ActiOn PACT Study @actionpactstudy
ActiOn PACT Study Randomised control trial using novel web platform to monitor & change #physicalactivity in #cysticfibrosis Funded by @cftrust & @sport_england cysticfibrosis.org.uk/get-involved/c… Joined July 2021-
Tweets9
-
Followers65
-
Following210
-
Likes0
If you have #cysticfibrosis, we would really appreciate you checking out our new study! EVERYTHING is done at home (all measurements and forms), so no need for extra trips to hospital. If you're interested, please do get in touch via the contact link➡️bit.ly/3hv81vP
0
1
2
0
0
Download Image
The ActiOn PACT Study is a novel #clinicaltrial, based upon the preliminary findings of this amazing feasibility study, looking at the acceptability of the platform in #cysticfibrosis! rc.rcjournal.com/content/60/3/4…
If you'd like to know more about the ActiOnPACT Study, we are registered on the Clinical Trials register from @NIH ➡️clinicaltrials.gov/ct2/show/NCT04… Interested in taking part? Pop your details in here➡️bit.ly/3hv81vP
The ActiOn PACT Study is an exciting trial examining how online technology can help with #physicalactivity We are funded by both @cftrust and @Sport_England To learn more and sign up, check us out here! ➡️bit.ly/3k9Eutf #research #cysticfibrosis
Jane Bell @JaneB3ll
353 Followers 626 Following Belfast HSCT encompass Physiotherapy transformation lead// paediatric CF physiotherapist
Cystic Fibrosis KW @CF_KW
552 Followers 178 Following Kitchener-Waterloo and District Chapter (Ontario) covers Cambridge in the south, north to Tobermory, west to Kindcardine, east to Fergus
Jamie Stephenson 🦜... @ssnjimb
2K Followers 5K Following I'm Jamie I suffer from #Cysticfibrosis I'm #openlyautistic They/Them 🌈 love Music/vintage computers, #CureCF #Supportthestrikes. Only Follows Back Real PPL
Medibanx @Medibanx
102 Followers 429 Following Empowering rare disease research through patient-centric longitudinal data aggregation and active patient participation.
Natalie Johanna Goodc... @_nataliejohanna
3K Followers 880 Following Brand Strategy + Messaging Consultant 🧠💡| Personal Trainer 🌿 | Cystic Fibrosis 🧬 | Health + Sustainability 🌊 | Involvement Advocate 🙌🏻
MECFA @mecfassoc
465 Followers 646 Following Working to help Middle East Cystic Fibrosis patients live longer healthier lives. Follow us to learn how we make a difference.
HealthHubble @HealthHubble
746 Followers 870 Following 🔸Award-winning Health & Wellness Directory & Digital Marketing Services 🔸 Helping clinics & therapists reach new clients 🔸Subscribe here https://t.co/hNe6FYyEGY 🔸
Cystic Fibrosis Resea... @CFRI_CureCF
2K Followers 2K Following CFRI funds research, provides educational resources and community support, and spreads #cysticfibrosis awareness. #curecf. For more info, visit https://t.co/H2fMOwqQ8c.
Respiratory Nursing T... @BwchResp
601 Followers 762 Following The official twitter page for the Respiratory Nursing Team at Birmingham Children's Hospital @BWC_NHS All Tweets by Respiratory Nursing Team.
Hannah King @hannahkingRD
556 Followers 531 Following Cystic Fibrosis Dietitian 🫁 Currently seconded as adult clinical lead dietitian. UoN grad 2019 👩🏼🎓MSc Clinical Nutrition in progress. Tweets own views 💫
Megan Danielle @MeganDanielless
158 Followers 610 Following Slowly healing the brokenness inside of me
heidi sammons 🪷 @heidisammons
2K Followers 5K Following Proud mama & Salty Bitch with Cystic Fibrosis CU-alum 1992 LET’S GO BUFFS #65Roses
Loren Cameron @LorenCameron_
121 Followers 339 Following Programme Manager for the @cftrust @lifearc1 Translational Innovation Hub Network for Lung Health & Infection in #cysticfibrosis. All views my own.
Dr Zoe Saynor (she/he... @Zoe_Saynor
2K Followers 3K Following Associate Prof Clinical Exercise Physiology @HSciences @unisouthampton @UHSFT 🏉@theRPA Women’s Welfare Chair / Retired @Harlequins🃏& @EnglandRugby🌹#184🏳️🌈
Wendy 🍵 @wendy_foo_
712 Followers 2K Following #CysticFibrosisOT and Mental Health First Aider. Yuanyang tea lover. All views my own. She/ hers. 🇸🇬 lost in 🐝Mcr
CliniCabin @CliniCabin
556 Followers 5K Following CliniCabin is an innovative modular cabin. Originally designed with respiratory diagnostics in mind we’re striving to help adapt the NHS to a postpandemic world
Question CF @questionCF
2K Followers 2K Following 2017 we found the 10 most important questions you thought should be answered by clinical trials in CF. We’re looking again.
YouthActiveUnlimited @CF_ActiveYouth
519 Followers 1K Following Youth Activity Unlimited is one of the Cystic Fibrosis Trust’s Strategic Research Centres - dedicated to helping adolescents with CF to be active without limits
Birmingham Clinical T... @Predict_Prevent
301 Followers 954 Following Clinical Investigation into the use of a personalised early warning decision support system to predict and prevent acute flare ups of COPD.
Cindy bill @Ibrahim26723475
143 Followers 828 Following WORK FROM HOME & MAKE AN EXTRA $1000/WEEK WITH AFFILIATE MARKETING. Click to get your training. https://t.co/GOPCWeEacq
Family Prints Art @PrintsFamily
44 Followers 352 Following We have a large selection of digital art with Contemporary Design. Discover wall decor for every room and style.
Joanne Barrett @JoMBarrett
195 Followers 198 Following NIHR Doctoral Fellow @UBSportExR @Unibirmingham Specialist CF Dietitian at West Midlands Adult CF Centre @CF_dietitians @uhbtrust The More Life with CF Study
Jayne Faulkner 💙 @PhysioJayne
264 Followers 362 Following 🫁 🩺 Respiratory Physio-CF & Bronchiectasis|Affected by stroke|Interests: ACT, Rx adherence, exercise, QI, digital healthcare, patient experience…
Rachael Fleming @RachaelBass15
317 Followers 130 Following Respiratory Physiotherapist, Adult Cystic Fibrosis Team, Newcastle
Gray Hair CF Club @GrayHairCFClub
2K Followers 4K Following A simple site for CFers with gray hair, CFers who plan to have gray hair, or those who love CFers with gray hair. http://t.co/Rt9N5u9G
CFArtists @CF_Artists
2K Followers 4K Following From the most basic to the most advanced artwork from Cystics, let the world see your talent.
WAHT_PARC @ParcWaht
204 Followers 214 Following Paediatric Allergy Respiratory Cystic Fibrosis. An MDT based at Worcestershire Acute Trust - Doctors, Specialist Nurses, Physio, Psychologist, & Dietitian
Ali Gates @AliGates8
403 Followers 354 Following Physiotherapist, Oxford Adult Cystic Fibrosis Centre and non-CF bronchiectasis. Interested in ACT, NIV, inhaled therapies and all things that come in a glass.
CF Vests Worldwide @CfVests
7K Followers 7K Following Established in 2020 as the original & only 501(c)(3) corporation to donate Cystic Fibrosis vests, Hill Rom and RespirTech, to CF patients around the world.
Ali's Gift @Alis_Gift
136 Followers 183 Following We work to remove the unique challenges people with Cystic Fibrosis face so that CF is never the reason they miss out on travelling, study, whatever they want!
Showkraft PS @showkraftps
103 Followers 250 Following With more than 21 years of reputable experience, Showkraft and our trusted industry professionals offer full service audio visual production solutions
CF BDA Specialist Gro... @bda_cf
562 Followers 525 Following British Dietetic Association Cystic Fibrosis Specialist Group, Established over 20 years ago, but launched as an official BDA Specialist Group on 1 March 2019
Perfectly Imperfect P... @PrintsByPIP
42 Followers 234 Following Just a graphic desinger & CF fighter trying to bring more beauty into this world through my art while helping to raise awareness for Cystic Fibrosis.
JohnLowmanPT @JohnLowman_PT
263 Followers 236 Following Physical Therapist: Clinician, Educator, Researcher | Assoc Prof & Dir of Residency Educ | #cysticfibrosis #ICUmobility #cvpPT #teambasedlearning #PTresidency
NICHOLA @nichrey35
147 Followers 1K Following Cf Mum 2 the most amazing little 6 year old. mum 2 a furry old girl, aquarian, borderline nutter, wine drinker. keen cyclist & organic farmer 🌷
NuvoAir Medical @NuvoAir
747 Followers 1K Following NuvoAir Medical is a virtual healthcare provider that’s changing the way heart and lung conditions are diagnosed, monitored, and managed.
Lisa Morrison @LisaMorr1992
480 Followers 413 Following
Sarah Rand @PhysioSarah
706 Followers 1K Following Physiotherapist | Lecturer @UCLphysio @RCSIPhysio | Researcher | PhD student @CanterburyCCUni #physio #exercise #physicalactivity #healthtech 🇮🇪➡️🇬🇧➡️🇸🇪
Catherine Fordyce @Cath4dice
244 Followers 332 Following Specialist CF Physiotherapist @ MACFC. CF Trust Physiotherapy Fellow 2019-2020. Views are my own
UoP Clinical, Health ... @CHaRT_UoP
537 Followers 767 Following Official Twitter account for the Clinical, Health & Rehabilitation Team (CHaRT) at the University of Portsmouth (@UoPSportScience) led by @ShepherdAnt
ACPCF research @AcpcfR
327 Followers 76 Following Research officer of the Association of Chartered Physiotherapists in Cystic Fibrosis, UK. Views are my own.
Nicola Wilson-Torch @NicolaTorch
958 Followers 2K Following @sgsah AHRC PhD student @stirpublishing looking at social media and the publishing ecosystem 🔍 / Cystic Fibrosis 🫁 / Northerner in Scotland 🏴
Paed Resp CNS & PNA @PaedRespNurse
764 Followers 2K Following Paediatric Respiratory Nurse Specialist #NMP #PNA @uhbtrust Introvert, Geek, Lover of Naps, Daydream Believer, Time Traveller Wannabe.
Lorna Allen @alloonsl
809 Followers 1K Following Cystic Fibrosis mum, raising awareness of ongoing critical resesrch need to safeguard the lives of those with the condition IT'S NOT JUST LUNGS;Views are my own
ACPRC @TheACPRC
12K Followers 2K Following Association of Chartered Physiotherapists in Respiratory Care. Promoting health and best practice in respiratory physiotherapy for the benefit of all.
Charlotte @Ce_wells
594 Followers 431 Following Physiotherapist, researcher and lecturer. Specialising in breathing pattern retraining, EILO, kids asthma, long-covid, exercise & I love arts in health.
Shane Howard Magill @TransManKnits
293 Followers 455 Following If it wasn't for my C.F. team I wouldn't be half the man I am today. I can't thank them enough for all their recent support.
Gemma Stanford (PhD) @GemStanf
650 Followers 371 Following Head of AHP Research for the HLCC clinical group of GSTT, YOGA-CF co-PI, specialist CF physiotherapist. Current chair of the ECFS PhySIIG. All views my own.
heidi sammons 🪷 @heidisammons
2K Followers 5K Following Proud mama & Salty Bitch with Cystic Fibrosis CU-alum 1992 LET’S GO BUFFS #65Roses
Loren Cameron @LorenCameron_
121 Followers 339 Following Programme Manager for the @cftrust @lifearc1 Translational Innovation Hub Network for Lung Health & Infection in #cysticfibrosis. All views my own.
Wendy 🍵 @wendy_foo_
712 Followers 2K Following #CysticFibrosisOT and Mental Health First Aider. Yuanyang tea lover. All views my own. She/ hers. 🇸🇬 lost in 🐝Mcr
Question CF @questionCF
2K Followers 2K Following 2017 we found the 10 most important questions you thought should be answered by clinical trials in CF. We’re looking again.
Becca @BeccaCosgriff
992 Followers 833 Following Deputy Director, Data for R&D, @NHSTransform. All views my own.
Vicky Coxhead ⫩ @vickser22
615 Followers 3K Following loving mum to my 4 beautiful children. Cystic Fibrosis and Autism are a big part of life but my hubby and of course Mr Gary Barlow helps! My blog @sendmummyblog
Alex Horsley @AlexRHorsley
804 Followers 330 Following No longer using Twitter. Have moved to a sunnier platform.
YouthActiveUnlimited @CF_ActiveYouth
519 Followers 1K Following Youth Activity Unlimited is one of the Cystic Fibrosis Trust’s Strategic Research Centres - dedicated to helping adolescents with CF to be active without limits
Birmingham Clinical T... @Predict_Prevent
301 Followers 954 Following Clinical Investigation into the use of a personalised early warning decision support system to predict and prevent acute flare ups of COPD.
Respiratory Nursing T... @BwchResp
601 Followers 762 Following The official twitter page for the Respiratory Nursing Team at Birmingham Children's Hospital @BWC_NHS All Tweets by Respiratory Nursing Team.
Benat Broderick @BenatBroderick
4K Followers 590 Following CF Advocate 🪁 ΔF508 💜 | Writer, Speaker, Activist
Team Cystic Fibrosis @teamCFhudds
286 Followers 254 Following Local family and friends in Huddersfield West Yorkshire, planning fundraising events of all types to raise money and awareness for Cystic Fibrosis.
Sophie Grace Holmes @SGHOLMES_
1K Followers 387 Following CEO | Strength/Tri Coach Endurance Athlete | Ironman | Cystic Fibrosis 📧[email protected]
DRudd @CF_Dad
961 Followers 919 Following Just cure CF. Three beautiful daughters...two have Cystic Fibrosis and they are winning the daily battle!
Cure Cystic Fibrosis @KatyLovell
376 Followers 262 Following Full time mum, full time carer for my boy with #cysticfibrosis work part time at a pre school and have my own buissness. #livefortoday #sixtyfiveroses
Cystic Fibrosis Peel @CF_Peel
314 Followers 228 Following Our mission is to help people with cystic fibrosis. Email us at: [email protected]
CFF Chicago @CFF_Chicago
777 Followers 807 Following @CFF_Chicago supports the search for a cure for cystic fibrosis by fundraising, promoting awareness & providing community support.
REGINA SORENSEN 👩�... @BBreggie
5K Followers 2K Following Winner of Big Brother 2022 and BB2003, 2 beautiful kids, I have Retinitis Pigmentosa /Ushers 2 My son has Cystic Fibrosis, https://t.co/zVhVcfl2j9
Laura Teicher Bonnell... @LauraTbonnell
2K Followers 2K Following Covered breaking news in Detroit. Founder of the Bonnell Foundation: helps families w/ cystic fibrosis. [email protected]
Continent Chasers @ContinentChaser
2K Followers 2K Following ✈️ Exploring the 🌍 | 92 countries! 🇮🇪 Irish Husband 🇵🇱 Polish Wife 💜 Living with #CysticFibrosis, loving life 📍 Sharing travel, love & adventure
CF Scotia Chapter @CF_Scotia
431 Followers 378 Following Cystic Fibrosis Canada - Scotia Chapter raises funds to help Canadians with cystic fibrosis live longer, healthier lives.
Peter Oxford @Peter_Oxford
19K Followers 4K Following Australian Creator of SHOWCASE Australian Dance Championships, I have Cystic Fibrosis & Ambassador, Airline crew insta @peteroxford_official
C.C. Redmerski: Cysti... @cc_redmerski
180 Followers 597 Following If I can do it, so can you!! 💪🏼🗣 If you know anyone struggling with Cancer, chronic illness, depression, anxiety, or cystic fibrosis! #34withcf #notransplant
Cystic Fibrosis Found... @CFF_WestFlorida
130 Followers 120 Following Welcome to the official Twitter account for the Cystic Fibrosis Foundation - West Florida Chapter. https://t.co/wA7jPbhZP6
CYSTIC FIBROSIS INDIA @cfindiaofficial
247 Followers 287 Following Cystic Fibrosis Trust of India. Official Account of Cystic Fibrosis patient in India. #waiting for miracles #waitingformiraclemedicine
Cystic Fibrosis Scotl... @ScotlandCF
120 Followers 112 Following Information and discussion relating to #CysticFibrosis in #Scotland.
Cystic Fibrosis Regis... @CFRegistryIE
210 Followers 145 Following Official CFRI twitter. The patient registry for people with cystic fibrosis in Ireland. Retweets not an endorsement. Seek the advice of your physician.
The Frey Life @TheFreyLife
7K Followers 78 Following We are daily vloggers on Youtube showing the ups and downs of everyday life with Cystic Fibrosis!
Nick Talbot @CF_vs_Everest
2K Followers 922 Following CEO & Motivational Speaker with Cystic Fibrosis (CF) achieved world first climbing the 7 Summits and reaching the South Pole for CF.
Jillian McNulty @jilli09
4K Followers 3K Following Award Winning Cystic Fibrosis Campaigner. 2017 Longford Person Of The Year, Kidney Transplant Recipient 💚Spearheaded Ireland’s #Orkambi Campaign #mymiracle
Kathleen Jones @HelloKathleenJ
1K Followers 876 Following 👩🏼💻 Writer ⛹️♀️ Liberty fan account May-Oct 🗽🏀
Living Hope 💜 @NkhosiLa
64K Followers 19K Following End Stage Cystic Fibrosis warrior ❤😷💪 Pulmonary Hypertension https://t.co/mHsSHeezvm Blogger Health advocate
Jarrod McKee @jarrodmckee
593 Followers 680 Following Passionate father of 3. Fiercely optimistic. On a mission to add tomorrow’s for those with Cystic Fibrosis(my son) #cysticfibrosis #Dadvocate
Holly Rosanna 🌻 @hollyrosanna
3K Followers 405 Following Final year OT Student 💚 lived experience: Cystic Fibrosis, ICU, Double lung transplant 02/2015 🫁
Team Cystic Fibrosis @team_cf_aware
763 Followers 463 Following A charity cycling team raising awareness of Cystic Fibrosis in the UK. Organisers of the 65 Roses Sportives & the 2015 National Circuit Race Championships
Natalie Johanna Goodc... @_nataliejohanna
3K Followers 880 Following Brand Strategy + Messaging Consultant 🧠💡| Personal Trainer 🌿 | Cystic Fibrosis 🧬 | Health + Sustainability 🌊 | Involvement Advocate 🙌🏻
Cystic Fibrosis @cepacia
750 Followers 71 Following Burkholderia Cepacia and Cystic Fibrosis Information - http://t.co/5zHP13QT25 - CF
Cystic Fibrosis teen @Cysticteenlife
864 Followers 726 Following I'm a 16 year old girl with Cystic Fibrosis, my aim is to contact other people with CF:) I follow back!
Jayne Faulkner 💙 @PhysioJayne
264 Followers 362 Following 🫁 🩺 Respiratory Physio-CF & Bronchiectasis|Affected by stroke|Interests: ACT, Rx adherence, exercise, QI, digital healthcare, patient experience…
D @ProfDGDowney
960 Followers 731 Following Professor of Respiratory Medicine. Specialising in #cysticfibrosis #bronchiectasis #research #clinicaltrials. Struggling musician. All views my own.
Joanne Barrett @JoMBarrett
195 Followers 198 Following NIHR Doctoral Fellow @UBSportExR @Unibirmingham Specialist CF Dietitian at West Midlands Adult CF Centre @CF_dietitians @uhbtrust The More Life with CF Study
Clare Reilly @clarecmr100
327 Followers 674 Following CS Physio National CF unit SVUH. Therapy lead on the NCPCF. Education officer for @ECFSPhySIG Mum of 2 crazies. DSO Viola player 4 fun. Proud Nordie.
Nick Medhurst @NickMedhurst
1K Followers 2K Following Team Lead @GoodTrials Funded by @WellcomeTrust & @gatesfoundation
Madeline Pilbury 💙 @maddiephysio
227 Followers 203 Following 🫁 Paediatric #cysticfibrosis Physio @StockportNHSFT 🩺 OutOfHours @RMCH_physio @APCPresp committee
Jerry Cahill @jcahillYCF
4K Followers 4K Following Director Team Boomer, CF/Organ Donor Advocate. Recipient of Lung, Liver, Kidney Transplants.Public Speaker/Author, Founder YOU CANNOT FAIL. Pole Vault Coach
Teresa #kaftrio @CFinit4ALLuk
475 Followers 704 Following campaigning 4 ALL fighting this hideous disease #CF 2 have the best Precision meds #LifeSavingDrugs4ALL on the NHS #STOPTHECLOCK #WeHaveKaftrio #Now4thelast10%
Rachael Fleming @RachaelBass15
317 Followers 130 Following Respiratory Physiotherapist, Adult Cystic Fibrosis Team, Newcastle
Harriet Shannon @HarrietShannon
2K Followers 3K Following Physiotherapist, love teaching at UCL, supporter of creative learning, enjoy wandering.Trends for United States
275 B posts
197 B posts
197 B posts
461 B posts
2.232 posts
31,6 B posts
3.125 posts
8.009 posts
69,7 B posts
2.106 posts
27,2 B posts
15,5 B posts
100 B posts
54,6 B posts
11,3 B posts
4.590 posts
111 B posts
1.971 posts
You might like
UHB CF Physios
@CF_physios
486 Followers
Dan Beever
@Dan_Beever
275 Followers
CF BDA Specialist Gro...
@bda_cf
562 Followers