Value Our Health @_ValueOurHealth
Value Our Health represents patient and disability groups supporting patient-driven health care solutions for all ValueOurHealth.org Joined May 2019-
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Value Our Health retweeted
In this episode, five passionate advocates reflect on their trip to DC, and experts dive into biotech, policy, and innovation. A must-listen for anyone driven by change, advocacy, or big ideas. Watch on @YouTube or listen on @Spotify on Monday, 7/21. Host: @LauraTbonnell
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Value Our Health retweeted
Make your voice heard! #ValueOurHealth
Value Our Health retweeted
If you live in Colorado, and or on any of the below meds, or know someone who is...they need your help to advocate! Please do what you can to help.
If you live in Colorado, and or on any of the below meds, or know someone who is...they need your help to advocate! Please do what you can to help.
Value Our Health retweeted
Value Our Health retweeted
The Dutch Healthcare Institute has eliminated certain cancer inhibitors from the basic health insurance package for specific patient groups because of cost-effectiveness issues. #MFNHurtsPatients #ValueOurHealth
Listen to patients - when a patient in the U.K tells us she cannot access the drug prescribed for her arthritis, we should heed the warning against importing their values to the U.S. #MFNHurtsPatients #ValueOurHealth youtu.be/9tpeRsRdEv4
Heed the warning - when a patient in Canada has to purposely get sicker in order to be deemed “cost effective” for the treatment needed to get better we should be fighting against importing their values. #MFNHurtsPatients #ValueOurHealth youtu.be/OZsYeSfjPnE
Value Our Health retweeted
Restrictive pricing controls in Australia for a Cystic Fibrosis treatment has resulted in patients paying $250,000 a year for treatment that is widely available elsewhere. #MFNHurtsPatients #ValueOurHealth
Value Our Health retweeted
Nearly 90 organizations & counting signed an Open Letter urging policymakers to reject policies that devalue & ration care for any American whether modeled after foreign or domestic value assessment methodologies. #ValueOurHealth #MFNHurtsPatients
Value Our Health retweeted
Patients deserve timely access to affordable treatments. It's encouraging to see progress in endometriosis care after so long. Let's continue to advocate for health equity! @_ValueOurHealth #ValueOurHealth #IPIHurtsPatients
Patients deserve timely access to affordable treatments. It's encouraging to see progress in endometriosis care after so long. Let's continue to advocate for health equity! @_ValueOurHealth #ValueOurHealth #IPIHurtsPatients
Value Our Health retweeted
Patients suffering with epilepsy and advocates are calling on the Saskatchewan government to provide public coverage for a new anti-seizure drug. #IPIHurtsPatients #ValueOurHealth cbc.ca/news/canada/sa…
Value Our Health retweeted
An endometriosis treatment will finally become available under the PBS, representing the first new affordable treatment for the condition in 30 years. Patients should not have to wait decades for costs to be lowered. #ValueOurHealth #IPIHurtsPatients 9news.com.au/national/feder…
Value Our Health retweeted
Restrictive coverage policies often times force patients with rare diseases to turn to crowdfunding and other means of raising funds while the government drags its feet on price negotiations. #IPIHurtsPatients #ValueOurHealth mamamia.com.au/jemma-juckes-c…
Value Our Health retweeted
The National Institutes of Health is in the initial stage of developing an agency-wide NIH Strategic Plan for Disability Research. Learn more on how you can participate at the upcoming town hall on December 3: dpcpsi.nih.gov/disabilityrese…
Value Our Health retweeted
New Zealand still has relatively limited options for oestrogen therapy compared to Australia, the UK, Europe and the USA. #IPIHurtsPatients #ValueOurHealth pipcpatients.org/blog/pipc-week…
Value Our Health retweeted
Nine blood cancer drugs that have demonstrated "significant clinical benefit" have not been approved for funding by the Cancer Control Agency in New Zealand. #IPIHurtsPatients #ValueOurHealth rnz.co.nz/news/national/…
Value Our Health retweeted
Cost-effectiveness and risk-sharing agreement policies are limiting spending on drugs for critical illnesses in South Korea. #ValurOurHealth #IPIHurtsPatients hitnews.co.kr/news/articleVi…
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