Running4Rare @running4rare
Runners dedicated to raising awareness for #rarediseases while supporting undiagnosed patients. #running4rare runningforrarediseases.org Cambridge, MA Joined October 2012-
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On ur mark, get set, GO! Happy #MarathonDay, #running4rare! Run hard, finish strong, & know ur making a difference 4 #raredisease patients.
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1 DAY LEFT til #running4rare gets a running start in helping the #raredisease community at @nycmarathon! RT to show the team some love!
Help #raredisease patients this wknd when sign up 4 the @lamarathon with #running4rare: ow.ly/uDVq30gc9av
DYK: 90% of physicians who treat #raredisease patients must use "off-label" treatments. RT to help raise awareness!
Get excited! #Running4Rare is back in action making a difference 4 #raredisease & #undiagnosed patients at the @nycmarathon in just 2 days!
FACT: since the #OrphanDrugAct (1983), more than 2200 #raredisease treatments have entered the research pipeline. RT to raise awareness!
#tbt to the 2016 @nycmarathon, where #running4rare ran apart from the herd to ensure that no #raredisease patient fights alone.
Lace up those running shoes...3 days until #running4rare heads 2 @nycmarathon to represent #rarediseases! RT/comment 2 show ur support.
Support #raredisease patients & the #undiagnosed; join #running4rare 4 the 2018@lamarathon: ow.ly/8Yqp30gc88G.
Did you know? 2/3 of #raredisease patients are children. RT to raise awareness!
Only 4 days left until @nycmarathon 2017, and #running4rare is excited to make a difference 4 the #raredisease community!
#Running4Rare is now accepting applications 4 the 2018 @lamarathon! Sign up & make a difference 4 #raredisease pts: ow.ly/n6TX30gc7J6
#RareDisease FACT: 3-7% of the world's population will be diagnosed with a rare genetic condition. RT to raise awareness!
5 days to go till #running4rare participates in this year's @nycmarathon! RT 2 show ur support or comment words of encouragement.
Feb. 28th, 2018 is #RareDiseaseDay! Where will u be 2 show ur support & raise awareness 4 #rarediseases?
FACT: #raredisease patients typically receive 2-3 incorrect diagnoses before being diagnosed correctly.
Let the countdown begin: 6 days 'til #running4rare represents #rarediseases at the @nycmarathon! RT 2 show ur support 4 the team!
Give hope 2 #raredisease patients & families this wknd when u join #running4rare: ow.ly/joR830g09Ym
9 days left till #running4rare team runs 2 support #raredisease patients & the #undiagnosed at @nycmarathon!
Did u know? 65% of #rarediseases are progressive and/or degenerative in nature. RT 2 raise awareness!
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