Suzanne Harp @joinourloop
Breast cancer survivor class of '09. Wife, journalist, kind of a slacker with the blogging. Hate lymphedema with a vengeance. joinourloop.blogspot.com New York City Joined January 2010-
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#bcsm I wish there was a way for smallish companies to pool and lower premiums, I realize the system is far from perfect
#bcsm Got used to world where cancer patients were less likely to face ruin.
I've certainly learned a few things about staying in network. Last time I ran up five figure copays. #BCSM
#bcsm So 7.5 years out tonight I am waiting on biopsy results. So I should be tons of fun.:) I have been back in research mode.
Anyone out there who repeated lumpectomy( w/wo partial rads?) instead of mastectomy for second bc in same breast?
@lesliewaltke btw, I used to live in Green Bay, and I still love Wisconsin.
@lesliewaltke thank you! It's more true now than ever.
Iowa's a great state @joinourloop @jodyms wowed me with her rapid fire tweeting at #ASBrS and I learned so much from her and the #bcsm crew
It is kind of amazing to think with all the apps and social stuff, something as simple as 5 characters had such an impact. #BCSM
.@thecancergeek I always thought of Hansel and Gretel. #BCSM
.@stales It's unfortunate but the previous post I wrote was when briillant @LisaLynch passed, now Jody. #BCSM.
#BCSM for few years the people I knew who passed from bc had been quite sick when I met them. Now that is changing. Harder to feel safe.

Jo Taylor BEM @abcdiagnosis
21K Followers 19K Following Founder of After Breast Cancer Diagnosis & living with secondaryBC, #breastreconstruction, signposting, support #patientadvocate #blogger, #campaigner #activist
Breast Cancer Now @BreastCancerNow
158K Followers 12K Following However you're experiencing breast cancer, we're here. Formed by the merger of @BCCare and @BreastCancerNow.
Double Whammy @double_whammied
9K Followers 7K Following Everything was going great until this whole breast cancer thing.
Cruz Reynolds @CruzReynol82123
66 Followers 2K Following
Wapoh @Wapoh6067
41 Followers 1K Following
Tenderness @Tenderness40307
50 Followers 4K Following
Lymphedema Warriors A... @Lymphawarriors
61 Followers 605 Following We are patient focused, non-profit organization co-founded by patients in 2022 dedicated to supporting individuals affected by lymphedema in Uganda. Our mission
Wendy @Thosme295844
98 Followers 7K Following Most importantly, be the heroine of your life, not the victim.
mildness @mildness49655
30 Followers 4K Following
Shirley @RidithaL7kUr
32 Followers 3K Following
Emma Dumont @zgT57HKWaTnhE
25 Followers 2K Following
Marlon @KeshaJohns24729
15 Followers 879 Following
Breast Cancer Awarene... @Hoilday598
52 Followers 434 Following
OLP @OxfordOLP
1K Followers 1K Following Consultant Plastic and Reconstructive Microsurgeons. UK pioneers of supermicrosurgery to prevent and treat lymphoedema. #lymphoedema #microsurgery #LVA
National Breast Cance... @NBCCStopBC
6K Followers 2K Following The National Breast Cancer Coalition (NBCC) is a grassroots organization dedicated to ending breast cancer through action and advocacy.
Ganisae @Ganisae1
140 Followers 524 Following The difficulties that families with children have with #childhoodcancer are many
Tấm Nhựa Mica Lê... @tamnhuamicalevu
62 Followers 274 Following Since 1982, Jamina Fanie has been a leader in combating #breastcancer.
Katie the Cancer Surv... @KAdamsAnderton
595 Followers 2K Following Italiana 🇮🇹 & American 🇺🇸 | Sephardic/Mizrahi Jewish | PA Dutch | BRCA2 | My opinions are my own
Koning Corporation @KoningCorp
1K Followers 1K Following Koning’s vision is to create a revolution in #womenshealth and medical imaging through our diagnostic FDA approved, 3D #BreastCT technology with No-Compression.
Lalita Matrice Jackso... @lalita_longino
48 Followers 2K Following I am grateful and thankful that I am in love with Jesus Christ more than anything and anyone else. God is awesome!! I am thankful for who I am which i am deaf.
Joan Peckolick @JoanPeckolick
854 Followers 4K Following Mother. Founder of https://t.co/wVq4mWBRms. Championing the power early detection self-checks has to help save precious lives. Author of "The Don't Forget Book."
Shingles Facts @ShinglesFacts
2K Followers 5K Following Latest Shingles Research and Treatment Options
Paul @paulcordie4
770 Followers 3K Following Your Help is Our Blessing. Struggling to Survive. This is about my wife's breast cancer. Please help us: https://t.co/genlt0h6wD Thank You!
Lymphedema Associatio... @sasklymphedema
671 Followers 643 Following A non-profit organization founded in 2004 that recognizes the need to help those who have or are at risk of Lymphedema and related lymphatic disorders.
Tactile Medical @TactileMedical
2K Followers 2K Following A leading developer of therapy devices, such as the Flexitouch system, for at-home treatment of lymphedema and chronic venous insufficiency.
METUPUK @METUPUKorg
4K Followers 3K Following UK’s only metastatic breast cancer patient advocacy charity. Led by patients, for patients. Focused on the unmet needs of people living with MBC.
court @chocola8aqua
107 Followers 4K Following
NinjasFightingLymphed... @NinjasFightLE
93 Followers 81 Following NFLF is committed to helping patients, schools, hospitals, other nonprofits, and entire communities to better understand the lymphedema epidemic.
#ElTigreGivesBack @eltigregivesbac
33 Followers 118 Following Young breast cancer survivor paying it forward and winning at life despite stupid cancer. #ElTigreStrikesBack #ElTigreGivesBack #PayItForward
Trice @Lalita71
213 Followers 2K Following I am deaf wife and mother. I am very thankful God has been so good to me. Jesus Christ is all I been more thin anything!!❤️
COZ Barrier @CozBarrier
150 Followers 1K Following COZBarrier is not a cure, but will greatly reduce tissue breakdown during radiation, is bio-static and inert; a post op barrier and sedates skin inflammation.
canadalymph.ca @canadalymph
509 Followers 1K Following CLF is a nonprofit stakeholder collaboration promoting research, best practice guidelines and lymphedema clinical development in Canada.
Epigenetic DS @EpigeneticDS
919 Followers 4K Following Intelligent use of the worlds data to fight disease.
Tina Lou @finejewelryhut
18 Followers 358 Following
Agri-bubu @Agri_Moments
804 Followers 2K Following
idahome @idahomerealty2
330 Followers 4K Following
Komen South Carolina @KomenSC
147 Followers 783 Following Our Mission is to save lives by meeting the most critical needs in our communities and investing in breakthrough research to prevent and cure breast cancer.
Jennifer Reeves @JennReeves75
593 Followers 3K Following ADVOCATE CANCER BRCA1+ IVF GMA FOX General Mills nonprofit Director SEEKING CAREER OPPORTUNITY MY ENERGY SKILLS EXPERIENCES MAKE A DIFFERENCE P.S. Pino Noir=❤🍷
Euskoadelprise @euskoadelprise
114 Followers 265 Following Federación de Euskadi de linfedema primario, secundario, lipedema flebedema y patologías linfáticas
Clifford T Rhayns @RealRhayns
336 Followers 1K Following Entrepreneur, Cancer advocate, Founder, https://t.co/x6thNSy81K; fundraising made easy benefitting cancer charities, individuals or families affected by cancer.
Dee @AlienDiti
31 Followers 481 Following
LymphaTouch_Official @LymphaTouch
332 Followers 843 Following Pulsating negative pressure and mechanical vibration to accelerate lymphatic drainage and to relieve swelling. Treating #swelling Promoting faster #recovery
M. Whitten Wise, MD @Mwhittenwise
1K Followers 885 Following NOLA #PlasticSurgeon specializing in natural #BreastReconstruction w/#DIEPflap & #GAPflap w/ Drs Sullivan DellaCroce @NolaDrT Cabiling &Henderson. F3=Nip-Tuck
Peggy Miles @pj60miles
16 Followers 143 Following
Sue Rochman @SRochman
367 Followers 592 Following medical/science/health writer; find me on Insta vintagepantry_sf and on Etsy: https:// https://t.co/iym3D2Ndfj. Opinions my own.
Kim Fuller Ackary @kimberful
39 Followers 342 Following Maybe the Hokey Pokey IS what it's all about... Breast Cancer survivor, Mom, Wife, Inquiring Mind
Susan Cook @cookie16129
12 Followers 127 Following
Spannerinmyworks @SpannerInMe
474 Followers 2K Following CHEK2 Invasive Pleomorphic Lobular, ER & PR Positive, HER2 Neg, Ki67 Moderate, Grade 3 Stage IIA , Bilateral Mastectomy DIEP Flap Reconstruction also @carrera13
Varsity Anagram™ @VarsityAnagram
114 Followers 1K Following Creator of support and motivation products for breast cancer, lymphedema, discrimination, graduation rates, plus a host of clever entertainment ideas for all.
Jo Taylor BEM @abcdiagnosis
21K Followers 19K Following Founder of After Breast Cancer Diagnosis & living with secondaryBC, #breastreconstruction, signposting, support #patientadvocate #blogger, #campaigner #activist
Breast Cancer Now @BreastCancerNow
158K Followers 12K Following However you're experiencing breast cancer, we're here. Formed by the merger of @BCCare and @BreastCancerNow.
Double Whammy @double_whammied
9K Followers 7K Following Everything was going great until this whole breast cancer thing.
Marie Ennis-O'Connor @JBBC
18K Followers 5K Following Healthcare Communications Strategist | Keynote Speaker | @HIMSS FUTURE50 |Board Member @MayoClinic Social Media Network @BerylInstitute Patient Experience Board
Judy Boughey @DrJudyBoughey
2K Followers 181 Following Breast Surgeon at Mayo Clinic, Professor of Surgery, Chair - Division of Breast and Melanoma Surgical Oncology.
Howard Karpoff @doctorkarpoff
1K Followers 502 Following Board-certified Surgical Oncologist with keen interest in benign & malignant breast diseases, practicing in Upstate NY Tweets should not be deemed advice
Dr. Samuel Lin @Dr_SamuelLin
13K Followers 8K Following Plastic Surgeon @Harvardmed, @SusanGKomen Board (past), @BeBrightPink Board, Outcomes Section Editor, @PRSjournal, Education Section Editor, @PRSGlobalOpen
Pink Aid Long Island @PinkAidLI
49 Followers 82 Following Pink Aid Long Island provides compassionate care to women undergoing diagnostic testing, treatment and recovery from breast cancer on Long Island
Matthew Katz, MD 🇺... @subatomicdoc
20K Followers 5K Following I'm a doctor @TuftsMedicalCtr dedicated to improving health and cancer care. Trust, learn, collaborate. Neutral good. He/him.
Terri Coutee @6state
10K Followers 7K Following Founder #NPO https://t.co/e3hxG0Vr9O #BreastReconstruction #SharedDecisionMaking #PatientAdvocate #SDG3 YouTube: https://t.co/4cDtgFpP7c Podcast: https://t.co/850eYnpHy5
Dr. Daniel Liu @danielzliu
28K Followers 14K Following Board-Certified #PlasticSurgeon & #Microsurgeon @CancerCenter dedicated to #BreastReconstruction | #DIEPflap | #Microsurgery | #Lymphedema | #VLNT #LVA
Varsity Anagram™ @VarsityAnagram
114 Followers 1K Following Creator of support and motivation products for breast cancer, lymphedema, discrimination, graduation rates, plus a host of clever entertainment ideas for all.
PRMA Plastic Surgery @DiepFlapBreast
22K Followers 15K Following PRMA #PlasticSurgery specializes in advanced #breastreconstruction after #breastcancer - DIEP, SIEA, GAP, TUG, Lymphedema surgery & TruSense. (800) 692-5565.
Jaume Masià @drjaumemasia
2K Followers 1K Following Director del Servico de Cirugía Plástica y Reparadora del Hospital Universitario de la Santa Creu i Sant Pau / Hospital del Mar de Barcelona.
Dr. Lillian Erdahl MD @LillianErdahlMD
10K Followers 6K Following Breast and General Surgeon, mom, cross-country skier, and yoga enthusiast. My tweets are my own. #PROWD
Alison Parker @AParkerWDBJ7
5K Followers 248 Following Mornin' reporter for WDBJ7 in Roanoke, Va. Join me weekday mornings from 5-7! Have a great story? Email me at [email protected].
Beth White Thompson @QuiverVoice
2K Followers 1K Following Tell the truth, even if your voice shakes
LighthouseLymphedema @LLymphedema
997 Followers 493 Following The Lighthouse Lymphedema Network is dedicated to educating and creating awareness about Lymphedema and related disorders.
MSCC @MSCC_NH
63 Followers 154 Following
Positively Pink @save_secondbase
54 Followers 184 Following Raising breast cancer awareness because women deserve to be noticed. Follow and I will Follow Back. Durango, CO
Susan Zager❣️ @a4breastcancer
11K Followers 8K Following Founder Advocates for Breast Cancer Inc a 501(3)c non-profit patient advocate organization. https://t.co/OPwizttGQB Opinions are my own.
Rebecca Alleyne, MD F... @BeckyAlleyneMD
2K Followers 891 Following Loving daughter,fun auntie,hiker, runner, LA Native. Pro prevention breast surgeon here to swap ideas with you. Tweets ≠ medical advice. Opinions are my own.
Angela Alexander PhD @thecancergeek
3K Followers 2K Following #InflammatoryBreastCancer #clinicaltrials geek @ MD Anderson. #TNBC & #sarcoma interest. Patient advocacy, cancer edu volunteer. Tweets=my views only. fan.
Rutgers NJMS,Surgery @NJMSDeptSurgery
3K Followers 1K Following Rutgers NJMS, Department of Surgery is known for providing the highest quality of medical care, education and research, patient services and community outreach.
#BCSM Chat @BCSMChat
4K Followers 2K Following The intersection of breast cancer and all things social media. Join us on Monday nights 9 pm ET. Chat moderated by @stales @DrAttai
Julie Gralow @jrgralow
11K Followers 966 Following Chief Medical Officer, American Society of Clinical Oncology (ASCO). Tweets are my own.
Memorial Sloan Ketter... @MSKCancerCenter
103K Followers 2K Following One of the world’s leading comprehensive cancer centers. To make an appointment: 877-871-9362
Lymphoedema Ireland @LymphIreland
1K Followers 490 Following Lymphoedema Ireland offers support, help and information to anyone in Ireland affected with lymphoedema.Margaret Sneddon @MCSneddon1
1K Followers 387 Following @BritishLymph Chair, #EveryBodyCan Campaign Lead, @UofG Honorary Senior Research Fellow, @theRCN member
Lymphedema Manitoba @LymphedemaMB
633 Followers 108 Following Support for those affected with or at risk of primary or secondary lymphedema.
little lymphie lucia @littlelymphie
532 Followers 165 Following a mummy blogging about my beautiful daughter with primary lymphoedema https://t.co/AqyRjKxWFW
LymphCare UK @LymphCareUK
1K Followers 103 Following Award winning Social Enterprise providing a comprehensive Lymphoedema/lipoedema services and training in the UK
Lymphedema Diary @lymphedemadiary
599 Followers 114 Following Squeaky wheel. Stubborn optimist. Believer in the underdog.
Kendal Lymphology @KLymphology
1K Followers 635 Following Specialist, independant nurse-led clinic for the assessment and treatment of all knds of chronic oedema, lymphoedema and lipoedema (including children)
LE&RN @LymphaticNet
3K Followers 617 Following Fighting lymphatic disease through education, research, and advocacy.
LympheDIVAs @LympheDIVAs
2K Followers 1K Following We are dedicated to creating medically correct & fashionable compression apparel for savvy and stylish women and men with lymphedema.
BLS @BritishLymph
3K Followers 357 Following The British Lymphology Society consists of healthcare professionals and others directly involved in the management of lymphoedema. #Research #Lymphoedema
UofGLymphoedema @UofGLymphoedema
1K Followers 411 Following Lymphoedema Team, University of Glasgow. quality assured under/postgrad courses. Sharing research/education news (Borthwick, Sneddon, Noble-Jones)
the Lymphie Life @TheLymphieLife
2K Followers 364 Following Official Twitter of The Lymphie Life®, a patient-run blog that aims to educate, connect, & support the global #lymphedema community 💙 #StayElevated
LSN @lymphsupport
3K Followers 41 Following The Lymphoedema Support Network (LSN) is a national UK charity that provides information and support to people with lymphoedema.
Lipoedema UK @LipoedemaUK
3K Followers 484 Following The UK Lipoedema charity, raising awareness, proving support & education for patients and healthcare professionals.
PinkPossePHILES @PinkPossePhiles
262 Followers 417 Following A Posse of Breast Cancer Survivors celebrating life with monthly parties! #BreastCancerSurvivors #PHILES #BareYourBra
My life in a Wheelcha... @HelenBonynge
980 Followers 953 Following Living with #paraplegia #Disabilityadvocate #hatsforhomeless #Lymphedema, #RILP #cancersurvivor #NDISclassaction plays #fantasypremierleague
someguysgetit @someguysgetit
46 Followers 81 Following What happens when a man gets a woman's disease? Some Guys Get It is a webseries about a dude with breast cancer. Male breast cancer is real - some guys get it.
Lymphedema Advocacy G... @LymphedemaAct
3K Followers 1K Following The Lymphedema Advocacy Groups works to improve insurance coverage and access to care for those suffering from this chronic disease.
Lipedema Simplified @LipedemaNews
1K Followers 2K Following news, updates, information, webinars, experts, videos
Dr Yoga @DrYoga
4K Followers 2K Following
Bronwyn Hope @Bronnawinna
1K Followers 194 Following Hardworking PR consultant, comedienne, breast cancer survivor with aspirations to change/conquer the world. Alas, getting long in the tooth.
JasminFiore @TheDevaLife
475 Followers 860 Following Creator of wellness blog https://t.co/bFUSkGLJts & @stretchhealgrow retreat for young women w breast cancer. Living w/stage4#bc. Yoga,Music,Meditation & Love
Nicole Taylor @Coliegirl88
675 Followers 1K Following Independent Beauty Guide with LimeLife by Alcone
Helene Schonbrun @hrschonbrun
251 Followers 519 Following Cancer and Health Advocate, Breast Cancer Survivor, Supporter of Israel, Jewish Mom