Epilepsy Action Helpline @epilepsyadvice
Please follow @epilepsyaction and direct any questions to that account. We will be winding down the use of this account in the coming months. Thank you 💜 epilepsy.org.uk/info Leeds, UK Joined February 2011-
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I think it's worth remembering how common a misconception this is. There are so many different types of epilepsy as well as seizure types. Would your friends/family know that? Find out about different seizure types epilepsy.org.uk/info/seizures-… Rich - Epilepsy Action #WorldBrainDay
A friend was telling me how he's had multiple seizures in his life this weekend. I asked if he had ever considered it being epilepsy. His response "nah, I'm good with flashing lights." He was shocked when I told him photosensitivity accounts for around 3% of epilepsy diagnosis😲
Please note, the helpline will be closed over Easter from Friday 18 April until Tuesday 23 April. If you would like to send us a message over this period, you can email us ([email protected]) or contact us on social media.
Our helpline will be closed all day today. Apologies for any inconvenience. We will re-open tomorrow (Saturday 30 March) at 10.00am-4.00pm. You can email us on [email protected] or get in touch with us on social media and the team will get back to you as soon as they can.
Epilim and Depakote stock levels - Statement update from Sanofi "Patients may find that their normal tablet or granule preparation is substituted by their doctor for a liquid or syrup preparation of valproate and vice versa.." Read full statement: epilepsy.org.uk/news/drugwatch…
Neurontin (gabapentin) 400mg capsules temporarily out of stock in UK. This is due to a packaging problem. The company that makes Neurontin, Pfizer, expects to have it back in stock by the end of Feb. epilepsy.org.uk/news/drugwatch…
Our helpline is open tonight until 11pm. If you have any questions about epilepsy or cannabis-based treatments, please get in touch. #StephandDom @stephanddom @Channel4 Call free 📱 - 0808 800 5050 Email 📧 - [email protected]
Our helpline will be open 9pm-11pm tonight for extra support following @Channel4 'Steph and Dom: Can Cannabis Save Our Son?' If you have questions about cannabis-based medicines and epilepsy call for free on 0808 800 5050, email [email protected] or send us a tweet.
The @epilepsyaction helpline is currently closed but will re-open from 12pm - 8pm. Apologies for any inconvenience.
Our helpline will be open today from 10am-4pm and we're also open later on weekdays. If you want to talk about epilepsy, we're here to help. Call on freephone 0808 800 5050.
Thanks to your incredible support this year epilepsy has a voice in parliament and big changes have been made to #PIP and medicinal #cannabis - We couldn't have done it without our brilliant campaign and media volunteers. Thank you 💜 #YouMadeItHappen
Your fundraising events, challenges and support this year have made a massive difference to people affected by epilepsy. You're all amazing. We can't thank you enough 💜 #YouMadeItHappen
In 2018 you helped us provide more local epilepsy support than ever before. Will from our local services team explains how you made it happen. Thank you 💜 #YouMadeItHappen
"I'm struggling with my epilepsy, mental health and worried about seizures" Brain: Don't say it Don't say it Don't say it Don't say it Don't say it ...do say it It's time to talk. If you need us, we're here. Call our freephone helpline on 0808 800 5050. #InternationalMensDay
Thanks to you, we've been able to open our helpline for longer on evenings and weekends. Grace from our helpline team tells us how #YouMadeItHappen #YouMadeItHappenDay
There are technical problems with the Epilepsy Action helpline. Engineers are working hard to resolve the problem. You can still contact us by: 📧 email: [email protected] 📖 Facebook: facebook.com/epilepsyaction 🐤Twitter @ epilepsyaction 📸 Instagram: @ epilepsyaction
There are technical problems with the Epilepsy Action Helpline, which may mean people experiencing difficulties in getting through to us. Engineers are working hard to resolve the problem. In the meantime please accept our apologies.
Epilim Chronosphere MR 500mg granules are temporarily out of stock. Sanofi – expects to have them back in stock w/c 3 Dec 2018. All other doses of Epilim Chronosphere MR granules are in stock. If you have any concerns about this, speak to your doctor, nurse or pharmacist.
#WednesdayWisdom - Would you know what to do if someone had a tonic clonic seizure? #epilepsy #epilepsyawareness #seizure #TonicClonic
Brain Ablaze @BrainAblaze
9K Followers 7K Following As people with Epilepsy, we raise awareness for Epilepsy and support anyone having seizures. | The Brain Ablaze Epilepsy Podcast | Blog | Support
Epilepsy Society @epilepsysociety
31K Followers 2K Following Transforming lives through advocacy, research & care 💜[email protected] 01494 601 400📞Info- our website
Epilepsy Action @epilepsyaction
32K Followers 2K Following The UK charity creating a world without limits for people with epilepsy 💜
ILAE @IlaeWeb
11K Followers 628 Following A preeminent association of healthcare professionals & scientists working toward a world where no person's life is limited by epilepsy *RTs are not endorsements
SUDEP Action @SudepAction
6K Followers 2K Following The only UK charity specialised in supporting and involving people bereaved by epilepsy. 01235 772850 (main) 01235 772852 (support) #SUDEP #Epilepsy
TalkAboutIt.org @TalkAboutItorg
8K Followers 6K Following DESTROYING STIGMA for epilepsy & other conditions! Co-founder: @GregGrunberg. https://t.co/VlYrkdNHa5 PODCAST: https://t.co/vL91AKrO7L…
Epilepsy Research Ins.. @EpilepsyInst
15K Followers 2K Following Radically advancing research into epilepsy. @ResearchNetERI and @Every1Epilepsy
Craig Fairclough @robinhood1972
2K Followers 2K Following An #epilepsy media awareness ambassador and fund raiser. I work in #safeguarding for @nottspolice
𝐓𝐢𝐟𝐟𝐚�.. @TiffanyKairos
7K Followers 4K Following Founder @tenofficial | Epilepsy Advocate | Blogger | Content Creator | All views are my own
American Epilepsy Soc.. @AmEpilepsySoc
14K Followers 721 Following Official account for American Epilepsy Society. We support research + education for professionals working towards a world without epilepsy. RTs ≠ endorsements.
Epilepsy Scotland @epilepsy_scot
11K Followers 5K Following Providing information, support, and services to people living with epilepsy and their families in Scotland. Freephone helpline 0808 800 2200
BC Epilepsy Society @BCEpilepsy
2K Followers 809 Following BCES is a charitable organization dedicated to spreading awareness, providing support and services to people living with epilepsy and their loved ones
Lance Fogan @lance_fogan
8K Followers 9K Following I am Professor of Neurology at UCLA School of Medicine. I teach neurology and examine brains. My novel DINGS tells of a family touched by epilepsy.
Epilepsy Ireland @epilepsyireland
6K Followers 1K Following Working to achieve a society where no person's life is limited by epilepsy. Registered Charity No: 20010553 CHY Number: 6170
Epilepsia @EpilepsiaJourn
10K Followers 231 Following Epilepsia is the world's leading journal of original scientific research and commentary in epileptology. A journal of the International League Against Epilepsy
Fedeepilepsia @fedeepilepsia
2K Followers 218 Following FEDE se creó en 2006 con el consenso de las asociaciones de España, con el objetivo de mejorar la calidad de vida de los afectados de epilepsia y familiares.
MyEpilepsyTeam @MyEpilepsyTeam
4K Followers 1K Following The social network for people living with #epilepsy. Join our 50,000 members today: https://t.co/VLQius960D #epileptic #seizures #SUDEP #epilepsyawareness
Vivir con Epilepsia @vivirepilepsia
4K Followers 1K Following Tu comunidad online sobre #epilepsia. Infórmate, elimina prejuicios y aprende a gestionar mejor tu enfermedad
Danny Did Foundation @DannyDidOrg
3K Followers 2K Following We help parents and caregivers to protect their loved ones and reduce the risks associated with #seizures. #epilepsy #SUDEP https://t.co/33ACroBheE
Jaimie @JaimieAlexKay
2K Followers 4K Following 25 🏳️🌈 Writer @epilepsyaction, journalist, ex-chef. Ex @yorkshirelive @leedslivenews @HertsMercury
Lisa Murray @LisaMur5822361
57 Followers 301 Following
gary bramley @GaryBramley
2 Followers 20 Following
💜AmyDanielle1994�.. @ADanielle1994
269 Followers 669 Following My close family are my support 🫶 Live one day at a time ❤️ Living with Epilepsy. Depression. Panic Disorder. #MentalHealthMatters💚 #EpilepsyAwareness 💜
fazlı albağlar @FAlbalar
19 Followers 384 Following
mohammed mannan baig @mmbaig4u
10 Followers 307 Following
Epileptic Artist @ArtistEpileptic
6 Followers 32 Following Although I have epilepsy I'm an aspiring artist, and believe that true art is created by all people, and should be viewed by all. Insta @Artistepileptic
Aj🏳️🌈💙�.. @Andrew643459
792 Followers 5K Following Britney Spears and Mariah Carey and Nicki Minaj fan
Sune .Jensen @SuneJen86464035
328 Followers 2K Following I am proud of being epileptic and about the desire to be operated.I am even now a Buddhist and like his quotes. I love to get help from persons who can help me
Tomlee Ali @AliTomlee39445
8 Followers 37 Following
Milan Bajalica @MilanBajalica
272 Followers 3K Following
Incredible Kids @IncredibleKids7
48 Followers 104 Following Incredible Kids is a collection of rhyming stories about amazing children and the means and ways for which these young people orientate themselves within their
seizurestigmaoxford @seizuresti11167
7 Followers 46 Following Research Account | Looking for volunteers to take part in online psychology research into internalised stigma in people with seizure conditions.
Institute For Address.. @InstituteFAS
984 Followers 2K Following IFAS works to increase awareness of risks associated with strangulation & suffocation.
Gavin @gjroper
299 Followers 5K Following
Healthy Suffolk @SCCPublicHealth
3K Followers 784 Following Public Health Suffolk (Suffolk County Council) official feed providing regular news and updates on public health in Suffolk (monitored Mon-Fri, 09:00-17:00)
ElectricSpark @ElectricSparkSC
12 Followers 87 Following A social club for folks with epilepsy. Let's connect, support each other, and have fun! Join our Discord community: https://t.co/Gus2Az0GcZ
Chris Hayes @chayesIPLaw
891 Followers 2K Following Chief IP Officer at Pangea Botanica. Tweeting about all things IP and legal, especially IP in drug discovery, development and commercialisation.
adi cohen @adicohenn
4 Followers 165 Following
Allen Lewis @Allennlewis
210 Followers 2K Following International Program Manager at Pulsus Conferences | Manage conferences at International Level| Scientific Meetings | Global Events | Research Investigator |
Kate @Katepomme
2 Followers 123 Following
VZ 🦋 @NOH866
288 Followers 2K Following I just want my club back 🟩🟨- Manchester 🏴🇬🇧- Fighting Epilepsy 💜- Amad Diallo Fan Club Member - 🌹
Gemma Kent @Gemsibo
41 Followers 207 Following Blessed with a beautiful family. Passionate Paediatric Nurse.
purple @wrldinpurple
1K Followers 1K Following This is my virtual diary. Healing a broken mind. Living with epilepsy. Focusing on my ED recovery. Life’s tough but I’m trying my best.
NatalieTaylor @Natalie265304
0 Followers 3 Following
Dr Christiyan Naydeno.. @c_naydenov8
651 Followers 5K Following #neurology #epilepsy #microbiome #stroke #EEG #neuroscience #neuroimaging #research
Seizurefreefrankie @SeizureFrankie
26 Followers 68 Following #seizure #epilepsy since I have been in my 20’s and still a daily struggle for me.
Claire Palmer @Claire27_Palmer
66 Followers 350 Following Roald Dahl Epilepsy Transition Specialist Nurse @tandgicft | Mum of 2 girls | Evertonian 💙 views my own
Michelle Engle Womble.. @michelletidwell
273 Followers 217 Following My neuro/epilepsy story began in 2018. Plenty I don’t know, but I do know there is #beautyinlaughter & #sharingiscaring. Oh, and I laugh at my own jokes.
Sunil Gaur @iamsunilgaur
121 Followers 5K Following
Avinya NeuroTech @avinyaneurotech
14 Followers 75 Following Backed by ICMR and CfHE, IIT Hyderabad. We are building next-gen neurotech medical devices for emergency and ICU care 🧠👨🔬
Epilepsy Foundation @EpilepsyFounda4
32 Followers 182 Following Want to join me in making a difference? I'm raising money for Epilepsy Foundation of Colorado. Any donation will help! 💜 Donate at: https://t.co/8AWIPTvk0I
ALLAN FOSTER @ALLANFO62393852
5 Followers 41 Following
ITAKOM @ITAKOM_CONF
3K Followers 3K Following An international conference entirely focused on the far-reaching concept of neurodiversity, drawing together personal, practitioner and academic experience.
TEAM FUEY - We won't .. @fuckepilepsy
168 Followers 344 Following Join us in showing the world the strength and courage of Team Fuey, the Fearless Epilepsy Warrior Community! #TeamFUEY #EpilepsyAwareness #RunSwimCycleRace
Caroline Elton @elton_carelton
90 Followers 427 Following
KittyKittens @KittyKittens702
852 Followers 5K Following Im fun, flirty, loud, & outgoing with a great personality. I love music, my dogs, food, & outdoors. I'm a Content Creator. https://t.co/yMz71Gb813
Accelsiors Epilepsy F.. @AccEpilepsy
34 Followers 206 Following We are on a mission to promote and support the development of future therapies to combat epilepsy. #EpilepsyAwareness
Bernadette Booysen @BernadetteBooy0
639 Followers 3K Following I am a person with epilepsy and author of books about epilepsy! Spreading epilepsy awareness!🌹
naeem Ahmed @naeemalvik
1K Followers 4K Following CEO & founder alvi travel agency, tour organizer, planner and consultant, Indian hindi blogger
Laura Scislo @UnderDeadOHSky
20 Followers 2K Following #StargazedNConfused #CapriquariusCusp #CLE_Libras #UnderADeadOhioSky
Muir Lea Stores @MuirLeaStores
662 Followers 2K Following Off licence, general store, toy and gift store in Robin Hoods Bay. Support @boro and @safc. Love Italy and all things Italian.
CJ @CJ022099
13 Followers 24 Following
Epilepsy Action @epilepsyaction
32K Followers 2K Following The UK charity creating a world without limits for people with epilepsy 💜
EpilepsyProfessional @ep_professional
4K Followers 444 Following From @epilepsyaction, Epilepsy Professional is the quarterly magazine written especially for & by health & research professionals concerned with epilepsy
National Doodle Day @DoodleDay
3K Followers 2K Following National Doodle Day is an annual fundraising event and auction of celebrity doodles organised by @epilepsyaction.
Epilepsy Action Event.. @epilepsyevents
6K Followers 332 Following Celebrating the thousands of people taking part in fundraising events for @epilepsyaction and making a difference to the 600,000 people living with epilepsy.
@taylorvqrt @epilepsy_parent @epilepsyposi @epilepsy_scot @mindsofepilepsy @Epilepsyknowle2 @epilepsyadvice At any time after start of treatment but I believe I read most instances of negative side effects happen within first 6 weeks of treatment.
@epilepsyaction @MyPOV_Online @JCMmanagement85 @epilepsyaction @DravetUK @epilepsyadvice @epilepsysociety @my_afk @Prodgey
Two cannabis-based medicines have been approved by NHS England. Dads of twins Levi and Lucas, who have severe epilepsy and autism, describe how the drug Epidyolex has helped Levi. 🎧 Listen via @BBCSounds
Cannabis-based drug for childhood epilepsy approved for use in UK from @guardian bit.ly/2mcFiBQ @epilepsysociety @youngepilepsy @EpilepsyRUK @epilepsy_scot @epilepsyadvice @epilepsyaction @epilepsyawaren @epilepsyposi
Well done @epilepsy_scot Wonderful to see successful social welfare appeal for a person with epilepsy @LawCentreNI @DisabilityFed @epilepsyireland @IBESocialMedia @epilepsyadvice DWP axed disabled mum's benefits after 'humiliating' fit-for-work test mirror.co.uk/news/uk-news/d…
My attitude towards my seizures. @EpilepsyFdn @epilepsyadvice #seizures
All set-up for the Epilepsy Action Leicester Coffee & Chat Group from 2pm - 4pm at the Grand Mercure Hotel. #epilepsy #epilepsyAwareness #epilepsychats @epilepsyaction @epilepsyevents @epilepsyadvice @youngepilepsy
@RCPCH_QICentral @epilepsyadvice @MirekQI
The mortality effect in @Epilepsy_12 completely reframes the importance of transition programmes out of the realm of health-service research and into the realm of #publichealth. Comment by @DrZachGrinspan: ow.ly/t9aD50uSMm5
And our dedicated CARING medical providers for our children w/epilepsy will always be our HEROES. ! @epilepsy_parent @epilepsysociety @epilepsyaction @CureEpilepsy @curedravet @epilepsyadvice @epilepsyposi @BostonChildrens
@HealthPioneer @epilepsysociety @epilepsyadvice Sadly life can be so unkind to some poor souls. God bless you all x
@HealthPioneer @epilepsysociety @epilepsyadvice My late daughter had a rare disease PME-SMA & had constant seizures. Thousands a day. I’m in awe of how she lived with them. We need to educate everyone on how to deal with a grand mal. It’s empowering to be ready. Too many people still stigmatize this condition
Purple Day: The Responsibility Of Making a Difference. soanstimes.com/2019/03/26/pur…
#newblogpost Please check out my new post on how we live with our sons epilepsy! I will be wearing purple to support 'Purple Day'. Let's Support International World Epilepsy Day! #PurpleDay2019 #epilepsy @EpilepsyRUK @epilepsyadvice @youngepilepsy buff.ly/2Yo4unF
Purple Day International Epilepsy Day 26th March.. @epilepsyaction @epilepsyadvice @epilepsyevents... they also have an amazing free tel 0808 800 5050 helpline epilepsy.org.uk [email protected]
Ahead of tomorrow's #EpilepsyAwareness Day, take a look at how our #Epilepsy monitoring solutions can bring much needed peace of mind to those living with the condition and their families care-line.co.uk/about/news/epi… @epilepsyadvice @epilepsy_fdn @epilepsyaction
@epilepsyaction @epilepsyadvice Love these purple painted awareness raising rocks done by UoC Learning Disability Nursing Rocks! All painted ready to go out today & tomorrow around #Chester & #Wirral #RT #Epilepsy #Awareness
@epilepsyadvice @epilepsyaction @acasorguk Thank you for the information. You are as always positive to help. :)
@epilepsyadvice Managed just under the hour so happy with that all considering. Thanks for your messages. Andy
@epilepsyaction @epilepsyadvice Each time I have one I dislocate my shoulders. It’s important that people know what to do. I am very fortunate that my partner is incredibly educated on this type of seizure but we should have pretend they happen. Thank you for sharing
@epilepsyadvice @Channel4 Keep fighting the love ❤️ from my parents and family gave me strength to wake up and to see my mom giving her love and kiss 😘 wish she was still with me memory lose hurts
Well, I’ve just seen my new hero. Bryson @Helmets4Helmets - what a tough little legend and doing more to help others. He’s 7. ‘Don’t be what the seizures can make you’ @NFL @epilepsyadvice @EpilepsyFdn @epilepsysociety #EpilepsyAwarenessMonth @tottster
“He’s the toughest person I know.” Bryson is 7 years old with epilepsy, and suffers from as many as 100 seizures in a day. He wears a helmet to protect himself in case he falls. Now he’s on a quest to help others in need. (via @SlaterNFL) x.com/nfl/status/106…
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