PASAGE Study @pasagestudy
Social scientists/bioethicists interested in hearing your thoughts on gene therapies🤓 Visit our website or email us for more info! https://t.co/VyBVx8lKxh Joined July 2023-
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The @MayoClinic PaSAGE Study Team has partnered with BioNews to reshape the future of rare disease care. This collaboration focuses on integrating patient perspectives to enhance genetic therapy developments. bit.ly/3LtsBuL @MAllyse #RareDisease
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Get ready for it-it's another #FunFactFriday! Today we are expanding on our last post about Doudna and Charpentier's Nobel Prize winning discovery and development of CRISPR-Cas9. #FunFactFriday #womeninscience #STEM #bioethics #geneediting #CRISPR #Cas9 #science #research
The PaSAGE Study is enrolling! If you or a family member have lived experience with spinal muscular atrophy, we would love to speak with you. Use this link to take the screening survey: tinyurl.com/bdz3eu32 #pasagestudy #pasage #qualitativeresearch #bioethics #interviews
A break from our regular Friday programming to tell you that the Pasage Study is enrolling! If you or a family member have lived experience with sickle cell disease, we would love to speak with you! Use this link to take the screening survey: tinyurl.com/bdz3eu32
The PaSAGE study is enrolling! If you have lived experience with Tay-Sachs disease, spinal muscular atrophy, or sickle cell disease, we would love to speak with you! Use this link to take the screening survey: tinyurl.com/bdz3eu32
Meet: Kelly Ormond, MS, CGC. Kelly is a genetic counselor with a MS in Genetic Counseling. Kelly’s expertise in genetics and bioethics make her a valuable resource to engage both populations we are looking to speak to: clinicians & scientists and patient communities.
For this week's Meet the Team Monday, we'd like to introduce you to Kirsten Riggan, MA, MS. Kirsten comes from a science and ethics background, with Master's degrees in both biology and bioethics. She plays an integral roll in ongoing projects of the Allyse Lab at Mayo Clinic!
As promised, for this week's Meet the Team Monday we bring you the Co-Principal Investigators (Co-PIs) of our study, Dr. Megan Allyse and Rosario Isasi, AKA the brains behind the operation. For more info about the two leaders of the PaSAGE study, check out our website (in bio)!
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