Search results for #SpinalMuscularAtrophy
A new awareness campaign from SMA Europe – dubbed "Connecting the Dots" – aims to link spinal muscular atrophy research and patient needs. buff.ly/Zzc5BhL #SpinalMuscularAtrophy #SMAResearch #SMANewsToday #SMANews #SMATreatment #Bionews
Columnist Alyssa Silva collaborates with her brother for an adaptation that makes a page turn — and thus reading at the beach — easy. buff.ly/3EnPKAr #SpinalMuscularAtrophy #SMAResearch #SMANewsToday #SMANews #SMATreatment #Bionews
Through the SMAshing My Limits campaign, Siara is inspiring teens & young adults with SMA to embrace independence and chase their passions. #SMA #DisabilityRepresentation #SMAshMyLimits #SpinalMuscularAtrophy #RareDisease Read now: hubs.li/Q03GZ2rN0
@curesmaindia expresses its deepest gratitude 2 d Hon’ble PM Shri @narendramodi ji, Hon’ble Finance Minister Smt @nsitharaman ji n d @GST_Council 4 granting GST exemption on life-saving medicines 4 #SpinalMuscularAtrophy (SMA)🙏. @MoHFW_INDIA @NITIAayog @Roche @Novartis
#GeneticTesting remains the gold standard for diagnosing #SpinalMuscularAtrophy (SMA), according to a narrative review published in the Journal of Neurology. Read more: bit.ly/47qA8a0 #SMA #RareDisease
Pediatric spine surgeon Arun Hariharan answers common questions about scoliosis surgery for children and teens with spinal muscular atrophy. buff.ly/DDZiZQD #SpinalMuscularAtrophy #SMAResearch #SMANewsToday #SMANews #SMATreatment #Bionews
Spinraza helps restore L-arginine, a key amino acid for brain development, in patients with severe SMA, a study has found. buff.ly/kgTC9iF #SpinalMuscularAtrophy #SMAResearch #SMANewsToday #SMANews #SMATreatment #Bionews
🧬 Spinal Muscular Atrophy (SMA) is a rare genetic condition that affects muscle strength. How You Can Help: 📢Share SMA awareness & resources 🤝Support research & patient groups 🧪Promote early genetic testing Early awareness saves lives. 🩺 #SMAAwareness #SpinalMuscularAtrophy
Featured expert Julie A. Parsons, MD, of @ChildrensColo provides insights into information presented at @CureSMA 2025 related to current research on cognitive function in #SpinalMuscularAtrophy. #CureSMA #Neurology #MedEd #md #MedTwitter expertperspectives.com/conference-rep…
Whether helping her husband, a football coach, or caring for a baby living with SMA, columnist Helen Baldwin never sat idly on the sidelines. buff.ly/SYAjjUc #SpinalMuscularAtrophy #SMAResearch #SMANewsToday #SMANews #SMATreatment #Bionews
SMA can steal a child’s strength before they even take a step. We’re working to find it early, so care can start right away. For stronger futures, challenge accepted. Learn how early screening can change lives. ms.spr.ly/6016sZwqw #SMA #SpinalMuscularAtrophy…
Columnist Connie Chandler recognizes her breakthroughs that began in childhood, and her parents' big breakthrough from that time, as well. buff.ly/bzalbpx #SpinalMuscularAtrophy #SMAResearch #SMANewsToday #SMANews #SMATreatment #Bionews
Columnist Brianna Albers, an advocate for disability awareness, still finds it difficult sometimes when putting herself out there. buff.ly/Iw76Nfm #SpinalMuscularAtrophy #SMAResearch #SMANewsToday #SMANews #SMATreatment #Bionews
Adults with SBMA have elevated levels of NfL and GFAP, two biomarkers for nerve damage, in their cerebrospinal fluid, a study found buff.ly/pzpFJM1 #SpinalMuscularAtrophy #SMAResearch #SMANewsToday #SMANews #SMATreatment #Bionews
Teletrabajo + flexibilidad (horarios, consultas, objetivos) no es “favor”: es accesibilidad que mejora resultados. Con AME, reducir traslados y gestionar cuidadores cambia el día de trabajo. #AMEDesdeDentro #AccesibilidadLaboral #SpinalMuscularAtrophy #SMAAwareness…
As he celebrates SMA Awareness Month, columnist Ari Anderson reflects on his desire to have fun — on day trips as well as longer travels. buff.ly/uJd6QtD #SpinalMuscularAtrophy #SMAResearch #SMANewsToday #SMANews #SMATreatment #Bionews
Affecting 1 in 15,000 births, #SpinalMuscularAtrophy can greatly impact the quality of life, making basic activities difficult to perform. Check out more on research, treatment and care for patients with #SMA from @CureSMA. #SpinalMuscularAtrophyAwarenessMonth #SMAAwareness
SpinalMuscularAtrophy... @SMA_HealthUnion
58 Followers 62 Following A community for people affected by Spinal Muscular Atrophy. Learn, share, and connect with peers and healthcare professionals.
Alpana Sharma @alpanaS16
1K Followers 179 Following #RareDisease #PatientAdvocate #SpinalMuscularAtrophy, Co Founder Director CureSMA Foundation India @curesmaindia & Mom fightin 4 life saving treatment 4 son