thecosmicproject @cosmic__project
An international, collaborative, multi-stakeholder project to define the minimum outcomes to be reported in future meningioma clinical studies. thecosmicproject.org Liverpool, United Kingdom Joined March 2021-
Tweets16
-
Followers98
-
Following195
-
Likes16
@info_TGHN @prw_paula @WHO @JeremyFarrar @vaseemoorthy Hear directly about the WHO guidance for clinical trials. Includes “Use of standardized core outcome sets…. should be considered for all trials, to enable the results of studies being compared, contrasted and combined (for example, in later meta-analyses) as appropriate” 👏
Getting a first look at the results of the @cosmic__project by @CM_Neurosurgeon - looking forward to seeing the published results.
Have you registered for The COSMIC Project? If so, there are only 4 days left to complete round 2. Only those completing both rounds will have their data included and be listed as a collaborator. Sign in at thecosmicproject.org
Patient voice is vital to good clinical trial design and we need as many patients with meningioma to take part as possible. Please contribute and retweet: @meningioma_host @meningioma @LadyMeningioma @meningiomaMama @meningiomamomma @itsmeningioma @meningiomauk
The @cosmic__project is featured in this months @theIBTA newsletter. Sign up had shape the future of meningioma clinical research.
The @cosmic__project is featured in this months @theIBTA newsletter. Sign up had shape the future of meningioma clinical research.
Do you or someone you know have a #meningioma? Would you like to help improve how we do future meningioma research? @cosmic__project are looking for patient/ carer opinions on the relative importance of the effects of treatment. Get involved👉 buff.ly/3a9GvD4
Do you or someone you know have a meningioma (a type of brain tumour)? Would you like to help us improve how we do future meningioma research? If so, we would like to invite you to take part in The COSMIC Project @cosmic__project To find out more, visit thecosmicproject.org
The @cosmic__project has launched! Help define core outcomes for future meningioma clinical research and be listed as a collaborator. FMI visit thecosmicproject.org Healthcare professionals/researchers, register for both: delphimanager.liv.ac.uk/COSMIC-Interve… delphimanager.liv.ac.uk/COSMIC-Observa…
Read about what we are doing here: Development of ‘Core Outcome Sets’ for Meningioma in Clinical Studies (The COSMIC Project): protocol for two systematic literature reviews, eDelphi surveys and online consensus meetings @BMJ_Open bmjopen.bmj.com/content/12/5/e…

Bryon O'Reilly @bryon_o29390
35 Followers 2K Following
Queen Square Simulati... @QS_SimCentre
2K Followers 2K Following Establishing the UK’s dedicated neuroscience simulation centre to deliver state-of-the-art high-fidelity simulations and augmented clinical training.
Magdy Ismail @magdyism
111 Followers 442 Following Professor of pathology Faculty of medicine Zagazig University
Ciaran Scott Hill @ciaranscotthill
686 Followers 612 Following Academic Neurosurgeon • Brain Tumour Research • @uclh @QSNeurosurgery @uclcancer • 🏔 • always learning 📚
Dr C P Millward @medic_moderator
10 Followers 251 Following Medical Doctor. Academic. MHRA Medical Assessor. Independent moderator/facilitator for healthcare-based meetings and patient engagement activities.
Jessica Ryan @jessmryan
397 Followers 433 Following General Surgery HST ➡️ Surgical handover PhD ISTG Past President BJJ black belt Defining what matters in surgical handover @SH_COREStudy
Surgical Handover Cor... @SH_COREstudy
243 Followers 1K Following Meet the #SHCORE team https://t.co/feBE0cclv7 Follow our progress here: https://t.co/MmYED60Y2f Funded by @TheMPSfdn & @BSHSIreland
Sanchita Bhatia @bhatia_sanchita
459 Followers 1K Following Incoming TEQ fellow in neurotechnology and AI @QSneurosurg Passonate about neurosurgery and coding 🧠 🤖👩💻
Yousif @Yousif__Ali
1K Followers 1K Following Neurosurgery Resident 🧠 | @ucl grad | Ex President @RUMSUnion @SIMA__UK @INNC2021 | 🇮🇶
Manchester Skull Base... @MCRskullbase
1K Followers 969 Following Manchester Skull Base team. One of the largest #skullbase units in the UK. Offering a first class service to patients; leading the way in research and training.
COBra Study @StudyCobra
49 Followers 48 Following Research Study: COBra (Patient Reported Core Outcomes in Brain Tumour Trials) aims to understand the experiences of people affected by glioma.
Ola Rominiyi @OlaTweetz
1K Followers 4K Following Neurosurgery | Brain Tumour Research | Adopted by Sheffield : )
William H. Cook @WilliamHCook
145 Followers 713 Following Woolf Fisher Scholar at @Cambridge_Uni | New Zealand Junior Doctor | Meningioma & Clinical Neurosciences
Paul May @PaulMay11
1K Followers 537 Following Professor : Director Clinical Academic Development: University of Liverpool: Past President SBNS : Non Exec Director Walton Centre NHS : All views are my own.
@neuroimagingdoc @DRJ53663410
183 Followers 319 Following Neurologist, Neuro-imaging, #braintumor #neuroimaging #neurology #neuroradiology #neurooncology #neurosurgery
OU @ozgem_uysal
17 Followers 1K Following
BNTRC @BNTRC
2K Followers 504 Following British Neurosurgical Trainee Research Collaborative | A UK trainee-led research collaborative since 2012
Sally Price @saspist
3K Followers 3K Following Neuro mongrel and hobo, part of the female 10ish%, shit geisha. Usually saspist
The BIMS Meningioma S... @BIMeningiomaSoc
116 Followers 163 Following The British and Irish Meningioma Society are pleased to announce the return of the annual meningioma symposium - this year in Bristol!
Nicoletta Giuliani @NicolettaGiuli5
15 Followers 193 Following Medical student and MD candidate. Medizinische Fakultät Mannheim der Universität Heidelberg 🇩🇪 UNAH-VS 🇭🇳
Asfand Baig Mirza @AsfandBm
447 Followers 610 Following 🙌🏽 Neurosurgery Registrar 🧠 || founder @fy1prepcourse || tweets/views my own
Helen Maye @HelenMaye_Nsurg
46 Followers 100 Following
Caroline Hayhurst @Pituitary_Surg
2K Followers 2K Following Consultant Neurosurgeon | Skull base and Pituitary | University Hospital of Wales | Neurosurgery MSc with @diplomamsc | Professor
Dhruv Parikh @DhruvGParikh
25 Followers 178 Following
Bee @madscientist27
2 Followers 717 Following
Atulya Aman Khosla @atulya_khosla
341 Followers 759 Following IM PGY3 @BeaumontHealth | Neuro-Oncology Postdoc @MiamiCancerInst | GCSRT '23 @harvardmed | MBBS '21 @MAMC_NewDelhi
Cure Cancer at Ucl Ca... @CureCancerUCL
4K Followers 3K Following we buy research equipment for UCL cancer institute join us reach 1 million people by pledging just £1 https://t.co/6aVqvc9LF3
Dr Rowan Moore 🐎 @MassSpEquine
1K Followers 2K Following Mum, scientist, marketer | #Todmorden 🌈 | 💕 🏇🏼, #MassSpec, #proteomics, #metabolomics, Bio/Pharma 💊💉,🏠 🎧,🍷| 🧠 tumour survivor | 💭 random & mine.
Tessa Jowell Brain Ca... @TJBCMission
727 Followers 575 Following Designing & delivering transformative national programmes to tackle brain tumours: Centres of Excellence, Academy, Fellows, BTR-NTA & more...
brainstrust @brainstrust
6K Followers 1K Following brainstrust - the brain cancer people. Here to help people with any type of #braintumour & their loved ones to live the life they want after diagnosis
Meningioma Host @Meningioma_host
82K Followers 90K Following Brain Tumour survivor. Raising awareness to help others. Experienced at 🧠 surgery and raising teenagers - equally scary! 😳 #volunteer #podcaster #Writer FIET
Lena Rosenlund @LenaRosenlund
58 Followers 178 Following
John Duddy @DrJohnDuddy
3K Followers 590 Following FRCSI. Consultant Neurosurgeon @matertrauma . Past President @IMO_IRL 2016/2017. Indie rock enthusiast. All views my own. RT not an endorsement.
Junge Neuropathologen @JungeNPath
183 Followers 326 Following Account of the young neuropathologists in Germany. The expressed views are our own. #neuropath #pathtwitter
freddieewbank @freddieewbank1
275 Followers 850 Following Neurosurgical SpR @CentreWessex. Researching aneurysms and SAH in the @FraminghamStudy, @nhs3, @uk_biobank and ROAR study. Golf @RCPgolfclub.
Chenkai Ma @ChenkaiMa
154 Followers 1K Following Research Scientist in diagnostic development. Always a learner. KOP
IBTA @theIBTA
5K Followers 1K Following The IBTA is an alliance of the support, advocacy and information groups for brain tumour patients and carers around the world.
DeCODE-PHVD Study @DeCODE_PHVD
195 Followers 858 Following Working with families & healthcare professionals to establish core outcomes & common data elements for Posthaemorrhagic Ventricular Dilatation #Hydrocephalus
James Mitchell @_JWMitchell
210 Followers 450 Following ABN Clinical Research Fellow @LivUni and Neurology registrar @WaltonCentre. Lead researcher on the @EPSETProject, and co-lead for Capacity Development at ERI-UK
VRIMS @VRIMS_Lab
379 Followers 140 Following Virtual Reality In Medicine and Surgery. Cross-surgical multidisciplinary collaborative creating new immersive training opportunities.
Adel Helmy @AdelHelmy79
670 Followers 354 Following Associate Professor Neurosurgery, Consultant Neurosurgeon @Cambridge_Uni @CUH_NHS
Anand Pandit @anandpandit00
586 Followers 903 Following Neurosurgical Registrar, N. Thames Deanery || NIHR CL, UCL || Passionate about using data science, imaging and ML-AI to improve neurosurgical patient pathways
Mustafa El Sheikh @M_El_Sheikh
1K Followers 2K Following Sudanese Irishman in Glasgow. Neurosurgery Trainee @INSNeurosurgery. EANS Research @EANS_RC. Hon. Clinical Lecturer @UofGlasgow. Views & tweets my own.
Dr C P Millward @medic_moderator
10 Followers 251 Following Medical Doctor. Academic. MHRA Medical Assessor. Independent moderator/facilitator for healthcare-based meetings and patient engagement activities.
Claudia Craven @Claudia_Craven
1K Followers 731 Following Consultant Paediatric Neurosurgeon @CUH_NHS | 🐳 |
Surgical Technology A... @TEQ_Neurosurg
2K Followers 969 Following Pioneering neurosurgery with robotics, AI, neurotech and more! Join us!! 🧠 🚀 Clinical lead: @hani_marcus. Proudly part of @ucl @UCLIoN
Olatomiwa Olukoya @Tomiwaolukoya
305 Followers 484 Following Neurosurgery Trainee (ST2) @QSneurosurgery | MRes in Neurosurgery @UCLIoN | MbChB @UofGlasgow | Vice President (Academics) @SIGAFofficial 🎾🥁📖✝️
Siddharth Sinha @Sidsinha92
329 Followers 250 Following ST3 Neurosurgery @RlhNeurosurgery | Research Fellow @TEQ_Neurosurg | BSc @UniversityLeeds | MRes @imperialcollege | MbChB @OfficialUoM |
Ciaran Scott Hill @ciaranscotthill
686 Followers 612 Following Academic Neurosurgeon • Brain Tumour Research • @uclh @QSNeurosurgery @uclcancer • 🏔 • always learning 📚
Surgical Handover Cor... @SH_COREstudy
243 Followers 1K Following Meet the #SHCORE team https://t.co/feBE0cclv7 Follow our progress here: https://t.co/MmYED60Y2f Funded by @TheMPSfdn & @BSHSIreland
Jessica Ryan @jessmryan
397 Followers 433 Following General Surgery HST ➡️ Surgical handover PhD ISTG Past President BJJ black belt Defining what matters in surgical handover @SH_COREStudy
Heather Barrington @hetbag
629 Followers 895 Following Public contributor in research. PhD student (patient important outcomes). Opinions are my own. Follows & RTs doesn't mean endorsement
Inst of Systems, Mole... @LivUniISMIB
3K Followers 950 Following We're no longer posting to X. Our pinned post contains all the details you need to keep up to date with our Institute news.
The BIMS Meningioma S... @BIMeningiomaSoc
116 Followers 163 Following The British and Irish Meningioma Society are pleased to announce the return of the annual meningioma symposium - this year in Bristol!
Caroline Hayhurst @Pituitary_Surg
2K Followers 2K Following Consultant Neurosurgeon | Skull base and Pituitary | University Hospital of Wales | Neurosurgery MSc with @diplomamsc | Professor
UHB Neurosurgery @UHBNeurosurgery
1K Followers 399 Following Department of Neurosurgery, Queen Elizabeth Hospital Birmingham @UHBTrust | Sharing our brain and spine surgery for 🌈 patients and peers | 🧠🔧
Meningioma UK @meningiomauk
321 Followers 69 Following The national support group set up and run by meningioma patients for everyone affected by a meningeal tumour(s) of the brain or spinal cord.
Leslie Channon @MeningiomaMama
100 Followers 52 Following Diagnosed with a #meningioma brain tumour in 2018, mother of two young sons, writing about my journey post diagnosis #MeningiomaWarriorMama
Meningioma @itsmeningioma
892 Followers 1K Following Meningioma or Glioblastoma- Checkout our site for Expert diagnosis, analysis & personal experiences
Meningioma Society @MeningiomaSoc
185 Followers 2 Following Official twitter page of the International Meningioma Society. Advancing clinical care and scientific research for patients suffering from meningiomas.
AFiey_AZ @LadyMeningioma
225 Followers 324 Following Meningioma Survivor . Lymphoma Fighter @AfieyAzalee http://t.co/N6hF4jDj http://t.co/lkIouZrh https://t.co/0BZLG4i7xL
Cure Cancer at Ucl Ca... @CureCancerUCL
4K Followers 3K Following we buy research equipment for UCL cancer institute join us reach 1 million people by pledging just £1 https://t.co/6aVqvc9LF3
GJBrainResearch @GJBrainResearch
936 Followers 807 Following The Geoffrey Jefferson Brain Research Centre (GJBRC) combines discovery science and experimental medicine to rapidly translate research into healthcare benefit
Prof Susan Short @prof_short
796 Followers 85 Following Professor of Neuro oncology, University of Leeds. President European Association of Neuro Oncology
BJNS @BJNSNeuro
1K Followers 113 Following The British Journal of Neurosurgery || Official journal of @The_SBNS || For Surgeons, Policy makers, Students.
Meningioma Host @Meningioma_host
82K Followers 90K Following Brain Tumour survivor. Raising awareness to help others. Experienced at 🧠 surgery and raising teenagers - equally scary! 😳 #volunteer #podcaster #Writer FIET
Lena Rosenlund @LenaRosenlund
58 Followers 178 Following
Kathy Oliver @KathyOliverIBTA
866 Followers 521 Following Co-Director, International Brain Tumour Alliance (IBTA); advocate for brain tumour patients and caregivers
John Duddy @DrJohnDuddy
3K Followers 591 Following FRCSI. Consultant Neurosurgeon @matertrauma . Past President @IMO_IRL 2016/2017. Indie rock enthusiast. All views my own. RT not an endorsement.
Junge Neuropathologen @JungeNPath
183 Followers 326 Following Account of the young neuropathologists in Germany. The expressed views are our own. #neuropath #pathtwitter
IvyFoundation @IvyFoundation
2K Followers 3K Following Funding promising research on brain cancer in order to develop diagnostics & treatments that lead to long-term survival & a high quality of life for patients.
CURE GLIOBLASTOMA @OuthouseThought
2K Followers 2K Following Vigilant living, healthy body, healthy mind heals. Never surrender to GBM.
EndBrainCancer Initia... @EndBrainCancer
5K Followers 121 Following Our mission is to EndBrainCancer by providing patients immediate access to specialists, advanced treatments, and comprehensive support programs. Hope Award ⬇️🧠
National Brain Tumor ... @NBTStweets
12K Followers 2K Following National Brain Tumor Society (NBTS) is a nonprofit organization committed to finding a cure for brain tumors.
freddieewbank @freddieewbank1
275 Followers 850 Following Neurosurgical SpR @CentreWessex. Researching aneurysms and SAH in the @FraminghamStudy, @nhs3, @uk_biobank and ROAR study. Golf @RCPgolfclub.
HydrocephalusBot @Hydrocephalus_
973 Followers 2K Following Follow for updates in #Hydrocephalus research
Liverpool Neurology a... @Liv_NeuroSoc
134 Followers 47 Following @LivUni approved society for educating & supporting students interested in neurology and neurosurgery 🧠 @LivNeuroPass [email protected]
Brain Tumour Support ... @btsupportnz
349 Followers 812 Following Providing information, support and guidance to New Zealand brain tumour patients and their families, so they feel less afraid, less alone and more empowered.
Cancer Care Parcel @CancerParcel
23K Followers 13K Following #Cancer affects everyone. Friends, family and of course the person with the diagnosis. This page is for everyone affected. #cancerinspiration #cancersucks
Manchester Skull Base... @MCRskullbase
1K Followers 969 Following Manchester Skull Base team. One of the largest #skullbase units in the UK. Offering a first class service to patients; leading the way in research and training.
Brain Tumour Fdn @BrainTumourFdn
5K Followers 2K Following Reaching all Canadians affected by a brain tumour with advocacy, research, information, support, and education. #EndBrainTumours #BrainTumourWalk #HatsForHope
AANS Neurosurgeon @AANSNeurosurg
18K Followers 198 Following Your online source for neurosurgical news and information, written BY those involved in the neurosurgical specialty FOR those practicing in the field.
American Brain Tumor ... @theABTA
9K Followers 1K Following The ABTA provides resources to support the needs of brain tumor patients & caregivers and funds critical research in the pursuit of discovering breakthroughs.
MRC-NIHR Trials Metho... @MRCNIHRTMRP
3K Followers 382 Following Improving health by improving trials
Justin Z. Wang @justinzw
834 Followers 461 Following @UofTNeuroSurge Chief Resident | MD, PhD | Skull Base Oncology Fellow @TJUHNeurosurg ‘26-‘27
Peter Whitfield @1N3uro
285 Followers 26 Following
DeCODE-PHVD Study @DeCODE_PHVD
195 Followers 858 Following Working with families & healthcare professionals to establish core outcomes & common data elements for Posthaemorrhagic Ventricular Dilatation #Hydrocephalus
VABC @VABC
4K Followers 3K Following Voices Against Brain Cancer: Finding a cure for brain cancer by advancing scientific research, increasing awareness & supporting patients, families & caregivers
Journal of Neuro-Onco... @JNeurooncol
9K Followers 219 Following The official twitter account for the Journal of Neuro-Oncology (JNO), the official journal of the AANS/CNS Section on Tumors
IBTA @theIBTA
5K Followers 1K Following The IBTA is an alliance of the support, advocacy and information groups for brain tumour patients and carers around the world.