CF STORM @cfstormstudy

Working with the CF community to find out if we can reduce long term nebulised treatments once people with cystic fibrosis are established on triple therapy. cfstorm.org.uk United Kingdom Joined April 2022

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CF STORM @cfstormstudy

a year ago

We did it🏅591 participants now in follow-up! Thank you SO much to everyone continuing to making the trial such a success!! @cfstormstudy @cfstrust @livuni_LCTC @DaviesGwyneth #cysticfibrosis

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CF STORM @cfstormstudy

a year ago

We are delighted to announce that we only have 20 participants left to recruit! ✨Can you help us reach our goal by the end of July so we can finally answer this important research question? @cfstormstudy @cfstrust @livuni_LCTC @DaviesGwyneth #cysticfibrosis

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CF STORM @cfstormstudy

a year ago

Keep going 🤩, thanks so much to all the sites who helped us reach our recruitment target for April AND May! With two months left we are on track to reach our recruitment target at the end of next month🏆 #cfstrust @DaviesGwyneth @livuni_LCTC

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CF STORM @cfstormstudy

a year ago

CF STORM Breakfast meeting #ECFS2024 fantastic to see those faces behind the CF STORM trial!! #Glasgow #cfstrust @DaviesGwyneth @livuni_LCTC

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CF STORM @cfstormstudy

a year ago

Thank you for all your efforts towards recruitment for @cfstormstudy. We are now on ✨528✨ We are holding a breakfast meeting at ECFS in Glasgow to discuss all things CF STORM. All @cfstormstudy team members are welcome to join us. @cftrust @DaviesGwyneth @livuni_LCTC

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CF STORM @cfstormstudy

a year ago

✨1000✨ patients randomised into CF Registry based trials (CF START and CF STORM)! What an achievement and what a great resource the CF Registry is for our community @CF_START @cfstormstudy @cfstrust @livuni_LCTC @DaviesGwyneth #cysticfibrosis

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CF STORM @cfstormstudy

a year ago

The @cfstorm trial finishes recruitment in the summer & we are still on track to achieve our target. Sites across the UK are looking for patients to help & by recruiting ✨2✨ in each centre we will hit our target. Thanks everyone, keep going, we can smash this😊 @cftrust

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CF STORM @cfstormstudy

a year ago

500 patients now recruited! Well done #KingsCollegeNHS for the 500th recruit🌟 almost there ... @cftrust @NIHRresearch @DaviesGwyneth @livuni_LCTC

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CF STORM @cfstormstudy

2 years ago

Only 99 patients left to recruit onto the study✨a BIG thank you👏 to all of the sites and people with CF involved in making this research possible!! We're almost there... @cftrust @NIHRresearch @DaviesGwyneth @livuni_LCTC

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CF STORM @cfstormstudy

2 years ago

What a milestone! We are now 80%✨ of the way to reaching the #CFSTORM recruitment target💛! We have welcomed an amazing 28 recruits already into the trial this month👏! @livuni_LCTC @cftrust @NIHRresearch #cysticfibrosis

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CF STORM @cfstormstudy

2 years ago

Happy New Year CF STORM team! We welcomed 20 new participants onto the trial in December big shout out to all our peadiatric sites introducing the 6+years onto the trial 👏 Lets make January another big month 💛 @cftrust @DaviesGwyneth @livuni_LCTC

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CF STORM @cfstormstudy

2 years ago

Did you know that we're now inviting 6-11 year olds to take part @cfstormstudy?!? Please speak to your local CF team to find out more 💛 and visit cfstorm.org.uk #cysticfibrosis @livuni_LCTC @cftrust @NIHRresearch

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CF STORM @cfstormstudy

2 years ago

📣400+ Recruits & Counting!📣Big thank-you to each and everyone of you taking part🩷Congratulations to all of our 38 amazing #NHS sites for reaching this milestone👏Special shout out to Heartlands @uhbtrust for recruiting the 400th participant @cftrust @DaviesGwyneth @livuni_LCTC

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CF STORM @cfstormstudy

2 years ago

Congratulations to Dr Pasteur and his team at Norfolk and Norwich University Hopsital for recruiting their first two patients to @cfstormstudy @NNUH @livuni_LCTC @cftrust @NIHRresearch #cysticfibrosis #TeamNNUH

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CF STORM @cfstormstudy

2 years ago

Thank you to Dr Ross Langley and his team at @RHCGlasgow for randomising @cfstormstudy participant 350! @livuni_LCTC @DrLouThomson @AnnieMayAvenue

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CF STORM @cfstormstudy

2 years ago

Thank you to the @cftrust for highlighting 'Five things about research to give us hope for the future' and for giving @cfstormstudy a mention! We could not carry out this trial without the unwavering support of the @cftrust and the brilliant team at the CF Registry. @livuni_LCTC

Gwyneth Davies @DaviesGwyneth

2 years ago

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Cystic Fibrosis Trust @cftrust

2 years ago

✨ Welcome to CF Week 2023! ✨ Join us as we come together, raise awareness of #cysticfibrosis and unite for a life unlimited. Head to our website to find out how you can unite with us this CF week. 💛 ➡️ ow.ly/GnjR50OKAOB

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CF STORM @cfstormstudy

2 years ago

Please join the co-Is of the @cfstormstudy at ECFS in Vienna next week. We are holding a breakfast meeting on Friday the 9th of June to discuss all things @cfstormstudy

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CF STORM @cfstormstudy

2 years ago

Could you help us with the @cfstormstudy? For more information, please visit cfstorm.org.uk or use the QR code on the poster below. @livuni_LCTC @cftrust @NIHRresearch #cysticfibrosis

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CF STORM @cfstormstudy

2 years ago

Did you know that the name for the @cfstormstudy came from a member of the CF community? Can you work it out? If you would like more information about the study please speak to your clinical team or visit: cfstorm.org.uk #cysticfibrosis @livuni_LCTC @cftrust