Alliance Algérienne @aamrdz
réseau national d'associations des maladies rares,de groupes et des malades isolé aamrdz.wix.com/rare Algéria Joined March 2016-
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Maladie de Stargardt: Maladie ophtalmique rare caractérisée généralement par une perte progressive de la vision centrale associée à des taches maculaires et périmaculaires jaunâtres et blanchâtres réparties sur le fond d'oeil, et une atrophie touchant le centre de la macula.
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L'adrénoleucodystrophie liée au chromosome X (ALD) est une maladie génétique mondialement présente, rare et grave de la famille des leucodystrophies. Elle se manifeste par une démyélinisation progressive du système nerveux central ou une insuffisance surrénale périphérique
Un médicament expérimental de Vera Therapeutics a réussi un essai clinique dans le traitement d'une maladie rénale rare, ce qui a permis à l'entreprise de discuter prochainement d'une demande d'autorisation auprès des autorités réglementaires américaines
Le syndrome d'Angelman est une maladie génétique rare qui concerne environ 1 personne sur 15 000 .Elle entraîne un handicap mental et moteur lourd. La maladie est également marquée par une particularité surprenante puisque ce sont des enfants qui rient beaucoup
حالة استعجالية مريض مصاب بنقص المناعة الأولية يبحث في المستشفيات عن دواء Immunoglobuline 20g اتصال:0773744620 Urgent Malade atteint du déficit immunitaire primaire cherche au niveau des hôpitaux le médicament:Immunoglobuline 20g Contact:0773744630
Mise a jour du site officiel de l'Alliance Algérienne contre les maladies rares aamrdz.wixsite.com/rare/home
La syringomyélie est une maladie de la moelle spinale liée au développement d'une cavité en son centre qui tend à comprimer et à détruire progressivement la substance grise puis la substance blanche.
Syndrome de Winchester Es un Syndrome ostéo-articulaire caractérisé par une petite taille, une face grossière, une raideur articulaire et des opacités de cornée périphériques.
بمناسبة عيد الفطر المبارك جمعية شفاء لأمراض العضلات و التحالف الجزائري ضد الأمراض النادرة يتمنون لشعب الجزائري و لكل الأمة الإسلامية عيد سعيد و كل عام و انتم
ادعوكم إلى مشاهدة جميع الصور لليوم التحسيسي حول مرض التلف الرئوي عبرى موقنا الإلكتروني للصور Cher amis, Je vous invite à voir tous les photos de la journée de sensibilisation sur la Fibrose Pulmonaire Idiopatique sur notre site de partage photos.app.goo.gl/X27EQL3poZbvY1…
15 Février 2022: Journée internationale du syndrome Angelman
Cher amis, Je vous invite à visionner la vidéo officiel de prochaine Journée Internationale des Maladies Rares sur la chaîne de l’Alliance Algérienne contre les Maladies Rares youtu.be/vNQqMtrRj_0
La neurofibromatose groupe de maladies génétiques où de nombreuses excroissances charnues et souples de tissu nerveux (neurofibromes) se forment sous la peau et dans d'autres parties du corps, et où des taches planes de couleur café au lait se développent souvent sur la peau.
اشتركوا وتابعونا على قناة جمعية شفاء لأمراض العضلات على يوتب: Abonnez-vous et suivez nous sur la chaîne de l’Association Shifa des Maladies NeuroMusculaires (Shifadz TV )sur YouTube : youtube.com/user/shifadz
La progéria, ou syndrome de Hutchinson-Gilford, est une maladie génétique extrêmement rare qui provoque des changements physiques qui ressemblent fort à une sénescence accélérée de ceux qui en sont atteints (vieillissement accéléré dès la première ou la deuxième année)
Domenick Donnelly @DomenickDo37559
10 Followers 690 Following
Shayma radja @RadjaShaym9391
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N94abila @ncreation2011
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Nesma RIAD @NesmaRIAD79
2 Followers 86 Following Cet espace a pour objectif de sauver la vie de RIAD #leucémie
Rare Advocacy Movemen... @RareAdvocacy
3K Followers 1K Following Network of people with #RareDisease #LivedExperiences dedicated to evolving the #LivingRare experience into opportunities for the global community to thrive.
Rare Disease India @raredisease_in
578 Followers 208 Following 70 million Indians suffer from #RareDiseases. #Genomics offers them a new #hope.
Kelly du Plessis @kellyrare
227 Followers 461 Following A fierce #patientadvocate. Someone told me to not bite off more than I can chew. I told them I would rather choke on greatness than nibble on mediocrity.
The DESSH Foundation @DESSHCommunity
122 Followers 469 Following Advocating for patients and promoting research for DeSanto-Shinawi Syndrome, a rare neurodevelopmental genetic syndrome caused by a mutation of the WAC gene.
التمثيل الغ... @weratha_meta
1K Followers 32 Following مجموعة الدعم الأسري لأمراض التمثيل الغذائي تحت اشراف موقع #وراثة (الوراثة الطبية)للاستشارات الوراثية فقط عبر الواتس اب 00966558229918 https://t.co/9bbNtVSduO
Imen bouattia @Imenbouattia
66 Followers 945 Following °l||l°(العظماء لا يسقطون إلا بالخيانة)°l||l° #microbilogiste #علم_أحياء #science de la nature et de vie #علوم_طبيعة_ #Education #مدربة_سوروبان
CENTOGENE @Centogene
3K Followers 2K Following The essential biodata life science partner for rare and neurodegenerative diseases
RARE Revolution Magaz... @RareRevolutionM
12K Followers 7K Following Digital magazine giving a voice to those affected by rare conditions and the charities that support them. Contact us: [email protected]
Arndt Rolfs @ArndtRolfs
536 Followers 1K Following CEO CENTOGENE AG - we have a lifetime commitment to our patients
Rare Disease Ghana In... @RareDiseaseGh
2K Followers 1K Following A nonprofit organisation with the mission to improve the quality of life of persons living with #rarediseases in Ghana. #Awareness #Advocacy #Research #Support.
الأمراض الن... @RareDiseaseKSA
1K Followers 761 Following للنادرين، منصة للمعرفة والتواصل لتمكين مرضى #الأمراض_النادرة وعائلاتهم .. شاركونا قصصكم وتجاربكم!
Association Turner et... @turner_vous
117 Followers 265 Following Association visant à créer l'interaction entre les personnes atteintes du syndrome de Turner et leurs proches en France et plus largement
Djouher AIT-IDIR @DjouherIdir
130 Followers 132 Following Enseignante-chercheuse: Biologie Moléculaire. J'aime enseigner et mes recherches sur: Genetics of Familial Mediterranean Fever. Algiers University (USTHB/UMBB)
MenaCare @MenaCare
106 Followers 729 Following To transform @Hospital2020.To advance medical practices @Med2020.To fund health innovators @HealthCapital and to develop the next center of excellence @MenaCare
Dzmq @Mohamed72040924
9 Followers 704 Following
GENPHARM @genpharmmena
618 Followers 764 Following Bringing #Cures to MENAT Patients. Commit. Connect. Cure
Marshall Summar, M.D. @genedocrare
517 Followers 466 Following I am the CEO of Uncommon Cures, a rare disease clinical trials company.
UAE Rare Disease Soci... @UAERDS
792 Followers 1K Following الحساب الرسمي لجمعية الإمارات للأمراض النادرة The official account of the United Arab Emirates Rare Disease Society #UAERDS
aitaiderhocine @aitaiderhocine
1 Followers 126 Following
Electronics On Demand @eodkenya
66 Followers 424 Following Discover the Best Electronics Shop in Nairobi. Your One-Stop Destination for Quality Appliances and Accessories!
VALLA MARIE MADELEIN @valla_marie
6 Followers 90 Following
ABC-Myopathie @ABCMyopathie
12 Followers 71 Following
OTTET Digital Health @OTTETeHealthTM
1K Followers 5K Following "Education for All, Healthcare for All & Services for All" for moral & spiritual regeneration of Mankind.
Undiagnosed? @RareDiseaseDDx
2K Followers 4K Following Use RareLook™ for a science-backed, DIY second opinion*. Share with doctor, who gets free RareMDx™ access, adds EHR data, generates rare diseases-included DDx.
ANE International @aneinternationa
770 Followers 857 Following We aim to raise awareness, provide information & support families with #AcuteNecrotizingEncephalopathy ANE is typically triggered by #Influenza & other viruses.
Malek BOURAS @bouras_malek
12 Followers 184 Following
nour @nour20162014
22 Followers 569 Following ce site a pour but de faire des démonstration sur la maniéré de créer son site
Association Shifa @shifadz
125 Followers 289 Following l'Association Shifa des Maladies NeuroMusculaires est une association des professionnels de la santé des malades et des familles de malades atteint de MNM
Hassan ouadi @hassanmadrid551
3 Followers 17 Following #لا_يكلف_الله_نفسا_الا_وسعها SnaP : Hassan.Ouadi Fb : hassan ouadi
Gwénaël Martin @gwenaelmartin
292 Followers 2K Following
Rare Aware @rare_aware
371 Followers 762 Following Our RARE ACTIVist programme needs YOU to help us raise awareness and funds for our cause, our patients, and ultimately the rare disease community.
Seratec @SeratecAPIs
136 Followers 441 Following Entrepreneurs de la chimie pharmaceutique, nous produisons des principes actifs pharmaceutiques (#APIs) pour le traitement de maladies rares & orphelines #OEYT
Surrenales @AssoSurrenales
249 Followers 107 Following L'association Surrénales regroupe les malades des glandes surrénales et soutient la Recherche,
Office for Rare Condi... @ORCGlasgow
2K Followers 1K Following The Office for Rare Conditions aims to raise awareness of rare conditions, enhance the quality of care provided & promote participation in multi-centre research
Leo H B @ILeoSHB
234 Followers 5K Following
GENIRIS @AssoGeniris
1K Followers 5K Following Aniridie, colobome, iris mal formé, mydriase, wagr, gillespie, rieger, peters, von hippel, cataracte et glaucome congenitaux, oeil sec; pb et greffes de cornée
ARSACS Ataxie Charlev... @Soniagobe
293 Followers 850 Following CoFounder of the Ataxia of Charlevoix-Saguenay Foundation and advocate for Ataxia.
MFCS @Muslimfamily90
1K Followers 4K Following Promoting & Building Sustainable Partnerships for family health and wellbeing, education, skill development & rights through community mobilization initiatives
Beyond the Diagnosis @BeyondtheDx
9K Followers 5K Following Beyond the Diagnosis unites art and science to raise awareness for children living with life-altering diseases.
Schmitt @geicko67
5 Followers 60 Following
عبدالمجيد ت... @TebbouneAmadjid
2.2M Followers 25 Following رئيس الجمهورية الجزائرية الديمقراطية الشعبية
pump.fun @pumpdopefun
666K Followers 169 Following Launch a coin that is instantly tradeable in one click for free: https://t.co/l2sIi1g8LD Support: https://t.co/kWuNWBysOo Download the mobile app 👇🏻
Wenstrade @wenstrade
43 Followers 122 Following Wenstrade SA. Empresa Argentina dedicada a la exportación de legumbres secas. Argentinian trading company of pulses and specialty crops
J&J Innovative Medici... @JNJInnovMed
16K Followers 766 Following We innovate with purpose to lead where medicine is going. Channel run by Janssen Global Services LLC, NJ, USA. Our community guidelines: https://t.co/aMAhBk9BBJ
UNICEF Algérie @UNICEFAlgerie
29K Followers 276 Following UNICEF Algérie oeuvre de concert avec différents partenaires pour la réalisation des droits des enfants en Algérie. #CompteOfficiel #pourchaqueenfant
Malika Bendouda @BendoudaMalika
10K Followers 15 Following
السلطة الوط... @INAE_DZ
23K Followers 6 Following السلطة الوطنية المستقلة للانتخابات Independent National Authority Of Elections
وزارة الشبا... @MJAlgerie
98K Followers 61 Following الحساب الرسمي لوزارة الشباب على موقع X . The official account| on the x (ex.Twitter ) of the Ministry of Youth 🇩🇿
وزارة الشؤو... @marwalgeria
146K Followers 0 Following الحساب الرسمي لوزارة الشؤون الدينية والأوقاف الجزائر
وزارة السيا... @TourismeArtisan
100K Followers 295 Following وزارة السياحة و الصناعة التقليدية الجزائر Ministère du Tourisme et de l'Artisanat
وزارة الصنا... @industry_gov_dz
117K Followers 40 Following وزارة الصناعة والانتاج الصيدلاني Ministry of Industry and Pharmaceutical Production
وزارة البري... @Mpt_gov_dz
84K Followers 63 Following الصفحة الرسمية لوزارة البريد والمواصلات السلكية واللاسلكية
وزارة الطاق... @Energy_gov_dz
22K Followers 34 Following Mohamed Arkab. Algerian Minister Of Energy and Mines . 🇩🇿
وزارة الفلا... @Madr_algerie
64K Followers 36 Following Ministère de l'Agriculture, du Développement Rural
وزارة الشؤو... @Algeria_MFA
309K Followers 294 Following وزارة الشؤون الخارجية - الجزائر 🇩🇿 | Ministry of Foreign Affairs - Algeria
Paraguay Mission to t... @ParaguayONU
4K Followers 805 Following 🇵🇾🇺🇳Desempeño diplomático del Paraguay en las Naciones Unidas en Nueva York 🤝Diplomacia profesional al servicio del país 🔗 Síguenos en Instagram:
Cyprus Mission to the... @CyprusinUN
13K Followers 539 Following Official account of the Permanent Mission of the Republic of Cyprus to the UN
GeorgiaUN @GeorgiaUN
8K Followers 839 Following Permanent Mission of Georgia to the United Nations საქართველოს მუდმივი წარმომადგენლობა გაერთიანებული ერების ორგანიზაციასთან
UN Lebanon Mission @LebanonUN
9K Followers 330 Following Official Account of the Permanent Mission of Lebanon to the United Nations in New York
Türkiye at UN @TC_BMDT
9K Followers 275 Following Türkiye Cumhuriyeti Birleşmiş Milletler Daimi Temsilciliği Resmi Hesabı / Official Twitter Account of the Permanent Mission of Türkiye to the United Nations
Republic of Korea Mis... @ROK_Mission
4K Followers 225 Following 주유엔대한민국대표부 | The official account of the Permanent Mission of the Republic of Korea to the @UN President of the #UNSC for the month of September
Malaysia Mission to t... @MYNewYorkUN1
7K Followers 668 Following Permanent Mission of Malaysia to the United Nations, New York 🇲🇾🇺🇳
Dominican Republic Mi... @DominicanRepUN
3K Followers 429 Following This is an archive of the membership of the Dominican Republic to the United Nations Security Council
Greece in the United ... @GRUN_NY
5K Followers 550 Following The official account of the Permanent Mission of 🇬🇷 to the 🇺🇳 | Website: https://t.co/6sBivVZgPA
Dominican Republic Mi... @RDenONU
4K Followers 743 Following Cuenta oficial de la Misión Permanente de la República Dominicana 🇩🇴 ante las Naciones Unidas (ONU).
Czech UN NY Mission @CZAmbUNNY
10K Followers 825 Following Official twitter account of the Permanent Mission of 🇨🇿#Czechia to the #UN in New York. Permanent Representative: @JakubKulhanek
Mongolian Mission to ... @nymongolia
5K Followers 857 Following The Permanent Mission of Mongolia to the United Nations/Монгол Улсаас НҮБ-ын дэргэд суугаа Байнгын төлөөлөгчийн газар/Official Government page
GrenadaUN 🇬🇩 @GrenadaUN
2K Followers 316 Following Official Twitter account of the Permanent Mission of #Grenada to the United Nations
Costa Rica @ the UN @CostaRicaONU
6K Followers 1K Following Twitter oficial de la Misión Permanente de Costa Rica ante Naciones Unidas. Síganos para más información de las iniciativas de Costa Rica ante la ONU. 🇨🇷🇺🇳
Austria UN @AustriaUN
14K Followers 1K Following Permanent Mission of Austria to the United Nations in New York 🇦🇹🇪🇺🇺🇳
Monaco à l'ONU @Monaco_ONU
3K Followers 287 Following Compte Twitter officiel de la Mission permanente de #Monaco à l'#ONU / Official Twitter account of the Permanent Mission of Monaco to the @UN
Misión Permanente de... @BoliviaUNNY
7K Followers 355 Following Cuenta Oficial de la Misión Permanente del Estado Plurinacional de Bolivia ante las Naciones Unidas.
Andorra UN @ANDORRA_UN
4K Followers 985 Following Official account of the Permanent Mission of the Principality of Andorra to the United Nations🇦🇩🇺🇳 and Embassy to 🇺🇸🇨🇦🇲🇽Retweets are not endorsements.
Perú en la ONU 🇵�... @PeruEnLaONU
5K Followers 346 Following Cuenta oficial de la Representación Permanente del Perú ante las Naciones Unidas en Nueva York.
Antigua & Barbuda NY @ABNYOffice
4K Followers 773 Following Official Twitter for the NY Offices of Antigua & Barbuda Representing the Permanent Mission to the U.N.,The Consulate General and Tourism
Permanent Mission of ... @KazakhstanUN
9K Followers 1K Following Welcome to the official account of the Permanent Mission of Kazakhstan to the United Nations! Follow also Permanent Representative Kairat Umarov @AmbKazUN
Albania in UN @AlMissionUN
17K Followers 396 Following The official twitter account of the Permanent Mission of the Republic of Albania to the United Nations in NY. Follow Ambassador @suelajanina #AlbaniaUN
Belarus UN NY 🇧�... @BelarusUNNY
7K Followers 581 Following Пастаяннае прадстаўніцтва Рэспублікі Беларусь пры Арганізацыі Аб'яднаных Нацый / Permanent Mission of the Republic of Belarus to the United Nations
Permanent Mission of ... @ThailandUN
12K Followers 1K Following Thailand was the 55th member to join the UN (1946).
NZ at the UN @NZUN
20K Followers 1K Following Official Twitter account for the Permanent Mission of New Zealand to the United Nations in New York. Permanent Representative: @CSchwalgerNZ
Libyan Mission To UN @LibyaToUN
16K Followers 98 Following The official page of the Libyan Mission To The United Nations (الصفحة الرسميه (بعثة ليبيا لدى الامم المتحدة – نيويورك
Liechtenstein UN @LiechtensteinUN
16K Followers 310 Following Official Account of the Permanent Mission of Liechtenstein to the UN. Retweets are not endorsements.
SwedenUN 🇸🇪 @SwedenUN
66K Followers 2K Following #DigitalDiplomacy from the Permanent Mission of Sweden 🇸🇪 to the #UN 🇺🇳 in #NYC. Follow our Ambassador @NicolaClase
Mission of Jordan to ... @JordanUN_NY
18K Followers 474 Following The Permanent Mission of The Hashemite Kingdom of Jordan to the United Nations. البعثة الدائمة للمملكة الأردنية الهاشمية لدى الأمم المتحدة - نيويورك
Denmark in UN NY🇩�... @Denmark_UN
38K Followers 2K Following Permanent Mission of Denmark to the United Nations Elected member of the Security Council 2025-2026 #DKonUNSC PR @CMarkusLassen Reposts are not endorsements.Trends for United States
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