🧠DBSAmbassador @WeAreBionic1
A community of those with an interest in #Deep Brain Stimulation #Patient Engagement and better health outcomes @matteagles m.youtube.com/watch?v=r_9NCd… North West, England Joined October 2017-
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Alison Christy, MD, PhD, tells us about the life and advocacy of Dr. Mary Putnam Jacobi, the first female physician to focus on neurology. doctorsonsocialmedia.com/advocating-for… @MattEagles
Moomba Festival 2022 Birdman Rally Geoff Constable (PD Avengers) youtu.be/Xl1HvdgRAcI via @YouTube my loony Parky mate and fellow #PDAvenger He's flying again in 2023 !! @PdAvengers @MrsAnneTwist 2024's challenge ? @ParkinsonsUK
HTN Now Awards 2023 - htn htn.co.uk/htn-now-awards… via @health1tech @MattEagles
Heineken | The Office Cleaners youtu.be/k4GF1o80bhQ via @YouTube
The Greatest | Apple youtu.be/c2UF26YpPFg via @YouTube @MattEagles
Gut, inflammation and #Parkinson. I have Tweeted these words so many times recently that I feel like a parrot!
Gut, inflammation and #Parkinson. I have Tweeted these words so many times recently that I feel like a parrot!
Last Thursday we stepped into the ring at the @creativefloor awards to fight it out against the best in healthcare. We're so proud to announce that we received 13 shortlists, and won 8 awards across 7 of our campaigns gaining the title of World’s Most Awarded Agency! #LYNXLife
Last month @321tapas, Associate Medical Director at the Havas Lynx Group, contributed to a @PMLiVEcom article about social media in pharma. Read the full article, where Tapas discusses Key Opinion Leaders and how they might be impacting HCP engagement: bit.ly/2JYCZL2
When we launched the #LXAcademy 2019, we were joined by Prof. Andrew Biankin, a world leader in pancreatic cancer & Regius Chair of Surgery at the @UofGlasgow. Watch his full talk as he discusses the importance of finding the best treatment for patients: youtu.be/KCD0kP-QWwc
Are any of these presentations available to watch Fiona please ? H
It scares me too Dr Chris !
Combining a protein from deathstalker scorpion venom that labels #cancer cells w/ a fluorescent dye to help surgeons better see tumour margins tiny.cc/zkch6y #illuminating #surgery
Our judges have chosen the top 12 videos and now we need you to decide the People's Choice Award for WPC 2019. View all 12 videos and cast your vote here: ow.ly/Zleu30oce62 #wpc2019 #endparkinsons #beatparkinsons #parkinsons
A couple of things about #Parkinsons in Ireland: - Deep Brain Stimulation is not available in Ireland, yet DBS devices are manufactured in Clonmel 😮 - there are 6 Parkinsons Nurses in Ireland; there are 30 in N.Ireland 🤔 This doesn’t make any sense, yet it is our reality 😢😢
I met an amazing young entrepreneur at #wiredhealth who is working on a facial diagnostic system for Parkinson’s ...Erin Smith definitely a healthcare hero with #faceprint lnkd.in/dz2RKyW
Congratulations Eros @PDMovement
After a tension filled afternoon at @SoccerintheCity, in the end it was team Pankhurst who won 4-2 against Pryce, in the Havas Lynx Group five-a-side football tournament! A huge well done to all teams who took part and congratulations to Pankhurst on their win. #LYNXLife
The winner of the Most Valuable Patient Initiative award at our annual European awards last week points to the agile innovation that is happening outside of big pharma's walls. Congrats @NuvoAir bit.ly/2Oe6mKW #efpbarca
Two further offerings addressing pain in Parkinson’s. Under appreciated , under researched , under funded like most non motor symptoms of Parkinson’s .

JoyJerome @22GERitJW1LZu
11 Followers 856 Following
Gexxal @Gexxal9947
13 Followers 971 Following
Toghea @TogheamUxL
110 Followers 3K Following
Drew Hallam @AndrewHallam5
135 Followers 214 Following living with Parkinson’s, trying to make a difference bigger than my size
Larry Gifford @Giffordtweet
3K Followers 2K Following Cofounder and President of PD Avengers. Cohost of @parkinsonspod. DX 2017, DBS 2023. #LEGO, #Announcer #Host #Ambassador #Keynote #Speaker
Chris Duffy (The Park... @theparkynext
530 Followers 838 Following The real slim shaky. Author Grumpy Granddad . Fish keeper. Poet, Bigot, Writer. Insomniac or Maniac, Has PD but puts up a good scrap !
Shafaq @Dr_SF_Hussain
900 Followers 1K Following Professional Tooth Fixer and unintentional PD fighter since July '19. Co-chair @ the BDA Benevolent Fund.
Lisa Nicholas @lisanicholas_x
1K Followers 2K Following Reader, writer, dog lover. Author of the Mila Kiss mysteries. Buy the latest instalment, MOTHER, REBEL, MISFIT, SLEUTH, here: https://t.co/d1FEhZ6biV
Charlotte Maria @M2M_Academy
10K Followers 3K Following Director @_mind2muscle Clinical Rehabilitation for Neurological / Mental Health - Medical & Health Clinics. Training Academy - Founder Mind2Muscle Charity
Braindisorder Congres... @BraindisorderC
215 Followers 2K Following Brain Disorders 2020 Invites and welcomes delegates, presenters, sponsors, and exhibitors from allover the globe to Barcelona, Spain. We are delighted to invite
togetherforsharon @togetherforsha1
1K Followers 4K Following TogetherForSharon® in memory of my mom, Sharon Riff Ackerman for Parkinson’s disease awareness and hope for a cure. Author. Sharon’s son, George
Andrew Butler 💙�... @AndySambut
1K Followers 2K Following All Views My Own. Worldwide Parkinson’s Disease Advocate. Board Member Of Parkinson’s Europe. https://t.co/8vyg9Ykqaz
Becky Potter @Becks86Hill
38 Followers 113 Following I love the amazing people I have the privilege to know. ❤️ ❤️
MyelinatedFilms @MyelinatedFilms
41 Followers 401 Following film production #startup devoted to #empowering the informationally disadvantaged electorate with cinematic medical #documentaries; first project = #parkinsons
Matthew Bucci @mcbsid23
1K Followers 5K Following Retired educator, #BookNerd; I, Me, He, Him. 3 daughters betwn 14-20. Tweets are mine. #MusicLover; Have Parkinson’s, but try to live as a #PositiveParky
Rickety Warrior 🦋 @RicketyWarrior
1K Followers 3K Following 60 year old Parkinson's Warrior diagnosed 2018. Parkinson's advocate and volunteer. Motivational Parkinson's speaker nationally and on the global stage. 🌷 🦝
Russ & Charlotte “t... @PC3652
585 Followers 828 Following Experts in Patient Engagement Consultants, Consultants for Pharma, & Research. Campaigning for Personalised Care. People Connectors.
Grove Ayers @GroveAyers
2K Followers 2K Following Grove. Amalgamist. @JLL GM, @UOsojc alum, @Brkfldproprtl alum, @NWParkinsons board, @CharityMiles Ambassador, @MichaelJFoxorg Advocate, @WorldPDCongress guy.
Andy Bjornson @andybjornson1
1K Followers 5K Following Passionate about Transforming Living with #Braininjury #MS #MSsucks,Using New(OLD) Neuro #Technology #Electronics #Electricity & #Me.
Isabella Signs @IsabellaSigns
10K Followers 2K Following Sign vids, and lifestyle content All my other socials ⬇️ Verified on IG and Fb! 478k Tiktok 202k on Insta!!
Alex Juvenile Parkins... @JuvenileAlex
203 Followers 208 Following Hi I am Alex's mum I am tweeting for him. I got diagnosed wit Juvenile Parkinsons Disease when I was 11. I am living life the best way I can by having fun!!
Sandrine Perrot @SandrineMartel4
109 Followers 491 Following
Phil B @philnlouise
860 Followers 2K Following Hubby, dad, PwP & SPG7, member of @UKHSPGroup, Sec of Medway’s NVDi, co-chair of @Medwayneuro1 & Ass Mem @UniKent /PCIT
Rev. Dr. James Jacob ... @RevDrJamesJaco2
263 Followers 4K Following Disabled Veteran: US Army-Gulf War Era; Parkinson's Disease Plus patient with DBS implant. Social Security/Medicare/Medicaid recipient.Defende of the US Constit
Parkinson's Humor �... @YumaBev
4K Followers 2K Following Parkinsons symptoms since the 80's, finally diagnosed in '07, bilateral STN DBS in '12. Funny stories & helpful tips about life. Come laugh with me 🤣
MSA-AMS Canada @Canada_MSA_AMS
200 Followers 803 Following MSA-AMS CANADA - multiple system atrophy; leading the way to help Canadians with MSA...
Sceneray @Sceneray3
49 Followers 177 Following Professional Deep Brain Stimulation System Manufacturer.
Parkinson's Magician @DRabotnick
368 Followers 1K Following Raising Parkinson's Disease awareness, 1 magic trick at a time!
Defeat MSA Alliance @DefeatMsa
2K Followers 5K Following Defeat MSA Alliance: Multiple System Atrophy; A Public Non-Profit Charity, 501(c)(3)
Defeat MSA Awareness ... @MSAshoe
860 Followers 4K Following The Defeat MSA Awareness Shoe (501c3) is on a marathon to raise awareness RE: Multiple System Atrophy (MSA). #KickMSA #DefeatMSA #DeFeetMSA; https://t.co/0nLoVqFJOz
Birgit Bauer @Birgitpower
3K Followers 2K Following Initiatorin @DSL_Deutschland #DigitalHealth & #SocialMedia Expert #PatientExpert, blogger, HIMSSFuture50, member of @sciana, about: https://t.co/HagxEbmTIl
Angela Robb @angelarobbva
2K Followers 2K Following Wife| Parkinson's disease carepartner| Caregiver advocate| Reiki Master | YouTube Creator | Co-author Dealing & Healing w/Parkinson's| Grateful for Every Day!✌️
The Dystonia Guy @TheDystoniaGuy
341 Followers 2K Following Any media enquires - [email protected] Instagram - @thedystoniaguy #dystonia
Ryno @Loubser_Ryno
81 Followers 668 Following Don't be discouraged for I am your God - Isaiah 41:10 Positivity is a choice.
Neurosurgery Cocktail @BipinChaurasia_
32K Followers 6K Following Connecting Neurosurgeons Worldwide
K Ray Chaudhuri @KRayChaudhuri1
3K Followers 686 Following Director Parkinson Centre of Excellence, Professor of Neurology, Movement Disorders at King’s College London. Research Director and EDI lead ARC.
Identify NeuroEvents @NeurologyEvents
8K Followers 5K Following #IdentifyEvents #NeurologyEvents tweets on upcoming worldwide Neuroscience & Neurology Conferences,Travel Grants, Fellowships etc Follow & start tracking events
Carole Sian @scrufton73
2K Followers 3K Following @FibroFlutters #patientspeaker #ChronicIllness #ChronicPain #hEDS #MentalHealth #IBS #rare #ZebraStrutters #patientengagement MYH11 & TNFRSF13B gene mutations
WPC 2026 @WorldPDCongress
7K Followers 926 Following Only global meeting to include ALL members of the Parkinson's community. #WPC2026 #parkinsons #neurology #neuroscience BLOG: https://t.co/3zK88CQ4oS
Parkinson's Research ... @PDresearchadvoc
1K Followers 961 Following The Twitter Page of the patient lead Facebook forum for discussion on PD research. https://t.co/VxU3Mr5YJW
iDEA @idea_award
8K Followers 5K Following The Inspiring Digital Enterprise Award (iDEA), helps people enhance their chances in life & on the job market with digital & enterprise skills for free.
Steve Petherbridge�... @sjpetherbridge
563 Followers 1K Following Vice President @seniorsparl Dir @DystoniaIreland; DBS surgery @uclh @QSNeurosurgery @mdtneurosurgery in 2016; Admin @DystoniaIreland; Student @AgeFriendlyDCU;
Matt W @neuromatty
894 Followers 4K Following Med student on pause with an RNS device⚡️Following neuromodulation for neuropsych, epilepsy, Parkinson’s⚡️
NEXT Pharma Summit @SummitNext
1K Followers 4K Following NEXT: Sharpest #pharma #commercial and #medical event. Dubrovnik - May 20&21, 2025 Vienna - Nov 18&19, 2025 #digitalhealth #pharmaevent #nextpharmasummit
Tim Blake @timblake1978
52K Followers 48K Following #digitalhealth disruptor. blogger. speaker. engaged patient and carer. former health cio. deep thinker. genetic genealogist. husband and dad.
Philipp Brunnbauer @PBrunnbauer
164 Followers 271 Following Founder of @medenginegmbh trying to improve #Parkinsons care through technology!
Faux_Report @faux_report
2K Followers 3K Following Exposing the lies of FoxNews, Trump and Putin and the small men that spread them.
The New Music Film @thenewmusicfilm
789 Followers 945 Following Adrian, a 25 y/o pianist struggling with Parkinson's & the punk band who help him live again |Written/Directed by Chiara Viale | Spirit of IndieCork Winner '19
Adam Benyo @Adam_Benyo
7 Followers 17 Following
Flutters and Strutter... @FibroFlutters
3K Followers 4K Following Non Profit for chronic (FibroFlutters) & rare illnesses (ZebraStrutters) Patient Advocacy Organisation Reg. No. 14065901
Parkinson's News Toda... @parkinsonstory
2K Followers 3 Following We are dedicated to sharing the latest news, research, and Parkinson's disease patient perspectives.
American Parkinson Di... @APDAParkinsons
5K Followers 1K Following Every day we provide the support, education, and research that will help everyone impacted by Parkinson’s disease live life to the fullest. Call: 800-223-2732
Arlene Smyth @TSSSARLENE
289 Followers 244 Following I am executive officer of the Turner Syndrome Support Society UK working to improve information and understanding about Turner Syndrome.
Mama Twist @MrsAnneTwist
2.6M Followers 680 Following I'm just me. Take me or leave me & don't forget to smile.
Laurence Woollard @TheWoollard
1K Followers 627 Following Director @PulseInSync | Advocacy & Policy in Rare Disease | Patient Research Team Leader @IMABQistudy @uniofleicester | MSc Health Policy @imperialcollege
Dr Kate Khair PhD @katekhair
1K Followers 866 Following Nurse, researcher, Director of Research @haemnet. Passionate about bleeding disorder care for people globally ....... and 🐘🐘🐘🐘
Haemophilia Journal @haemophilia_jnl
2K Followers 301 Following The official journal of the World Federation of Hemophilia @wfhemophilia, @EAHADnews & @HTRSToday | EiC: @HermansCedric | Social Media Editor: @krumbeve
Cathy Harrison 💙 @CathyAH1980
1K Followers 1K Following Haemophilia ANP. WFH nurses committee Chair. Wife & mum, artist, forever learning. Winner of Nursing Times Nurse of the Year Award 2024. Opinions are mine.
Haemophilia Society @HaemoSocUK
5K Followers 705 Following We are a community that makes each other feel stronger every day. Membership is completely free and everyone affected by a bleeding disorder is welcome.
Brian O Mahony @Brianhemophilia
3K Followers 513 Following CEO of Irish Haemophilia Society,former President of WFH and EHC. Supporter of Kerry GAA. Interested in politics,history,advocacy, books. All opinions personal.
WFH @wfhemophilia
8K Followers 169 Following The World Federation of Hemophilia improves and sustains care for people with inherited bleeding disorders around the world.
EAHAD @EAHADnews
3K Followers 470 Following EAHAD seeks to improve care for people with haemophilia and other bleeding disorders through research, education and multidisciplinary collaboration.
EHC_Haemophilia @EHC_Haemophilia
3K Followers 409 Following The European Haemophilia Consortium aims to improve the quality of life of people with haemophilia and other rare bleeding disorders throughout Europe.
World's Toughest Row @toughestrow
4K Followers 92 Following The Adventure of a Lifetime. #pacific2025 June 7th #atlantic2025 Dec 12th Organized by Atlantic Campaigns
emily m @maitlis
555K Followers 2K Following #TheNewsAgents host. Newsnight, BBC2 Interviews with Prince Andrew, Donald Trump, Mark Zuckerberg, Keir Starmer James Comey , Bill Clinton. Appalling typing.
Livewell Southwest Pa... @plymouthPDnurse
332 Followers 483 Following Plymouth community Parkinsons nurse service.
Shafaq @Dr_SF_Hussain
900 Followers 1K Following Professional Tooth Fixer and unintentional PD fighter since July '19. Co-chair @ the BDA Benevolent Fund.
Clare Lindley @LindleyClare
445 Followers 563 Following
Drew Hallam @AndrewHallam5
135 Followers 214 Following living with Parkinson’s, trying to make a difference bigger than my size
Lisa Nicholas @lisanicholas_x
1K Followers 2K Following Reader, writer, dog lover. Author of the Mila Kiss mysteries. Buy the latest instalment, MOTHER, REBEL, MISFIT, SLEUTH, here: https://t.co/d1FEhZ6biV
Charlotte Maria @M2M_Academy
10K Followers 3K Following Director @_mind2muscle Clinical Rehabilitation for Neurological / Mental Health - Medical & Health Clinics. Training Academy - Founder Mind2Muscle Charity
Sarah Webb (Cowen) @slwcowen
363 Followers 912 Following Diagnosed with Parkinson’s @ 39. Founder of South London Younger Parkinson's Network(SLYPN). Needs a Cure.
i-PROGNOSIS Project @i_PROGNOSIS
545 Followers 451 Following @EU_H2020 funded research project on Intelligent #Parkinson early detection guiding novel supportive interventions. Tweets are views of project owner only.
Mind2Muscle®️ @_Mind2Muscle
3K Followers 2K Following Rehabilitation for Neurological and Mental Health & Long-Term Conditions - Leading Education & Training Academy
Adam Benyo @Adam_Benyo
7 Followers 17 Following
Philipp Brunnbauer @PBrunnbauer
164 Followers 271 Following Founder of @medenginegmbh trying to improve #Parkinsons care through technology!
Parkinson's Research ... @PDresearchadvoc
1K Followers 961 Following The Twitter Page of the patient lead Facebook forum for discussion on PD research. https://t.co/VxU3Mr5YJW
Neurosurgery Cocktail @BipinChaurasia_
32K Followers 6K Following Connecting Neurosurgeons Worldwide
MSA-AMS Canada @Canada_MSA_AMS
200 Followers 803 Following MSA-AMS CANADA - multiple system atrophy; leading the way to help Canadians with MSA...
Isabella Signs @IsabellaSigns
10K Followers 2K Following Sign vids, and lifestyle content All my other socials ⬇️ Verified on IG and Fb! 478k Tiktok 202k on Insta!!
Grove Ayers @GroveAyers
2K Followers 2K Following Grove. Amalgamist. @JLL GM, @UOsojc alum, @Brkfldproprtl alum, @NWParkinsons board, @CharityMiles Ambassador, @MichaelJFoxorg Advocate, @WorldPDCongress guy.
Rickety Warrior 🦋 @RicketyWarrior
1K Followers 3K Following 60 year old Parkinson's Warrior diagnosed 2018. Parkinson's advocate and volunteer. Motivational Parkinson's speaker nationally and on the global stage. 🌷 🦝
Braindisorder Congres... @BraindisorderC
215 Followers 2K Following Brain Disorders 2020 Invites and welcomes delegates, presenters, sponsors, and exhibitors from allover the globe to Barcelona, Spain. We are delighted to invite
togetherforsharon @togetherforsha1
1K Followers 4K Following TogetherForSharon® in memory of my mom, Sharon Riff Ackerman for Parkinson’s disease awareness and hope for a cure. Author. Sharon’s son, George
Andy Bjornson @andybjornson1
1K Followers 5K Following Passionate about Transforming Living with #Braininjury #MS #MSsucks,Using New(OLD) Neuro #Technology #Electronics #Electricity & #Me.
Russ & Charlotte “t... @PC3652
585 Followers 828 Following Experts in Patient Engagement Consultants, Consultants for Pharma, & Research. Campaigning for Personalised Care. People Connectors.
YOPD TV @YOPDtv
332 Followers 161 Following The purpose of @yopdTV is to raise awareness and some understanding of what #Parkinsons at a younger age is and what it isn't. Admin @tapehead81 #yopdtv #yopd
Becky Potter @Becks86Hill
38 Followers 113 Following I love the amazing people I have the privilege to know. ❤️ ❤️
Alex Juvenile Parkins... @JuvenileAlex
203 Followers 208 Following Hi I am Alex's mum I am tweeting for him. I got diagnosed wit Juvenile Parkinsons Disease when I was 11. I am living life the best way I can by having fun!!
Laila Ali @TheRealLailaAli
127K Followers 307 Following Undefeated 4 Time World Champion Boxer 24-0 with 21 KO's....Television Host, Fitness & Wellness Expert, Author, Speaker, Mother, Wife...And I can cook!
Lynn Duffy @DrLynnDuffy
64 Followers 109 Following Former scientific copy writer @ParkinsonsUK. Lover of tea. Views are my own
JanetShipton @PPaintingwith
646 Followers 576 Following Janet Shipton: Artist, Parkinson’s Activist and ‘Parky Player’. Enjoying art, creativity and making the most of life.
genna @imgennawithag
75 Followers 158 Following
ParkinsonCommunityTV @PDCommunityTV
54 Followers 36 Following 'That Person You See is Me' ( #TPYSIM ) Featuring weekly VLOG's by people living with #Parkinsons @youtube live streams.
Chris Winchester @ChrisW_PharmaG
989 Followers 871 Following @OxPharmaGenesis CEO, @OxHealthPolicy Director, @_OpenPharma member, @GreenTempleton Associate Fellow, @FNLM Board member and @Jacari Ambassador. Only connect.
Richard White @Richard_PharmaG
581 Followers 342 Following Chief Operating Officer @OxPharmaGenesis – compelling communications on the clinical, economic, social, behavioural and policy aspects of health care