Tameside Pulmonary Fibrosis Support Group @TamesideGroup
The group aims to provide support and information for patients, their families and friends. Clive & Sue Green email: [email protected] Ashton-under-Lyne, England Joined October 2018-
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Thank you @Dan_Brocklebank for taking time to have a photo for our Famous Faces Gallery in our #aroundtheworldwithtpfsg challenge to raise awareness of Pulmonary Fibrosis, a little known, incurable lung disease that kills 19 people every day 💜
Thank you to Coronation Street's Andy Whyment for taking the time to have a photo taken for our #aroundtheworldwithtpfsg challenge to raise awareness of Pulmonary Fibrosis, an incurable lung disease. You look good in our Famous Faces Gallery Andy 👍💜
Brilliant work from PF NI. 👍💜
Brilliant work from PF NI. 👍💜
Genetic anticipation can occur in cases of familial pulmonary fibrosis. This means that genetically predisposed children of patients with ILD or related conditions can develop the condition earlier in life or with increased severity compared to parents. Important to screen early
If you like a bit of Corrie then you'll like this pic. The brilliant @simongregson123 with our Group poster. Can't thank you enough sir for joining our Famous Faces Gallery & helping to raise awareness of Pulmonary Fibrosis, an incurable, terminal lung disease. 💜
🚨NEW REPORT ALERT🚨 @OneVoiceILD and @ActionPFcharity have launched an Optimum Integrated Care Pathway for transforming ILD services. actionpf.org/get-involved/t…
We lost our lovely member and friend Mike on Sunday to this awful disease, Pulmonary Fibrosis. Its incurable. Its terminal. Its frightening when you can't breathe. Its exhausting and debilitating. It's heartbreaking. Rest easy dear friend, you have some peace now. 🥺💜
We're disappointed to see today's debate has been postponed. Such an important topic must be given the time it deserves, to hear stories from hospices and tackle the issue of hospice funding. We look forward to hearing these discussions when the debate is rescheduled.
We're disappointed to see today's debate has been postponed. Such an important topic must be given the time it deserves, to hear stories from hospices and tackle the issue of hospice funding. We look forward to hearing these discussions when the debate is rescheduled.
Great day for PFNI yesterday raising awareness about PF with the Princess Royal and promoting our new book to help children underst the effects of PF if a family member is diagnosed. @BoltonFibrosis @TamesideGroup @ActionPFcharity @StG_ILDSuppGr
Did you know that if you care for someone with PF, you can join our monthly Carers Support Group? The group offers a safe space to share your experiences. So whether you’re a caregiver, family or friend, we welcome you to join the group💜 actionpf.org/information-an…
📢If you’re a health or social care professional, refer your patient to APF. We’ll send them our free information pack which will help them: - Learn about #pulmonaryfibrosis - Get the most from appointments - Feel like part of a community actionpf.org/resources/rece…
We cannot thank the lovely John Henshaw enough, for getting these photos of the wonderful @PhilMealey and Susan Cookson with our poster, to raise awareness of Pulmonary Fibrosis, a little known incurable lung disease. Are we chuffed? You bet! 😊 Thank you to you both! 💜
Oxygen therapy 💨 is not mainly for breathlessness. Supplementary oxygen (as needed on exertion, or continuous) is prescribed to correct low blood levels when the lungs or circulation can't meet the demands of the body. This is why it is a form of treatment, should be seen as…
APF is happy to announce the investment in 2 research fellows! Dr @KevinBinLiu1 from @imperialcollege & Dr @Jennydickens41 from @Cambridge_Uni have been awarded £600k to further unravel the genetics of PF, which'll help to identify new & better treatments: bit.ly/3PKLKuP
Our poster gets around - hence the name #aroundtheworldwithtpfsg Even the animals want to get in on the act. From dogs to donkeys, ducks to sheep (even pink plastic ones). But it's doing the job of raising much needed awareness of Pulmonary Fibrosis an incurable lung disease👍
A good way to experience what its like trying to breathe with Pulmonary Fibrosis. Try the Canadian PFF's #puckerupchallenge breathing through a straw, & see how you cope. Then imagine living like that day in, day out. It's exhausting and frightening 🥺 facebook.com/share/v/aQRPxK…
Two of our lovely volunteers at a local event, raising awareness of Pulmonary Fibrosis an incurable lung disease. Also with Jonathan Reynolds MP and Civic Mayor of Tameside Tafheen Sharif. 💜 💙
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Emergency over - #sophiefromromania found her way home and was barking at our kind neighbours
Emergency #sophiefromromania has escaped
Emergency over - #sophiefromromania came home. Thanks so much to neighbours who helped
I like this 🙂 palliative care is about 'living well'
Son 2 spent much of yesterday painting flags for #Eurovison and…. Do you want to tell him?
Sorry if I don’t answer/respond to everyone’s DM’s… it’s not personal, I simply don’t have the capacity/time to do so, let alone do what you ask of me. Best wishes to you all. x
Emergency #sophiefromromania has escaped
Got a familiar old devil with me this evening. Christ, it’s tiresome! #BodyDysmorphia
The next @EU_IPFF webinar takes place this Thursday, 9th May at 7pm CET (6pm BST) - talking #cough in #pulmonaryfibrosis - with Prof. Surinder Birring of Kings College, London - open to all - see eu-pff.org for registration
And while it may seem hard to start pulmonary rehabilitation, just taking the first step may lead to better control over your condition (like the lady in the interview above - you then just want to keep going)
Another model for pulmonary rehabilitation - live virtual sessions! See how easy it may be to take part! Such a wonderful initiative in 🇮🇪
#pulmonaryrehabilitation on TV Reach out to your local TV station Great work from @MajellaOReilly1 and team #pulmonaryrehab #31DaysofPRideas dropbox.com/scl/fi/plejgho…
I can’t believe that Bernard Hill has left us. The one and only TV time we met was on a studio sofa - in make-up he said to me “I’m a Sagittarian got any tips?” he then smiled and winked and we both burst out laughing. My fave rôle was his ambitious Duke of Norfolk in Wolf Hall.
This article 📰 suggests there may be a link between mouth health and outcomes in progressive pulmonary fibrosis. 🫁 A higher diversity of bacteria🦠in the mouth was associated with lower lung function. Oral Microbiota in Fibrotic Lung Disease bit.ly/3xSo2qf ⬇️ Of…
Wanted to thank @chrismcewan11 for the campaign and energy of his team in Tees Valley. We don’t always win, and it’s natural in politics to rush to the victories as we rightly celebrate them, but let’s not too quickly skip over the solid graft when we don’t quite make it. The…
With the result being announced later today, I want to say a BIG thank you for all the support I have had over the last few months. I’ve spoken to people on the doors, in their gardens, online - everywhere. I live here and I care about this area with all my heart. If I’m lucky…
Today is #WorldPHDay2024! 🌍🎗️ Let's raise awareness together as this can lead to an earlier PH diagnosis. Early detection, seeking medical help & receiving a proper diagnosis early are essential for better outcomes. Spread the word & save lives! #WeBreatheUnited #WPHD
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