Annika Roll @_on_a_roll
Cofounder of Cure MAPT FTD, a patient advocacy group fighting for a cure to MAPT: a rare genetic form of frontotemporal dementia curemaptftd.org White Plains, NY Joined March 2012-
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New paper from the @houseofbyrne lab just published in Journal of Neurology: 'Evaluating finger-prick blood collection for remote quantification of neurofilament light (#NfL) in neurological diseases.' A step toward more accessible biomarker testing 🩸 link.springer.com/article/10.100…
Here we go...
you were literally there at the nonviolent protests that everyone considered to be violent and unpopular so i have no idea what this statement does other than lean into the hysteria that gives trump enough momentum to mobilize the marines on us soil illegally!
you were literally there at the nonviolent protests that everyone considered to be violent and unpopular so i have no idea what this statement does other than lean into the hysteria that gives trump enough momentum to mobilize the marines on us soil illegally! https://t.co/igsUMcaQtc
Violence from our government deploying troops on US citizens is never the answer & this is a severe overreach of power
Violence from our government deploying troops on US citizens is never the answer & this is a severe overreach of power
An incredible launch year for @CureMaptFtd! We have accomplished so much in 1 year, and are rolling into a new year with even larger plans in sight! Can’t wait to see all that 2025 brings to this organization! canva.com/design/DAGZ8K8…
Linde Jacobs’ story reminds us that even in the face of overwhelming odds, hope, and determination can lead to incredible breakthroughs. #EndFTD nytimes.com/2024/12/22/hea…
Thank you for writing this moving story about FTD ❤️ we in the MAPT FTD so badly need stories like @LindeLee912797 spotlighted. This is a generational disease that will not stop until there is a cure. We need this awareness of FTD to garner support from the scientific community
Thank you for writing this moving story about FTD ❤️ we in the MAPT FTD so badly need stories like @LindeLee912797 spotlighted. This is a generational disease that will not stop until there is a cure. We need this awareness of FTD to garner support from the scientific community
So honored to work with Linde Jacobs through @CureMaptFtd , this is a really honest story about her family & how she has been impacted by FTD. Linde is at the forefront of fighting for a cure to MAPT FTD. Praying there is a cure or some preventative therapy in our lifetime
So honored to work with Linde Jacobs through @CureMaptFtd , this is a really honest story about her family & how she has been impacted by FTD. Linde is at the forefront of fighting for a cure to MAPT FTD. Praying there is a cure or some preventative therapy in our lifetime
Remarkable work @theftdbrothers and @GrizzlyAdams_78 for all the awareness you are bringing to FTD awareness, research and the genetic implications. You are a true inspiration for other FTD families ❤️ #endftd
Remarkable work @theftdbrothers and @GrizzlyAdams_78 for all the awareness you are bringing to FTD awareness, research and the genetic implications. You are a true inspiration for other FTD families ❤️ #endftd
Today Barbara discussed the concerns & necessities of a MAPT FTD platform trial at the FTD Prevention Initiative meeting. Please reach out if you'd like to meet us at @isftd- Annika Roll and Barbara Dawson will be attending throughout the week. #ISFTD2024
Can't wait to never have to name my frames again with Figma's new AI tools. An excellent use of AI that solves an actual frustration designers have felt for years
good morning to baltimore twitter and baltimore twitter only come get these signs, sheila and whoever else
Salvage crews continue to clear the wreckage of the Francis Scott Key Bridge from the Patapsco River in Baltimore. The top priority is to reopen the federal shipping channel. Here is a look at the debris removal process.
Sheila Dixon was found guilty of embezzlement when she last held office. Not surprised she would continue with shady behavior
Sheila Dixon was found guilty of embezzlement when she last held office. Not surprised she would continue with shady behavior
How do you keep living when you know that everything that makes you a conscious person could disappear? If you were going to lose yourself — in a year, or two, or 10 — would you even want to know? nyti.ms/3rBfzEQ
#Breaking | Police Activity | Arundel Mills Mall | Reports of shots fired | The Mall has been evacuated | NO CONFIRMATION OF A SHOOTING | Police are clearing each store at a time | One person of interest being sought | Numerous units are on scene | Staging command post estab
From hip-hop to country to The Boss, here are my songs of the year. If you’re looking for something to keep you company on a long drive or help you turn up a workout, I hope there’s a track or two in here that does the trick.
People who just stand still at shows are psychopaths. Like sway a little. Bob your head. Vibe a little bit please bro I’m begging you.

Owen Benfield ❣ DM ... @byowenbenfield
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Gillian Sapia RN @GillianHSapia
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hans p schlecht @hanspschlecht
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Jord Adams @GrizzlyAdams_78
2K Followers 1K Following 29 | Dementia Advocate | Public Speaker | 7 marathons in 7 days ‘22 | 100 mile in 24 hours ‘24 | Ran the length of the UK ‘24 #FORACURE 🧡
Jean C9orf72 @Jeanc9orf72
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Cure MAPT FTD @CureMaptFtd
153 Followers 223 Following We raise awareness of the MAPT genetic mutation causing FTD, assist a global network of MAPT families, and advocate for trials that will lead to a cure
Günahsız Qatil @bhayramsoy
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Jackson Fischer-Diott... @DiotteFischer
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Seth J Kirschner @sjkirschner
241 Followers 900 Following Cybersecurity by day, angel and career coach by night. Nonprofits. Ex @deloitte, @maiaclassroom and co-founded @mira_tx_
Mike @Mike_Dizzz
126 Followers 604 Following He/Him. I don't know how many years I got left. I'm going to get real weird with it. -Frank Reynolds 5/15/18 🧡
support for annikas @selfcareannikas
374 Followers 974 Following just an annika supporting other annikas
Mira Therapeutics @Mira_tx_
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emma roth @emmm_ro
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Owen Benfield ❣ DM ... @byowenbenfield
543 Followers 693 Following I have a medical degree in fashion from France • Photographer/Full-time shitposter • he/him/his
Senator Michelle Hinc... @SenatorHinchey
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Michelle Hinchey @MichelleHinchey
5K Followers 2K Following NY State Senator 41st District 🇺🇸 | Fighting for Upstate NY & the Hudson Valley | Food is my hobby | @cornellilr Alum |
Virginia Hughes @virginiahughes
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Jord Adams @GrizzlyAdams_78
2K Followers 1K Following 29 | Dementia Advocate | Public Speaker | 7 marathons in 7 days ‘22 | 100 mile in 24 hours ‘24 | Ran the length of the UK ‘24 #FORACURE 🧡
RDLA @RareAdvocates
6K Followers 2K Following A program of the EveryLife Foundation committed to growing the patient advocacy community and working collaboratively, thereby amplifying the patient voice!
National Organization... @RareDiseases
40K Followers 3K Following #NORD has been the voice of the U.S. #RareDisease community for 40+ years strong. Official U.S. sponsor of #RareDiseaseDay. On Bluesky at @ https://t.co/D7PIT4k0Py
Global Genes @GlobalGenes
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Rare Action Network @RareAction
3K Followers 284 Following Advocating at the state & federal level to improve the lives of the 30 million Americans with #RareDiseases. #RareAction: a #NORD (@RareDiseases) initiative.
FTD Registry @EndFTDregistry
714 Followers 280 Following The Registry is an online database to collect information from those affected by all types of frontotemporal degeneration (FTD).
Chiadi Onyike @conyike
226 Followers 132 Following Neuropsychiatrist and epidemiologist at Johns Hopkins SOM
TheFTDBrothers @theftdbrothers
411 Followers 10 Following Dedicating our lives to raising vital funds towards Dementia Research #ForACure 🧡 DONATE NOW 👇🏻
UCSF MAC @UCSFmac
6K Followers 1K Following The UCSF Memory and Aging Center cares for people with, researches the causes/cures for, and educates people about degenerative brain diseases. #NIAfundedADRC
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245 Followers 303 Following Neurólogo inconformista en el Hospital Clínic de Barcelona.
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Cure MAPT FTD @CureMaptFtd
153 Followers 223 Following We raise awareness of the MAPT genetic mutation causing FTD, assist a global network of MAPT families, and advocate for trials that will lead to a cure
Norman Finkelstein @normfinkelstein
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Brandon M. Scott @MayorBMScott
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Andrew Yang🧢⬆️... @AndrewYang
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no context nathan @NathanForYouOoC
185K Followers 745 Following nathan fielder/nathan for you/the rehearsal out of context (run by @MonrovianPrince) | listen to @indieheadspod | #FreePalestine🇵🇸
hottblonde180@hotmail... @microwxvebxrbie
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