Catarina Simoes @csimoes96
PhD-Candidate at the NKI-AVL in Amsterdam Study Coordinator of the EORTC HRQoL in Solid Rare Cancers project linkedin.com/in/catarinapad… Joined September 2023-
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🚨#Rarecancer patients face delays in diagnosis & a lack of info, impacting their health-related #qualityoflife (#HRQoL) socially, mentally & physically. Our review of 464 studies highlights the heterogeneity in HRQoL measurement across EURACAN domains 🔗mdpi.com/2072-6694/17/3…
#PallOnc study from @csimoes96 et al in @Cancers_MDPI Rare #cancers face delayed ⏲️dx which can ⬇️ health quality of life #HRQoL Review 464 #EUROCAN studies: ⬆️ in HRQoL research 📈 🛠️ Lack of measurement tools ⚒️ Future efforts 🎯: Inc #HRQoL assessments in #supponc 🔗:…
Rare cancers pose challenges like delayed diagnoses&limited info, impacting patients' health-related #QualityofLife (HRQoL). 🌟New @EORTC QoL Group study by @csimoes96 et al. highlights need for better HRQoL tools in rare #CancerResearch: doi.org/10.3390/cancer… @Winette_vdGraaf
HRQoL Assessments in Research on Patients with Adult Rare Solid Cancers - @crisbergerot oncodaily.com/url/231162 @Cancers_MDPI @csimoes96 @Winette_vdGraaf @OlgaHusson @EORTC_QLG #Cancer #RareCancers #CancerResearch #MedEd #MedX #MedNews #Health #Medicine #OncoDaily #Oncology
Rare cancers often lack research on HRQOL, leaving patients with unmet needs Our review @Cancers_MDPI of 464 studies shows progress in HRQOL assessment but highlights gaps in tools for many cancer types @csimoes96 @Winette_vdGraaf @OlgaHusson @EORTC_QLG mdpi-res.com/d_attachment/c…
Happy to share my newest publication on Health-Related Quality of Life in Solid Rare Cancer Patients in @Cancers_MDPI . Check it out : mdpi.com/3152480 !!
While online, happy to have presented an update of my project on HRQoL in Solid Rare Cancers at the @EORTC_QLG meeting happening in Innsbruck! Always good to see familiar faces!! @EORTC @EORTC_QLG_ECI #Rarecancers #HRQoL
Happy to be attending this year’s @IPOSPsychoOncol conference at the MECC in Maastricht, The Netherlands! Excited to give a presentation Friday on one of my PhD projects @hetAVL @NKI_nl #IPOS2024 #rarecancers
Such a great pleasure to have @ProfDMThomas from Sydney @UNSW @OmicoAustralia in Amsterdam. Today @NKI_nl he presented his amazing work: “Moving precision oncology from research to clinical practice for rare cancers”. Nice presentations by our PhDstudents #AYA #sarcoma later on
That's a wrap on the @EORTC #QualityofLife Group Spring 2024 Meeting in Rome! Thank you for your valuable discussions and insightful presentations. 🤩 We look forward to the Autumn 2024 meeting #QLGmeeting #GivingVoice2Patients
🎉Excited to kick off the @EORTC #QualityofLife Group Spring 2024 Meeting in beautiful Rome! Looking forward to a fruitful meeting! #QLGmeeting #GivingVoice2Patients
Happy to have presented an update of my project “Measuring health-related quality of life in solid rare cancer patients” at the @EORTC_QLG meeting in Rome! Always nice to see colleagues and make new collaborations! @OlgaHusson @Winette_vdGraaf
A privilege to participate in the @myESMO #ESMOSarcomaAndRareCancers24 together with @Winette_vdGraaf @OlgaHusson @EmilyHolthuis!
Very grateful to have the opportunity to present our research during the @myESMO #ESMOSarcomaAndRareCancers24 in beautiful Lugano. Big thanks to my inspiring supervisors @Winette_vdGraaf & @OlgaHusson for giving me this opportunity. @csimoes96 @Nivel_research @NKI_nl @hetAVL
Great to see attention @myESMO #SarcomaRareCancer meeting Lugano for HRQoL&diagnostic delay in rare cancer pts. Happy to see my team members on stage & the discussant referring to our previous work. @OlgaHusson @EmilyHolthuis @csimoes96 @EORTC_QLG @NKI_nl @marga_nfk @NFKkanker
Yesterday I had the pleasure of giving a presentation about my PhD project during the @myESMO Sarcoma and Rare Cancer conference! What an honour!!
@OlgaHusson very interesting presentation at #ESMOSarcomaAndRareCancers24 on the journey of patients diagnosed with rare cancers, including #sarcoma, in the 🇳🇱
Veel interesse van patiënten voor het onderwerp kwaliteit van leven als je te maken krijgt met een zeldzame kanker, een onderwerp waar Emily Holthuis en Catarina Simões Padilla uit onze onderzoeksgroep onderzoek naar doen en over presenteerden. @ERN_EURACAN @EORTC @OlgaHusson
Happy to share my PhD milestone! First manuscript of my PhD trajectory! Take a look on how we can better assess HRQoL in solid rare cancer patients! @EORTC_QLG @ERN_EURACAN doi.org/10.1016/j.rare…
📣@EORTC #QualityofLife Group project "Health-related quality of life measurement strategy in solid #RareCancers" is looking for collaborators with expertise in specific @ERN_EURACAN cancer subgroups. More info on project & contact details if interested👇 qol.eortc.org/update-on-heal…
Cecilia Pompili MD Ph... @pompili_cecilia
2K Followers 3K Following General Thoracic Surgeon, Associate Professor focusing on patient reported outcomes (PROMs) in lung cancer care @HullYorkMed @ests_womenThor
EORTC Quality of Life... @EORTC_QLG
1K Followers 890 Following The mission of the @EORTC QLG is to develop measures of PRO in #cancer, incl. #HRQoL, and promote and coordinate studies concerning the #QoL of cancer patients.
Yuichiro Kikawa, MD, ... @u1rokikawa
611 Followers 419 Following Breast oncologist/Kansai Medical University/QOL researcher/father of two kids/born in Tokushima / live in Kobe city/Love baseball/orix buffaloes
Paolo G Casali @casali_pg
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Paulo G Bergerot @PauloBergerot
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Jonathan Granek @JonathanGranek
62 Followers 382 Following Founding Director, EHE Rare Cancer Foundation Australia | Member, PeterMac Community Advisory Committee | Consumer Rep, PeterMac | Consumer Rep, WEHI
Jens Lehmann @JLehmann_IBK
302 Followers 542 Following early career investigator @imed_tweets | current chair of ECI group at @EORTC_QLG & EORTC board member patient-reported outcomes | ePRO | cancer |
Olga Husson @OlgaHusson
942 Followers 897 Following Senior researcher - Health-Related Quality of Life - Adolescent & Young Adult (AYA) Oncology - Rare Cancers - Healthcare Innovation - @NKI_nl, @ErasmusMCPH
Dr. Tom Iepe Bootsma ... @BootsmaI
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Amalya Sargsyan @amalsargsyan
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Miguel Zugman @mzugman
249 Followers 611 Following Postdoctoral fellow at City of Hope - GU malignancies / MedOnc - Hospital Israelita Albert Einstein 🇧🇷
Diogo Martins Branco @DMBranco
796 Followers 636 Following #medonc MD 🇵🇹 & #pallonc MSc 🇬🇧 | @myESMO Scientific&Medical Division Fellow 🇨🇭 | #research #education #policy | Views are own 🎾
Cristiane D Bergerot @crisbergerot
8K Followers 3K Following #PsyOnc | Former Postdoc Fellow & Research Consultant @cityofhope | @IPOSPsychoOncol BOD 2021-2025 | #ASCO25 FCOI: https://t.co/EOsx8e8h91
The Netherlands Cance... @NKI_nl
5K Followers 1K Following The Netherlands Cancer Institute (NKI): at the international forefront of cancer research and treatment for over 100 years. Our Dutch account is @hetAVL.
Laverne @z_laverne79
281 Followers 3K Following
Terry @alston_terry10
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European Liver Patien... @EuropeLiver
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Emily Holthuis @EmilyHolthuis
33 Followers 55 Following PhD student at the Netherlands Cancer Institute - Antoni van Leeuwenhoek.
WinetteVanDerGraaf @Winette_vdGraaf
3K Followers 2K Following Medical Oncologist @NKI_nl Amsterdam. Sarcoma; AYA cancer. Prof. @ErasmusMC President of @EORTC, chair @AYAzorgnetwerk @COMPRAYA_study @strong_AYA
Dr Joseph McCollom DO @realbowtiedoc
4K Followers 3K Following #GIonc #pallonc #survonc #supponc Co-Chair: @PallOncCoP #OncoAlertAF🚨 #SoMe Editor @OncJournal Uniting #comfort 🤝 #cure COI: https://t.co/DC65RKm00v
Paolo G Casali @casali_pg
2K Followers 796 Following Medical oncologist, treating sarcoma patients and teaching oncology, advocating rare cancers, hoping for new methods of clinical decision-making and research
Professor DM Thomas @ProfDMThomas
1K Followers 133 Following medical oncologist and clinician scientist
Jonathan Granek @JonathanGranek
62 Followers 382 Following Founding Director, EHE Rare Cancer Foundation Australia | Member, PeterMac Community Advisory Committee | Consumer Rep, PeterMac | Consumer Rep, WEHI
Annals of Oncology @Annals_Oncology
50K Followers 532 Following Medical oncology journal with a specific interest on targeted agents, immune therapies, personalised medicine, molecular pathology, bioinformatics, and more.
National Cancer Insti... @theNCI
224K Followers 4K Following The U.S. government’s agency for cancer research. Part of @NIH. Engagement ≠ endorsement. Questions about cancer? Reach us here: https://t.co/yQAi9x4Obg
ASCO @ASCO
149K Followers 2K Following Account of the American Society of Clinical Oncology & its affiliate the Association for Clinical Oncology. Assoc tweets labeled #ASCOAdvocacy. RTs ≠ endorse.
Horizon Europe 🇪�... @HorizonEU
179K Followers 2K Following Funding opportunities, projects & events from the EU's Research & Innovation Programme. Follow also @EUScienceInnov, @EZaharievaEU & @lemaitre_eu
Paulo G Bergerot @PauloBergerot
5K Followers 2K Following Medical Oncologist. #ASCO25 #GUonco #ExerciseOncology
Common Sense Oncology @csoncol
3K Followers 24 Following
Dr Julia Lai-Kwon @JuliaLaiKwon
809 Followers 446 Following Medical Oncologist and PhD candidate @PeterMacCC ex @MelanomaAus @royalmarsdenNHS @ICR_London | PROs, QOL, survivorship | Dragon boater, cyclist
César Serrano Garcí... @DrCeSarcoma
3K Followers 573 Following Physician-scientist · #sarcoma #GIST @VHIO | External Group Leader @IRBBarcelona | #SanidadPública | #SinCienciaNoHayFuturo | @MyEsmo Faculty. Tweets are my own
mohamed kelany @mohamed35475330
65 Followers 114 Following
EvelyneRoets @EvelyneRoets
13 Followers 45 Following
Vivian Burgers @BurgersVivian
83 Followers 125 Following PhD student | Medical psychologist | Adolescent & Young Adult (AYA) Oncology | Palliative care | Netherlands Cancer Institute Amsterdam @NKI_nl
Lina Lankhorst @linalankhorst
4 Followers 14 Following
Marco Fiore, MD, FACS... @FioreDoc
2K Followers 254 Following Expert in soft tissue sarcoma, GIST, desmoid tumors. Surgical Oncologist at Fondazione IRCCS Istituto Nazionale dei Tumori - Milan Italy. Tweets are my own.
William Tap @WTapMD
2K Followers 662 Following Chief, #Sarcoma Medical Oncology Service, MSKCC, building an #AYA program - advice welcome. #Equity and #CulturalCompetence in #Healthcare and life.
Pawel Sobczuk @pawel_sobczuk
2K Followers 633 Following MD PhD, Medical Oncologist, post-doc -at @VHIO, YOC Member & Communication Committee at @myESMO 🇵🇱🏳️🌈
SPAGN @sarcomapatients
2K Followers 558 Following Sarcoma Patient Advocacy Global Network (SPAGN) is the global network of Sarcoma, GIST and Desmoid Patient Advocacy Groups
Diogo Martins Branco @DMBranco
796 Followers 636 Following #medonc MD 🇵🇹 & #pallonc MSc 🇬🇧 | @myESMO Scientific&Medical Division Fellow 🇨🇭 | #research #education #policy | Views are own 🎾
Herbert Loong, MBBS, ... @herbloong
4K Followers 3K Following Academic medical oncologist @ Hong Kong w/ interests in sarcoma medical oncology, thoracic oncology & phase 1 trials | Disclosures: https://t.co/sb5XXrv5zx
Alessandro Gronchi @alegronchi
3K Followers 219 Following Chair Sarcoma Service - Department of Surgery - National Cancer Institute - Milan - Italy.
emma lidington @elidington
204 Followers 291 Following Research Assistant | Cancer Behavioural Science Group | Cancer Prevention Trials Unit | King’s College London
Cristiane D Bergerot @crisbergerot
8K Followers 3K Following #PsyOnc | Former Postdoc Fellow & Research Consultant @cityofhope | @IPOSPsychoOncol BOD 2021-2025 | #ASCO25 FCOI: https://t.co/EOsx8e8h91
Rare Diseases Clinica... @rarediseasesnet
8K Followers 489 Following NIH-funded network fostering collaborative research among 19 teams of researchers, patients, and clinicians, each focused on a group of rare diseases.
Olga Husson @OlgaHusson
942 Followers 897 Following Senior researcher - Health-Related Quality of Life - Adolescent & Young Adult (AYA) Oncology - Rare Cancers - Healthcare Innovation - @NKI_nl, @ErasmusMCPH
Dr. Tom Iepe Bootsma ... @BootsmaI
227 Followers 834 Following Postdoctoral fellow @erasmusmc.nl|🚴♂️🏃🏻♂️🌈
STRONG AYA @strong_AYA
75 Followers 114 Following An EU Horizon/Innovated UK funded project seeking to establish a COS to evaluate and improve care for adolescents and young adults (15-39) living with cancer
Lindahl's Singelloop ... @SingelloopUtr
2K Followers 799 Following 📅 1 oktober 2023 ❤️ #LindahlsSingelloopUtrecht 👇 Website
IKNL @IKNL
4K Followers 4K Following Institute for oncological and palliative research and practice | Follow us on LinkedIn | Schrijf je in voor maandelijkse nieuwsupdates via:
Nationaal AYA 'Jong &... @AYAzorgnetwerk
1K Followers 683 Following Medisch specialistische, integrale zorg voor jonge mensen (18 t/m 39 jaar) met kanker. ❌ Wij zijn niet meer actief op X. ➡️ Volg ons op LinkedIn.
Emily Holthuis @EmilyHolthuis
33 Followers 55 Following PhD student at the Netherlands Cancer Institute - Antoni van Leeuwenhoek.
WinetteVanDerGraaf @Winette_vdGraaf
3K Followers 2K Following Medical Oncologist @NKI_nl Amsterdam. Sarcoma; AYA cancer. Prof. @ErasmusMC President of @EORTC, chair @AYAzorgnetwerk @COMPRAYA_study @strong_AYA
The Oncologist @OncJournal
25K Followers 323 Following The Oncologist Journal focuses on medical and practice issues of busy oncology, hematology and radiation professionals to aid in better cancer patient care.
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435 Followers 328 Following Senior Research Fellow, Chartered Health Psychologist, University of Southampton, EORTC Quality of Life Group Member.
Jens Lehmann @JLehmann_IBK
302 Followers 542 Following early career investigator @imed_tweets | current chair of ECI group at @EORTC_QLG & EORTC board member patient-reported outcomes | ePRO | cancer |
EORTC QLG Early Caree... @EORTC_QLG_ECI
283 Followers 284 Following Network of early career investigators involved in the EORTC Quality of Life Group | Views are not those of the EORTC QLG | This week handled by @
EORTC @EORTC
16K Followers 691 Following European Organisation for #Research and #Treatment of #Cancer defines better treatments for all cancer #patients to prolong survival and improve quality of life
EORTC Quality of Life... @EORTC_QLG
1K Followers 890 Following The mission of the @EORTC QLG is to develop measures of PRO in #cancer, incl. #HRQoL, and promote and coordinate studies concerning the #QoL of cancer patients.
Centre Leon Berard @CLCCLeonBerard
5K Followers 472 Following Centre de lutte contre le #cancer de #Lyon et #RhôneAlpes - Soins, recherche et innovation au service du patient - Compte officiel
Gustave Roussy @GustaveRoussy
22K Followers 552 Following 1ᵉʳ centre de lutte contre le #cancer en France et en Europe // Prévention • Soins • Recherche • Enseignement au service des patients.
HCL - Hospices Civils... @CHUdeLyon
7K Followers 1K Following 13 hôpitaux publics, 24 000 femmes et hommes, 1 vocation : soigner et prendre soin de chaque patient #teamHCL ||| Recherche en santé : @HCL_research
Institut Curie @institut_curie
33K Followers 2K Following 🔬 1er centre de recherche et de lutte contre le cancer en France 🇫🇷
European Cancer Organ... @EuropeanCancer
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Jean-Yves Blay @jeanyvesblay
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ESMO - Eur. Oncology @myESMO
80K Followers 970 Following The European Society for Medical Oncology (ESMO) is a reference organisation for cancer education and information, supporting the oncology community’s work.Trends for United States
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