Lorna Hecht @fragilexsib

Alan's big sister. Licensed Marriage and Family Therapist. Desire to learn more about families with Fragile X. Joined January 2014

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Lorna Hecht @fragilexsib

12 years ago

Fragile X affects entire families in different ways. I want to understand more.

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Husband to incredible wife, father 3X (one with #FragileXSyndrome), Christian, #CEO, Board Member, leadership freak, #CUBuffs.

Ben Hinnen @benhinnen

358 Followers 759 Following Husband to incredible wife, father 3X (one with #FragileXSyndrome), Christian, #CEO, Board Member, leadership freak, #CUBuffs.

Cherie Miller @pharmerc

111 Followers 1K Following Mary Kay Independent Beauty Consultant, Clinical Pharmacist

Becky Hardiman @Becky_Hardiman

788 Followers 825 Following Trainee Clinical Psychologist @DClinPsySWales, @fragilexuk Advisor, PhD @TizardCentre, volunteer @LocalWelcome

Wife, 2 kids with Fragile X, Dinner Lady. Playing all the right notes but not necessarily in the right order. Likes music/books/TV/theatre/gardening/wine/coffee

Karen Blower ☕🍷�... @KarenBlower1

270 Followers 538 Following Wife, 2 kids with Fragile X, Dinner Lady. Playing all the right notes but not necessarily in the right order. Likes music/books/TV/theatre/gardening/wine/coffee

Laci Smith @LaciLSmith

104 Followers 287 Following I'm a writer (YA mostly), journalist, and advocate for autism and fragile x syndrome.

Fragile X Syndrome is the most common inherited cause of learning disability. We support & empower individuals, families & professionals.

Fragile X Society, UK @fragilexuk

3K Followers 1K Following Fragile X Syndrome is the most common inherited cause of learning disability. We support & empower individuals, families & professionals.

LA Fragile X Assoc @CentralLAFX

138 Followers 106 Following We are the Central Louisiana Fragile X Association, representing Fragile X families in Louisiana.

Natural intuitive healer, empath, and tarot card reader. My vision is to share the principals of intuitive healing so that it becomes a mainstream practice.

Sheri Friedman @IntuitionHealer

42 Followers 49 Following Natural intuitive healer, empath, and tarot card reader. My vision is to share the principals of intuitive healing so that it becomes a mainstream practice.

John Peltier @FRXDad

4 Followers 22 Following Dad of son with FRAGILE X

News and information from the National Fragile X Foundation about Fragile X syndrome, FXTAS, FXPOI and the other Fragile X-associated disorders

NFXF @NFXFoundation

3K Followers 1K Following News and information from the National Fragile X Foundation about Fragile X syndrome, FXTAS, FXPOI and the other Fragile X-associated disorders

Actress, ergonomic specialist, mother of Corin - an adorable Fragile X son, LGBT activist...pursuing dreams in San Francisco!

Cameron Stiehl @CameronCat

348 Followers 714 Following Actress, ergonomic specialist, mother of Corin - an adorable Fragile X son, LGBT activist...pursuing dreams in San Francisco!

Writer, Mom & Carer for my son with Autism. Adam also has Bowel Disease and nobody in Ireland wants to treat Adam so we must fight for him. Its a tough life.

[email protected]... @thewritingowl

481 Followers 2K Following Writer, Mom & Carer for my son with Autism. Adam also has Bowel Disease and nobody in Ireland wants to treat Adam so we must fight for him. Its a tough life.

Irish-Italian Mamma ♥️ Voluntary Chair - FX Ireland, passionate #disability #advocate #FragileX common known #genetic cause of #autism & ID

Maria Panza 🙂🇮�... @MariaPanza247

991 Followers 1K Following Irish-Italian Mamma ♥️ Voluntary Chair - FX Ireland, passionate #disability #advocate #FragileX common known #genetic cause of #autism & ID

🪔FlightParamedicRN... @Medic1st_RN2nd

1K Followers 2K Following Medic/RN dx’d with ALS; Svr weather, aviation, Fragile X Syndrome #NeverTrump #CovidIsABadThing https://t.co/ljmbxEkOuG

Mom, Wife, Molder of the Future, EdTech & music lover-David Cook, Ryan Star & GRO, Wishing, Hoping, Waiting, Fundraising for a Fragile X cure! #BetheChange

stacy @FragileXception

295 Followers 745 Following Mom, Wife, Molder of the Future, EdTech & music lover-David Cook, Ryan Star & GRO, Wishing, Hoping, Waiting, Fundraising for a Fragile X cure! #BetheChange

FragileX SC @FragileXSC

557 Followers 2K Following A mother of a 10-year-old son with Fragile X Syndrome. Hope a cure is found for FX soon.

A Fox in Paris 🦊 @the_yiayia_girl

2K Followers 3K Following 1975 Truth seeker: O.G. F.- Comms- digital - writing🌟 nature & outdoors 🌳🏂🏔🌊 music & films 🎥 🇫🇷mom👩‍👧- 🇺🇸 🇬🇧 - 💖 the big life ☀️- Personal Tweets

Fragile Xproject @fragilexipad

933 Followers 2K Following a dream project about getting iPads to Fragile X patients

Yoga & arts enthusiast, career coach, recruiter with a heart which comes from being a mom of 4 terrific sons 2 of which have Fragile X, and from tree hugging.

Audrey @strategicrecjoy

1K Followers 3K Following Yoga & arts enthusiast, career coach, recruiter with a heart which comes from being a mom of 4 terrific sons 2 of which have Fragile X, and from tree hugging.

Bonnie@FragileXFiles @FragileXFiles

714 Followers 1K Following Disability and mental health advocate, Fragile X mom, Packer fan, reader, writer. INFP

PattieKnack @PattieKnack

364 Followers 1K Following

Conservative rabbi sharing life with husband, Big Boy & Little Boy. #FragileX #specialneeds #whatrabbisdo #workmom #binders #healing #GarberStrong #AfterCancer

Rabbi Ilana Garber @ilanagarber

2K Followers 1K Following Conservative rabbi sharing life with husband, Big Boy & Little Boy. #FragileX #specialneeds #whatrabbisdo #workmom #binders #healing #GarberStrong #AfterCancer

Patricia Kisamore @fragilexpk

689 Followers 1K Following mom to 2 fab children, SPED teacher, Fragile X Syndrome adv, avid reader, 4ever a GM lovely 💔 https://t.co/F4KE2rapgR

[email protected]... @thewritingowl

481 Followers 2K Following Writer, Mom & Carer for my son with Autism. Adam also has Bowel Disease and nobody in Ireland wants to treat Adam so we must fight for him. Its a tough life.

FragileX SC @FragileXSC

557 Followers 2K Following A mother of a 10-year-old son with Fragile X Syndrome. Hope a cure is found for FX soon.

Bill Gates @BillGates

66.4M Followers 572 Following Sharing things I'm learning through my foundation work and other interests.

LIFE @LIFE

3.8M Followers 374 Following Incredible stories and treasured photographs from the LIFE Magazine archive.

National Geographic @NatGeo

28.9M Followers 182 Following Inspiring the explorer in everyone 🌎

Sindrome X Fragil @SindromeXFragil

614 Followers 85 Following in FXS since 1998 Estudiando el SXF desde 1998

Rabbi Ilana Garber @ilanagarber

2K Followers 1K Following Conservative rabbi sharing life with husband, Big Boy & Little Boy. #FragileX #specialneeds #whatrabbisdo #workmom #binders #healing #GarberStrong #AfterCancer

Sir Chris Hoy 6xOlympic🥇 11xWorld🥇 34xWorldCup🥇trackcyclist @HOYbikes founder. @gozwift ambassador TV pundit. Author. BBQ, Coffee & Motorsport

Sir Chris Hoy @chrishoy

602K Followers 981 Following Sir Chris Hoy 6xOlympic🥇 11xWorld🥇 34xWorldCup🥇trackcyclist @HOYbikes founder. @gozwift ambassador TV pundit. Author. BBQ, Coffee & Motorsport

X FACTOR @XFactor_Italia

1.2M Followers 293 Following #XF2025 dall'11 settembre su Sky e NOW

Nous sommes des 3eme qui travaillons sur la maladie génétique : l'X fragile. suivez-nous et nous combattrons ensemble contre le symptome de l'X fragile.

l'x fragile @3Gtelethongr14

85 Followers 884 Following Nous sommes des 3eme qui travaillons sur la maladie génétique : l'X fragile. suivez-nous et nous combattrons ensemble contre le symptome de l'X fragile.

Domi @Fragilex3

33 Followers 26 Following

Tristan . @_xBrownSugar

521 Followers 463 Following

TheFragileX @TheFragileX

1 Followers 0 Following

Cameron MCclain @FragileDreamerX

1 Followers 2 Following

Fragile Butterflies @fragile__x

4 Followers 0 Following

isa @KaweeweeDesu

2 Followers 13 Following

LA Fragile X Assoc @CentralLAFX

138 Followers 106 Following We are the Central Louisiana Fragile X Association, representing Fragile X families in Louisiana.

autism/fragile x mom @autismfragilex

23 Followers 4 Following

Jess @WalkiingParad0x

424 Followers 89 Following

Loves Goth Rock Metal Ghosthunting Horror Sci-Fi Geek Sherlock Holmes Fan & Jewellery Making Hybrid-Married and still in love x That's about the size of it :)

Carrie Hoban-Pickard @FragileElite

273 Followers 242 Following Loves Goth Rock Metal Ghosthunting Horror Sci-Fi Geek Sherlock Holmes Fan & Jewellery Making Hybrid-Married and still in love x That's about the size of it :)

Jessica @Fragile_X

12 Followers 0 Following

Fragile-X @FagileX

19 Followers 0 Following

Fragile X Syndrome @1million4FXS

30 Followers 27 Following

Fragile X @Fragilexmusic

11 Followers 9 Following Three piece jok rock. I mean punk.

We keep moving forward,opening new doors, and doing new things, because we're curious and curiosity keeps leading us down new paths. -Walt Disney-

Brianna Kendall @XxFragileInkxX

10 Followers 18 Following We keep moving forward,opening new doors, and doing new things, because we're curious and curiosity keeps leading us down new paths. -Walt Disney-

We are a volunteer-run, not-for-profit organization committed to letting area
families affected by Fragile X Disorders know they are not alone.

MO Fragile X Center @mofragilex

39 Followers 7 Following We are a volunteer-run, not-for-profit organization committed to letting area families affected by Fragile X Disorders know they are not alone.

kat. @FragilexDesires

1K Followers 356 Following if only life were a musical.

Working to improve the lives of patients with fragile X syndrome, autism and other neurodevelopmental disorders through groundbreaking science.

SeasideFXS @SeasideFXS

141 Followers 75 Following Working to improve the lives of patients with fragile X syndrome, autism and other neurodevelopmental disorders through groundbreaking science.

Karen Blower ☕🍷�... @KarenBlower1

270 Followers 538 Following Wife, 2 kids with Fragile X, Dinner Lady. Playing all the right notes but not necessarily in the right order. Likes music/books/TV/theatre/gardening/wine/coffee

Laci Smith @LaciLSmith

104 Followers 287 Following I'm a writer (YA mostly), journalist, and advocate for autism and fragile x syndrome.

Ross McPhe @RoscoesMdrnLife

19 Followers 161 Following

Providing support to the Fragile X Community in Texas. Contact us at info.texasfx@gmail.com

FX Alliance of Texas @texasfxalliance

379 Followers 106 Following Providing support to the Fragile X Community in Texas. Contact us at [email protected]

Simplypi @FragileX8

5 Followers 2 Following

Ben Hinnen @benhinnen

358 Followers 759 Following Husband to incredible wife, father 3X (one with #FragileXSyndrome), Christian, #CEO, Board Member, leadership freak, #CUBuffs.

Melissa @MoJo4FragileX

12 Followers 169 Following

I'm a mom to a son with Fragile X Syndrome. He is the greatest gift I've been given in this world. My husband & I team together raising awareness and research $

Amy Watkins @awatkins24

255 Followers 395 Following I'm a mom to a son with Fragile X Syndrome. He is the greatest gift I've been given in this world. My husband & I team together raising awareness and research $

Cameron Stiehl @CameronCat

348 Followers 714 Following Actress, ergonomic specialist, mother of Corin - an adorable Fragile X son, LGBT activist...pursuing dreams in San Francisco!

I serve as an active messenger. I am a leader and healer to #spiritual seekers of enlightenment. I offer hope, clarity & #connection with the #Divine.

LeeAnn Taylor @leeannstory

518 Followers 1K Following I serve as an active messenger. I am a leader and healer to #spiritual seekers of enlightenment. I offer hope, clarity & #connection with the #Divine.

CEO XMiles UK @XMilesUK | GB Ultra Runner 🇬🇧 - Comrades Wally Hayward Medal 2022 | 8th IAU World 100k 2018 6:43, Marathon 2:27, husband & dad

Anthony Clark @Fragilerunner

942 Followers 725 Following CEO XMiles UK @XMilesUK | GB Ultra Runner 🇬🇧 - Comrades Wally Hayward Medal 2022 | 8th IAU World 100k 2018 6:43, Marathon 2:27, husband & dad

Married 21yrs ,to Amazing Husband, Have 2 wonderful sons ,oldest in Army Reserves, Youngest has Fragile-x. I have nerve damage,Fibro .

Carol Fibro Chase @ChaseGirl44

357 Followers 2K Following Married 21yrs ,to Amazing Husband, Have 2 wonderful sons ,oldest in Army Reserves, Youngest has Fragile-x. I have nerve damage,Fibro .