Global MPN Scientific Foundation @gmpnsf
Global MPNSF is a non-profit foundation, which empowers MPN patients worldwide by raising awareness, advocating for their needs and supporting research. #MPNsm hopp.to/gmpnsf Barcelona, Barcelona Joined May 2022-
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📅 Sept 11 | 6 PM CEST MPN Awareness Day Webinar Supplements and MPN Treatments Led by Dr. Natalia Curto (Guy’s & St. Thomas’ NHS, London) What helps? What interacts with the treatment? 🔗 Register: gmpnsf.org/post/webinar-i… #BloodCancerAwareness #MPNsm
🧒🏽 Children can be diagnosed with MPNs. It's rare but real. This article answers questions like: ✅ How it’s detected ✅ JAK2, CALR, MPL mutations ✅ Treatment options ✅ Living a normal life 📲 Read now: gmpnsf.org/post/children-… #MPNsm
📣 Join top experts Dr. Serge Verstovsek & Prof. Haifa Al-Ali for a webinar on the groundbreaking POIESIS trial (@KartosThera). Learn about the future of treatment and research. 🩸 🗓️ Sep 8th | ⏰ 6 PM CEST 📲 Register now: gmpnsf.org/post/webinar-d… #MPNsm
Meet John from the Netherlands 🇳🇱 👉🏻 After his Polycythemia Vera diagnosis, he co-created the MPN Journal, a free tool to help patients track symptoms and feel in control. 🎥 His story: gmpnsf.org/post/meet-john… #BloodCancerAwareness #MPNsm
🩸 September is Blood Cancer Awareness Month MPNs are rare blood cancers that need our attention. 📲 More info at gmpnsf.org/post/blood-can… #CancerAwareness #BloodCancerAwarenessMonth #SeptembreRouge #MPNsm @mpdrc
🧬 What are patients thinking before joining a clinical trial? In yesterday’s webinar, @SilenceTheraPlc presented divesiran for PV, and Dr. Susanne Isfort (@SIsfort) answered key trial-related questions. 🎥 Replay coming soon #MPNsm
🎥 New: Montse’s story after a stem cell transplant (MF, Spain) Part 1 of her video series is now available. She opens up about life in the hospital and beyond. 👉🏻 Watch: gmpnsf.org/post/montse-s-… #MPNsm
🚨 New website live! Global MPN Scientific Foundation presents a dynamic platform for: ✔️ Patients ✔️ Physicians ✔️ Pharma 🎥 Video hub 🧬 Scientific updates 🌐 Global community Visit now: gmpnsf.org #MPNsm
👉 #buildhopeMPN is more than a hashtag. It’s a virtual Wall of Hope for the MPN community. Today, on World Hashtag Day, meet Montse, recently transplanted after a diagnosis of #Myelofibrosis. 📲 See more on Instagram or visit our site: 🔗 gmpnsf.org/post/montse-s-… #MPNsm
🌍 Help us empower the Global MPN community Your donation supports education, research and connection for MPN patients Every contribution counts! 🔗 Donate: gmpnsf.org/donate #MPNsm
Webinar | Clinical Trials, PV & Future MPN Care Aug 28 | 18:00 CEST Dr. Susanne Isfort (@SIsfort) & @SilenceTheraPlc discuss PV, clinical trials, and young patient stories. 🎙️ English w/ Spanish interpretation 🎯 Open to all 🔗 Register: gmpnsf.org/post/webinar-c… #MPNsm
👉👉👉Delighted to share our group’s new work just out in @BloodAdvances | Preclinical work in #Tasquinomod in advanced MPN setting #MPNSM #leusm @MDmasarova @JAK2TheFuture @doctorpemm @bose_prithviraj @TapKadia @RaajitRampal @sanamloghavi ashpublications.org/bloodadvances/… @MpncoD
Last year in Barcelona, global experts Prof. Ruben Mesa (@mpdrc), Dr. Lucia Masarova (@MDmasarova) Dr. Marina Kremyanskaya (@MKremyanskaya) & Prof. Martis Ellis discussed what's next for #MPNs: therapies, QoL, trials & more. 🎥 Watch more: gmpnsf.org/post/internati… #MPNsm
🌍 Today is International Youth Day Young MPN patients face unique challenges but also build strong communities like Odd Blood Club. 📸 Post a photo with #buildhopeMPN and join the MPN Hope Series to share your message of hope: gmpnsf.org/post/internati… #buildhopeMPN #MPNsm
👉🏻 Young ET patient Oscar Wei started his MPN journey after a routine blood test and severe migraines. 🩸 He tried Traditional Chinese Medicine for one year and now takes part in a clinical trial in New York. 🎥 gmpnsf.org/post/oscar-wei… #buildhopeMPN #MPNsm
📅 Save the Date: 5th MPN Spring Symposium 📍 Barcelona, November 7th to 9th, 2025 A hybrid global event for patients, physicians and pharma to discuss quality of life, new treatments and projects worldwide. 🌍 Register to attend online → gmpnsf.org/post/save-the-… #MPNsm @mpdrc
The MPN Journal helps patients track symptoms, fatigue, and medications, all in one place. 📲 👉🏻 Prof. Ruben Mesa (@mpdrc) has reviewed the tool and recommends it to patients: “I encourage MPN patients to look at this resource.” Share it! → gmpnsf.org/post/what-does… #MPNsm
😓 MPN fatigue is real. It goes far beyond just feeling tired. 💡 Learn what helps: exercise, nutrition, rest, and support. 🔗 New blog at gmpnsf.org/post/are-you-f… #MPNsm
🔓 A new way to join @MPNWorld! Faster, multilingual & more secure than ever. Connect with other MPN patients worldwide — in just a few steps. No cost. Just support. 👉 gmpnsf.org/post/a-new-way… #MPNWorld #MPNsm
🧠🩸 Emotional wellbeing and medical care must go hand in hand. That’s why we’re launching The Wellbeing Project — a new support space for MPN patients. Tools for calm, strength and self-care — along with physical treatment. 📩 gmpnsf.org/post/join-our-… #MPNHope #MPNsm
MPN Stichting @mpnstichting
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