WSRGN @WSGSC
The Western States Regional Genetics Network works to increase access to genetic services and education for medically underserved populations. westernstatesgenetics.org Joined January 2010-
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Happy International Genetic Counselor Awareness Day! Let's celebrate this remarkable profession & express gratitude to genetic counselors for being guides through the complexities of genetics. We are proud to stand with the MGPN community. More info: nsgc.org/Education-and-…
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Dinner with the WSRGN Family Advocate Leaders after a great FA meeting day. They are the 💘 of our Network.
It's happening tomorrow. Come learn how to become a genetic counselor. It's a rewarding and well paying career.
WSRGN retweeted
Prepare for next week's #PublicHealthGenetics and Genomics Week now by learning more about the field of public health genetics and genomics with our #PHGW daily theme webpages and fact sheets! phgw.org/toolkit/#fact #PublicHealthGenomics
WSRGN retweeted
The #AMCHP23 is here and we are so excited to share our @TheACMG #ACTSheet and the animated Knowledge Nugget that accompany them. Join us in Booth 23 to learn more about these resources! nccrcg.org/educational-mo…
WSRGN retweeted
WSRGN retweeted
With #PublicHealthGenetics and Genomics Week less than a week away, we are excited to publish this year's #PHGW Social Media Toolkit to help you learn more about next week's celebration and plan your social media posts. phgw.org/toolkit#social #PublicHealthGenomics
WSRGN retweeted
Have you registered for the #PublicHealthGenetics and Genomics Week event (or events!!) you want to participate in? Explore the #PHGW calendar of events to plan your activities celebrating public health genetics and genomics! phgw.org #PublicHealthGenomics
WSRGN retweeted
Public Health Genetics & Genomics Week is five days away! Tune in all next week as we share information to celebrate and raise awareness for the field of public health genetics and genomics. @NCCRCG #PHGW #publichealth #genetics #genomics
WSRGN retweeted
Curious about how you can participate in the upcoming #PublicHealthGenetics and Genomics Week? We have the event for you! Join us here for our #PHGW Partners Conversation. See the questions and add the event to your calendar at phgw.org/tc23 #PublicHealthGenomics
WSRGN retweeted
NCC is thrilled to announce that "The 2019 medical genetics workforce: a focus on laboratory geneticists" is now available via open access on @GIMJournal! Read the article to understand the laboratory geneticists workforce in 2019. bit.ly/2019LabGenetic… @TheABMGG
WSRGN retweeted
Are you interested in the role of #policy in #PublicHealthGenetics and Genomics? Join @Region4Genetics, Minnesota Rare Disease Advisory Council, and us for a conversation about the role of policy on May 17 at 10:30 AM ET. bit.ly/PHGWMGNLN #PHGW #PublicHealthGenomics
WSRGN retweeted
Follow @NCCRCG to learn about #PublicHealthGenetics throughout the lifespan, and join them for the events during Public Health Genetics Week! #PublicHealth #GeneChat
Follow @NCCRCG to learn about #PublicHealthGenetics throughout the lifespan, and join them for the events during Public Health Genetics Week! #PublicHealth #GeneChat
Minority Genetic Prof... @minoritygenetic
4K Followers 2K Following We are a space for racially & ethnically diverse professionals & students in genetics to connect & support increased access to services in minority communities.
Naomi Wagner @Naomi_CGC
2K Followers 2K Following Ocular & rare disease genetic counselor 👁🧬 | @ShileyEye @UCSDHealth 🏥 | @BUMedicine & @pomonacollege 📚 | Opinions my own | she/her
Samantha Greenberg, P... @SGreenbergGC
1K Followers 639 Following Director Genetic Counseling Prog @UTSWedu w @umich roots. PhD from @uofunursing. Interest in '3 Ps': prostate, paraganglioma, and ppl (education). 🧬 she/her
Dena DNA @DenaTalksDNA
5K Followers 2K Following Genetic Counselor 🧬 & Content Creator 🤳🏽 spreading genetic awareness and making it more accessible to all 📲 -Dena Goldberg, MS, CGC #GeneChat #scicomm
National Human Genome... @genome_gov
81K Followers 385 Following Funding research at the forefront of genomics to improve human health. Formerly the Human Genome Project. https://t.co/4hdQRFkFNU
Matt Tschirgi, CGC @Matt_Tschirgi
3K Followers 4K Following Genetic counselor, #entrepreneur, #adoptive dad, consultant, UTHSC-H. Opinions belong to me and my #DNA. #GoCougs! #GeneChat #NerdGang
National Coordinating... @NCCRCG
999 Followers 917 Following Join us for the 5th Annual Public Health Genetics and Genomics Week from May 20-24. #PHGW #PublicHealthGenetics #PublicHealthGenomics Retweet/likes≠endorsement
Abby Turnwald (she/he... @PedsGCAbby
969 Followers 1K Following Pediatric genetic counselor, neurogenetics, advocate for the rare disease community, let’s talk about sibling health
Lauren Giannetti Sfer... @LGtheCGC
732 Followers 1K Following (she/her/hers) | GC | Oncology MSL Manager @myriadgenetics | opinions are my own |#lgbtqiaally #blm #gcswithdisabilities #genechat
Kate Wilson @Katencstate
1K Followers 1K Following Chicken impersonator, inappropriate crafter, nerdy genetic counselor. She/Her. These are my own thoughts. #GeneChat
StudyRare 🧬 @studyrare
4K Followers 835 Following Board prep 4 @GeneticCouns students & @TheABMGG fellows. Led by clinical geneticist @dpique12 Monthly 📧 w/ board-style q's at https://t.co/r7TJ7GJZRW
Sara Riordan (she/her... @GenomeGrl
2K Followers 505 Following #IAmAGeneticCounselor & Immediate Past President of NSGC (@GeneticCouns). VP Clinical & Research Programs at @UnifiedPatients. Promoting equitable #AccessToGCs.
Maya Brown-Zimmerman,... @MarfMom
3K Followers 2K Following Genetic counselor. Disability. Politics. Adoption. Writer. She/her. My views are my own.
Diego Quintero @DiegoQ_GC
437 Followers 406 Following Genetic Counseling ‘23 @StanfordMed l Bioengineering:Bioinformatics ‘21 @UCSanDiego | Ballet Folklorico Dancer 🇲🇽 | #GCChat | He/Him 🏳️🌈 | Views are my own
Natasha B, MS, MPH,CG... @nkrberman
1K Followers 1K Following #Iamageneticcounselor #GeneticCounseling & #publichealth #genetics #PrimaryCareGenetics All views are my own. RT/follow does not imply endorsement. She/Her 🌈🧬
Genetics in Medicine @GIMJournal
16K Followers 3K Following Genetics in Medicine, an official journal of @TheACMG Site use policy: https://t.co/gMGoSv2TJY. Cover image by https://t.co/CqIOOiJw29 user fanjianhua.
Kelsi Hagerty, MMSc, ... @kelsi_hagerty
443 Followers 311 Following genetic counselor • views are my own, sarcastic, or they made me giggle 🧬 • she/her/hers
Kyle W. Davis @kylewalterdavis
1K Followers 3K Following Full-time: genetic counselor @VUMCgenetics, husband, father. Part-time: fiction & science writer, basketball, tex-mex food. He/him; tweets = mine
Genetic Counseling Gr... @OhioStateGCProg
933 Followers 251 Following Genetic Counseling Graduate Program at @OhioStateMed - training our graduates to be knowledgeable, compassionate and scholarly genetic counselors #OhioStateGCGP
Anna @annadillard34
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Plofor @Plofor5586285
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SupplyChainTrade🇺�... @Corsor39692
62 Followers 2K Following 15-30% Monthly | 2 High-Conviction Stocks.Short-Term Gains: 15-20% in Days/Weeks.DM "JOIN" for WhatsApp Alerts. Live Trade Signals • Market Analysis
Christy @SusanBa53774289
800 Followers 3K Following Jesus Follower,Mom of 4-all Warriors,Yaya of 2,Patio Gardener,Coffee Drinker,Caretaker of 2 of my Adult Children with UCD (Citrullinemia 1),Southern Aged Lady
Ffirouez @FfirouezdalfTt
26 Followers 965 Following
Rare Melanin @raremelanin
107 Followers 243 Following Amplifying Black Experiences in Rare Disease: Your Voice, Our Mission | WE’RE ON A X HIATUS, COME FOLLOW US ON TIKTOK, INSTAGRAM AND THREADS
RareRising @RareRising_Org
175 Followers 524 Following RareRising, is a 501c3 that delivers research, incubates emerging rare disease entities, and explores solutions to positively impact rare disease communities.
rareparenting @rareparenting
4K Followers 711 Following Mom-created resource for parents of children with #disabilities, #rarediseases and #specialneeds
ML @71mal
87 Followers 505 Following
MGH Institute Genetic... @IHPGCProgram
419 Followers 166 Following Official Twitter account for MGH Institute of Health Professions Genetic Counseling Program. #IHPGC #MGHInstitute #MGHIHP
Richmann🤠 @oh_itsKelewele
909 Followers 2K Following Building with 4 others. Genetics, Health, Cars and Backyard farming https://t.co/suYkJMqyKF || Call 0533233533 for the best Automobile deals
Sally Vilardi @sjvilardi
846 Followers 2K Following Unlock the enormous value your #partner ecosystem by elevating partner programs, enabling the channel, and accelerating pipelines
Melissa Dempsey @meldempsey23
352 Followers 434 Following Increasing access and utilization of genetic testing for rare disease. Market Development at Illumina. My opinions are my own.
EducatingAllLearners.... @educateall_org
4K Followers 3K Following An alliance of organizations committed to ensuring that all students are served during #COVID19 and beyond. Dedicated to equity. Tweets are not endorsements.
Myy Nguyen @EmWatToFe
17 Followers 55 Following
Andrea Gropman @AndreaGropman
594 Followers 731 Following Director, Neurometabolic Translational Research, St. Jude Children's Research Hospital, Brain imager, Screen play writer, Author, mom of former Team USA skater
Nadav Weinstock, MD P... @niweinstock
222 Followers 546 Following 🧬🔬🧪 🧠 Pediatrics & Medical Genetics. Resident @HopkinsMedicine. Research interests: Genetic Therapy, LSDs, IEMs, Neurogenetics, leukodystrophy.
Curtis Coughlin II @CoughlinIi
292 Followers 374 Following Scientist | Bioethicist | Genetic Counselor
HumanGeneticsNJ @HumanGeneticsNJ
16 Followers 44 Following The Human Genetics Association of New Jersey (HGANJ) is a not-for-profit organization comprised of medical professionals who provide genetic services in NJ
Jamie Sullivan @lamshade09
345 Followers 1K Following
Living LFS @LivingLFS
562 Followers 1K Following Supporting patients with Li-Fraumeni syndrome, an inherited #cancer predisposition. #LFS #LiFraumeni #LiFraumeniSyndrome #TP53 #P53 #GeneticCancer #genetics
YellowBrickRoadProjec... @YBRP4hnrnph2
211 Followers 76 Following YBRP is a non-profit organization whose mission is to positively impact the lives of individuals with HNRNPH2 genetic variations.
dazzle4rare @dazzle4rare
1K Followers 1K Following Est. 2016 | Signal boost RARE with #dazzle4rare every Aug | #Signalise is our #podcast | Our 🔗 https://t.co/bS5LyCTiZ5
Ruthanne Sheller @Ruthanne_APHL
54 Followers 127 Following Senior Specialist, NewSTEPs, Association of Public Health Laboratories
M @genekween
0 Followers 25 Following
CancerConnect @cancer_connect
9K Followers 3K Following 🎗 Publishing cancer content since 1997 🩺 Authored, edited & reviewed by Dr. C.H. Weaver M.D. (Oncologist) 💯 For survivors, patients & caregivers
The Genetic Curator @GenticVariant
35 Followers 207 Following Daily updates on "Genetic Variants" from PubMed 🧬 #Genetics #Genomics #MedicalGenetics #ClinicalGenetics #GeneticTesting #PrecisionMedicine #Raredisease
Lauren O'Sullivan @lauren_osully
205 Followers 303 Following Certified Genetic Counselor 🧬 | Black Lives Matter | 🏳️🌈 She/They/Any | *all opinions are my own*
Christina Miller @xtinaCGC
32 Followers 66 Following 2nd year genetic counseling student at University of Colorado (she/her) 🧬🏳️🌈
Miavonna Craig @awesomeness_mrc
32 Followers 56 Following Philippians 4:6-7 / 1908💕💚/ Beautiful Flower 🌷 OU MSGC ‘23 🧬
Dr. Brenda Nelson-Por... @ResearchCoach
670 Followers 1K Following 2026 Candidate for Georgia Lieutenant Governor; Former 2022 Candidate GA SoS/Licensing Division; Arbitrator; Natural Genetics Scientist; Data Diplomacy; Veteran
Julie Comperchio @JulesC2022
1K Followers 5K Following #Raredisease #Biotech Exec #Raredisease #Momvocate #speaker #health-equality activist #medical implicit bias fixer #LC MomX3 Proud #CSU Mom #GoRams
Baebies @baebiesinc
397 Followers 382 Following Baebies Inc. is a growth-stage medical device company developing innovative products to enable early disease detection and multifunctional diagnostics.
Sarita Edwards @SaritaEdwards
1K Followers 795 Following Rare Mom (#Trisomy 18) | Doctoral candidate | MHA | CEO @everyoneiswe | Podcaster | Global Keynote | Award Winning Advocate | #RareDisease #Equity #MentalHealth
The E.WE Foundation @EveryoneIsWe
271 Followers 217 Following Healthcare advocacy organization for families affected by #EdwardsSyndrome or #Trisomy18, other #rarediseases, and #specialhealthneeds.
GCAA @GCA_Assoc
152 Followers 153 Following The Genetic Counseling Assistant Association (GCAA) is a group of GCAs promoting education, networking, outreach, and advocacy opportunities.
Baby's First Test @BabysFirstTest_
162 Followers 266 Following Baby's First Test is the nation's newborn screening education resource center for families and health professionals.
Southwest Telehealth ... @SWTRC1
197 Followers 123 Following The @UAZATP Southwest Telehealth Resource Center (SWTRC) was created to advance the effective use of telemedicine services throughout the Southwest region.
UCSF Genetic Counseli... @UCSF_GCP
273 Followers 86 Following Official account of UCSF's Genetic Counseling Graduate Program.
Frank Robertson @FRobertson_
83 Followers 1K Following UNR grad in Molecular Microbiology & Immunology w/ Biochem Minor. Running is my therapy, & working in the ER is my vocation. Saved by Grace & Med School bound.
ريما ابوالن... @ReemaAbualnaja
439 Followers 932 Following Medical graduate @KSAUHS_JD | @Mawhiba & @QimamFellowship Alumna
Molly Martzke @MollyMartzke
21 Followers 54 Following
Genetic Counselors @GeneticCouns
15K Followers 594 Following National Society of Genetic Counselors (NSGC) is the leading voice, authority and advocate for the genetic counseling profession. RT does not equal endorsement.
Minority Genetic Prof... @minoritygenetic
4K Followers 2K Following We are a space for racially & ethnically diverse professionals & students in genetics to connect & support increased access to services in minority communities.
Good Genes Genetic Co... @GoodGenesGC
2K Followers 108 Following We provide genetic counseling services to underserved populations. Available for personal, family and workplace sessions. We ALL have Good Genes!
Naomi Wagner @Naomi_CGC
2K Followers 2K Following Ocular & rare disease genetic counselor 👁🧬 | @ShileyEye @UCSDHealth 🏥 | @BUMedicine & @pomonacollege 📚 | Opinions my own | she/her
Samantha Greenberg, P... @SGreenbergGC
1K Followers 639 Following Director Genetic Counseling Prog @UTSWedu w @umich roots. PhD from @uofunursing. Interest in '3 Ps': prostate, paraganglioma, and ppl (education). 🧬 she/her
Dena DNA @DenaTalksDNA
5K Followers 2K Following Genetic Counselor 🧬 & Content Creator 🤳🏽 spreading genetic awareness and making it more accessible to all 📲 -Dena Goldberg, MS, CGC #GeneChat #scicomm
National Human Genome... @genome_gov
81K Followers 385 Following Funding research at the forefront of genomics to improve human health. Formerly the Human Genome Project. https://t.co/4hdQRFkFNU
Amy Gaviglio @agavig
390 Followers 316 Following Founder, Connetics Consulting | Genetic Counselor | Public Health Genetics/Rare Disease Consultant. Lover of challenging discourse. Tweets are mine.
Matt Tschirgi, CGC @Matt_Tschirgi
3K Followers 4K Following Genetic counselor, #entrepreneur, #adoptive dad, consultant, UTHSC-H. Opinions belong to me and my #DNA. #GoCougs! #GeneChat #NerdGang
National Coordinating... @NCCRCG
999 Followers 917 Following Join us for the 5th Annual Public Health Genetics and Genomics Week from May 20-24. #PHGW #PublicHealthGenetics #PublicHealthGenomics Retweet/likes≠endorsement
Abby Turnwald (she/he... @PedsGCAbby
969 Followers 1K Following Pediatric genetic counselor, neurogenetics, advocate for the rare disease community, let’s talk about sibling health
Spanish Development S... @SpanishSIG_NSGC
199 Followers 10 Following Spanish Development SIG of the National Society of Genetic Counselors. For NSGC updates follow @GeneticCouns. RT does not equal endorsement.
Sally Rodriguez (she/... @srod0587
442 Followers 453 Following 🇩🇴🇺🇸 | CGC & 🧬 nerd. ❤️ 🐈, 🐘, and 🏝. BLM. No human is illegal. ❤️ is ❤️. Opinions are my own. Support #HR2144 & #S1450: https://t.co/DmebsQ12Ib
Muin J. Khoury @MuinJKhoury
4K Followers 354 Following Physician, Epidemiologist, Medical Geneticist, Public Health Professional. Retired Director of the Office of Public Health Genomics at the CDC
Sara Riordan (she/her... @GenomeGrl
2K Followers 505 Following #IAmAGeneticCounselor & Immediate Past President of NSGC (@GeneticCouns). VP Clinical & Research Programs at @UnifiedPatients. Promoting equitable #AccessToGCs.
Natasha B, MS, MPH,CG... @nkrberman
1K Followers 1K Following #Iamageneticcounselor #GeneticCounseling & #publichealth #genetics #PrimaryCareGenetics All views are my own. RT/follow does not imply endorsement. She/Her 🌈🧬
Genetics in Medicine @GIMJournal
16K Followers 3K Following Genetics in Medicine, an official journal of @TheACMG Site use policy: https://t.co/gMGoSv2TJY. Cover image by https://t.co/CqIOOiJw29 user fanjianhua.
Natasha B. @Nat_Bonhomme
854 Followers 2K Following Putting families at the center of health- Founder @ExpectHealthOrg - Dir. @BabysFirstTest_ #maternalhealth #BlackInGenetics Travel and Patio time 🙌🏾 🇭🇹
Kyle W. Davis @kylewalterdavis
1K Followers 3K Following Full-time: genetic counselor @VUMCgenetics, husband, father. Part-time: fiction & science writer, basketball, tex-mex food. He/him; tweets = mine
Rosalind Franklin Ins... @RosFrankInst
3K Followers 339 Following
CGTA @CardioGenomicTA
152 Followers 35 Following CGTA is a coalition of leading genomics companies and labs that aims to raise awareness and utilization of genomic testing in cardiology.
EducatingAllLearners.... @educateall_org
4K Followers 3K Following An alliance of organizations committed to ensuring that all students are served during #COVID19 and beyond. Dedicated to equity. Tweets are not endorsements.
Andrea Gropman @AndreaGropman
594 Followers 731 Following Director, Neurometabolic Translational Research, St. Jude Children's Research Hospital, Brain imager, Screen play writer, Author, mom of former Team USA skater
Curtis Coughlin II @CoughlinIi
292 Followers 374 Following Scientist | Bioethicist | Genetic Counselor
Gryt Health @grythealth
1K Followers 2K Following Gryt amplifies voices to improve health outcomes. Gryt Health (‘grit’) is a healthtech company owned by survivors and caregivers. Visit https://t.co/cMC9nILkdd.
Diversability® @Diversability
5K Followers 164 Following Elevating disability pride, together. Featured on @wef @forbes. WOC & disability-owned. Est. 2009.
ABLE NRC @theABLENRC
764 Followers 127 Following The ABLE National Resource Center (ABLE NRC) provides information about the benefits of ABLE accounts for people with disabilities & their families.
aircarealliance @aircarealliance
30 Followers 45 Following The Voice of Public Benefit Flying - Supporting Volunteer Pilot Organizations and Volunteer Pilots for Over 30 Years.
Rare Melanin @raremelanin
107 Followers 243 Following Amplifying Black Experiences in Rare Disease: Your Voice, Our Mission | WE’RE ON A X HIATUS, COME FOLLOW US ON TIKTOK, INSTAGRAM AND THREADS
RareRising @RareRising_Org
175 Followers 524 Following RareRising, is a 501c3 that delivers research, incubates emerging rare disease entities, and explores solutions to positively impact rare disease communities.
Rare Disease Innovati... @rdii_org
459 Followers 207 Following RDII is a non-profit organization focused on education, engagement and to equip the rare disease community
Amyloidosis Research ... @Amyloidosis_ARC
3K Followers 639 Following ARC is accelerating the development of and access to new and innovative treatments for systemic #amyloidosis
YellowBrickRoadProjec... @YBRP4hnrnph2
211 Followers 76 Following YBRP is a non-profit organization whose mission is to positively impact the lives of individuals with HNRNPH2 genetic variations.
FamGenix @FamGenix
93 Followers 114 Following Family health history, pedigree and genetic risk assessment solutions for clinicians and patients to assess hereditary disease risk. #HereditaryCancer #Genetics
Elsa Balton @elsa_sails
95 Followers 206 Following general & pediatric genetic counselor 🧬 excited about exomes and genomes in clinic 👩🏻🔬 competitive sailor ⛵️ she/her
Myy Nguyen @EmWatToFe
17 Followers 55 Following
The Breast Cancer Ind... @BreastCancerNDX
2K Followers 2K Following We share the latest tips, news, and research on living well after breast cancer. To learn more about the Breast Cancer Index test, visit us online.
UW School of Medicine... @uwsmph
8K Followers 400 Following Official account of the University of Wisconsin School of Medicine and Public Health in Madison. Our vision: Healthy people. Healthy communities.
Pitt Genetic Counseli... @PittGCProgram
601 Followers 236 Following Committed to providing cutting-edge training in the complex science of genetics while fostering a strong foundation in counseling @PittPubHealth @PittTweet
Michigan Genetics @UM_Genetics
850 Followers 86 Following The Department of Human Genetics at the University of Michigan. Account managed by @Sequenceman
Coalition for Access ... @CAPSPrenatal
154 Followers 138 Following Collaborative alliance of seven leading genetic testing companies seeking to improve access to noninvasive prenatal screening (NIPS) for all pregnant women
PatientsLikeMe @patientslikeme
27K Followers 8K Following The world’s largest personalized health network that helps people find new options for treatments, connect with others & take action to improve their outcomes.
Rare Disease Advisor @RareDisease_Adv
5K Followers 1K Following Trusted knowledge base of practical information and resources focused on treating and diagnosing #RareDisease.
GCR Connect @GCRConnect
221 Followers 120 Following A place for Genetic Counsellors working in Research to Connect 🧬
dazzle4rare @dazzle4rare
1K Followers 1K Following Est. 2016 | Signal boost RARE with #dazzle4rare every Aug | #Signalise is our #podcast | Our 🔗 https://t.co/bS5LyCTiZ5
RARE-X @RARE_X_
1K Followers 203 Following PATIENTS' DATA POWERING PROGRESS - RARE-X is expected to become the largest data-sharing initiative focused on rare diseases. More to come.............
Genetic Counselors @CBRGenetics
116 Followers 22 Following Cord Blood Registry's Genetic Counselors are here to answer your science related stem cell questions.
NTIA @NTIAgov
20K Followers 201 Following The official account of the National Telecommunications and Information Administration, within the U.S. Department of Commerce.
The Genetic Curator @GenticVariant
35 Followers 207 Following Daily updates on "Genetic Variants" from PubMed 🧬 #Genetics #Genomics #MedicalGenetics #ClinicalGenetics #GeneticTesting #PrecisionMedicine #Raredisease
David Ross @mensraredisease
726 Followers 840 Following MRDMH supports men’s mental health for those suffering with a rare disease. #raredisease #malementalhealth #mentalhealth #rarementalk #mrdcharity
CLSI @CLSI_LabNews
8K Followers 2K Following A standards development organization, The Clinical and Laboratory Standards Institute (#CLSI) brings together the lab community for excellence in #lab medicine.
Sudden Cardiac Arrest... @SCAFoundation
4K Followers 774 Following Helping to raise awareness of sudden cardiac arrest--a leading cause of death worldwide--and prepare you to take action. You can save a life!
National Center for F... @NationalCFRP
275 Followers 358 Following The National Center for Fatality Review and Prevention provides training and support to fetal, infant, and child fatality review programs across the country.
Got Transition @GotTransition2
649 Followers 290 Following Got Transition is the national resource center that aims to improve the transition from pediatric to adult health care. #HealthCareTransition
Sarita Edwards @SaritaEdwards
1K Followers 795 Following Rare Mom (#Trisomy 18) | Doctoral candidate | MHA | CEO @everyoneiswe | Podcaster | Global Keynote | Award Winning Advocate | #RareDisease #Equity #MentalHealth
National Coalition fo... @InfantCoalition
481 Followers 77 Following A collaborative of professional, clinical, community health, & family support organizations focused on improving the lives of infants & their families
NICU Parent Network @NICUParentNet
2K Followers 502 Following NPN is a collaborative of NICU Support Organizations led by NICU Parent Professionals. We're the only professional association for NICU Parent Leaders in the US
Relevant Genetics @rel_gen
91 Followers 144 Following We are on a mission to expand access to genetic counseling. Makers of https://t.co/ia4zbXF658
ThinkGenetic Foundati... @ThinkGeneticFdn
65 Followers 127 Following A Non-Profit 501(c)3 Charity Helping to Educate and Empower Those Living with Genetic Conditions #raredisease #genetics
Rare & Ready: A Genet... @rare_ready
245 Followers 180 Following Activating on policies that limit access. Supported by Acadia, BioMarin, CSL Behring, Sanofi, & Ultragenyx. Social media guidelines https://t.co/6ZYhchAmHS
The E.WE Foundation @EveryoneIsWe
271 Followers 217 Following Healthcare advocacy organization for families affected by #EdwardsSyndrome or #Trisomy18, other #rarediseases, and #specialhealthneeds.
ScreenPlus @ScreenPlusNY
183 Followers 170 Following We are the largest newborn pilot screening program in the United States. Our goal is to identify babies with rare disorders earlier #2025NBS #rarediseases
Baby's First Test @BabysFirstTest_
162 Followers 266 Following Baby's First Test is the nation's newborn screening education resource center for families and health professionals.
Molly Martzke @MollyMartzke
21 Followers 54 Following
ABMGG @TheABMGG
383 Followers 35 Following The mission of the ABMGG is to serve the public and the medical profession by promoting and assuring standards of excellence in medical genetics.
Columbia Medicine @ColumbiaMed
32K Followers 1K Following Official acct. for Columbia University Irving Medical Center in #NYC. Research, education, & patient care news. Find #ColumbiaMed on IG, TikTok & Facebook too!Trends for United States
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