Tony Foskett @tonyfoskett10

I suffer with Friedreichs Ataxia but that doesn't define me. 'Tony Foskett he does what he wants' Avid @SpursOfficial fan & football mad! Gym user. Joined July 2017

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Tony Foskett @tonyfoskett10

4 months ago

@Cambridge_Uni I have friedreichs atasia and optic atrophy and am just wondering if there are any trails or ongoing research that could be potentially help or I could potentially be part of

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Tony Foskett @tonyfoskett10

5 months ago

@dmg@ desgame@des2@bungie please add accessibility options for vision, mobility and cognitive problems and I have ataxia

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@ destiny 2 @destiny game @BungieHelp, will you please Implement accessibility options into destiny 2 frontiers for us with visions difficulties and mobility issues. If you would send me the accessibility futures list that will be appreciated as destiny 2 is my favourite game

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Tony Foskett @tonyfoskett10

9 months ago

Please add more and visual accessibility to destiny 2 @dmg04

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Friedreich's Ataxia News @Friedreichsatax

2 years ago

A first patient group was treated with LX2006, a potential gene therapy for heart disease in FA, and dosing started in an enrolling group. buff.ly/3JL4SGb #FriedreichsAtaxia #FriedreichsAtaxiaNews #FACommunity

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Tony Foskett @tonyfoskett10

3 years ago

@ReataPharma @FDA_Drug_Info after seeing my fa get significantly worse over the past 2 years I am begging you to release omav worldwide!

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Ataxia UK @AtaxiaUK

3 years ago

Sharon's scrumptious cakes have now sold out! 🍰 Thank you to Sharon, who baked delicious cakes and raised a whopping £115 for Ataxia UK at the Canewdon Village, St George's Day Walking Fair in Rochford! Thank you to all of those who made this fantastic cake sale possible! 👏

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Friedreich's Ataxia News @Friedreichsatax

4 years ago

Jacob Thompson hasn't let Friedreich's ataxia get in the way of rapping and writing his first book, "From Diagnosis to Destiny." buff.ly/3EZUpkP #friedreichsataxia #friedreichsataxianews #livingwithfriedreichsataxia #livingwithFA

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Friedreich's Ataxia News @Friedreichsatax

4 years ago

Shifting your perspective can make a huge impact on your daily life. Do you have any advice for maintaining a positive mindset, practicing gratitude or staying present in the moment, despite any challenges you may be facing? We'd love to hear from you. buff.ly/3HKzMej

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Ataxia UK @AtaxiaUK

4 years ago

For the last eight years, our West Country Branch has been raising awareness for ataxia by decorating 1 of 35, 8-12 foot Christmas trees, in the town center of Exeter, Devon. Thank you West Country Branch for raising awareness & we hope that ALL those Christmas wishes come true!

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Friedreich's Ataxia News @Friedreichsatax

4 years ago

Columnist Kendall Harvey has only one wish for Christmas: to find contentment with herself and learn to live better with Friedreich's ataxia. buff.ly/3oDZWIX #friedreichsataxia #friedreichsataxianews #livingwithfriedreichsataxia

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Ataxia UK @AtaxiaUK

4 years ago

Here is a list of the online & in-person Support Group meetings happening this week. You can find a full list of all groups this month and guidance on how to stay safe while at meetings over on our website: bitly.ws/jSrm Confirm your attendance: bitly.ws/hWfp

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Friedreich's Ataxia News @Friedreichsatax

4 years ago

The U.S. Food and Drug Administration (FDA) has granted its fast track designation to Reata Pharmaceuticals’ oral candidate omaveloxolone for Friedreich’s ataxia (FA). Read more here: buff.ly/32XlnvX #friedreichsataxia #friedreichsataxianews #livingwithfriedreichsataxia

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Ataxia UK @AtaxiaUK

4 years ago

At #AtaxiaUK, we want to provide a speech therapy group & the opportunity for people at risk of losing their voice to bank it. You can donate via the Big Give and double your donation for no extra cost! Donate: bit.ly/3d4bL4A Mark's story: bitly.ws/jMzw

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Friedreich's Ataxia News @Friedreichsatax

4 years ago

Do you experience slurred speech as a symptom of FA? Have you tried using dictation software to help you communicate clearly? Join the conversation about this topic in our FA forums. buff.ly/3lvCsCK #friedreichsataxia #friedreichsataxianews #livingwithfriedreichsataxia

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Ataxia UK @AtaxiaUK

4 years ago

𝐓𝐡𝐞 𝐒𝐭𝐮𝐝𝐞𝐧𝐭 𝐕𝐨𝐢𝐜𝐞 𝐏𝐫𝐢𝐳𝐞 𝐢𝐬 𝐧𝐨𝐰 𝐨𝐩𝐞𝐧! #DareToThinkRare This is an essay competition which raises the profile of rare diseases within the medical field and is hosted by Findacure and Medics4RareDiseases. More info at: findacure.org.uk/student-voice-…

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Tony Foskett @tonyfoskett10

4 years ago

Football manager on ps5 a please make it happen! @SIgames @PlayStation @presjimryan

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Friedreich's Ataxia News @Friedreichsatax

4 years ago

Reata Pharmaceuticals is planning to ask the U.S. Food and Drug Administration (FDA) to approve omaveloxolone to treat people with Friedreich’s ataxia (FA) early in 2022, following the completion of a preliminary meeting with the agency. Read more: buff.ly/3p6bAg8

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Ataxia UK @AtaxiaUK

4 years ago

The company have identified antisense oligonucleotides (ASOs) for SCA and DRPLA. ASOs block the ability of a certain gene to make a protein. Q-State Biosciences have seen positive results in cell and animal models. #AtaxiaUK #DRPLA #SCA Press release: bit.ly/30cFJzX