☆ Scarlett. ASD mum ☆👨👩👧👦🎭🍷🎧🇬🇧🦋♈⏳ @scarlet70020920
Quirky best friend & Mum, Wife, ex dancer, trying to take things a day at a time. #stage4cancer #breastcancer #autism #parentcarer #send #cancer octopus.energy/friend-referra… Joined April 2020-
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Cycle 16 of Ribocicclib today.. also asked GP about a shingles vaccination, followed by school run. Another day!
The secondary breast cancer adverts are quite triggering for me. There will never be enough time. I live in hope of as much time as possible and try to deny it to myself. #breastcancer
The secondary breast cancer adverts are quite triggering for me. There will never be enough time. I live in hope of as much time as possible and try to deny it to myself. #breastcancer
Today’s debate has put beyond doubt that assisted dying reform is coming to the UK. The message heard today by dying people and their families up and down the country couldn’t have been clearer: Parliament is listening, at last. #YesToDignity dignityindying.org.uk/news/clear-evi…
I was refused PIP with an active cancer diagnosis and ongoing treatment. Apparently my condition of incurable cancer is not impacting my day to day life. I did a mandatory reconsideration with extra paperwork & refused again.
So sons annual review went okay. The teachers and LSA assures me support is in place and he has shown visitors round his school. Couldnt get any direct payments (sen tutor) as this would be taken from his schools pot of money? But, overall, my son is happy.
If your child struggles with mainstream school but doesnt qualify for any sen school provision what do you do?
Fundraiser by Tiffany Ryan : Help me make some memories for my children gofund.me/1731c2fa
My hubby and i made a very difficult decision today. My son cant cope in mainstrem nor sen school, so looking at private.. this means i need to look at going back to work in some capacity despite a cancer diagnosis.. but what else can be done?
Tonights sleepover at home is mario themed. #sleepover #Mario #Memories #EasterHolidays
Managed to take kids to a local send event.. son doesnt like soft play or climbing, but he did enjoy bowling and some chips. Daughter had fun at soft play..easter hols always feels long but we enjoyed a day where son was included.
Enjoyed a date with my hubby and watched a show in London. Was really nice to just laugh and not be a day overwhelmed by cancer. Thank you @playgoeswrong
Has anyone gone dowm the route of a private ADHD child referral? I asked our school senco a year ago but she misplaced our form!
Today its my birthday and my 8 year wedding anniversary on same day.. hubby and i are out to lunch
Its been a lovely staycation weekend (our first one in about 9 months) and a little change of scene..this week will be getting ready for easter holidays..
We are taking a weekend away in a local lodge..its our first weekend away in 9 months and the change of scene is lovely
Cancer is stable again which means i can enjoy daughter and my birthday, and Easter.. next appointment is May.
Autism care and share @autcareandshare
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2K Followers 3K Following Yorkshire/Notts/Derbys border. Award winning pig. DMs open for anyone who needs someone to open up or vent too.@mostly_sleepy @scarlet70020920 Thanks. Whole process nearly killed me though.
@scarlet70020920 Bloody disgusting,this country,UK is a flaming disgrace,comes to something when someone in your position cannot get the help they need,not amused,makes me mad that there's people who get PIP for next to nothing & others in your position cannot get it,so sorry love.xx.😘🥰😍🤩
@teppic11 @scarlet70020920 70% winning at appeal is bad enough to show how many are wrongly being denied at assessment and MR, but as you say that's not even the whole picture of what happens to those turned down. And then there are those who are too scared to apply in the first place.
@scarlet70020920 they expect you to keep on working until you collapse , then they will be there with their DNR, the Monsters.
It's a damp, grey start to the day again but the Lilacs are out, which means May is just around the corner hopefully bringing some better weather with it! 🤞 #walking #Flowers #mentalhealth
@phil_clark2407 @scarlet70020920 Exact same thing for a friend of mine, Tribunal judge was disgusted and evidently made his feelings quite clear. PIP has enabled her to keep working part time.
The consultation on the proposed benefits change is now live. Please have your say and tell the Government about it , follow the link, please SHARE. gov.uk/government/con…
Had a quiet day! Never expected to be here with my Stage IV CCR dx but thanks to those willing to do medical trials I have made it thru radiation, chemo, surgery and immunotherapy has me stable right now to celebrate our 46th wedding anniversary. 🥂🍾🎉@ThanksCancer
@teppic11 @scarlet70020920 It was ESA assesment rather than PIP but my mum's friend was asked how long he has had Down's Syndrome for.🤦 At my sister's PIP assessment (autism), a nurse had all her docs actually on the desk, and had read through. She got the appropriate award. It should always work right!
@mostly_sleepy @scarlet70020920 My support worker (now taken away because of the NHS falling apart) told me that most of the people she worked with had PIP refused, and most couldn't deal with the anxiety of going to tribunal. It seems it rarely works well :/
@scarlet70020920 I pushed my daughter’s to tribunal. It took me nearly three years. Constant pushback from the local authority. When it got to tribunal, they said it was obvious that she needed all help she could get.
@scarlet70020920 @mostly_sleepy I wouldn't at all be surprised. They don't use medically qualified people to assess PIP. They can't even pronounce the names of common medication.
@mostly_sleepy @scarlet70020920 I submitted the paperwork for my husband’s MR and it was successful. Original decision was ridiculous but we were also naive about the process.
@scarlet70020920 Same here when it was DLA, did a face to face mandatory reconciliation with 3 women, I was sitting there bald very unwell and in tears at the questions, still refused.
I was refused PIP with an active cancer diagnosis and ongoing treatment. Apparently my condition of incurable cancer is not impacting my day to day life. I did a mandatory reconsideration with extra paperwork & refused again.
@Lulu_R81 @scarlet70020920 This is another really wrong thing: people on the wrong award either because they can't cope or because they can lose the award altogether at appeal. I know someone who got 11pts for Daily Living. She didn't dare risk it. But as well as less money, lost out on +carer bus pass.
@sen_mum @scarlet70020920 Its because its how ot effects day to day living - had to wait for cancer to affect my ability to cope alone before I could qualify, there are other benefits that cover the not being in work . Its not a good system previously DLA covered cancer patients on active treatment
@scarlet70020920 @BlondeHistorian Daaaaamn! Did you discuss with your medical team them doing an SR1 on your behalf?
@scarlet70020920 I didn't even apply. Just wasn't well enough to cope with it on top of everything else. Knew too many people either rejected or traumatised by assessment. Such a toxic system. Anyone who supports further PIP cruelty deserves to need it in the future.
@naomicave @scarlet70020920 Someone attempting a fraudulent claim can just shrug "Oh well worth a shot" when claim refused. It's those who are genuine who actually suffer when theirs is.