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Roles supporting #PPI require specialised skills and abilities, but this is often not recognised in job descriptions, and little training is offered. 🔎 A new PPI Career Competencies Framework aims to address some of these challenges. Take a look: learningforinvolvement.org.uk/content/resour…
We're delighted to share some of the incredible work from our partners over at the NIHR GOSH BRC Check out the fantastic PPIE in Research they are championing here 👉 media.gosh.nhs.uk/documents/NIHR… @GreatOrmondSt @UCLchildhealth
Excited to share these lovely moments from our #RareDiseaseDay event! 🌟 Stem cell puzzles, DNA bracelets, and more!🧩 Thanks to all who helped make it happen! 💙 @NIHRresearch @NorthThamesGLH @NIHRBioResource @CureEBorg
There are still a few more days left to fill out the survey about how technology can help young people manage their health from home!
There are still a few more days left to fill out the survey about how technology can help young people manage their health from home!
Episode 2 of the @HertsYPAG podcast is out now - featuring young people from @GenrYPAGs #London @GreatOrmondSt, @MoorfieldsBRC #eyeYPAG, @McPinYPNetwork, @PYL_London & @ImperialBRC Watch out for our final episode - on the #InvolveYoungPeople future. Coming soon...
Episode 2 of the @HertsYPAG podcast is out now - featuring young people from @GenrYPAGs #London @GreatOrmondSt, @MoorfieldsBRC #eyeYPAG, @McPinYPNetwork, @PYL_London & @ImperialBRC Watch out for our final episode - on the #InvolveYoungPeople future. Coming soon...
How exciting is this?! 😍
How exciting is this?! 😍
Thanks @delaye1969 @Vijay_Tailor @MattLYWalsham @LindsayDewa @RachelRed94 for your help :)
Thanks @delaye1969 @Vijay_Tailor @MattLYWalsham @LindsayDewa @RachelRed94 for your help :)
Also recorded another episode of our forthcoming podcast with young people from @GenrYPAGs @GreatOrmondSt and @MoorfieldsBRC #eyeYPAG groups, @ImperialBRC @McPinYPNetwork and @PYL_London
The #EyeYPAG is wonderful but we actually worked with the @GreatOrmondSt #GOSHYPAG who help us develop a separate Childhood Uveitis Study Steering patient group! But #EyeYPAG have provided support for other studies eg the award winning #BCVIS rcophth.ac.uk/news-views/fir…
Today we're celebrating our @NIHRresearch GOSH Biomedical Research Centre 🎉 🔬 🔬 Alex and Yvan are part of the GOSH Young Person's Advisory Group for research - they support researchers to shape studies and ensure children's voices are at the centre of all that we do!
📣 Don't miss it! Tomorrow we'll be hosting a fantastic event in the Lagoon about research! Open to all GOSH patients and families, come along to get involved, meet our teams, and learn more about research and clinical trials. (There might even be chocolate!)👇 #BePartOfResearch
This Friday, we'll be hosting a fantastic event in the Lagoon. 🤩 Open to all GOSH patients and families, come along to get involved, meet our teams, and learn more about research and clinical trials! #BePartOfResearch #NHS75
#ResearchRocks, so we're working to highlight how our patients, their families and our staff can get involved. Our new staff research and #innovation wall is just one way we're doing that. ⤵️
Looking forward to the @hospital_senses exhibition going up this week! In @GreatOrmondSt & @ICH_Education #CRMethods #hospitalarts @rfleetwoodsmith
Our April 2023 newsletter is available! This month we have two amazing features that discuss the incredible impact young people are having on the future healthcare research with innovative workshops and priority-setting surveys. Find out more here: mailchi.mp/78e3752e836f/n…
Fabulous resources for those involved in research with children and young people @starlight_uk
Fabulous resources for those involved in research with children and young people @starlight_uk
The ADHD Hero Activity Book is now available to download from the ADHD foundation website! Co-created with children and families, the booklet makes learning about ADHD fun! Available here 👉 tinyurl.com/ADHD-Hero @Laparker1988 @jackp593 @chrisjredford @gem_wheeler
We had a great time taking part in the GOSH YPAG session on Saturday, thank you for making us feel so welcome! It was inspiring to meet so many insightful and engaged young people, we learned a lot and had a lot of fun too! #PPIE #Health @GreatOrmondStreet @GenrYPAGs @gem_wheeler
Our #research boards are up in our waiting rooms - make sure you check them out it you are visiting us #researchSavesLives #researchSavesSight #OphthoTwitter #Ophthalmology @HHICProject
After 100s of your votes across our social media, we can finally announce the winner of our GOSH Research Image Competition, A Moment of Discovery.... 🥁 Drum roll please 👇 #RareDiseaseDay
Dr Pippa Sipanoun @Pippa_FS
325 Followers 533 Following Lead for Health Inequalities & Clinical Academic - GOSH & UCL GOS Institute of Child Health, Ethicist, Paediatric Nurse, Ceramicist in spare time, all own views
Rare Disease Research... @RDRUKHub
227 Followers 177 Following We hope to be able to significantly impact the RD research landscape and improve the lives of those directly or indirectly affected by rare diseases.
Faz3 Mohammed @engkizelvina
266 Followers 7K Following
Dr Amanda Stranks @StranksA
1K Followers 2K Following PPI/E & Comms Lead, NIHR Cambridge BRC. Passionate about communication and public involvement in research! Lapsed antipodean. Views my own. She/her.
Jennifer Fortune @jenfortune1
219 Followers 449 Following Senior Research Fellow @RCSI_Irl researching healthcare transitions for young adults w/#cerebralpalsy | @EvidSynIRL Fellow (she/her) views are my own
Esther @e_walters45
289 Followers 3K Following
Julie Ramacey @JulieuoRamacey
35 Followers 1K Following Found different beauties from all US states 😽 Ready for private meetings Nudes in profile! Watching this https://t.co/ezYCdTMmAW
Kate Henaghan-Sykes @katehs83
513 Followers 827 Following Passionate about patient and public involvement in health research.
James Evans @JamesEvansRD
311 Followers 710 Following Research Lead for Dietetics, UCLH. Paediatric BMT Dietitian, GOSH. NIHR Clinical Doctoral Research Fellow. Views my own.
Dr Rhiannon Joslin @RhiannonJoslin
2K Followers 3K Following Clinical Academic Physiotherapist @UHSussex @UoSotonPT. Learning about MSK pain through the experiences of young people and their families.
Sarah Robertson @YLSSarahRobbo
5K Followers 5K Following Work @GenScot in @EdinburghUni previously @YouthlinkScot YouthWork/Inclusion/partnerships/Health/ Wellbeing/Participative Democracy/Rights/Happiness! 🎵💕
Jennie Sullivan 💙 @JennieLSullivan
171 Followers 717 Following
Andrea McLean @AndreaMcLean
213 Followers 579 Following Artist. Faculty Royal Drawing School. Cosmos Mapping, Blake Mythologies and Landscapes of the Imagination
UCL Child Health Kidn... @UCL_ICH_Kidney
736 Followers 929 Following The Kidney Development and Disease group at UCL Great Ormond Street Institute of Child Health | @UCLChildHealth @DBC_ICH
McPin Young People's ... @McPinYPNetwork
2K Followers 537 Following Young People's Network at The @McPinFoundation, reshaping young people's mental health research by placing young voices at the very heart of it 😀RT≠endorsement
Dr Lindsay Dewa (she/... @LindsayDewa
2K Followers 4K Following Advanced Research Fellow @ImperialBRC @ImperialSPH in young people's #mentalhealth #coproduction #prevention #digital #socialconnection
Dr Rhys Archer @drrhysarcher
993 Followers 1K Following Participatory scientist at @SEIresearch at @UniofYork. Teaching @ou_stem. Current projects: @womenofsci, @SAMHEproject, Youth LIVES, and CaPow! #STEM 🏳️🌈
Helen Dale @HelenDale_
428 Followers 951 Following Transformation Manager CYP Programme West Glamorgan Regional Partnership @WGlamPship
Anni McTavish @MctavishAnni
2K Followers 2K Following Early years creative arts specialist, creative & writer, mum and outdoor swimmer. Views my own
Annie Walsh @awalsh9890
498 Followers 746 Following Senior Public Involvement in Research Manager @McPinFoundation #MentalHealth #Neuroscience Views expressed are not those of McPin.
Dr Elizabeth Bichard ... @LizzieBichard
1K Followers 1K Following Nurse, PhD, Paediatric Critical/Intensive Care, PICU Outcomes, Congenital Heart Disease. Section chair for Nursing and Allied Health Professionals, ESPNIC
Adaptive & Responsive... @AdReNa_Lab
975 Followers 607 Following The Adaptive and Responsive Nanomaterials (AdReNa) group at University College London led by Prof Stefan Guldin.
Nerilee Ceatha @NerileeCeatha
1K Followers 1K Following PhD | Registered social worker | SPHeRE alumni | Own views
Anna Roach @anna_roach_
546 Followers 686 Following research psychologist interested in mental health provision for children with long term conditions - QI coach at @rcpsych and lecturer @AFNCCF & @UCLchildhealth
Dr Polly Livermore @PollyLivermore
711 Followers 377 Following NIHR BRC Clinical Academic Program Lead for Nurses & AHP's at GOSH/ORCHID & Rheumatology Matron at Great Ormond Street Hospital. NIHR CDRF PhD graduate 2021
Magali Thomson @magalitt
1K Followers 3K Following Architect; Public Practice alumna; Project Lead for Placemaking GOSH; Exec LSECities MSc graduate & mum to 3 - #childfriendlycities
Professor Helen Rober... @childHealth_ICH
138 Followers 154 Following Crack shot (toy gun only); apprentice gardener; sustainability and child health, feminist, wife, mum, gran
Gleesons @GleesonsRos
1K Followers 778 Following Lovingly Restored 19th Century Townhouse, Celebrating 30 Years at the Heart of Roscommon Hospitality #GleesonsRoscommon
Steve Reed @SteveReedMP
49K Followers 25K Following Secretary of State for Housing, Communities and Local Government | Labour MP for Streatham & Croydon North
Fan Cheng @faniekcheng
199 Followers 226 Following NIHR CDRF Research Fellow and Specialist Immunology pharmacist. Using pharmacometric models to personalise medicine for children Views my own
Your Rheum @YourRheum
659 Followers 331 Following A UK Research Advisory Group specifically for young people aged 11-24 in the UK with a diagnosed rheumatic condition. A BANNAR affiliated group.
Sky Ward at GOSH @SkywardGOSH
207 Followers 138 Following We are @GreatOrmondSt Hospital’s Sky Ward team, focused on Paediatric Spinal and Orthopaedic Surgery • Self proclaimed best views across London #ONETEAM
Claire Deakin @ClaireDeakin10
137 Followers 166 Following Research Fellow UNSW #pharmacoepi; honorary researcher UCL #realworldevidence #ehr #myositis #jdm #juveniledermatomyositis #datascience #translationalscience
Dr Ania Zylbersztejn @zylberek
264 Followers 534 Following researcher in #childhealth at @UCLchildhealth Views are my own. (she/her)
Great Ormond Street H... @GoshMembership
73 Followers 64 Following Official account for @GreatOrmondSt Foundation Trust Membership. Join us and make a difference to the lives of Children and Young People
Great Ormond Street H... @GoshSight
351 Followers 86 Following Clinical and Academic Department of Ophthalmology at Great Ormond Street Hospital
Simranjeet Singh @SimranjeetSG96
527 Followers 3K Following Sikh. Medical Student. Studied Optometry. Did a masters. Journeys. Yes, that's my eye in the header. #isupportfarmers #payrestoration
lauren tedaldi @LaurenTedaldi
1K Followers 2K Following Scientist for a while but now Head of Research and Innovation Communications @GreatOrmondSt. Can multi-task. Opinions belong to she/her.
Maria Piggin @PigginMaria
420 Followers 689 Following Patient & Public Involvement Advocate. EUPATI Fellow. Views own.
Strukturriss (now def... @strukturriss
2K Followers 1K Following Former Ireland-based anticapitalist, feral, experimental quarterly. Never had any reading fees. EICs @mullamy_, @Narvvhals_, @ThinkContinuum
Kirsty Woodbridge @runwritekirsty
2K Followers 1K Following Head of Communications @parkrun 🧡🌳 Just running, writing and wandering the world 🌍
Great Ormond Street H... @GOSHEnabled
637 Followers 1K Following This is the ENABLED Network @GreatOrmondst, Please follow us for more information about the Networks activities #Disability #LTHC [email protected]
NIHR HRC in Paediatri... @NIHRChildrenHRC
1K Followers 1K Following The NIHR MIC scheme ended 31 March 2024. This channel now represents the work of the new NIHR HealthTech Research Centre in Paediatrics and Child Health.
Barney PPI @barneyppi
221 Followers 383 Following PPI thoughts and feelings, with the occasional dog and/or tree picture
Dr Sohaib Rufai 👁 @SohaibRufai
2K Followers 679 Following NIHR Clinical Lecturer in Ophthalmology | Lead RIO Investigator @LeicResearch @GreatOrmondSt @OxfordCranio
Prof Jugnoo Rahi 💙 @Rahi_Eye_Vision
523 Followers 209 Following Prof of Ophthalmic Epidemiology @ich_ppp @UCLchildhealth @UCLeye Consultant Ophthalmologist @GreatOrmondSt. Chair Academic Committee & BOSU @RCOphth Views mine
🌟💚LauraWalsh FR... @LLaurajwalsh
3K Followers 4K Following (she/her) Head of Play at Starlight Children’s Foundation. Choosing joy
Linda von Neree @linniesvenska
176 Followers 400 Following Professional in and passionate about Patient and Public Involvement in health care research. Working at University College London (UCL). Views are mine.
Kilkenny Design @kilkennydesign
2K Followers 536 Following #Kilkenny Design Centre offers the best of #Irish #craft and #design, alongside a distinctive #foodhall and an award-winning restaurant @AnochtKilkenny
IrishRestaurantAward @restawards
19K Followers 4K Following Find out about the 2025 #FoodOscars at: https://t.co/yFpihxnqgL
Lee D Hudson @leehudson111
4K Followers 5K Following Assoc Prof UCL Inst of child health. Consultant Paediatrician Great Ormond Street Hospital,London. Child & family health lead, UCL Med School. Views my own.
Egmar Longo @LongoEgmar
798 Followers 1K Following She/Her, PT, PhD, Ex-Fulbright Visiting Prof at NIH. Professor at UFPB- Brazil. Research on childhood disabilities and PPI. Post Doc on PPI at Exeter University
NX Customer Service @nxcare
39K Followers 28K Following We're the National Express customer service team, available to help between 8am-8pm Mon-Sun, 7 days a week.
Magdalena Skrybant @MSkrybant
463 Followers 507 Following Public Involvement Lead for @ARC_WM Passionate about all things to do with public involvement and engagement in health and social care. All views own.
JAR Project (now on B... @JARProject
1K Followers 1K Following Juvenile Arthritis Research UK charity no. 1091620 The only UK-wide charity focusing solely on #JIA. This account not actively monitored. DMs not monitored.
NIHR Children and Fam... @UCL_CPRU
675 Followers 317 Following Conducting high-quality research to support the development of evidence-based policy to improve the health of children and families. @NIHRresearch
East Sussex Healthcar... @ESHTNHS
16K Followers 403 Following Providing NHS care at #ConquestHospital #EastbourneDGH and throughout East Sussex. Tweets monitored Monday to Friday. Call 0300 131 4600 for appointment queries
Azza Warraitch @Azza_Warraitch
475 Followers 519 Following PhD student | Global health | Adolescent Mental Health | Youth involvement in research using participatory approaches. Other place: https://t.co/ksZLvS3kLB
Vanessa Bennett (she/... @bennett_ness
273 Followers 559 Following Lived/living experience and involvement | co-producing @UCL_CoPro | 20yrs Healthcare Comms | my errors! https://t.co/nxChxFNhsR
Rare Disease Research... @RDRUKHub
227 Followers 177 Following We hope to be able to significantly impact the RD research landscape and improve the lives of those directly or indirectly affected by rare diseases.
Harry Segal @fridayprof
6K Followers 7K Following Cornell faculty, clinical psychologist, waiting for #FreeUkraine, co-host of the podcast "Shrinking Trump" https://t.co/WXSA24QTSF
George Conway 👊�... @gtconway3d
2.3M Followers 3K Following
Anti-Psychopath PAC @PsychoPAC24
93K Followers 47 Following Anti-Psychopath PAC is dedicated to highlighting Donald Trump’s mental instability and defeating him in November.
Dr Emma Yhnell FLSW �... @EmmaYhnell
6K Followers 3K Following Neuroscientist 👩🏻🔬 • Educator (SFHEA / NTF) 👩🏻🏫 • STEMinist • EDI Advocate • Change-Maker • Keynote Speaker 🎤• Presenter • Host • Writer • (she/her)
Dr Amanda Stranks @StranksA
1K Followers 2K Following PPI/E & Comms Lead, NIHR Cambridge BRC. Passionate about communication and public involvement in research! Lapsed antipodean. Views my own. She/her.
Inside Housing @insidehousing
61K Followers 709 Following Leading monthly magazine for UK social housing. For jobs and training, follow @IH_Careers. Sign up for newsletters: https://t.co/6NuNoeZ4QS
Guy's and St Thomas' @GSTTnhs
44K Followers 981 Following Specialist and acute care at Guy’s, St Thomas’, @EvelinaLondon and @RBandH hospitals & community healthcare in Lambeth and Southwark. Supported by @GSTTCharity.
Michelle Collins @missmcollins
194K Followers 11K Following Michelle Collins - Mother, Actress, dog-lover, campaigner .writer , producer , started Women in Media and FLOA campaign , Londoner , working class and proud !
Mindzone Media @Mindzonemedia
14 Followers 19 Following Specialising in supporting TV, Film and Podcast companies in areas of risk management for mental health and psychological needs for cast and production teams
Kate Henaghan-Sykes @katehs83
513 Followers 827 Following Passionate about patient and public involvement in health research.
PLUTOstudy @PLUTOstudy
137 Followers 68 Following A multi-centre randomised research study. Plasma-Lyte vs standard fluid care both during and after a kidney transplant operation in young people. @NHSBT_CTU
James Evans @JamesEvansRD
311 Followers 710 Following Research Lead for Dietetics, UCLH. Paediatric BMT Dietitian, GOSH. NIHR Clinical Doctoral Research Fellow. Views my own.
Rachel Maddow MSNBC @maddow
9.8M Followers 5K Following I see political people... (Retweets do not imply endorsement.)
Population, Policy an... @ich_ppp
828 Followers 220 Following We aim to promote the health of children and young people and the adults they will become through research and teaching.
Brent Council @Brent_Council
32K Followers 2K Following Hi! We're Brent Council. Follow us for news, events and more. We're usually here Mon-Fri, 9am to 5pm. Check out our house rules https://t.co/MQvhQ01pGh
Russell Brand @rustyrockets
11.2M Followers 728 Following Join me weekdays LIVE on RUMBLE | 10 AM (PT) | 6 PM (BST) | 1 PM (ET)
MrPeter @1MonsieurPierre
8K Followers 3K Following Freelance Designer, Illustrator, Animator, Art Director and Pencil Pusher https://t.co/VLiOD6dQAT
Echo Games @EchoGames
6K Followers 242 Following Echo VR + Lone Echo are VR games with full body presence in zero-g by @RAD_Studios. Community Discord➡️ https://t.co/SKIGGvCNpZ Download ➡️ https://t.co/YCFdbnqgFe
TheSciCommer @TheScicommer
2K Followers 411 Following The weekly newsletter covering all the latest news from science communication around the globe for free. Sign up 👇 #scicomm
Dr Rhiannon Joslin @RhiannonJoslin
2K Followers 3K Following Clinical Academic Physiotherapist @UHSussex @UoSotonPT. Learning about MSK pain through the experiences of young people and their families.
Dr Ian Simcock @ian_simcock
796 Followers 672 Following Post-doctoral, Clinical-academic Radiographer in miscarriage post-mortem imaging, UCL/AHP, @GreatOrmondSt @RadiographyJour Board Member
Nicky Campbell @NickyAACampbell
185K Followers 2K Following Album ‘Through it All’ download and CD. ‘Exquisitely crafted’ - Susie Dent. ‘opulent, haunting and sometimes heartbreaking’ - Kate Robbins. “My ❤️” - NC x
Sarah Robertson @YLSSarahRobbo
5K Followers 5K Following Work @GenScot in @EdinburghUni previously @YouthlinkScot YouthWork/Inclusion/partnerships/Health/ Wellbeing/Participative Democracy/Rights/Happiness! 🎵💕
Squarespace Help @SquarespaceHelp
46K Followers 1K Following Providing service updates and support. Please follow @squarespace for product and company news. Check https://t.co/vf5hEcj0wK for system status.
Chidiebere Ibe 𝕏 @ebereillustrate
11K Followers 370 Following Forbes Featured Medical Illustrator | TEDx Speaker | Author | MS | Termeer Scholar | F: @CchangeAfrica | 🇳🇬 Email: [email protected] | Phil.4:13
Upside Down House UK @UDHouseUK
460 Followers 358 Following UK's first inverted photo experience, built sustainably with over one million visitors! 📸🙃🏠 We would love to work with you 🤝https://t.co/VA4U38Mwfo
Jim Down @JimDown8
811 Followers 474 Following icu consultant, author of Life Support and Life in the Balance
Chris van Tulleken �... @DoctorChrisVT
93K Followers 2K Following NHS Dr @HTropDis @UCLH Professor of Infection and Global Health @UCL @UNICEF_uk supporter Broadcasting: @MiradorMgmt Books: @RCWZW
Krishnan Guru-Murthy @krishgm
676K Followers 7K Following Main Anchor, Channel 4 News. Unreported World. Ways to Change the World, Strictly Class of 2023, Trustee RBG Kew. Chairman Duchenne UK [email protected]
SWAN UK (syndromes wi... @SWAN_UK
8K Followers 4K Following SWAN UK (syndromes without a name) is run by @GeneticAll_UK, offering support and information to families of children with undiagnosed genetic conditions.
Eye Journal @Eye_Journal
5K Followers 171 Following Advancing the science and practice of ophthalmology with the latest clinical and scientific based research and studies
Herts YPAG @HertsYPAG
79 Followers 17 Following Uni of Herts Young people's research advisory group *WE'VE MOVED TO 🦋🌥* Find us at https://t.co/MmQ75b3wC4
shitscaredmum @shitscaredmum
60K Followers 493 Following Mum of 2, lost Laura to brain cancer Campaigning & fundraising #bemorelaura @OurBrainBank Wrote a 📖https://t.co/sI85Fw425y Also on Bluesky
Holly the OT 🌈 @HollytheOT
5K Followers 3K Following Children & Young People’s Occupational Therapist. Professional Marmite. #AuDHD. #SEND parent. MSc student. Neurodivergent realist.
Inclusively @Inclusively_
172 Followers 309 Following We support organisations to design inclusive services, products and experiences
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