Mariana Coutinho @_mari_coutinho
MSc in Clinical and Health Psychology || Patient Advocate @ehe_uk || Steering Committee Member @CancerEurope 🇵🇹🇪🇺 Joined April 2021-
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Following56
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4 years, at the European Parliament, I shared my experience as a rare cancer patient who needed treatment abroad + all the unjustified obstacles I had to face in order to finally have access to life-saving treatment, due to the lack of awareness about the existing legislation
4 years, at the European Parliament, I shared my experience as a rare cancer patient who needed treatment abroad + all the unjustified obstacles I had to face in order to finally have access to life-saving treatment, due to the lack of awareness about the existing legislation
“Long term cancer survivors’ daily reality includes mental health problems, fertility impairment, financial discrimination and for some: facing a secondary cancer diagnosis and further treatment” says @AEcaterina @CancerEurope advocate at @EU_Health & @sweden2023eu #EUCancerPlan
From Kyiv, @anna_uzlova & Inessa Matiushenko join YCE’s @katie_rizvi to illustrate how the humanitarian situation in #Ukraine️ remains volatile. Donate now to YCE’s emergency fund & help ease the reality of patients with #cancer in Ukraine️ bit.ly/CancerFundAppe… #WarandCancer
Join us on May 18th for our War & Cancer webinar and listen to first-hand accounts of young people with cancer in #Ukraine, and our coordinated response to help hundreds of patients to find continued #cancer treatment despite the #war. Register via bit.ly/YCE_WarAndCanc…
We've launched a new study aiming to improve #fertilitypreservation services for young people with #cancer across #Europe. If you were diagnosed up to age 39, hit the survey link here: bit.ly/YCE_FertilityS… 20x €25 Amazon vouchers will also be offered for participants!
We are now a few days into Russia’s invasion of Ukraine. We have been humbled by the bravery of the Ukrainian people. As a pan-European network of young people impacted by cancer, we are doing all we can to support the cancer community in Ukraine. Mи з вами, Україна 💙💛
Will the EU recognise adolescents and young adults (AYAs) with cancer as a particular group with specific medical and psychosocial needs as per @EP_BeatCancer proposal on #EUCancerPlan? #WoldCancerDay
Will the EU recognise adolescents and young adults (AYAs) with cancer as a particular group with specific medical and psychosocial needs as per @EP_BeatCancer proposal on #EUCancerPlan? #WoldCancerDay
What can the EU do to assure that fertility preservation and assisted reproduction services will be more equally accessible for cancer patients across Europe? #EUCancerPlan #WorldCancerDay
What can the EU do to assure that fertility preservation and assisted reproduction services will be more equally accessible for cancer patients across Europe? #EUCancerPlan #WorldCancerDay
Extremelly happy to see that "Facilitating access to cross-border health care" is one of the top 3 priorities of this adopted report! This brings so much hope to rare cancer patients in the EU. As one of the MEPs stated: "Your chance of survival can not depend on your post-code"
Extremelly happy to see that "Facilitating access to cross-border health care" is one of the top 3 priorities of this adopted report! This brings so much hope to rare cancer patients in the EU. As one of the MEPs stated: "Your chance of survival can not depend on your post-code"
Last week we received some great news from our Portuguese members! The Right to be forgotten was approved in the Portuguese Parliament! 🥳 #R2BF
As an EHE patient who has gone through several IRE procedures, I am grateful for this innovative treatment and hope it can become available for many more cancer patients. Thank you for all your dedication and work, Dr. Raj!
As an EHE patient who has gone through several IRE procedures, I am grateful for this innovative treatment and hope it can become available for many more cancer patients. Thank you for all your dedication and work, Dr. Raj!
"I feel scared of getting cancer again, exhausted having to find specialists by myself, mistrustful of healthcare professionals who let me down before and overwhelmed by all the information and all the decisions I need to make alone..." @Elenaa_AC at the @PanCareNetwork meeting.
“The big C is not COVID-19, it’s Cancer” Amazing presentation!👏Congratulations @AEcaterina
“The big C is not COVID-19, it’s Cancer” Amazing presentation!👏Congratulations @AEcaterina
Survivors’ perspectives on information, stigma, and misconceptions around cancer, by @CancerEurope. youtube.com/watch?v=zLFAk5…. @IPOSPsychoOncol @WorldSIOP @CEwakefield @katie_rizvi #ChildhoodCancerAwarenessMonth #supportkidswithcancer #psychooncology #AYAcancer
Proud to be part of this community 💙
Proud to be part of this community 💙
Great meeting last week with @cci_europe, @PanCareNetwork & @CancerEurope addressing collaboration on #EUCancerPlan. We are excited to strengthen our voice for a better future of #Children, #Adolescents and #YoungAdults #AYA #CancerSurvivors #survivorsweek #wecareweshare
Q: Should cancer centers have a dedicated space for AYAs? A: Yes. Check out this article written by Karen Albritton, a member of the Stupid Cancer Scientific Medical Advisory Board. Read now: healio.com/news/hematolog…
#PanCareUtrecht2021, 25th @PanCareNetwork conference: Rianne Koopman, head of LATER clinic in the @prinsesmaximac, NL🇳🇱, where 12000 childhood cancer survivors are followed up long term after cancer therapy: 75% will have health problems on long term.
Inês Trindade @inesatrindade
329 Followers 388 Following Associate Senior Lecturer in Psychology @orebrouni. Researcher in GastroPsych, behavioural medicine, ACT, and compassion. She/her. Views my own
Erik Sturesson @sturesson_erik
6 Followers 34 Following
Ricardo Nobre @Ricardo88055659
1 Followers 24 Following
IoanaDbr @IoanaEUbxl
199 Followers 2K Following Working in marketing and health policy in Brussels and London. LSE alumna. 🇪🇺🏳️🌈✊🏽 She/her
Christiana X. @chris_xen
1K Followers 2K Following 🎙️ Podcaster at @NetcastZ | 🇪🇺Former VP of @youth_forum | 🇨🇾 Former VP of @CyprusYouthCoun | @OneYoungWorld ambassador | Poetry Writer “25 ανάσες σε γραφή”
Nicola Unterecker @nickipleeeeease
130 Followers 191 Following 🎗️Cancer Survivor | Mental Health & Patient Advocate
Anna-Elina Rahikainen @anskurahikainen
689 Followers 2K Following Töissä HUS Syöpäkeskus & @FicanSouth | Nuorten aikuisten psykososiaalinen tuki & kuntoutus | #AYAcancer-asiantuntija | Palvelumuotoilija | Toimintaterapeutti
Andrea @ruanoide
641 Followers 1K Following creative director | cancer survivor | amputee | spanglish | steering committee @cancereurope | content creator ☕️📷 | patient advocate | views my own |
Joana Silvestre @joa_silvestre
9 Followers 67 Following
Evita Cancro @evitacancro
69 Followers 30 Following A Evita tem como missão melhorar a qualidade de vida de indivíduos e famílias afectadas pelo cancro hereditário.
Jaap den Hartogh @jaapdenhartogh
481 Followers 1K Following fietsen, theologie, kerk van de toekomst, leven na kinderkanker
Jonathan Granek @JonathanGranek
62 Followers 382 Following Founding Director, EHE Rare Cancer Foundation Australia | Member, PeterMac Community Advisory Committee | Consumer Rep, PeterMac | Consumer Rep, WEHI
SARC @SARCtrials
2K Followers 342 Following SARC is a non-profit dedicated to the development of research for the prevention, treatment, and cure of sarcoma – a cancer of the bone and connective tissues.
Shirlene Badger @shirlenebadger
306 Followers 842 Following Passionate about #patientexperience @illumina
Daliana Vigu @DaliElyana
8 Followers 178 Following
Tahir Holistic Clinic... @PAKISTAN694
24 Followers 592 Following #Dietitian #Psychologist #Homeopathic Doctor #Herbalist #Fertility & Mental Disorder Specialist #
Bogdan Cristian Dinu @BogdanC89992584
20 Followers 176 Following born in Bucharest România , medical oncologyst at Spitalul Județean de Urgentă Târgoviște
Paolo G Casali @casali_pg
2K Followers 796 Following Medical oncologist, treating sarcoma patients and teaching oncology, advocating rare cancers, hoping for new methods of clinical decision-making and research
Hellenic Group of Sar... @GreekSarc
350 Followers 116 Following
Seminars in Intervent... @SemInterventRad
2K Followers 333 Following Seminars in Interventional Radiology is a review journal that publishes topic-specific issues in the field of radiology.
Jon Trent, MD, PhD @JTrentMDPhD
6K Followers 4K Following Associate Director @SylvesterCancer. Director #Sarcoma and #GIST. Telemedicine and in-person clinics are open. Tweets are my own.
Elena Arsenie-Constan... @Elenaa_AC
16 Followers 21 Following
Claire Wakefield PhD ... @CEwakefield
10K Followers 7K Following Professor, @UNSWMedicine | Oceania Continental President, @WorldSIOP
RARE Revolution Magaz... @RareRevolutionM
12K Followers 7K Following Digital magazine giving a voice to those affected by rare conditions and the charities that support them. Contact us: [email protected]
david.moura @davidsmoura84
12 Followers 34 Following
WinetteVanDerGraaf @Winette_vdGraaf
3K Followers 2K Following Medical Oncologist @NKI_nl Amsterdam. Sarcoma; AYA cancer. Prof. @ErasmusMC President of @EORTC, chair @AYAzorgnetwerk @COMPRAYA_study @strong_AYA
Jane Gutkovich @janegutkovich
152 Followers 169 Following Director of Research Of The EHE Foundation
Working With Cancer �... @WorkWithCancer
5K Followers 2K Following Changing the conversation about work and cancer. Supporting employers and employees with experienced coaching, training & consultancy.
European Cancer Organ... @EuropeanCancer
21K Followers 2K Following The largest multi-professional cancer organisation in Europe; reducing burden and improving quality of care. Organiser of the #EuropeanCancerSummit
Zack Pemberton-Whitel... @ZPWHITELEY
2K Followers 1K Following #PatientEngagement, #PatientAdvocacy, evidence, questions, perspective, gifs, collaboration & @PGtips. Views my own, repost ≠ endorsement
Oana Rusu @OanaRusu10
10 Followers 25 Following
Lise Molimard @lise_molimard
185 Followers 296 Following In love with #scicom. Young cancer patient advocate #empowerment. Patient partnership. free-lance
Sorrel Bickley @Sorrel_Bickley
389 Followers 198 Following Director of Research, Policy and Support @Sarcoma_UK. Fitness fan and general science nerd. Views my own. (She/her)
SPAGN @sarcomapatients
2K Followers 558 Following Sarcoma Patient Advocacy Global Network (SPAGN) is the global network of Sarcoma, GIST and Desmoid Patient Advocacy Groups
Dan Moxon @Dan_Moxon
2K Followers 2K Following Researcher and practitioner in the field of youth participation. Director https://t.co/WPrF1YZT7X, member, Eu-CoE pool of youth researchers.
Katherine Mills @KatCMills
286 Followers 337 Following Brand language consultant and copywriter • I help start-ups find their mission and their voice • @DianaAward winner 2021 🏳️🌈
Oriana Sousa @OrianaSousa3
122 Followers 209 Following Psychologist & Patient Advocate; Psycho-oncology Msc; EUPATI fellow; EATRIS-Plus PAC;Rare2030; NRTO- Network Rare Tumors Ovary PA
Ana Amariutei @AEcaterina
182 Followers 198 Following
Andrea Ruano @theAndrea_Ruano
206 Followers 481 Following creative director | cancer survivor | amputee | spanglish | steering committee @cancereurope | content creator ☕️📷 | patient advocate | views my own |
Sam Alexandra Rose @writersamr
1K Followers 2K Following 4x cancer survivor with CMMRD. PhD student and writer. Literally wrote the book on CMMRD. Gentle soul but hard af. Music lover. She/her
Brad Gudger @BradGudger
4K Followers 1K Following Building, shaping and amplifying communities. A cancer survivor. he/they 🏳️🌈🏳️⚧️
Max Williamson @MaxWilliamsonm
427 Followers 1K Following He/ Him. Junior Doctor in Glasgow. Oncology, acute medicine and patient co-production. Well-intentioned Baker.
Katie Rizvi @katie_rizvi
365 Followers 329 Following 20 years invested in psychosocial care for #childhoodcancer patients, passionate about youth involvement, founder of Youth Cancer Europe
Youth Cancer Europe @CancerEurope
992 Followers 350 Following A European community led by young people living with and beyond cancer, working to improve the lives of those diagnosed 🎗️
Krassimira Zaykova @KrassimiraZayk2
60 Followers 94 Following 🇧🇬 final year medical student 👩🏻⚕️🩺 YA for European Code Against Cancer at ECL 🇪🇺🦀 interest in surgery and science 🥼
Inês Trindade @inesatrindade
329 Followers 388 Following Associate Senior Lecturer in Psychology @orebrouni. Researcher in GastroPsych, behavioural medicine, ACT, and compassion. She/her. Views my own
Beverly A. Zavaleta M... @BZavaletaMD
5K Followers 5K Following Writing my post-cancer life! Hospitalist physician. Mom. Author of #BravingChemo: https://t.co/encT9rVmLn She/Her. LosQuijotes medical mission to Oaxaca
Vedrana Högqvist Tab... @Dr_Tabor
351 Followers 254 Following Early-stage heath-tech investor | Health Economics | Precision Medicine | Running enthusiast
No Context Brits @NoContextBrits
1.8M Followers 0 Following A mordant celebration of British mediocrity according to the Washington Post. Contains sarcasm, irony and context.
Solve-RD @Solve_RD
2K Followers 368 Following Solve-RD is a H2020 funded flagship EU project. We will solve large numbers of rare diseases, for which a molecular cause is not known yet.
Katie Owens @ktowens
8K Followers 6K Following #EUComms on health/food safety. 🍀 & proud 🇪🇺 Migrating to other platforms ⏺ Views expressed here are my own and not necessarily those of my employer
ConcernedApe @ConcernedApe
1.4M Followers 94 Following creator of Stardew Valley -- working on "Haunted Chocolatier"
Chucklefish @ChucklefishLTD
166K Followers 764 Following We're an independent games developer & publisher! Now working on @Witchbrook. 🔮✨ Previously developed @StarboundGame & @WargrooveGame
European Alliance for... @ValueInHealthEU
921 Followers 323 Following The European Alliance for Value in Health mission is to CONNECT different stakeholders to CREATE conditions and INSPIRE others.
EU One Health @EU_Health
88K Followers 3K Following The official account of @EU_Commission Directorate-General for Health & Food Safety (SANTE): #OneHealth: connecting health of humans, animals & plants 👤🐾🌱
ECIO @ECIOcongress
1K Followers 638 Following Follow the European Conference on Interventional Oncology for updates on the congress and interventional oncology news throughout the year!
CTOS @ctosociety
2K Followers 284 Following Medical professionals and scientists from around the world connect, collaborate, and share knowledge, experiences, and research for the treatment of sarcomas.
Jon Trent, MD, PhD @JTrentMDPhD
6K Followers 4K Following Associate Director @SylvesterCancer. Director #Sarcoma and #GIST. Telemedicine and in-person clinics are open. Tweets are my own.
Patient Innovation @PatientInnov
1K Followers 383 Following Non-profit, open and global platform aimed at facilitating the sharing of innovative solutions created by patients/caregivers to help them cope with any disease
Elena Arsenie-Constan... @Elenaa_AC
16 Followers 21 Following
Fiona Schulte, PhD @SchulteFiona
2K Followers 2K Following Pediatric Psychosocial Oncology Researcher. Associate Professor @UCalgary. Clinical Psychologist at ACH. Past President @CAPO_ACOP. She/her.
Claire Wakefield PhD ... @CEwakefield
10K Followers 7K Following Professor, @UNSWMedicine | Oceania Continental President, @WorldSIOP
david.moura @davidsmoura84
12 Followers 34 Following
SARC @SARCtrials
2K Followers 342 Following SARC is a non-profit dedicated to the development of research for the prevention, treatment, and cure of sarcoma – a cancer of the bone and connective tissues.
Young Lives vs Cancer @YLvsCancer
32K Followers 3K Following We’re here to make sure children and young people with cancer in the UK get the right support at the right time. Formerly called CLIC Sargent.
Véronique Trillet-Le... @VTrillet_Lenoir
7K Followers 3K Following Eurodéputée MEP @EP_Environment @EP_socialaffairs @EP_PublicHealth @RenewEurope @Ensemble_UE Cancérologue @UnivLyon1 Ex conseillère régionale @LREM_AURA
Working With Cancer �... @WorkWithCancer
5K Followers 2K Following Changing the conversation about work and cancer. Supporting employers and employees with experienced coaching, training & consultancy.
European Cancer Organ... @EuropeanCancer
21K Followers 2K Following The largest multi-professional cancer organisation in Europe; reducing burden and improving quality of care. Organiser of the #EuropeanCancerSummit
Zack Pemberton-Whitel... @ZPWHITELEY
2K Followers 1K Following #PatientEngagement, #PatientAdvocacy, evidence, questions, perspective, gifs, collaboration & @PGtips. Views my own, repost ≠ endorsement
The Cancer Patient @ogcancerpatient
7K Followers 645 Following A satirical look at life as a cancer patient 🎗Tweets are my own.
LibbyMBC @LibbyMbc
35K Followers 2K Following young mom fighting metastatic breast cancer and advocating for all fighting terminal cancer. Located in Canada 🇨🇦 my link tree: https://t.co/7JO9CaAx8y
FEAM @FedEuroAcadMed
2K Followers 494 Following The Federation of European Academies of Medicine aims to advise policy-makers on human and animal medicine, biomedical research, education and health
Lise Molimard @lise_molimard
185 Followers 296 Following In love with #scicom. Young cancer patient advocate #empowerment. Patient partnership. free-lance
Sorrel Bickley @Sorrel_Bickley
389 Followers 198 Following Director of Research, Policy and Support @Sarcoma_UK. Fitness fan and general science nerd. Views my own. (She/her)
Oriana Sousa @OrianaSousa3
122 Followers 209 Following Psychologist & Patient Advocate; Psycho-oncology Msc; EUPATI fellow; EATRIS-Plus PAC;Rare2030; NRTO- Network Rare Tumors Ovary PA
Jane Gutkovich @janegutkovich
152 Followers 169 Following Director of Research Of The EHE Foundation
Sam Alexandra Rose @writersamr
1K Followers 2K Following 4x cancer survivor with CMMRD. PhD student and writer. Literally wrote the book on CMMRD. Gentle soul but hard af. Music lover. She/her
Katherine Mills @KatCMills
286 Followers 337 Following Brand language consultant and copywriter • I help start-ups find their mission and their voice • @DianaAward winner 2021 🏳️🌈
Ana Amariutei @AEcaterina
182 Followers 198 Following
Andrea Ruano @theAndrea_Ruano
206 Followers 481 Following creative director | cancer survivor | amputee | spanglish | steering committee @cancereurope | content creator ☕️📷 | patient advocate | views my own |
Sara Cerdas @saracerd... @sara_saracerdas
3K Followers 863 Following antiga Eurodeputada ∣ former MEP 2019-2024 @psocialista @PSMadeira @TheProgressives • https://t.co/08ufBNjJAh • MD MSc Public Health
Lídia Pereira @lidiafopereira
11K Followers 2K Following Member of the European Parliament @ppdpsd. @EPPGroup Vice-Chair. Politician. Former President of @YouthEPP.
Brad Gudger @BradGudger
4K Followers 1K Following Building, shaping and amplifying communities. A cancer survivor. he/they 🏳️🌈🏳️⚧️
MEPs Against Cancer @MAC_MEPs
3K Followers 497 Following The MEPs Against Cancer (MAC) Interest Group is the oldest group dedicated to cancer policy at the European Parliament 🎗️ Account managed by @cancerleagues.
WinetteVanDerGraaf @Winette_vdGraaf
3K Followers 2K Following Medical Oncologist @NKI_nl Amsterdam. Sarcoma; AYA cancer. Prof. @ErasmusMC President of @EORTC, chair @AYAzorgnetwerk @COMPRAYA_study @strong_AYA
Max Williamson @MaxWilliamsonm
427 Followers 1K Following He/ Him. Junior Doctor in Glasgow. Oncology, acute medicine and patient co-production. Well-intentioned Baker.
Dan Moxon @Dan_Moxon
2K Followers 2K Following Researcher and practitioner in the field of youth participation. Director https://t.co/WPrF1YZT7X, member, Eu-CoE pool of youth researchers.
Paolo G Casali @casali_pg
2K Followers 796 Following Medical oncologist, treating sarcoma patients and teaching oncology, advocating rare cancers, hoping for new methods of clinical decision-making and research
Breelyn Wilky, MD �... @breelynwilkyMD
3K Followers 555 Following Director, Sarcoma Oncology, @CUCancerCenter. Immunotherapy translational researcher. Tweets reflect my own opinions.
William Tap @WTapMD
2K Followers 662 Following Chief, #Sarcoma Medical Oncology Service, MSKCC, building an #AYA program - advice welcome. #Equity and #CulturalCompetence in #Healthcare and life.
Krassimira Zaykova @KrassimiraZayk2
60 Followers 94 Following 🇧🇬 final year medical student 👩🏻⚕️🩺 YA for European Code Against Cancer at ECL 🇪🇺🦀 interest in surgery and science 🥼
EHE Rare Cancer Chari... @ehe_uk
53 Followers 91 Following Bringing awareness and raising funds for research into EHE Sarcoma, a very rare cancer with no cure or standard treatment #eherccuk #ehesarcoma #rarecancerTrends for United States
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