Angela Hubins @itzmee70
CA Joined June 2011-
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Following195
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During my daughters IEP meeting the teacher (who didnt want to be there) suggested that I give my 8 yr old daughter Midol. Gggrrr
Feeling anxious....what am I going to do when school starts??? This will be the first year that they will all be at school all day. *sighs*
Kids and I are going to spend our evening at the races. Now how to spend the day.....
Little man labs back. Showed issue with parathyroid. Shriners went well...will review hips for surgery in 3 months.
One son coming home on leave and the other isnt :(.....was hoping everyone would be home for Christmas this year.
Here at the hospital for James MRI and 48 hr video EEG. Gonna be long weekend.
So did manage to get video EEG from 72 hrs to 48 hrs and schedule MRI right before EEG to begin on same day.
Most of my "friends" slowly trickled away when the ability to spend time with them was interrupted by time stuck at home or hospital.
Why is it so difficult for drs to understand im not 2 parent household. Not every parent of a special needs child has a support system.
Am at neuro appt with James.....have been wakting for over an hour now. James getting cranky.
CCS appt went well. James actually getting the equipment Ive asked for :) stander, car seat, lift, wheelchair.
Headed to CCS appt. Hope James gets his equipment/services. It shouldnt always have to be such a battle.
James not feeling well today and either am I. Looks like long weekend ahead.
Neuro wants James to have 72 hr video EEG. He has abnormal brainwaves from both sides of the brain but 48 hr EEG did not show seizures.
Neuro called. Didnt leave EEG results in message but wants to see James tomorrow. Hopefully will finally get answers.
Waiting for James EEG results has me anxious/irritable. Sam ENT appt today for her sleep apnea. Hopefully TnA scheduled soon.
James 48 hr EEG done. Now the wait. I hope they dont take too long to give me the results. Anxious.
James 48 hr EEG starts in the morning. Finally. *sighs*

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