Inflamed Brain Alliance @inflamedbrain_
Canadian charity on a mission to restore brain health for everyone affected by PANS/PANDAS by improving health, delivering education, and accelerating research. inflamedbrain.org Calgary, Alberta Joined March 2021-
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Our Principal Investigator, Professor Russell Dale, who leads our Phase I/II PANDAS/PANS clinical trial, has had a new paper published in @Nature (Molecular Psychiatry). This recognition underscores the calibre of clinical leadership guiding NTI164’s development and builds…
On behalf of IBA, we thank Prof. Russell Dale for his groundbreaking PANS research. His work shows children with sudden-onset OCD often have recurrent infections, immune issues, and epigenetic dysregulation, pointing to new treatments. Read the study: nature.com/articles/s4138…
Important wisdom for families & physicians: “There’s always hope. Find a doctor who seeks root causes & healing—run from one who only treats symptoms.” – Scott “Listen to your patient; he is telling you the diagnosis.” – Sir William Osler Read more 👉 web.archive.org/web/2024032701…
“If it’s not getting better, what are we missing?” — Dr. Alexa Bagnell on SSRIs & unanswered questions in PANS/PANDAS. Watch her full talk from #UnfoldingPANS25: inflamedbrain.org/2025-conferenc…
Get your children ready to walk with us at Steppin’ Out for PANS PANDAS! 👟 ✔️ Set up your family page: tinyurl.com/SetUpFundraisi… ✔️ Register your children: tinyurl.com/RegisterYourCh… Share your page & let’s walk together! 🧡 #SteppinOut25 #PANDAS #PANS
The Canadian PANS Registry (CPR) is live! Children & adults in Canada w/ diagnosed or suspected PANS/PANDAS can join. Ethics-approved & bilingual, it turns experiences into data to drive change & build hope. Sign up: inflamedbrain.org/pans-registry/ #CanadianPANSRegistry #BuildingHope
In 4 weeks, we walk for a cause close to our hearts—our 3rd annual Steppin’ Out for PANS PANDAS! 🧡 Sept 20, 12–3 PM | Calgary, Mississauga, Fredericton & virtual 👟 Video: tinyurl.com/1MonthtoGoSO25 Info & sign-up: inflamedbrain.org/steppin-out/ #SteppinOut25 #WalkForChange
Steppin’ Out for PANS PANDAS – 1 Month to Go! 💚 Walk 2km or 5km on Sept 20 in Calgary, Mississauga, Fredericton, or virtually anywhere in 🇨🇦. Raise $150 ($75 youth) by Sept 1 for a free tee! 👉 inflamedbrain.org/steppin-out/ #SteppinOut25
🧡 Caring for someone with PANS or PANDAS? Join our Caregivers Support Group this Wed, Aug 20 | 6:30–8:30 PM ET Topic: Building a Support Network Register for Zoom link: inflamedbrain.org/support-group-… #HopeCompanions #PANS #PANDAS #SupportGroupCanada
“If you had to choose one country that made the first advances in PANS PANDAS… it was Canada.” Dr. @timubhi, London-based pediatrician & founder of Europe’s 1st PANS clinic, highlights Canada’s impact. inflamedbrain.org/2025-conferenc… #UnfoldingPANS25 #PANS #PANDAS #TogetherForPANS
🌍 68 Global Landmarks Confirmed! On Oct 9, #LightUp4PANS will shine 💚 worldwide—highlighting the need for compassionate, brain–body care for PANS/PANDAS. 🇵🇱 Warsaw • 🇺🇸 NH • 🇨🇦 BC + more! Next update: Sept 9 #GlobalPartnership #Green4PANS
🧡 Just 2 Weeks Away! Caring for someone with PANS/PANDAS in Canada? You’re not alone. Join our next virtual Caregivers Support Group: Wed, Aug 20 | 6:30–8:30 PM ET Topic: Building a Support Network 👉 inflamedbrain.org/support-group-… #HopeCompanions #PANS #PANDAS #CanadianCaregivers
The Canadian PANS Registry is live! 🇨🇦 If you’re a guardian of a child—or an adult—with PANS or PANDAS, your experience matters. Help shape research, care & advocacy in Canada. 🔗 Sign up: inflamedbrain.org/pans-registry/ #PANS #PANDAS #YourStoryMatters #CanadianRegistry
“A micro flare might look like a child who wakes up one morning and suddenly refuses to wear their socks…” Dr. Nina Gudeon shares key insights on spotting early signs of PANS/PANDAS. Full session: inflamedbrain.org/2025-conferenc… #UnfoldingPANS25 #PANS #PANDAS #EarlyDiagnosisMatters
Team Captains, THANK YOU! 🌟 You’re leading the way in Steppin’ Out for PANS PANDAS 💚 Now grow your team: ✅ Send a personal invite ✅ Ask teammates to recruit ✅ Post on social Think big—every connection counts! tinyurl.com/12TipsforTeamR… #SteppinOutForPANS #WalkForChange
Caring for someone with PANS or PANDAS in Canada? 💚 You’re not alone. Join our next Caregivers Support Group 🗓️ Wed, Aug 20 | 🕡 6:30–8:30 PM ET 💬 Topic: Building a Support Network Register: inflamedbrain.org/support-group-… #HopeCompanions #PANS #PANDAS
🧠 On #WorldBrainDay, a reminder: sudden OCD, anxiety, mood swings, or tics in kids or adults could signal PANS/PANDAS—immune-triggered brain inflammation. 💡 Mental health symptoms can be a clue, not the cause. Look deeper. Find the root. #UnfoldingPANS25 #LightUp4PANS
2 months to go! 👟 Join the 3rd Annual Steppin’ Out for PANS PANDAS Walk on Sat, Sept 20—anywhere in Canada. ✅ Walk or donate ✅ Raise $150+ ($75+ youth) = walk tee Let’s move outside our comfort zone… together. Sign up: inflamedbrain.org/steppin-out/ #SteppinOut25 #PANS #PANDAS
“Histamine reactions can trigger a PANS flare.” – Dr. Ayla Wilson, ND With 14+ yrs treating PANS/PANDAS, she shares insights on immune regulation + ongoing triggers like mold & strep carriers. Watch her session: inflamedbrain.org/2025-conferenc… #UnfoldingPANS25 #PANS #Histamine
The Canadian PANS Registry is uniting families to validate our experiences & drive research that improves care. ✔️ EN & FR ✔️ Register multiple kids 🎯 Goal: 100 by end of 2025 Join us: inflamedbrain.org/pans-registry #CanadianPANSRegistry #BringHealthToMind #InflamedBrainAlliance
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