Lucy @parentingpandas
Instagram parenting_pandas. Sharing the honest reality of parenting a PANDAS child. Raising awareness of PANS PANDAS. Advocating, learning, surviving, healing. Joined April 2025-
Tweets6
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Followers7
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Following26
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Likes2
Please attend the AAPG for PANS PANDAS. @wesstreeting @BenGoldsborough lots of parents need support with this health issue. Many children needed treatment for a condition where there are no guidelines and support from the NHS. @PANSPANDASUK @timubhi @pans_pandasaction
#panspandashour @wesstreeting I’m one of the lucky ones: my child got the right treatment & is now fully recovered. HUNDREDS of families aren’t so fortunate - parents leave work, children leave school, families torn apart. The devastation is REAL. We need urgent action. ❤️
#panspandashour @wesstreeting I’m one of the lucky ones: my child got the right treatment & is now fully recovered. HUNDREDS of families aren’t so fortunate - parents leave work, children leave school, families torn apart. The devastation is REAL. We need urgent action. ❤️
@wesstreeting how many children are unnecessarily being referred to CAHMS like us? An already stretched service. My child needed antibiotics but the NHS didn’t have guidelines to treat. We went private - My child is fully recovered. #panspandashour #mentalhealth #cahms
@wesstreeting how many children are unnecessarily being referred to CAHMS like us? An already stretched service. My child needed antibiotics but the NHS didn’t have guidelines to treat. We went private - My child is fully recovered. #panspandashour #mentalhealth #cahms
🚨 Neuro experts at #PansPandasHour APPG mapping out solutions for children with immune mediated neuropsych conditions. Guidelines are coming. Take part -30th April, Westminster! panspandasuk.org/post/pans-pand… @LeeAnderson_MP_ @TiceRichard @zarahsultana @DavidDavisMP @SuellaBraverman
🚨 Parliamentarians: Can you show up for the #PansPandasHour APPG meeting on April 30th? Hear from leading experts on 🧠🤒@PANSPANDASUK in children +help drive change. panspandasuk.org/post/pans-pand… @BaronessCoxNews @BaronessHollins @LNevilleRolfe @TaiwoOwatemi
joanne gill @joanneG007
199 Followers 437 Following
Hope @hopestardust20
2K Followers 3K Following Raising awareness of Pans Pandas - brain inflammation triggered by a Virus or infection. B12 deficiency
PANDA Mama @PandaMama2024
510 Followers 8K Following Parent raising awareness of #PANDAS #PANS ~ #BrainInflammation in children triggered by #infection / #virus. #NoMoreLostChildren. #ChangeIsComing
Paula Scott @PaulaScottUK
1K Followers 2K Following As an experienced Virtual Assistant with over 30 years of expertise, I specialise in providing efficient, reliable and confidential administrative support.
Notes to my boy ✉�... @notestomyboy
6K Followers 4K Following Hi, please see pinned tweet. My beautiful boy fell ill with #PANS #PANDAS when he was 9. I love you Son more than anyone can know and I am proud of you ❤️
Pans/Pandas Action @Pans_Action
14 Followers 31 Following
Emily Jackson @PinotYouWantTo
532 Followers 514 Following PANS PANDAS awareness advocate after my daughter has suffered horrifically for over a decade. Catch up NHS it’s not rare, just rarely diagnosed 💔
Ashley Roberts @AshleyR89677089
234 Followers 229 Following Consultant, Mother, friend, activist DEVOTED to bringing awareness to Pans/Pandas and the urgent care children and families need. Thankfully my daughter LIVED!!
Lindsey Parr @LindseyParr8
151 Followers 145 Following Mum to an amazing warrior, pandas warrior and fighting!
PANDAS PHYSICIANS NET... @PANDASPPN
2K Followers 1K Following PANDAS Physicians Network (PPN) - Nonprofit helping clinicians diagnose & treat #PANDAS #PANS. #strep #infection #OCD #neuroinflammation #MentalHealth
Inflamed Brain Allian... @inflamedbrain_
429 Followers 334 Following Canadian charity on a mission to restore brain health for everyone affected by PANS/PANDAS by improving health, delivering education, and accelerating research.
Kathryn Gillett @kathryn_gillett
883 Followers 667 Following Raising awareness for PANS Paediatric Acute Onset Neuropsychiatric Syndrome. Mum, theatre lover, events.
ASPIRE @ASPIREpans
833 Followers 223 Following ASPIRE is a 501c3 organization whose mission is to improve the quality of life for those affected by PANS, PANDAS, and immune-related encephalopathies.
TinaC @TinaCoope
1K Followers 2K Following Education Lead for PANS PANDAS UK, former SEND teacher, Nurture, trauma informed, compassionate, adaptive approaches. All tweets are my own views.
PANDA Mama @PandaMama2024
510 Followers 8K Following Parent raising awareness of #PANDAS #PANS ~ #BrainInflammation in children triggered by #infection / #virus. #NoMoreLostChildren. #ChangeIsComing
joanne gill @joanneG007
199 Followers 437 Following
Rebecca W1986 @W1986Rebecca
521 Followers 2K Following Mum. English Teacher. Lang and Lit Content Creator. MA in Education. Teach First Ambassador. PansPandas advocate.
Jane Bird @LindaLaHughes9
1K Followers 1K Following Raising awareness of the paediatric conditions PANS and PANDAS
AJ Leonardi, MBBS, Ph... @fitterhappierAJ
103K Followers 4K Following Junior Physician-Scientist Views own
Paula Scott @PaulaScottUK
1K Followers 2K Following As an experienced Virtual Assistant with over 30 years of expertise, I specialise in providing efficient, reliable and confidential administrative support.
Joanne Holloway @CharmingAngelCo
906 Followers 1K Following Mom 2 girl with #Pans.Took 2.5 years & huge battle 2 get 2 diagnosis!Delays are damaging. Goal 2 raise awareness 2 end present suffering & stop future suffering
LongCovidPharmD @organichemusic
35K Followers 1K Following Doctor of Pharmacy. Long Covid, EBV & ME/CFS research. Here to share & learn. Tweets not medical advice. https://t.co/jqc4g8cFLa https://t.co/lKQezPwtQs
Hope @hopestardust20
2K Followers 3K Following Raising awareness of Pans Pandas - brain inflammation triggered by a Virus or infection. B12 deficiency
Notes to my boy ✉�... @notestomyboy
6K Followers 4K Following Hi, please see pinned tweet. My beautiful boy fell ill with #PANS #PANDAS when he was 9. I love you Son more than anyone can know and I am proud of you ❤️
Dr Claire Taylor @drclairetaylor
65K Followers 2K Following Doctor|Special interest in Long Covid,POTS,ME/CFS&MCAS| neuroscientist🧠Long Covid kids champion|long Covid clinic🏴Views my own
NB @np9000
861 Followers 1K Following Tick-Borne Infections & Pans/Pandas in the UK #Pans #Pandas #Lyme #Bartonella #Babesia #TickBorneInfections #MCAS #POTS #ME . Views my own. https://t.co/hk1rb80CzQ
PANS PANDAS UK @PANSPANDASUK
4K Followers 846 Following UK charity raising awareness and understanding of post-infectious neuropsychiatric disorders. We support families and campaign for better care.
Pans/Pandas Action @Pans_Action
14 Followers 31 Following
BBC Essex @BBCEssex
76K Followers 1K Following Celebrating people and stories from across Essex 🔊 Listen to BBC Essex @BBCSounds 👇 Tap the link for more storiesTrends for United States
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