oncology & Bone Marrow Transplant at St John's Medical College and Hospital, Bengaluru
PNH Support @PNHSupport
470 Followers 535 Following Now at BlueSky: @pnhsupport.bsky.social. Paroxysmal nocturnal haemoglobinuria (PNH) - PNH Support is a registered CIO (no. 1161518) supporting patients.
April Morris @AprilMo49044793
2 Followers 103 Following
Rishabh Singh, MD �... @docrishabhsingh
579 Followers 1K Following Heme/Onc Fellow PGY-4 @IUHemOnc | IM via @UICOMPeoria| MBBS @NairTnmc | @HTRSfellows Council 2024-2026 | Passionate about #ClassicalHeme🩸| He/Him/His |
BAMSY A. @Bam5yAy
2 Followers 94 Following An introvert that is so keen about what language the sky speaks at any point in time. A clinician who loves what she does and puts the right things first always
lisabittan @lisabittan
173 Followers 1K Following
Koleen Paunon @KBPsystem
137 Followers 199 Following web3 & AI builder. 🐳 BPxAI | dev-founder, @bpxai
Oxford-Harrington Rar... @OHRareDisease
1K Followers 903 Following Rare Disease Centre @UniofOxford in partnership with @HarringtonDI_UH @UHhospitals, accelerating cures for rare diseases
traceylee lanson @LansonTraceylee
2 Followers 51 Following
tahsinozpolat @tahsinozpolat
375 Followers 2K Following
Wanda Nowak @wanda_nowak
142 Followers 1K Following
Rahul Bohra @rahulboh
5 Followers 15 Following
Sophie M @Smeredith1990
0 Followers 12 Following
Hemopath🔬🔎💊 @Sampath22775591
45 Followers 218 Following Pathologist, Navodayan, MS Ramaiahite, Kannadiga
Mandy Welch @MandyWe15934584
11 Followers 82 Following
Giulia Simini @GiuliaSimini1
46 Followers 114 Following -Haematology SpR in London and PhD student @UCL with interest in bleeding disorders -@HaemSTAR_UK committee member - volleyball player. Views are my own
Sam Bristow @SamGABristow
3 Followers 31 Following CEO at https://t.co/fA579lLv1c - Value through evidence We deliver industry standard real world preference and outcomes research.
stacy Friedman @stacyFriedman7
6 Followers 25 Following
Pridhi V. Baghla♥�... @VPridhi
0 Followers 21 Following
Samie_knowswhatsup @SamanthaMinniti
272 Followers 726 Following 🇦🇺🇲🇰 Never North | TTP survivor - 3 in a million | Toy manufacturer | Travel always has my ❤️ | Truth is so rare, people find it offensive | Mama👩👧
Franck Favre-Besse @FavreBesse
72 Followers 253 Following PhD, Medical Science Liaison @TakedaPharma #MedicalScienceLiaison #Hematology #RareDisease
ahmed yonis @hoffbrand2011
41 Followers 582 Following
Bill @Bill63546817
172 Followers 1K Following
Lee Thompson @LeeThom34316927
0 Followers 19 Following
emna hammami @emnahammamihema
159 Followers 568 Following MD, Laboratory hematologist Young hemostasis specialist
Ashley Somenzi @somenzi1213
15 Followers 241 Following
Nasir Khan @kh94192962
14 Followers 64 Following
Lucy Bernhoft, PA-C, ... @ellyouseewhy31
2 Followers 80 Following Hematology PA 🩸/ Former EP PA 💔⚡️ #PAMom to 👦🏽➕👧🏽 #wanderlust ✈️
Dr Zoe Markham-Lee (P... @ZMarkhamLee_sci
309 Followers 895 Following Helping drive research development and engagement in multiple health conditions @kidney_research Previous MRC IMPACT PhD student @UniofNottingham She/her🏳️🌈
Michael Makris @ProfMakris
14K Followers 1K Following Emeritus Professor of Haemostasis and Thrombosis in Sheffield, UK. I tweet about thrombosis, hemophilia, COVID-19, medicine, NHS & AI. Opinions are my own.
Cathy Harrison 💙 @CathyAH1980
1K Followers 1K Following Haemophilia ANP. WFH nurses committee Chair. Wife & mum, artist, forever learning. Winner of Nursing Times Nurse of the Year Award 2024. Opinions are mine.
SHOTHV @SHOTHV1
2K Followers 233 Following Serious Hazards Of Transfusion. The UK's independent, professionally-led haemovigilance scheme. Continuously improving patient safety in blood transfusion.
HaemSTAR 💙 @HaemSTAR_UK
2K Followers 140 Following UK wide network of haematologists supporting research in non-malignant haematology. NIHR supported. Follow our podcast: Don't Just Read the Abstract.
Haemophilia Nurses' A... @NursesHna
501 Followers 192 Following The HNA is a professional group that represents specialist nurses caring for people with bleeding disorders in the UK.
Erica Wood @erica_m_wood
1K Followers 610 Following Professor, Head, Transfusion Research Unit, Monash University. Haematologist, Monash Health. Past President, ISBT. Personal account: @EricaW_personal
haemnet @haemnet
1K Followers 371 Following Undertaking in-depth mixed methods research into the lived experience of people affected by bleeding disorders
Professor Beverley Hu... @bhwords
10K Followers 3K Following Passionate about thrombosis & bleeding care. Founder of Thrombosis UK but views are my own. Crazed cyclist.
Haemophilia Society @HaemoSocUK
5K Followers 705 Following We are a community that makes each other feel stronger every day. Membership is completely free and everyone affected by a bleeding disorder is welcome.
Dr Kate Khair PhD @katekhair
1K Followers 866 Following Nurse, researcher, Director of Research @haemnet. Passionate about bleeding disorder care for people globally ....... and 🐘🐘🐘🐘
Laura Dalling @dalling_laura
63 Followers 150 Following Proud Apheresis Nurse working within Nottingham University Trust 👩🏼⚕️
JP Westwood @jp_westwood
2 Followers 2 Following
RARE Revolution Magaz... @RareRevolutionM
12K Followers 7K Following Digital magazine giving a voice to those affected by rare conditions and the charities that support them. Contact us: [email protected]
Association Adamts13 @Asso_Adamts13
34 Followers 77 Following Association française de soutien aux patients atteints du Purpura thrombotique thrombocytopénique #PTT
Transfusion Library @TransfusionLib
3K Followers 1K Following No longer posting on X. Follow us on other social media. Transfusion Evidence Library provides access to evidence-based publications on Transfusion Medicine
Maureen "virus makes ... @HoatlinLab
734 Followers 1K Following Trained in virology, made vaccines, obsessed with errors of replication & DNA repair, consultant #rarediseases, #datascience, #openscience Tweets mine.
Helen Manson @MrsM___
310 Followers 518 Following Mrs Mapsman to @mapsman, proud mum and Sister/Specialist Nurse in Bleeding Disorders Care. RCN NI Nurse of the Year ‘Team Manager’ 2023 Own opinions here.
Visufund @visufund
517 Followers 1K Following 👀 Visual Fundraising 🎨 Interactive template designs 🖼️ Bring pictures to life with donations ⏰ Create a page in minutes 👍 Free to join
Prof Dr Ganesh Mohan @Dr_GaneshMohan
458 Followers 1K Following Transfusion Medicine, Coagulation, Coordinator of Manipal Centre for Benign Haematology, KMC Manipal. Tweets are personal.
Tina Noutsos @TNoutsos
152 Followers 351 Following Haematologist @NTGovHealth, Senior Research Fellow @MenziesResearch. Avid photographer, sometimes cyclist. Views my own.
JG Lfc @JGarster
33 Followers 282 Following Life long LFC supporter; love U2..... Thrombotic Thrombocytopenic Purpura Survivor....
Beacon for Rare Disea... @RareBeacon
12K Followers 10K Following Beacon is a UK-based charity that is building a united rare disease community with patient groups at its heart. Previously known as Findacure.
EURORDIS-Rare Disease... @eurordis
32K Followers 1K Following An alliance of over 1,000 patient organisations working across borders and diseases to improve the lives of all people living with rare diseases.
David J Roberts @7davidroberts
166 Followers 212 Following Ox Associate Medical Director NHSBT and PI UniOxford
Karen Page @thepages17
143 Followers 573 Following
gemma geard @gemmageardy
5 Followers 18 Following
Cambridge Rare Diseas... @camraredisease
8K Followers 6K Following making #rarediseases an everyday conversation https://t.co/kZWskP9Ojj
A FORBES @AFORBES91139882
6 Followers 148 Following
Zheng Laboratory @XLongZheng2
265 Followers 260 Following My lab at the University of Kansas Medical Center is interested in understanding the mechanisms of thrombotic microangiopathy, including TTP and HUS.
LouColl @CollLou
28 Followers 139 Following
NHSBT Therapeutic Aph... @NHSBTTAS
427 Followers 85 Following Therapeutic Apheresis Services, part of NHS Blood & Transplant. The largest apheresis provider in the UK, saving & improving lives since 2007.
USTMA Alliance and Co... @USTMAConsortium
141 Followers 32 Following The mission the USTMA Consortium is to improve outcomes in through observational studies, clinical trials of novel therapies and translational research.
Sajida Kazi @kazisaj1
335 Followers 126 Following Haematologist interested in Thrombosis and obstetric haematology
Brian O Mahony @Brianhemophilia
3K Followers 513 Following CEO of Irish Haemophilia Society,former President of WFH and EHC. Supporter of Kerry GAA. Interested in politics,history,advocacy, books. All opinions personal.
EHC_Haemophilia @EHC_Haemophilia
3K Followers 409 Following The European Haemophilia Consortium aims to improve the quality of life of people with haemophilia and other rare bleeding disorders throughout Europe.
Patients Association @PatientsAssoc
24K Followers 2K Following We are an independent charity campaigning for patient partnership. For our social media community guidelines, see: https://t.co/pwOtv4gikz
X. Long Zheng, MD, Ph... @DrXLongZheng
1K Followers 421 Following Professor & Chair, @KUPathology; Expert in Transfusion Medicine and Coagulation, My lab @XLongZheng2 studies biology of #ADAMTS13, TMA, TTP and aHUS, etc.
Natasha Wiles @NATASHALYKOP
148 Followers 338 Following Haematologist with thrombosis and obstetric interest; mum and forever European.
TheGivingMachine @GivingMachineUK
6K Followers 4K Following Award-winning charity supporting Good UK Causes via https://t.co/NqYLOlCT5D and https://t.co/03urKxoora
Sasha Wilson 💙 @SashaW42
277 Followers 889 Following I have been a haematology nurse for a very long time, with particular interests in transfusion, haemoglobinopathies, transplant and patient safety.
Senthil Sukumar, MD @SSukumarMD
297 Followers 374 Following Assistant Prof @BCMHouston. Non-malignant Hematologist. Fellowship @OSUCCC_James. IM Residency @UTSWInternalMed '18. @UMKCmedschool ‘15. Tweets are my own.
Kamran @DrKamranIqbal
96 Followers 665 Following
Will @willlondon87
282 Followers 5K Following
Hollie Yaxley @HollieMcK3
80 Followers 133 Following NHSBT | Business Development Manager | Clinical Biotechnology Centre @NHSBT_CMT - All views my own
Marshall Mazepa @ttpdoc
108 Followers 99 Following
Abdelhamid Hamdy @abdelhamed012
3K Followers 6K Following اللهم إنى أسألك اليقين والعافية nephrologist.MRCP
World Thrombosis Day @thrombosisday
11K Followers 5K Following From Head to Toe, Take Control. Global, year-long movement to build #bloodclot #awareness. Share info & join the campaign https://t.co/PZlgcYxwtM #WTDay25
Roopen Arya @AryaRoopen
2K Followers 1K Following Clinical Director for Haematology and Professor of Thrombosis & Haemostasis, King's College Hospital; Director, King’s Thrombosis Centre. Opinions are my own.
AOFAC Foundation @aofac
96 Followers 207 Following A patient advocacy group in the areas of Thrombotic Thrombocytopenic Purpura (TTP) with interest in Sickle Cell Disease&Lupus SLE. UK&Wales https://t.co/ZZO1I6STnATrends for United States
179 B posts
59,1 B posts
88,4 B posts
88,4 B posts
1,57 Mn posts
13,1 B posts
8.222 posts
15,8 B posts
509 B posts
6.274 posts
19 B posts
5.540 posts
5.377 posts
6.042 posts
1.639 posts
246 B posts
2.907 posts
2.879 posts
1.272 posts
42,4 B posts
You might like
ISTH President
@IsthPresident
3K Followers
NHSBT Therapeutic Aph...
@NHSBTTAS
427 Followers
AOFAC Foundation
@aofac
96 Followers
HCPA
@HCPA11
436 Followers
Susie Shapiro
@shapiro_susie
673 Followers
Annette Bowyer
@DrNetBow
112 Followers