Helga Nefdt @helga_nefdt
people being well, social justice, T2D, diabetes advocate, diabetes support. Wellness coach supporting the transition to wellness. https://t.co/pxIfVo1oU6 ninety9zero.com Cape Town, South Africa Joined November 2022-
Tweets64
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Followers225
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Following86
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Likes250
Come join our next community #DiabetesChat as we welcome @bromleydiabetic & @helga_nefdt as we talk about Type 2 Diabetes 🗓️ Monday 11th March ⏰ 8pm-10:30pm GMT 🗣️ Guest Speaker Chat from 8:30pm 💬🎙️ Open Forum Chat to follow 🎧x.com/i/spaces/1vogw… 📺youtube.com/watch?v=vZacSm…
Urging Uninterrupted #InsulinAccess in Humanitarian Crises ✍️ Sign the petition! Because depriving someone with type 1 diabetes of insulin is condemning them to death. chng.it/X4F7gFTR
Following!
@katieestevenson #DeDOC° voices come from all backgrounds, using all sorts of devices/no devices, many from LMI countries. Give them a follow @tinodzikiti @anitasabidi @EdithMukantwari @bromleydiabetic @SnehalN29 @helga_nefdt @YezzyJohney @HeatherKoga3 @RefugeeDiabetes @osaethel @aya_gorashiy
Some reflections on finding a voice for advocacy and learning from the phenomenal community that comes along with it! #wearbluefordiabetes #WorldDiabetesDay #DiabetesAwarenessMonth #dedocᵒ #EASD2023
Some reflections on finding a voice for advocacy and learning from the phenomenal community that comes along with it! #wearbluefordiabetes #WorldDiabetesDay #DiabetesAwarenessMonth #dedocᵒ #EASD2023
Why should health professionals care about #diabetes stigma and discrimination? -Richard I.G. Holt ‘Stigma is a barrier to diabetes care’ ‘HCP can magnify stigma with bias and jugement’ #EASD2023 #dedoc°voices #NothingAboutUsWithoutUs #PayItForward #EndDiabetesStigma
Really inspiring talk from @helga_nefdt in the @dedocORG symposium @EASDnews. Feeling psychologically safe within diabetes care is fundamental #EndDiabetesStigma #EASD2023
OOf. Some of that language @helga_nefdt experienced in pregnancy! She’s not alone in experiencing those words. This needs to change! #dedoc #dedocsymposium #EASD2023
@thediabeticsurv highlighting diabetes stigma in art form 🎨 "Your diabetes is NOT your fault.” This is something EVERYONE should know, regardless of the type of diabetes. "Living with diabetes is relentless 24/7" - referring to the loop image...it's constant. 180 decisions!!
"be mindful of what you're doing" @ChelcieRice refers to what you say including on social media, online. "Ask questions and standup for yourself" in the workplace. Powerful talk 👊. I've been in that position not wanting to tell people in work. Now I can 🗣️ and feel supported
"Self managing in silence is exhausting ...but being normal is how I kept myself safe from judgement" says the amazing @helga_nefdt Boy oh boy, I think a lot of people can relate to this and it's horrible being alone and fearful of stigma This HAS to change! #EndDiabetesStigma
Thank you, Chantal Mathieu (President of EASD) for the warm words of welcome and thank you for your support! 💙 "Your voices are needed to guide researchers. [...] I pledge you, you willl be part of EASD for the next years." - @professorcm #EASD2023 @EASDnews
A privilege in so many, many ways to be able to share my lived experience along the amazing #dedocᵒvoices @ChelcieRice and @thediabeticsurv at the @dedocORG symposium #EASD2023
One of my hot topic highlights at #easd2023. Thank you @AliceYYCheng for articulating #languagematters and #EndDiabetesStigma. Excluding stigma in a focused conversation about overall health and a holistic approach. #dedoc° #diabeteslookslikeme
"Own your space, stand your ground, and be seen and be heard" — Chelcie Rice shared his insights into attending #diabetes conferences as an advocate and the hurdles that still need to be overcome. Hear more of what Chelcie had to say here: youtu.be/blG-QJDOYCo
70 days to #WorldDiabetesDay! This year’s actions focus on the importance of knowing your risk of #type2diabetes to delay or prevent the condition & highlighting the impact of diabetes-related complications. Get involved and support the campaign: bit.ly/WDDGetInvolved…
Sara Crowley (Type1Hu.. @Type1Hurdles
4K Followers 4K Following My greatest achievement is being Mami to my b/g twins. 33+ yrs living with T1D, learning to accept that. 🏳️🌈 Sara(h)
Shola B @Norikoshi___
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LanguageMattersPregna.. @PregnancyLMD
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FatCatAnna 🇨🇦 �.. @FatCatAnna
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Claire Howells RNLD @ClaireHowells10
765 Followers 776 Following Learning Disability Nurse, Co-host of @diabetes_chat peer support community. T2DM for 28 years.
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Erin M Akers❤️.. @ErinMAkers
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ferhat şimşek @ferhatimek61241
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Type1Tony 💙 @Type1Tony
2K Followers 1K Following 45 years #T1D #dedoc° Voice #DiabetesChat Co-Host Web & mobile application developer Bassist for @SecondCitySoul Ex-professional Ferret Juggler
Silvano Ernest @silvanompinge
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Dr. Faust M.D. @DrFaust921
121 Followers 381 Following The doctor is in! Remember patients, a merry heart doeth good like a medicine!
Steven Dave @harryalonsou1
164 Followers 1K Following I have good leadership skills. I'm interesting. I think I'm a fun person with a good sense of self and a positive nature. I'm a friend
International Diabete.. @DSMA2024
418 Followers 364 Following The DSMA brings together leading reserachers, clinicians & academics to raise the profile of diabetes self-management as a therapeutic area.
Fateemah Muhammad @anisati3259
267 Followers 2K Following Health Economist, Research Fellow@ Bayero University Kano Nig.❤️Theoritical ,empirical studies and analysis of health policy for economies.
Edith Mukantwari #Dis.. @EdithMukantwari
461 Followers 960 Following Nutritionist | Diabetes Educator | NCDs Advocate | ED @AfricaDiabetesA
Jennifer Halliday @Jennifer_Halli
234 Followers 357 Following She/her. Diabetes and emotional health researcher. The Australian Centre for Behavioural Research in Diabetes. @ACBRD @DiabetesVic @Deakin Views are my own.
Global Citizen @Selfless_Always
28K Followers 31K Following RoadMap: Faster Execution of #ClimateSolutions4World #WorldLeaders #Business *Know How To Create ClimateFinance #WorldEconomy #Jobs #Food #Agri #Energy #Health
NIdoc 🇺🇦🇺�.. @IdocN
931 Followers 1K Following an account for Diabuddies from both sides of the Bann 🎠 and further afield
notsosugarfreeswissmi.. @notsosugarfree1
541 Followers 938 Following Mom x’s 2( 4 if you count the dog and husband ), T1d,dx 1986,St. Louis Cardinals and Baltimore Ravens fan. Vote Blue to save Democracy! 🏳️🌈🏳️⚧️
Alyssa Faulkner @faulkner_alyssa
2K Followers 1K Following Type 1 Diabetes / Epilepsy / Pumptastic Scot / MSc from Edinburgh University 🏳️🌈She/her / Trustee at @YouthLinkScot
Jérôme Kazabukeye @Kazabukeye
4K Followers 3K Following Freelancer #Journalism, #Webdesigner, #GraphicDesigner, #QAtester, #MetaCertifiedDigitalMarketingAssociate, #socialmediamanager and #Diabetesadvocate
Wania @WaniaSadiq
68 Followers 96 Following graduate @kemuofficial,lecturer @uLahore, Just a girl with a broken pancreas, Living with T1d,Diabetes advocate @meethizindagi,#dedocvoices @dedoc_org
Katelyn O'Brien, Phar.. @KOBPharmD
2K Followers 2K Following Clinical Pharmacy Specialist #ambcarerx All things #diabetes and #CGM Opinions are my own. she/her/hers
Dawnie @Moodwife
2K Followers 1K Following Still don’t know what to be when I grow up... 🧚🏼♀️ #FeralT1D #AndroidAPS #HybridHuman, #midwife, mother of boys
Flipper @flippper1
2K Followers 319 Following Human random number generator (aka have T1D!) * Just in case we all need to move I'm at @[email protected]
Shivani Misra @ShivaniM_KC
9K Followers 3K Following Physician & Scientist @ImperialMed. I study early-onset type 2 diabetes & MODY. Consultant in Metabolic Medicine. Sometimes I eat 🍫 but you don't have to ☺️
Emma Doble @emmajdoble
1K Followers 1K Following Living with type 1 diabetes | Freelance patient editor @bmj_latest | All views are my own
Niki @WhatNikiDidNext
2K Followers 1K Following Many Hats: #T1D 20yrs & counting #Pregnancy #Hashimotos #Mumma #Advocate #Writer #Speaker #tealover #LanguageMatters #dedoc°voice #RCOGWVIP *views my own*
LanguageMattersPregna.. @PregnancyLMD
62 Followers 97 Following Social Media presence for the #LanguageMatters Diabetes and Pregnancy project. More info soon
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418 Followers 364 Following The DSMA brings together leading reserachers, clinicians & academics to raise the profile of diabetes self-management as a therapeutic area.
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234 Followers 357 Following She/her. Diabetes and emotional health researcher. The Australian Centre for Behavioural Research in Diabetes. @ACBRD @DiabetesVic @Deakin Views are my own.
Dawnie @Moodwife
2K Followers 1K Following Still don’t know what to be when I grow up... 🧚🏼♀️ #FeralT1D #AndroidAPS #HybridHuman, #midwife, mother of boys
Carl Wastie @carlwastie
50K Followers 2K Following @KFMza Presenter / TV Presenter / MC / Creative / Madridista
DiabetesChat @diabetes_chat
3K Followers 605 Following 🗣️🎙💬 #DiabetesChat Peer Support Community and chat space. Connecting #PWD, HCPs & diabetes advocates globally 🌎. ⏰ Every Monday. ⏰ 8pm. #QiC Winners 2023 🏆
DiabetesMine Innovati.. @DData_Diabetes
780 Followers 1K Following Views on diabetes / digital health from Amy Tenderich, creator of the DiabetesMine #DData Innovation events, at https://t.co/9mYFsBepxa.
Philippa @docphil02
176 Followers 585 Following working in international humanitarian medicine and exploring the world #NCDs #diabetes #MSF #IADAdiabetes Tweets my own
NIdoc 🇺🇦🇺�.. @IdocN
931 Followers 1K Following an account for Diabuddies from both sides of the Bann 🎠 and further afield
Wania @WaniaSadiq
68 Followers 96 Following graduate @kemuofficial,lecturer @uLahore, Just a girl with a broken pancreas, Living with T1d,Diabetes advocate @meethizindagi,#dedocvoices @dedoc_org
Jérôme Kazabukeye @Kazabukeye
4K Followers 3K Following Freelancer #Journalism, #Webdesigner, #GraphicDesigner, #QAtester, #MetaCertifiedDigitalMarketingAssociate, #socialmediamanager and #Diabetesadvocate
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2K Followers 2K Following 💉 T1D d/x 2005 💼 @JDRFUK Head of Community Engagement. Views my own. “One day your life will flash before your eyes, it's on you to make it worth watching.”
James Ridgeway @James_Ridgeway_
3K Followers 2K Following Person living with type 1 diabetes. Diabetes educator with EDEN & Diabetes Specialist Nurse. Passionate about the NHS, quality care, education and peer support.
ACBRD #EndDiabetesSti.. @ACBRD
2K Followers 788 Following The Australian Centre for Behavioural Research in Diabetes, a partnership for better health between @DiabetesVic & @Deakin 📍Wurundjeri Woi-wurrung Country
Diabetes Australia @DiabetesAus
9K Followers 439 Following Diabetes Australia is the peak body representing people and their families. Helpline: 1800 637 700
Cameron Keighron @CameronKeighron
847 Followers 981 Following PhD student | T1 Diabetic (Dexcom G6/Tslim pump) | @d1nowIE YAP member | MSc Reg Med graduate | @AmachLGBT Chairperson | Non Binary (They/Them)
Glucose toujours @glucosetoujours
413 Followers 287 Following Le média qui en dit long sur le diabète. Indépendant, informatif et drôle.
@Ana-Yodiabetes @AnaYodiabetes
455 Followers 373 Following La diabetes es parte de quien soy, pero no me define. Yo me defino a mí misma.
Bionic Wookiee @BionicWookiee
836 Followers 68 Following Living with medical technology on my terms. T1D in the wild. Coeliac too, but not so much tech there.
The Diabetic Survivor @thediabeticsurv
1K Followers 892 Following #T1D for 26+ years. I like making images and eating cheese, sometimes I found myself reading about #diabetes also doodling... 🙂 #insulin4all
Ken Tait @bromleydiabetic
1K Followers 864 Following T2 diabetic on insulin since Mar 99 . Helping PWD to manage their emotional issues Chair Diabetes UK-Bromley, Diabetes Advocate & DEEP member
Johanah Co | J.Co | s.. @JohanahCo
857 Followers 3K Following Diab. Advocate| #T1D 23y| #deDOC voice fr PH🇵🇭| Journeying w/others thru #diversity🌎 #sports #inclusion #sea #arts #adventure #writing #coaching| 🦋Own view
CaroGo @CaroGoLoop
479 Followers 252 Following #Looperin #Typ1 #WeAreNotWaiting #AAPS #YDMV #Dedocvoice organisiere regelmäßige #LOOPERTREFFEN im Großraum Köln. Loop seit 2017, dankbar dafür! 💙 carogoloop
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1K Followers 60 Following Cake-eating feminist Diabetes Advocate, Public Speaker Has Type 1 Diabetes (LADA) Blog: https://t.co/ei6GsyjMUu For Microsoft-related Tweets go to @leontribe
Mary Murphy @loopingntheloup
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Tom Dean @welshy_89
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Lorena Corfas @lorecorfas
782 Followers 3K Following BUE/GVA/BCN. I'm a communicator, Diabetes Care Global PR Chapter Lead @roche. Field hockey player & proud mum of 2. Views are my own. Let’s make a better world!
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4K Followers 505 Following Endocrinologist, Mississauga/Toronto. Diabetes nerd. She/her.
Martin Scivier @scivier_martin
1K Followers 1K Following Type 1 Diabetes 1954. Looping - AndroidAPS #WeAreNotWaiting #Insulin4All #dedoc° All comments my own. Retweets are not an endorsement.
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3K Followers 3K Following I’m Gráinne, person w/ Diabetes, @Thriveabetes CoFounder, TEDx speaker, UL undergrad student. lives for 🇮🇪 Diabetes Online Community #IREDOC, #doc & #Advocacy
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Ken Tait @kiffty
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3K Followers 305 Following Medtech developing innovations to automate Type 1 and Type 2 treatment thanks to therapeutic AI #RockYourDiabetes⚡
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Alex🌺 - 💙🇫�.. @AlexHaggett1
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2K Followers 2K Following #T1D since 12/10 Global Advocate| Certified Diabetes Educator| Blogger| Podcaster| Consultant| Toastmaster| Ambassador| #insulin4all Views are my own
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432 Followers 442 Following Profesional comprometida con los derechos de las personas que viven con #diabetes y otras #ENTs #globalhealth #UHC #digitalhealth #meaningfulengagement
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Nat’s Pancreas 404 .. @1derfultype
870 Followers 764 Following Type 1 circa 1983 | Empowered by the #DOC #WeAreNotWaiting #LanguageMatters #NothingAboutUsWithoutUs #InsulinConsensus | #dedoc°voices | Own views - She/Her
UN ECOSOC President @UNECOSOC
88K Followers 49K Following Paula Narváez - United Nations Economic and Social Council (UNECOSOC) President - Official Twitter Account of UN ECOSOCI love this so much from @Jazzsethi95. I frequently think of people who simply don’t have the support systems I’ve been so, so lucky to have throughout my 26 years of diabetes - people there to advocate alongside me, and support my decisions. I couldn’t do it without them.
#T1D’s survival often hinges on affordability – a privilege itself Yet beyond finances, having a support system is key In many parts of the 🌍, having family and friends who confront stigma with you, champion you, & value you is a true privilege My thoughts • #MyDiabeticDiary
I turn 29 today. And here are my top 29 things I’ve learnt! 💖 Some learnt the hard way, some learnt through wonderful experiences! I DO feel a little wiser today 😂 … okay maybe not 🫶🏻😅
Waiting with diabetes, but not for diabetes. Cervical screening time. Not especially fun, but important. Here’s what I wrote just after my last one. #CervicalScreening on #diabetogenic diabetogenic.blog/2019/03/21/the…
Guys - ligament tears HURT!!! 🥺 That’s it. That was the tweet. I also need to go shopping to find clothes that will fit this cast now! Okay. Bye.
Woke up to this beautiful msg that further re-iterates the importance of #PeerSupport Thank you to the clinician that recommended us - please do plug in with peer support groups! Proud of the org we have set up and for the impact it creates in the lives of those with #T1D 💙
Come join our next community #diabeteschat as we welcome @GingerVieira as our guest speaker. 🗓️ Monday 18th March ⏰ 8pm-10:30pm GMT 🗣️ Guest speaker chat from 8:30pm 💬🎙️ Open Forum Chat to follow 🎧 x.com/i/spaces/1lyxb… 📺 youtube.com/watch?v=V9oPnG… youtube.com/watch?v=V9oPnG…
ATTD 2024 My Take on the Tech Fair :: Martin Scivier's Mellitus - Type 1 Diabetes …litus---type-1-diabetes.webnode.co.uk/l/attd-2024-in… via @webnode @scivier_martin
Over 20,000 Signatures Reached in Our Call for Uninterrupted Access to Insulin in Conflict Zones chng.it/65k4bpk5dx via @esabcc_eu #InsulinConsensus #Insulin4all @dedocORG
Lovely farewell dinner with the #dedoc voices who've travelled from far and wide to join #attd2024, share their perspectives as people living with diabetes and remind everyone at the conference that there should be #NothingAboutUsWithoutUs 💙
#diabeteschat highlighting to me how important peer support is to me & wish it was available to all. It can make such a difference being with others who just get it. How can we increase the number of pl w other types of d more @helga_nefdt asks on @diabetes_chat.
Great @helga_nefdt is bringing up how cultural difference can play a big part for many communities. This can have such an influence on peoples attitudes. A favourite quote "translating advice/info into a different language is not being inclusive". #diabeteschat @diabetes_chat
Settled down for this evening’s @diabetes_chat with @bromleydiabetic and @helga_nefdt
So many factors play into living w any type of diabetes. I don't think any type is easy/less important & we can learn from each other. In all types, access to care/technology at times seems unfair or unavailable to many. Love @helga_nefdt & @bromleydiabetic POV. @diabetes_chat
Loving @welshy_89 idea of having a "Part 2" to tonights chat! It's been so interesting. Thank you so much to both @helga_nefdt & @bromleydiabetic. We need more people like you. 💙#diabeteschat @diabetes_chat
@diabetes_chat Helga .. I find here in Canada .. that Type 2 Diabetics just aren't interested (same for T1D depending on location). I've tried to get the word out, whether via my own posts. It's a puzzle.
Come join our next community #DiabetesChat as we welcome @bromleydiabetic & @helga_nefdt as we talk about Type 2 Diabetes 🗓️ Monday 11th March ⏰ 8pm-10:30pm GMT 🗣️ Guest Speaker Chat from 8:30pm 💬🎙️ Open Forum Chat to follow 🎧x.com/i/spaces/1vogw… 📺youtube.com/watch?v=vZacSm…
Brilliant! Congrats to a group of Italian HCPs and PWD who today launched this consensus statement on open source diabetes technologies. Bravissimi. #ATTD2024 (online soon.)
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